The World celebrates World Hemophilia Day 2026

The World celebrates World Hemophilia Day 2026

This year’s theme of “Diagnosis: First step to care” highlights the critical importance of diagnosis—the essential first step in treatment and care. The WFH estimates that over three-quarters of the population of people with hemophilia worldwide are undiagnosed, and an even more significant gap also exists for other bleeding disorders. This means that hundreds of thousands of people with bleeding disorders around the world still lack access to basic care. We have the power—and the shared commitment—to change this. We can improve diagnostic outcomes by strengthening the skills of healthcare professionals and enhancing the effectiveness of laboratories. By increasing global diagnosis rates, we can move one step closer to our shared vision of Treatment for All.

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Hundreds of gatherings took place in different cities around the world on April 17 in celebration of World Hemophilia Day. Dozens of stories were shared on the World Hemophilia Day story site—where anyone can share a story or a video about their experience with hemophilia.

While it’s hard to single out stories from the many submissions we received on the story site, here are some that we would like to share with you. Click on a picture to read the full story or watch the video.

WHD story Tianshuai
Tianshuai (China)
Mahadeva Nanjappa
Mahadeva Nanjappa (India)
Wissem Sammoud (Tunisia)
Hanan Hussin (Libya)
Adam Trojanczyk (Poland)
Fathimath
Fathimath (Maldives)
Augusto Emanuel Garcia
Augusto Emanuel Garcia (Argentina)
Francisco Diaz Solar
Francisco Diaz Solar (Chile)
Leddah Ira Agustin
Leddah Ira Agustin (Philippines)
Akashah Al-Qasim
Akashah Al-Qasim (Sudan)

On behalf of the WFH and everyone in the bleeding disorders community, thank you for your support on World Hemophilia Day.

To learn more about this important event for the bleeding disorders community, please click here.

The WFH would like to thank our 2026 World Hemophilia Day sponsors for their continued support: Bayer, BioMarin Pharmaceutical Inc., CSL Behring, F. Hoffman-La Roche Ltd., Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma, Pfizer, Regeneron, Sanofi, Sobi, and Takeda.

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.