In 2018, the WFH launched the World Bleeding Disorders Registry (WBDR), providing HTCs with a simple solution to collect data. The WBDR is designed to collect standardized clinical data on people with hemophilia from a large network of hemophilia treatment centres (HTC) all around the globe. The WFH is happy to announce that 10,000 people with hemophilia (PWH)—and counting—have taken part in the WBDR, and, in doing so, have played an important part in improving patient care worldwide.
“When I read my acceptance letter, I began to shout ‘Susan Skinner! Susan Skinner!’ My husband had no clue what was going on. I couldn’t believe that a woman from Lesotho could be selected for such an amazing opportunity.” —Mamolibeli Mohlaoli, 45, Lesotho, Susan Skinner Memorial Fund Scholarship recipient.