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Take part in the biggest event for the global bleeding disorders community this year–and save!
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The WFH is happy to announce the 2021 Twins of the Year! The 2021 Hemophilia Organization Twinning (HOT) Program Twins of the Year are Palestine-Venezuela, and the 2021 Hemophilia Treatment Centre Twinning (HTC) Program Twins of the Year award is shared by Addis Ababa (Ethiopia)-Minneapolis (U.S.A) and Tehran (Iran)-Milan (Italy).
In 2018, the WFH launched the World Bleeding Disorders Registry (WBDR), providing HTCs with a simple solution to collect data. The WBDR is designed to collect standardized clinical data on people with hemophilia from a large network of hemophilia treatment centres (HTC) all around the globe. The WFH is happy to announce that 10,000 people with hemophilia (PWH)—and counting—have taken part in the WBDR, and, in doing so, have played an important part in improving patient care worldwide.
The WFH Humanitarian Aid Program collaborates with national member organizations (NMOs) and hemophilia treatment centres (HTCs) to understand their country-specific needs and help them provide predictable and sustainable treatment to the people in their communities. In Guyana, the NMO has been developing closer links with medical facilities in the past several years, which has had a positive impact on PWBDs in the South American country.
Catch up on content you may have missed from the WFH 2022 World Congress! The WFH is happy to offer complimentary On-Demand content from key Congress sessions, available until July 11.