TRAVEL & ACCOMMODATIONS

MADRID, SPAIN    APRIL 21‑24, 2024

ORGANIZED BY:

HOSTED BY:

Travel & Accommodations

Also available in: Français Español

WFH 2024 World Congress
[email protected]

ORGANIZED BY:
World Federation of Hemophilia

HOSTED BY:
Federación Española de Hemofilia

The World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) are excited to welcome the global bleeding disorders community to the WFH 2024 World Congress in Madrid, Spain next year from April 21 to 24.

ACCOMMODATIONS

The WFH Housing Bureau offers WFH 2024 World Congress participants carefully selected hotels with competitive room rates, all within a 20-minute drive of the Adolfo Suárez Madrid–Barajas Airport. All WFH selected hotels offer a complimentary shuttle to and from the IFEMA Convention Center.

Attendees will be able to register for hotel accommodations using the online congress registration process. We ask that all attendees use the centralized online housing system during online registration to make reservations. This will ensure that you receive the best negotiated rates from Sunday, April 21 to Wednesday, April 24. All rates are inclusive of basic internet access, breakfast, and all state and local taxes. A complimentary shuttle is provided between the WFH hotels and the IFEMA Convention Center.

Scam alert! Beware of unauthorized housing companies

Please be vigilant if approached by any housing service other than the WFH World Congress Secretariat or the WFH Housing Bureau ([email protected]) that implies or claims to be the “official housing provider” for the WFH 2024 World Congress.

Reservations made through an agency other than the WFH World Congress Secretariat and Housing Bureau will be at your own risk. Please inform us at [email protected] if you are approached by any agency that claims to represent the WFH.

Official WFH 2024 World Congress hotels

Hotel Rate/night (USD*) Breakfast Internet Congress shuttle
Hotel H10 Tribeca
Standard room - one bed
$188*
20 min by shuttle
Novotel Madrid Center
Standard room - one bed
$199*
20 min by shuttle
RIU Plaza España
Standard room - one bed
$278*
20 min by shuttle
AC Hotel by Marriott Cuzco
Standard room - one bed
$295*
20 min by shuttle
Meliá Castilla
Standard room - one bed
$302*
20 min by shuttle
Novotel Madrid Campo de las Naciones
Standard room - one bed
$337*
10 min walk
Pullman Madrid Airport & Feria
Standard room - one bed
$350*
10 min walk

MAKING YOUR RESERVATION

Why book through the official WFH Housing Bureau?

Booking through the WFH Housing Bureau offers you many benefits, including the following:

  • Guaranteed preferential rates at participating hotels listed as part of the WFH 2024 World Congress
  • No booking fees or surprise costs since all rates are inclusive of Wi-Fi and all taxes
  • Secure and safe booking transactions
  • Dedicated email address and on-site staff for assistance
  • Complimentary shuttle transportation to and from the IFEMA Convention Center

Official WFH hotel booking website

The easiest and most secure way to complete your reservation is through our online reservation system. Please note that only payments by credit cards (Visa or MasterCard) are accepted online. The hotels will be available until March 22, 2024 (or until the hotel blocks are sold out). After March 22, 2024, hotel rooms are subject to availability and rates cannot be guaranteed. Please send an email to [email protected] to check availability after March 22, 2024.

A group reservation consists of ten or more rooms. One contact person should be designated to act as the group coordinator and be responsible for all correspondence with the WFH Housing Manager.

If you wish to book ten rooms or more, please check the hotel list for your preferred hotel, download and fill out the Group Hotel Request Form, specifying the number of rooms required per day, and return it by e-mail to [email protected]. Please do not send it directly to the hotel.

The WFH Housing Bureau will reply to your request within three (3) working days. Please note that hotel blocks are assigned on a first-come, first-served basis.

The required deposit may be made by credit card (Visa or Mastercard) or wire transfer. From March 1, 2024, only payments by credit card will be accepted. Any inquiries or requests for additional information, modifications or cancellations to room reservations should be addressed to the WFH Housing Bureau in writing. Please do not contact the hotel directly.

    1. Credit card payment: The WFH Housing Bureau will charge your credit card with a deposit equal to one (1) night of your entire accommodation. This deposit is non-refundable. Fifty (50) days prior to the event (March 1, 2024), you will be charged the balance of your full stay. Room reservations will be confirmed once the WFH Housing Bureau has received your completed reservation request with a valid credit card number.
    2. Wire transfer: If you are unable to provide a credit card guarantee (by Visa or Mastercard), please complete the reservation using the online booking tool, and select wire transfer as the method of payment. You will be invoiced for a deposit equal to one hundred per cent (100%) of your total accommodation cost, in USD. Your hotel reservation will not be confirmed unless full payment is received within seven (7) business days upon receipt of your invoice. Please do not process a wire transfer until you receive your invoice. You can see our USD account information, here.

A hotel confirmation email will be sent within 48 hours of receipt of your reservation request. The confirmation will include the name and address of the hotel and the cost per night. Please do not contact the hotel directly as all reservations will be handled by the WFH Housing Bureau.

Any change or cancellation of your registration must be sent in writing to [email protected]. A confirmation of the reservation change or cancellation will be forwarded to you. All requests are subject to the following conditions:

  • No name changes are permitted
  • If your reservation is 100% prepaid, the cancellation requests must be received on or before March 1, 2024
  • A refund will be issued less an administrative fee equal to one night’s accommodation
  • For cancellations received after March 1, 2024, no refunds will be granted
  • If you paid the 1-night deposit only your deposit is non-refundable
  • Should you need to check out earlier than planned, no refunds will be granted
  • All refunds (if applicable) will be processed within 30 days after the end of the event

We ask that all attendees register and book their hotel room at the same time through the online registration link. This will ensure that your event registration is linked to your hotel reservation. It will also ensure that you receive the best negotiated rate for your room. For those who are unable to register for the Congress at this time, but would still like to book their hotel accommodations, please contact [email protected].

Please direct all housing enquiries to:

WFH Housing Bureau
1425, boul. René Lévesque Ouest, Bureau 1200 Montréal, Québec H3G 1T7 Canada
Tel: +1 (514) 394-2834 Fax: +1 (514) 875-8916 Email: [email protected]

ACCOMMODATIONS FAQ

Q
Why book through the official WFH Housing Bureau?
A

Booking through the WFH Housing Bureau offers you many benefits, including the following:

  • Guaranteed preferential rates at participating hotels listed as part of the WFH 2024 World Congress
  • No booking fees or surprise costs since all rates are inclusive of Wi-Fi and all taxes
  • Secure and safe booking transactions
  • Dedicated email address and on-site staff for assistance
  • Complimentary shuttle transportation to/from the IFEMA convention center
Q
How do I book and pay for my hotel room?
A

Registration and housing must be done simultaneously by using the online registration link. A one-night deposit will be charged to confirm the hotel reservation. This deposit can be made by credit card (Visa or Mastercard) or bank transfer. Should you need to cancel, there is a 1-night penalty if cancelled. Please send an email to [email protected] for hotel bookings of 10 rooms or more.

Q
Do we contact the hotel directly for new reservations or changes to existing reservations?
A

The WFH Housing Bureau is the only official WFH 2024 hotel agency, so hotel rooms must be booked directly through the bureau. Please do not contact the hotel directly for reservations or for changes to your reservation. For requests or changes, please send an email to [email protected].

Q
I have a specific question about the hotel, can I contact the hotel directly, or should I contact the WFH Housing Secretariat?
A

For any questions about the hotel in general, or your hotel reservation, please contact the WFH Housing Bureau at [email protected].

Q
I called the hotel, and they have no record of my reservation. What should I do?
A

Reservations are held with the WFH until April 1, 2024. After that date, the list of names is sent to the hotels.

Q
Do any of the WFH hotels offer smoking rooms?
A

All WFH selected hotels are fully non-smoking properties.

Q
Are any of the WFH hotels accessibility friendly?
A

All WFH selected hotels are fully accessible.

Q
Can I reserve early check in or late checkout?
A

You can submit early check in and/or late checkouts requests and the hotels will do their best to accommodate your request. For guaranteed early check ins and late checkouts, one additional room night will be charged.

Q
What happens if the WFH 2024 Congress is cancelled?
A

Your room reservation is 100% refundable in case the Congress is cancelled due to COVID-19 or another unavoidable circumstance. This is only applicable for room reservations directly made via the WFH Housing Bureau. If you have booked your room via another agent or platform, this cancellation policy will not apply.

SHUTTLE SERVICE

The WFH will be providing a shuttle service between the official WFH hotels and the IFEMA Convention Center on Congress days (April 21 to 24). Shuttles will travel between the Meliá Castilla, AC Cuzco, Hotel H10, and RIU Plaza España. Shuttles will depart approximately every thirty minutes and will loop continuously throughout the morning and late afternoon. WFH 2024 Congress signs will be posted at all boarding sites identifying the location as a WFH Shuttle pick-up and drop-off site.

Please send an email to [email protected] if you require an ADA compliant shuttle.

TRAVEL

The WFH encourages all delegates to travel to the Congress in the most sustainable way possible. Consider your options:

Madrid’s main airport is called Adolfo Suárez Madrid–Barajas Airport. For more information about Adolfo Suárez Madrid-Barajas airport, consult the airport’s website here.


metro

Metro line 8 (pink) allows you to travel from the four airport terminals to the city centre (Nuevos Ministerios station) in less than half an hour.


bus

Line 200, which runs from 6:00 a.m. to 11:30 p.m. and passes through all terminals, will take you to Avenida América station in half an hour for €1.50. From this station you can connect with other metro lines.


train

The fastest way to get from Madrid airport to the city centre is to take the C1 train, which costs €2.60, plus half a euro for the travel card.

The high-speed trains (AVE) arrive at Madrid’s Atocha and Chamartín stations from many cities in Spain and Europe. For further information consult the following resources:

International trains:

National trains:

Public transport in the city of Madrid includes the underground (Metro), trams (Metro Ligero), buses and suburban trains. Click here to access the page related to public transport in Madrid.

Uber, Cabify and regular taxis are available in Madrid.

There are currently no restrictions for travel to or within Spain related to COVID-19. However, to avoid problems related to any changes in the epidemiological situation, please consult the official web page of the Spanish Government regarding COVID-19 restrictions here.

MADRID AT A GLANCE

Getting around

What to do

Maps and guides

Money in Madrid

Visas

Climate

Emergency services

COVID Information

Getting around

What to do

Maps and guides

Money in Madrid

Visas

Climate

Emergency services

COVID Information

Having trouble accessing the above links? For a PDF version (English only), click here. For more detailed travel information, please visit www.esmadrid.com/.

VISA REQUIREMENTS

Before planning your trip to Madrid, make sure you have all the appropriate travel documents. Note that the passport you hold determines whether you need a visa to travel to Madrid.

Spain is a signatory of the Schengen Agreement, so visitors from any of the Schengen member states enjoy free movement and there is no border control. If this is not your case, just apply for a tourist visa at the Spanish Embassy in your country of residence. Visit Madrid’s visa information site for more details.

Visa invitation letter

To require your visa invitation letter, please contact [email protected].

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.

Social media tools

Design Files

Download the campaign materials design files here!

Israel - Tel Hashomer

Year of IHTC designation: 1993

National Hemophilia Center, Tel Hashomer
Sheba Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic surgery
  • Nursing
  • Physiotherapy
  • Dental care
  • Laboratory diagnosis (not genetics)
  • Psychology

Spain - Madrid

Year of IHTC designation: 2018

Hospital Universitario La Paz

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Spain - Valencia

Year of IHTC designation: 1997

Haemostasis and Thrombosis Unit
Haematology Service, University and Polytechnic Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and Social services

South Africa - Johannesburg

Year of IHTC designation: 2016

Haemophilia Comprehensive Care Centre
Charlotte Maxeke Johannesburg Academic Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Physiotherapy

Singapore - Singapore

Year of IHTC designation: 2002

Singapore General Hospital Haemophilia Treatment Clinic

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis
  • Nursing
  • Dental care
  • Orthopedic care (no surgeries)
  • Physiotherapy
  • Psychology

Senegal - Dakar

Year of IHTC designation: 2016

Centre International de Traitement de l’Hémophilie (CITH) de Dakar
Centre National de Transfusion Sanguin (CNTS)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy

Russia - Moscow and St. Petersburg

Year of IHTC designation: 2010

National Medical Research Center of Hematology of the Russian Academy of Medical Sciences

Areas of Specialty

  • Adult hematology
  • Nursing
  • Orthopedic surgery

Netherlands - Utrecht

Year of IHTC designation: 1996

Van Creveldkliniek
University Medical Centre Utrecht

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hematology
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy

Japan - Nara

Year of IHTC designation: 1998

Nara Hemophilia Centre
Nara Medical University

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic care and surgery
  • Laboratory diagnosis and Molecular genetics
  • Physiotherapy

Italy - Milan

Year of IHTC designation: 1972

Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Blood banking
  • Orthopedic care and surgery
  • Physiotherapy
  • Diagnostic assessment of platelet functional defects

India - Mumbai

Year of IHTC designation: 2000

National Institute of Immunohaematology (ICMR) and KEM Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Orthopedic care
  • Physiotherapy

India - Vellore

Year of IHTC designation: 2000

Christian Medical College, Vellore

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics with antenatal diagnosis
  • Nursing
  • Musculoskeletal management – physical and occupational therapy with physiatry
  • Orthopedic care and surgery
  • Blood banking
  • Dental care
  • Psychology/Social services
  • Antenatal diagnosis

Thailand - Bangkok

Year of IHTC designation: 1984

International Hemophilia Training Center – Bangkok
Ramathibodi Hospital
Mahidol University

Areas of Specialty

  • Adult and pediatric hemostasis
  • Molecular genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and social services

France - Paris

Year of IHTC designation: 1972

Paris Haemophilia Centre (Necker (N) and Kremlin Bicetre (KB) Hospitals)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Dental care
  • Orthopedic care and surgery
  • Psychology and Social services

Egypt - Cairo

Year of IHTC designation: 2015

Shabrawishi Hospital, Egyptian Society of Hemophilia, and Cairo University

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Molecular genetics
  • Blood banking
  • Physiotherapy

Canada - Toronto

Year of IHTC designation: 2018

University of Toronto Hemophilia Centres
St. Michael’s Hospital

Areas of Specialty

  • Adult hematology services
  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Brazil - Campinas, SP

Year of IHTC designation: 2008

Hemocentro – “Unidade de Hemofilia Cláudio Luiz Pizzigatti Corrêa”
Hemocentro Unicamp, University of Campinas

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and molecular genetics
  • Nursing
  • Dentistry
  • Physiotherapy

Belgium - Brussels

Year of IHTC designation: 2013

Haemostasis and Thrombosis Unit
Division of Haematology
Cliniques universitaires Saint-Luc

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Orthopedic care and surgery

Belgium - Leuven

Year of IHTC designation: 1972

Hemofiliecentrum Leuven, University of Leuven

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis (not genetics)
  • Nursing
  • Psychology
  • Social services
  • Orthopedic care and surgery

Austria - Vienna

Year of IHTC designation: 1972

Medical University of Vienna
Department of Medicine I
Clinical Division of Hematology and Hemostaseology

Areas of Specialty

  • Adult hematology

Australia - Melbourne

Year of IHTC designation: 2005

Ronald Sawers Haemophilia Centre

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Dental care
  • Blood banking
  • Psychology
  • Social work

Argentina - Buenos Aires

Year of IHTC designation: 1974

Instituto Asistencial “Dr. Alfredo Pavlovsky”
(Fundación de la Hemofilia)

Instituto De Investigaciones Hematológicas “Dr. Mariano R. Castex” (IIHEMA
(Academia Nacional de Medicina)

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy
  • Dental care
  • Orthopaedic care and surgery
  • Laboratory diagnosis and genetic diagnosis
  • Nursing
  • Psychology
  • Social services

Sweden - Malmö

Year of IHTC designation: 1976

Malmö Centre for Thrombosis and Haemostasis
Department for Hematology and Coagulation Disorders, Skåne University Hospital
Skåne University Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Blood banking (on request)

United Kingdom - London

Year of IHTC designation: 1970

Katharine Dormandy Haemophilia Centre and Thrombosis Unit
Royal Free Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy
  • Molecular genetics
  • Psychology/Social services

United Kingdom - Manchester

Year of IHTC designation: 2008

Manchester Haemophilia Comprehensive Care Centre (Children’s and Adult’s)
Manchester Royal Infirmary and Manchester Children’s Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • National Hemophilia database

United Kingdom - Oxford

Year of IHTC designation: 1972

Oxford Haemophilia Centre and Thrombosis Centre
Churchill Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • Physiotherapy/Occupational therapy

United Kingdom - Sheffield

Year of IHTC designation: 1992

Sheffield Haemophilia and Thrombosis Centre
Royal Hallamshire Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics

International Lifetime Achievement Award - Recipients

Previous years

2012Christine Lee
United Kingdom
2006Dr. Bruce Evatt
United States

Hemophilia Alliance

Recognizing that training women leaders ensures the diversity our community need to thrive; the Hemophilia Alliance has been a longtime supporter of the Susan Skinner Memorial Fund. They deepened their engagement with the global community through the establishment of the Travel Grant Program, which allows US-based multidisciplinary healthcare professionals the opportunity to attend WFH global training workshops. The wealth of experience and perspective attendees bring back home to their communities helps patients across the country. Their patience and support as we grappled with changing norms in these challenging times gave us the flexibility to meet our community’s needs with revamped programming.

Hemophilia of Georgia

Hemophilia of Georgia has stood with us for over three decades, playing an early role in distributing donated factor via the WFH Humanitarian Aid program. Our relationship has deepened over the years as they continued to support this program and came on board as a founding Chapter Challenge champion in 2016. Their belief in educating future leaders is clear in their investment in the Youth Leadership Workshops, which has led to the training of over 50 young adults. They also support workshops devoted to educating providers and patient leaders on how to collect and use data to advocate for better patient care. Their staff generously volunteer their time as trainers and as well as serving on various committees.

National Hemophilia Foundation

The National Hemophilia Foundation helps advance our mission on several fronts. They inspire others to follow their lead as a founding champion of the NHF Chapter Challenge. Their commitment to equality of access is demonstrated in their support of the Cornerstone Initiative, which lays the foundation for care in the world's most underserved regions, as well as programs that aim to raise awareness and improve care of women with bleeding disorders and those with von Willebrand disease. We also benefit from their steadfast engagement with various programs including the WFH Twinning Program and their individual leaders’ contribution to our leadership and committees.

Legacy Gift

Do you sometimes wish you could do more? A bequest is a simple way for you to make a significant gift without changing anything about your financial security and lifestyle today. Your legacy will sustain care for the generations to come.

Download these sample clauses to give to your legal advisor.

We understand if you prefer to remain anonymous, but we would be very honoured if you would let us know of your intentions so that we may thank you personally. We would also be happy to answer any questions you may have or give you additional information. Please contact Jennifer Laliberté at 514‑875‑7944 ext.2822 or [email protected].

Disclaimer

The information on the WFH USA website is provided for general information purposes only. The WFH USA does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH USA recommends that you contact your physician or local treatment centre. Before administering any products, the WFH USA urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH USA does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH USA discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH USA social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH USA recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH USA. The WFH USA is not responsible and assumes no liability for the content of any linked websites.

Website privacy policy

The WFH USA does not collect personally identifying information about you when you visit our site, unless you choose to provide such information to us. Providing such information is strictly voluntary. This policy is your guide to how we will handle information we learn about you from your visit to our website.

Use of links

Throughout our website, we provide links to other servers which may contain information of interest to our readers. We take no responsibility for, and exercise no control over, the organizations, views, or accuracy of the information contained on other servers. When linking to the WFH USA, we request that you ensure that there are no associated connections for commercial purposes. Any official use of the name WFH USA or the use of its logo needs to be approved by the WFH USA. If you have a link you’d like us to consider adding to our website, please send an email to [email protected] with the subject “Link request.”

Use of text and images

All information, photographs, graphics, and other material on this website are protected by copyright. While users of this website may use the content for personal, non-commercial use, none of the content of this website can be modified, translated, transferred or sold, copied, reproduced, published, or distributed, in whole or in part, without the prior written consent of the WFH USA. To view a copy of the WFH USA’s permissions guidelines, click here.

The WFH USA encourages the dissemination of its information and welcomes proposals on the reprinting, redistribution, and translation of its materials. If you would like to publish information that you find on our website, please send your request to [email protected].

Accessibility

If you have suggestions on how to make the site more accessible, please contact us at [email protected].

Opt-Out or Change Your Contact Information

Our website provides users the opportunity to opt-out of receiving communications from us through a special online form or via the communication they have received. You may, at all times, choose to receive which communications within the organization you can receive or none at all. You may also update your contact information previously provided to us via another online form.

Questions about our policies

If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you can contact us at [email protected].

Fraud alert

Unauthorized solicitations – Warning

The WFH USA has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH USA staff or falsely stating that they are associated with the WFH USA. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH USA, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH USA emails come from @wfhusa.org or @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH USA at [email protected] or call 1-877-417-7944.

International Award for Outstanding Service - Recipients

WFH President's Award - Recipients

United States - Chapel Hill, North Carolina

Year of IHTC designation: 1972

University of North Carolina Hemophilia & Thrombosis Center

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Nursing
  • Physiotherapy/ Occupational therapy
  • Psychology/ Social services

United States - Columbus, Ohio

Year of IHTC designation: 2018

Nationwide Children’s Hospital

Areas of Specialty

  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

United States - Houston, Texas

Year of IHTC designation: 2000

Gulf States Hemophilia and Thrombophilia Center
University of Texas Health Science Center at Houston

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy/ Occupational therapy
  • Psychology/Social services

United States - Los Angeles, California

Year of IHTC designation: 1970

Orthopaedic Hemophilia Treatment Center

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physical therapy
  • Psychology/Social services

United States - New York, New York

Year of IHTC designation: 1993

Mount Sinai School of Medicine
Mount Sinai Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Molecular genetics
  • Social services

United States - Rochester, Minnesota

Year of IHTC designation: 1974

Mayo (Rochester) Comprehensive Hemophilia Center, and International Hemophilia Training Center (WFH)
Mayo Clinic/Foundation and Mayo Medical School

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Blood banking
  • Molecular genetics
  • Psychology/ Social services

United States - San Diego, California

Year of IHTC designation: 2018

Hemophilia & Thrombosis Treatment Center
University of California San Diego

Areas of Specialty

  • Adult hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

International Healthcare Volunteer Award - Recipients

Previous years

2012 Piet de Kleijn
The Netherlands
2010 Dr. Mammen Chandy
India
2008 Dr. Man-Chiu Poon
Canada
2006 Dr. Norma de Bosch
Venezuela
2004 Dr. Parttraporn Insarangkura
Thailand

Dr. Carol K. Kasper
United States

Twins of the Year Awards

2020 Aluva (India) – Newcastle (UK)
2019 Yogyakarta / Solo (Indonesia) – Utrecht (Netherlands)
2018 Abidjan (Ivory Coast) – Brussels (Belgium)
2017 Santa Cruz de la Sierra (Bolivia) – Buenos Aires (Argentina)
2016 Kampala (Uganda) – London (UK)
2015 Varna (Bulgaria) – Bonn (Germany)
2014 Arequipa (Peru) – Los Angeles (USA)
2013 Davangere (India) – Liverpool (UK)
Ludhiana (India) – Detroit (USA)
2012 Hanoi (Vietnam) – Melbourne (Australia)
2011 Manado (Indonesia) – Utrecht (Netherlands)
2010 Delhi (India) – Winnipeg (Canada)
Yaoundé (Cameroon) – Geneva (Switzerland)
2009 Chisinau (Moldova) – Warsaw (Poland)
Colombo (Sri Lanka) – Vellore (India)
2008 Gaborone (Botswana) – Philadelphia (USA)
2007 Vientiane (Laos) – Brest (France)
Damascus (Syria) – Montpellier (France)
2006 Lima (Peru) – Fort Worth (USA)
2005 Yerevan (Armenia) – Minneapolis (USA)
Casablanca (Morocco) – Caen (France)
2004 Beirut (Lebanon) – Geneva (Switzerland)
Santo Domingo (Dominican Republic) – Caracas (Venezuela)
2003 Cairo (Egypt) – Knoxville (USA)
2002 Moscow (Russia) – Liverpool (UK)
Panama – Valencia (Spain)
2001 Bangalore (India) – St. Louis (USA)
2000 Pune (India) – Bradford (UK)
1999 Montevideo (Uruguay) – Buenos Aires (Argentina)
Tianjin (China) – Calgary (Canada)
1998 Plovdiv (Bulgaria) – Bonn (Germany)
1997 Bogota (Colombia) – Los Angeles (USA)
Tartu (Estonia) – Stockholm (Sweden)
1996 Timisoara (Romania) – Munich (Germany)
Riga (Latvia) – Munster (Germany)
1995 Klaipeda (Lithuania) – Malmo (Sweden)
1994 Bratislava (Slovakia) – Tel Hashomer (Israel)

Pietrogrande Prize

2021 Axel Seuser
Germany
2019 Dr. Adolfo Llinás
Colombia
2017 Pamela Hilliard
Canada
2015 Kathy Mulder
Canada
2013 James Luck
United States
2012 Piet de Kleijn
The Netherlands
2011 Dr. Lily Heijnen
The Netherlands
2010 Dr. Horacio Caviglia
Argentina
2009 Jerome D. Wiedel
United States
2008 Dr. Federico Fernández-Palazzi
Venezuela
2007 Michael Heim
Israel
2006 Brenda Buzzard
United Kingdom
2005 Dr. Marvin Gilbert
United States

Henri Horoszowski Award

2021 Baolai Hua
Yangzhou College, Xuzhou Medical University
The effects of intra-articular injection of TNF-alpha Antagonists in treatment of haemophilic synovitis
2019 Maarten Eerdekens
Belgium
Association between multi-segment foot kinetics and blood induced joint damage in adult patients with hemophilic ankle arthropathy
2017 Fabio Souza
Brazil
Decrease in joint inflammation, swelling and pain after a swimming protocol in animal model of experimental-induced hemarthrosis
2015 SM Javd Mortazavi
Iran
Bilateral total knee arthroplasty in patients with hemophilia: A safe and cost-effective procedure
2013 Lize F.D. van Vulpen
United States
A fusion protein of IL4 and IL10, is equally effective in protecting cartilage from blood-induced damage compared to the individual components
2012 Horacio Caviglia
Argentina
Pseudotumor Surgery in Haemophilia A patients: Comparitive results between inhibitor and non-inhibitor patients
2011 Nick Goddard
United Kingdom and
Monique van Meegeren
The Netherlands
Early onset administration of IL-4 and IL-10 prevents blood-induced cartilage damage in vitro
2010 Lydia Abad-Franch
Spain
Influence of an Aquatic Training Protocol on the Reduced Risk of Cardiovascular Morbidity and Mortality in a Hemophiliac
2009 Sebastien Lobet
Belgium
Impact of Hemophilia Ankle Arthropathy on Gait Disability: Analysis of Energetic and Mechanical Variables
2008 Jose Alberto Tlacuilo-Parra
Mexico
Bone Turnover Markers and Bone Mineral Density in Children with Hemophilia
2007 Natalie Jansen
The Netherlands
Protective Abilities of Interleukin-10 in Blood-induced Cartilage Damage
2006 Axel Seuser and E. Kusch
Germany
Multi-Center Study of Orthopedic Outcome of the Lower Extremities in 249 Children with Hemophilia
2005 Frank van Genderen, Nico van Meeteren, Lily Heijnen, Piet de Kleijn, Marijke van den Berg, Paul Helders
The Netherlands
The Hemophilia Activities List: Final development and validation of a hemophilic-specific self-assessment questionnaire on functional abilities
2004 Goris Roosendaal, Zalim