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WFH awards presented during WFH 2024 World Congress

The World Federation of Hemophilia (WFH) and its national member organizations (NMO) are powered by dedicated individuals who believe that together, a better future can be brought to those living with a bleeding disorder around the world. WFH awards serve to recognize these individuals who have dedicated their time to supporting our shared vision of Treatment for All.

Also available in: Français Español

During the WFH 2024 World Congress, six WFH awards were bestowed—to individuals and one organization—recognizing their contributions to the global inherited bleeding disorders community.

International Lifetime Achievement Award

Jan Willem Andre de la Porte—a former WFH Patron—was presented with the International Lifetime Achievement Award, honouring his exemplary leadership, compassion, and commitment to youth within the bleeding disorders community.

Jan Willem Andre de la Porte first became involved with the WFH in 1994 and led the fundraising committee for many years. At WFH Congresses, he has mentored numerous youth fellows, sharing his experiences and offering invaluable guidance. With an international background spanning the Netherlands, South Africa, and now Belgium, his advocacy efforts are informed by a unique perspective.

International Frank Schnabel Volunteer Award

Former WFH Board member and Chair of the Youth Committee, Deon York, received the International Frank Schnabel Volunteer Award in recognition of his global contributions to training and advocacy work.

Deon York has been involved with the New Zealand NMO since the late nineties, holding many board-level positions, and currently serving as their Board Chair. He has contributed to the WFH through the WFH Congress Multidisciplinary Committee, played a key role in developing the Global NMO Training program, and currently mentors in the PACT Advocacy Academy and supports the Fiji NMO through the HOT Twinning Program.  

WFH International Healthcare Volunteer Award

Sukesh Nair, MD, former chair of the WFH Lab Sciences Committee, was awarded the WFH International Healthcare Volunteer Award for his commitment to patient care, education, global healthcare enhancement and external quality control.

As a strong advocate of external quality control, Sukesh Nair’s leadership as Chair of the International External Quality Assessment Scheme (IEQAS) committee has helped  enhance the program’s success. His support has been instrumental in establishing IEQAS in the Philippines, China, Thailand, Sri Lanka, Egypt and South Africa. As Vice Chair—and, later, Chair of the Lab Sciences committee—he contributed to the success of IEQAS during a period where diagnosis became an increasingly important focus for the WFH.

 

Bülent Zülfikar, MD, President of the Hemophilia Society of Turkey

WFH President’s Award

The Hemophilia Society of Turkey received the WFH President’s Award for their exemplary support of patients and healthcare providers, spanning beyond Turkey to countries like Azerbaijan, Kyrgyzstan, Lebanon, Palestine, and Syria.

The society’s efforts include hosting summer camps, and training and education programs for healthcare providers and patients as well as their parents from neighbouring countries. They also provide essential care for individuals and refugees from Syria, Lebanon and Palestine. Additionally, they’ve collaborated on significant initiatives like the WFH 2008 World Congress in Istanbul and the WFH Twinning Program—proof of their commitment to global advancement.

Christine Lee Young Researcher Award

Geneviève McCluskey and Rodrigo Núñez-Cortés received the Christine Lee Young Researcher Award for best oral and best poster, respectively. 

To find out more about WFH awards, please click here.

Lastest News

WFH awards presented during WFH 2024 World Congress

The World Federation of Hemophilia (WFH) and its national member organizations (NMO) are powered by dedicated individuals who believe that together, a better future can be brought to those living with a bleeding disorder around the world. WFH awards serve to recognize these individuals who have dedicated their time to supporting our shared vision of Treatment for All....

Other Congress News

WFH 2024 World Congress concludes on high note

The WFH 2024 World Congress has officially concluded! Held from April 21 to 24 in Madrid, Spain, the event attracted over 3,000 delegates from 135 countries. The Congress was the most comprehensive international event on bleeding disorders this year, and the first fully in-person event for the WFH since the…

2024 Congress Daily morning edition: Wednesday, April 24

Good morning and welcome to Day 3 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Tuesday, April 23

Good evening! Here’s a quick wrap-up of some key events that took place on Day 2 of the WFH 2024 World Congress….

2024 Congress Daily morning edition: Tuesday, April 23

Good morning and welcome to Day 2 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Monday, April 22

Good evening! Here’s a quick wrap-up of some key events that took place on Day 1 of the WFH 2024 World Congress….

2024 Congress Daily morning edition: Monday, April 22

Good morning and welcome to Day 1 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Sunday, April 21

Good evening! Here’s a quick wrap-up of some key events that took place today. We look forward to welcoming you to the official first day of the WFH 2024 World Congress tomorrow….

2024 Annual Meeting of the General Assembly held

The World Federation of Hemophilia (WFH) 2024 Annual Meeting of the General Assembly was held today in Madrid, Spain, as part of the WFH 2024 World Congress. The meeting featured reports given by WFH board members and was attended by WFH national member organizations (NMOs)….

2024 Congress Daily morning edition: Sunday, April 21

Good morning and welcome to the WFH 2024 World Congress! Check in on this page daily in the mornings and evenings to learn about what not to miss, and to get a recap of the key events that took place during the day….

WFH 2024 World Congress just around the corner

After two years of anticipation, the WFH 2024 World Congress is finally here! In just a few days, thousands of visitors will come to Madrid to take part in the most comprehensive international event in the bleeding disorders community. If you haven’t already, it’s not too late to book your…

Earn CME credits at the WFH 2024 World Congress

The WFH 2024 World Congress—taking place in just a few weeks from April 21 to 24!—has been accredited for 32 CME credits by the European Board for Accreditation in Hematology (EBAH), an accreditation body supported and endorsed by the European Hematology Association (EHA)….

WFH 2024 World Congress speakers share passion on Instagram reels

The WFH 2024 World Congress is coming soon! People from all around the world are getting excited about joining their colleagues in Madrid this April. This includes our many registrants, as well as the speakers, industry stakeholders, key opinion leaders, and other movers and shakers who will be coming together…

New free paper sessions added to Congress program

The WFH 2024 World Congress is just a few weeks away, and we’re happy to announce that ten new free paper sessions have been added to the program. The sessions will showcase top-scoring abstracts submitted by experts in the field. Take part in these sessions and delve into groundbreaking research…

Expand your horizons with free workshops at the WFH 2024 World Congress

The WFH 2024 World Congress will kick-off on Sunday, April 21, 2024, at 8:00 a.m. CEST, with more than ten interactive professional development workshops—offered free to all registered attendees. These workshops will give participants a unique opportunity to interact closely with experts and peers and get hands-on experience on a…

Add these to your agenda! Key sessions at the WFH 2024 World Congress

In December, we highlighted eight key sessions from the WFH 2024 World Congress that are not to be missed. Today, we bring you eight new sessions you’ll want to add to your agenda for this April in Madrid. These talks will explore a wide range of topics within the Medical…

Top 5 reasons to attend the WFH 2024 World Congress

If you’re interested in attending the largest meeting for the bleeding disorders community this year, then look no further than the WFH 2024 World Congress. In just a few months, we will welcome people from around the world to Madrid, Spain, to learn about the very latest developments in our…

Don’t miss speakers: WFH 2024 World Congress

Welcome to 2024—the year of the WFH 2024 World Congress! In just a few months, the World Federation of Hemophilia (WFH) will be welcoming thousands of delegates to Madrid for the biggest event for our community this year. Participants can expect to enjoy over 90 hours of educational sessions across…

Don’t miss sessions: WFH 2024 World Congress

The WFH 2024 World Congress program has been published! Next year’s Congress will include over 90 hours of educational sessions across medical and people with bleeding disorders (PWBDs) tracks, as well was six professional development tracks. You can take a look at the full Program now to see what’s on…

WFH 2024 World Congress: Madrid, Spain’s exciting capital

The World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) are excited to welcome the global bleeding disorders community to the WFH 2024 World Congress in Madrid, Spain next year from April 21 to 24. This in-person event will be the most the comprehensive international event on…

Abstract submission deadline extended

Great news for researchers who want to showcase their work to the world: the WFH 2024 World Congress abstract deadline has been extended to November 30, 2023, at 11:59 p.m. ET….

You’re officially invited to the WFH 2024 World Congress

On behalf of Cesar Garrido, President of the World Federation of Hemophilia (WFH) and Daniel-Aníbal García Diego, President of La Federación Española de Hemofilia (Fedhemo), you are officially invited to the WFH 2024 World Congress in Madrid, Spain! Taking place from April 21 to 24, 2024. This event will be…

It’s official! Registration and accommodations open for WFH 2024 World Congress

Registration and accommodations are officially open for the WFH 2024 World Congress in Madrid, Spain from April 21 to 24. Our competitive registration rates and our many hotel options make it easy for you to take part in what will be the biggest event for the global inherited bleeding disorders…

WFH 2024 World Congress call for abstract submissions opening soon!

Next year, the World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) will host the WFH 2024 World Congress in Madrid, Spain, from April 21 to 24. The event will be the most comprehensive one of the year in our field, with over 90 hours of continuing…

Learn more about the WFH 2024 World Congress

Next year will be a big one for the global bleeding disorders community, as the World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) will host the WFH 2024 World Congress in Madrid, Spain, from April 21 to 24. The event will be the most comprehensive one…

Mark your calendars! WFH 2024 World Congress coming to Madrid next year

The World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) are excited to welcome the global bleeding disorders community to the WFH 2024 World Congress in Madrid, Spain next year from April 21 to 24….

WFH 2024 World Congress to take place in Madrid

Today, an Extraordinary Meeting of the of the World Federation of Hemophilia (WFH) General Assembly (GA) was called to decide the location of the WFH 2024 World Congress. We are pleased to announce that Madrid, Spain, has been selected as the location for the next WFH World Congress. The NMO,…

WFH to call special meeting of the General Assembly

The COVID-19 pandemic has had major impacts on the bleeding disorders community over the last two years, including the cancellation or postponement of events. Changes related to these effects have now necessitated the calling of a special World Federation of Hemophilia (WFH) General Assembly (GA) meeting to decide the location…

New Associate NMO: Safe Motherhood and Hemophilia Foundation The Gambia

On May 7, 2022, during the World Federation of Hemophilia (WFH) Annual Meeting of the General Assembly, the Safe Motherhood and Hemophilia Foundation The Gambia (SMHF) was welcomed as a WFH associate national member organization (NMO). The SMHF is now part of a family of 147 NMOs from around the…

Complimentary On-Demand 2022 Congress content now available

The WFH 2022 World Congress was an immense success with thousands of attendees joining from 145 countries, both in-person in Montreal and virtually. The WFH is now happy to offer you complimentary On-Demand content from the event….

Ekawat Suwantaroj co-opted to WFH Board of Directors

The World Federation of Hemophilia (WFH) is very pleased to announce that Ekawat Suwantaroj has been co-opted to its Board of Directors as a lay member from May 26, 2022, to the next Annual Meeting of the General Assembly in 2024….

General Plenary: VP Medical address with Glenn Pierce

At the WFH 2022 World Congress in Montreal, Canada, Glenn Pierce, MD, PhD, Vice President Medical at the World Federation of Hemophilia (WFH), gave his plenary address, “Looking Forward with the View of Learnings of the Past”. In his presentation, Pierce addressed where we are, and where we need to…

WFH 2022 World Congress concludes on high note

The WFH 2022 World Congress concluded today in Montreal. Many guests gathered for the farewell dinner in a comfortable setting that reflected the positive feeling and sense of camaraderie that was present for the whole Congress….

The challenge of evaluating and managing pain

Today, the session “The challenge of evaluating and managing pain” was given at the WFH 2022 World Congress. The event was chaired by Barbara Konkle, Research Director and Professor of Medicine at the Washington Center for Bleeding Disorders, U.S.A., and World Federation of Hemophilia medical board member….

We are looking forward to seeing you in Buenos Aires and Kuala Lumpur!

On behalf of everyone at the WFH, thank you for being part of the WFH 2022 World Congress in Montreal, Canada….

WFH Humanitarian Aid Program officially signs new contract with CSL Behring

In April, the WFH and WFH USA announced a new WFH Humanitarian Aid Program partnership with CSL Behring which included a donation of 500 million IUs of factor VIII in addition to the original 3-year commitment of 17 million IUs per year of factor VIII and IX….

Magdy El Ekiaby receives 2022 WFH International Healthcare Volunteer Award

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions help drive our progress towards the WFH vision of Treatment for All….

Today at the WFH 2022 World Congress – May 11

Welcome to day 4 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today….

Hemophilia gene therapy: update on new country initiatives

Today, “Hemophilia gene therapy: update on new country initiatives” was held at the WFH 2022 World Congress in Montreal, Canada. The talk was chaired by Alok Srivastava, Professor at the Department of Hematology – Christian Medical College, Vellore, India, and covered gene therapy developments at the country level. Gene therapy…

Free paper session: Oral health

The WFH 2022 World Congress in Montreal, Canada today held a session called “Free paper session: Oral health”….

Memorial art: remembering the past, changing the future

What role does the memorialization of tragedy play in healing? What roles do story-based memorials offer that names-based memorials can’t? Some of these questions were explored today at the WFH 2022 World Congress….

Perspectives on curing hemophilia

“Perspectives on curing hemophilia” was held at the WFH 2022 World Congress in Montreal, Canada….

Plenary: Gene therapy – are we ready now?

Hemophilia therapy has evolved from rudimentary transfusion-based approaches to an unprecedented level of innovation with the potential of a functional cure brought by gene therapy….

Roche extends commitment to WFH Humanitarian Aid Program

The World Federation of Hemophilia (WFH) and WFH USA are pleased to announce that Roche will extend its commitment to the WFH Humanitarian Aid Program until the end of 2028….

Humanitarian Aid, a path to sustainable care

At the WFH 2022 World Congress in Montreal, Canada, the many successes of the WFH Humanitarian Aid Program were covered in the session, “Humanitarian Aid, A path to sustainable care”. The event was chaired by Glenn Pierce, MD, PhD, Vice President Medical, World Federation of Hemophilia (U.S.A)….

Don’t miss: WFH Twinning event to celebrate long lasting partnerships

The World Federation of Hemophilia (WFH) Twinning Program creates collaborative partnerships between hemophilia treatment centres (HTCs), patient organizations and their youth groups to help improve treatment and care for people living with an inherited bleeding disorder around the world….

Today at the WFH 2022 World Congress – May 10

Welcome to day 3 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

Health issues in women and girls affected by hemophilia

The session, “Health issues in women and girls affected by hemophilia with a focus on nomenclature, heavy menstrual bleeding, and musculoskeletal issues” was held today at the WFH 2022 World Congress in Montreal, Canada. Chaired by Roseline d’Oiron, Director at the Reference Centre for Haemophilia and Congenital Bleeding Disorders, University…

Changing treatment, changes diagnosis

Today, “Changing treatment, changes diagnosis” was held at the WFH 2022 World Congress in Montreal, Canada….

Susan Skinner Memorial Fund Scholarship empowers women—you’re invited!

Despite the uncertainties leading up to the WFH 2022 World Congress, the 2022 Susan Skinner Memorial Fund Scholarship (SSMF) recipients have still been able to connect in person….

Young Researchers free paper sessions – part 1

Today, “Young Researchers free paper sessions – Part 1” was held at the WFH 2022 World Congress in Montreal, Canada. The talk was chaired by Johnny Mahlangu, Professor at the University of the Witwatersrand and NHLS, Johannesburg, South Africa….

WFH President Cesar Garrido delivers plenary talk at Congress

Today at the WFH 2022 World Congress in Montreal, Canada, WFH President Cesar Garrido delivered his plenary to participants and the greater global bleeding disorders community….

Nurul Islam receives 2022 WFH President’s Award

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

Introducing the myWBDR mobile app: a new WBDR data collection tool

There’s a new data collection tool that people with hemophilia (PWH) can use with the WFH World Bleeding Disorders Registry (WBDR)!…

Today at the WFH 2022 World Congress – May 9

Welcome to day 2 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

Michael Soucie receives 2022 WFH International Lifetime Achievement Award

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

Bradley Rayner receives 2022 WFH International Frank Schnabel Volunteer Award

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

PROGRAM CHANGES: WFH 2022 World Congress

Please note that there have been changes to the program for the WFH 2022 World Congress….

Live demonstrations of WFH resources in exhibition hall

Live demonstrations of WFH Data Collection platforms and our enhanced eLearning Platform are taking place at the WFH Resource Centre in the exhibition hall!…

Today at the WFH 2022 World Congress – May 8

Welcome to day 1 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

2022 Annual Meeting of the General Assembly held

The World Federation of Hemophilia (WFH) 2022 Annual Meeting of the General Assembly was held today in Montreal, Canada. Several positions were affirmed with the re-election of incumbents; new board members were voted in; and several national member organizations (NMOs) joined the WFH family as full or associate NMOs….

LAST CHANCE TO REGISTER VIRTUALLY FOR THE WFH 2022 WORLD CONGRESS!

There is still time to register virtually for the WFH 2022 World Congress and enjoy select sessions and content from the comfort of your home or office….

WFH 2022 WORLD CONGRESS – Time is running out!

You can still join us in person or virtually for the WFH 2022 World Congress. Online registrations for the in-person component of the WFH 2022 World Congress are open until midnight EST on Sunday, May 1….

WFH 2022 World Congress – final program available!

The final program for the WFH 2022 World Congress is now available! Read about all the sessions we’re offering this year in our Program at a glance and Schedule at a glance….

Don’t miss sessions: WFH 2022 World Congress

The WFH 2022 World Congress is coming soon! Next month—from May 8 to 11, 2022—the hybrid Congress will bring you the latest medical and multidisciplinary developments in our field. Here are five sessions you shouldn’t miss this May….

WFH 2022 World Congress: latest program updates!

COVID-19 restrictions are being lifted throughout Canada! As of right now, the vaccination passport in no longer required in Quebec. As of April 1, 2022, there will no longer be pre-arrival COVID-19 testing requirements for visitors to Canada. For more information, read Pandemic restrictions in Montreal: what you need to…

WFH 2022 World Congress: the hybrid format has an option for everyone!

The WFH 2022 World Congress will be held as a hybrid event, allowing delegates to join in-person at the Montreal convention centre or online via the virtual platform….

Pandemic restrictions in Montreal: what you need to know

Almost all major COVID-19 restrictions will be easing in Montreal, Canada in the coming weeks, making it possible for the World Federation of Hemophilia (WFH) to offer the WFH 2022 World Congress in a hybrid format from May 8 to 11, 2022. You can attend Congress virtually and in person—and…

Take advantage of the early bird rate and save today!

Register for the WFH 2022 World Congress before March 11, 2022, and save up to 20% on registration fees!…

The WFH 2022 World Congress will take place as scheduled in May 2022

Around the world, COVID-19 pandemic restrictions are being lifted, and Montreal is no exception. Congress halls, restaurants and other venues are now reopening to their full capacity and travel will be easier starting in March. In many countries, the loosening of restrictions will continue in the coming weeks….

Call for late-breaking abstracts now open

The WFH 2022 World Congress—a major event in the international bleeding disorders community this year—is just around the corner! The WFH is happy to announce that the call for late-breaking abstracts is now open….

Submit your memorial art at the WFH 2022 World Congress

Memorial art—which is used to honour and remember people lost due to a tragedy—has many forms. Well known examples are the NAMES Project AIDS Memorial Quilt, and the Vietnam Veterans Memorial….

Program at a glance: WFH 2022 World Congress

As 2021 draws to a close, the World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) are both gearing up to bring you the WFH 2022 World Congress from May 8 to 11, 2022….

Abstract submission deadline is coming soon!

It’s not too late to submit your abstract for the WFH 2022 World Congress taking place in Montreal, Canada next year. The deadline to submit an abstract is November 22, 2021, at 11:59 PM ET. Submissions must be done online through the abstract scorecard, and cannot be done via email….

Montreal: ready to host the WFH 2022 World Congress

Next year, the World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) will be welcoming the global bleeding disorders community to Montreal, Canada for the WFH 2022 World Congress from May 8 to 11, 2022….

WFH 2022 World Congress registration and abstract submission now open!

The WFH is pleased to officially invite you to the WFH 2022 World Congress—the first major hybrid event in the international bleeding disorders community! Registration is now open, and so is the call for abstracts….

Montreal to welcome WFH 2022 World Congress

The World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) are excited to welcome the global bleeding disorders community to the WFH 2022 World Congress—the first major hybrid event of the international bleeding disorders community….

Amanda Brito del Pino: Q&A with a Susan Skinner Memorial Fund recipient

Amanda Brito del Pino is a 2018 SSMF Scholarship recipient. We asked her a few questions about what it means to receive a SSMF Scholarship….

WFH Humanitarian Aid Program: catalyst towards global change

The highly-anticipated and well-attended “WFH Humanitarian Aid Program: Catalyst towards global change” session was one of the most popular sessions of this year’s Congress and delegates left with a broader understanding of the efforts of the World Federation of Hemophilia (WFH) to reach Treatment for All….

Global VWD Call to Action promoted at Congress

Luisa Durante, Program Development Manger, World Federation of Hemophilia (WFH) gathered people with von Willebrand disease (VWD) at the Resource Centre of the WFH 2018 World Congress to promote the Global VWD Call to Action….

Jeanne White-Ginder: mother of Ryan White

Hear the Ryan White Story as told by his mother, Jeanne White-Ginder. Ryan was a boy living with hemophilia and diagnosed with AIDS following a transfusion of tainted clotting factor in December 1984….

We’ve accomplished a lot this year, we need your help to continue strong.

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