Annual Global Survey

The Annual Global Survey is a yearly cross-sectional survey of WFH national member organizations (NMOs) that includes country-level demographic and treatment-related data on people with hemophilia (PWH), von Willebrand disease (VWD), rare factor deficiencies, and inherited platelet disorders.

ABOUT THE AGS

Data Collection for the Annual Global Survey 2023 has officially begun! We are now collecting data for 2023 Annual Global Survey. For any questions or comments regarding the 2023 Annual Global Survey, please email [email protected].

Important Dates
Data submission deadlineMay 31
Data and Demographics Committee preliminary reviewJuly
Final validation of country dataJuly 30
Publication of the Report on the Annual Global SurveyOctober
Annual Global Survey Logo

The Report on the WFH Annual Global Survey 2024 is now available!

Report on the WFH Annual Global Survey 2024

In the report on the Annual Global Survey 2024, the data are broken down into two sections: one section includes historical global data that portrays the growth in patient identification and reporting over time and the other shows the data for this specific year. In 2024, a record breaking 135 national member organizations (NMOs) contributed to the report. The WFH is appreciative of all the efforts our national member organizations (NMOs) made in gathering this important data.

Supplementary charts and graphs are available online to provide more information and further analysis on people with bleeding disorders. Please credit the WFH when Annual Global Survey data are used in presentations, publications, or other research material. We encourage researchers to contact us at [email protected] when they use WFH Annual Global Survey data. Any questions or comments related to the survey can be addressed to [email protected].

INTERACTIVE GRAPHS

The WFH has developed interactive and informative visualizations to summarize Annual Global Survey data. This system allows for easier and faster analysis and report creation. View and download graphs of Annual Global Survey data using our new system.

For more information, contact [email protected].

Did you know?

The Gene Therapy Registry (GTR) is a prospective, observational, and longitudinal registry designed to collect long-term data on PWH who receive gene therapy.

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.