PROGRAM

MADRID, SPAIN    APRIL 21‑24, 2024

ORGANIZED BY:

HOSTED BY:

Program

WFH 2024 World Congress
[email protected]

ORGANIZED BY:
World Federation of Hemophilia

HOSTED BY:
Federación Española de Hemofilia

The WFH 2024 World Congress will include over 90 hours of continuing educational sessions across Medical and People with Bleeding Disorders (PWBD) tracks, and six professional development tracks: Nurses, Dental, Laboratory Sciences, Psychosocial, Musculoskeletal (MSK) and Women and Girls with Bleeding Disorders (WGBD). The World Congress will feature world-class plenary and session speakers, interactive sessions, workshops, panel discussions and innovative industry symposia.

OPENING CEREMONY

Join us as we blend knowledge and conviviality during this international gathering. Our Opening Ceremony promises to offer opportunities to network, relax, and celebrate in the captivating backdrop of Madrid’s rich cultural tapestry. Let’s make the WFH 2024 World Congress not only a platform for learning but also a source of inspiration and connection!

Please note that in adherence to Madrid regulations, cultural events and entertainment at social gatherings organized by the host (WFH) are not permitted during the WFH 2024 World Congress. We appreciate your understanding and eagerly anticipate providing you with a seamless and enriching, knowledge-focused experience at this year’s Congress. Your participation is highly valued, and we look forward to making this event as informative and enjoyable as possible.

CALL FOR ABSTRACTS

The call for late-breaking abstracts will open on January 17, 2024 and close on February 14, 2024 at 11:59 p.m. ET.

The WFH 2024 Program Committees are pleased to invite LBA submissions for the WFH 2024 World Congress taking place in Madrid, Spain from April 21 to 24, 2024.

Late-breaking abstracts should describe the latest advances that will change daily clinical practice and should highlight novel and practice-changing studies. The selection process will favor abstracts with ground-breaking and unique data that would not otherwise have been presented at the Congress. In every case, the results should not be fully available by the regular abstract submission deadline.

We encourage future delegates who would like to present their work at Congress, to submit an abstract for consideration by the Congress 2024 Program Committees. All abstracts will be submitted to a blind peer review by an international panel of experts.

Click here to view the list of late-breaking abstract categories.

How to submit an abstract

Before submitting, please make sure to carefully read the abstract submission guidelines.

To submit your abstract

Step 1: Create your profile and login to access the Abstract Scorecard

Step 2: Complete all the tasks to submit your abstract

Step 3: Once completed, be sure to click submit

Editing a submission

You may edit your abstract after submitting it, up to the submission deadline of February 14, 2024 at 11:59pm ET.

Step 1: To edit your abstract, login to the Abstract Scorecard site to access your submission(s), where you will be able to edit them by accessing and updating the already completed tasks.

Important notes:

Abstracts should only be submitted through the online system. Abstracts sent via post or email will not be considered.
Only abstracts which have been submitted properly will be considered. Incomplete abstracts will be automatically rejected.

Submit an abstract

Submit your work today and join thousands of leading experts to discuss the latest advances in the treatment and care of people with bleeding disorders.

Questions? Contact us at [email protected].

KEY DATES
Call for abstracts opensSeptember 15, 2023
Abstract submission deadlineNovember 30, 2023, 11:59 p.m. ET
Notification to authorsDecember 22, 2023
Presenting author registration deadlineJanuary 31, 2024
LATE-BREAKING ABSTRACTS
Late-breaking abstract submission opensJanuary 17, 2024
Late-breaking abstract deadlineFebruary 14, 2024, 11:59 p.m. ET
Notification to authorsMarch 15, 2024
Presenting author registration deadlineMarch 31, 2024

Please download and carefully read the following guidelines prior to submitting an abstract online:

Abstract submission guidelines

Abstract Public Release (Embargo) Dates and Times

Late-breaking abstracts (LBAs) will be publicly released throughout the WFH 2024 World Congress. The complete embargo dates and public release schedule for LBAs is detailed below.

All other abstracts, including those submitted during the late-breaking submission time period but not selected as late-breaking abstracts, will be publicly released at 9:00 a.m. CEST on April 21, 2024, and available online.

ABSTRACTS
Abstracts published in the Haemophilia journalEmbargo will lift
9:00 a.m. CEST on April 21, 2024
LATE-BREAKING ABSTRACTS
Free paper presentation dateEmbargo will lift
Monday, April 229:00 a.m. CEST on April 22, 2024
Tuesday, April 239:00 a.m. CEST on April 23, 2024
Wednesday, April 249:00 a.m. CEST on April 24, 2024

The Abstract Review Committee for the WFH 2024 Congress is composed of accomplished professionals representing a broad range of specialty areas and scientific approaches.

The Congress will be the most comprehensive international event on bleeding disorders in 2024. Presenting authors will be able expect to share their work amongst top experts and researchers from around the world.

Selected abstracts may be eligible for:

Display in the virtual poster gallery – Available online for 60 days
Publication in Haemophilia, the official journal of the WFH
Oral presentation in a free paper session
Lightning round presentation in a moderated poster session
Printed poster and presentation during the poster networking event and breaks
Christine Lee Young Researcher Award for best oral presentation
Christine Lee Young Researcher Award for best poster presentation – New this year!
Outstanding abstract travel awards – New this year!

We look forward to seeing you in Madrid!

KEY DATES
Call for abstracts opensSeptember 15, 2023
Abstract submission deadlineNovember 30, 2023, 11:59 p.m. ET
Notification to authorsDecember 22, 2023
Presenting author registration deadlineJanuary 31, 2024
LATE-BREAKING ABSTRACTS
Late-breaking abstract submission opensJanuary 17, 2024
Late-breaking abstract deadlineFebruary 14, 2024, 11:59 p.m. ET
Notification to authorsMarch 15, 2024
Presenting author registration deadlineMarch 31, 2024

Please download and carefully read the following guidelines prior to submitting an abstract online:

Abstract submission guidelines

The late-breaking abstract (LBA) submission period is from January 17, 2024 to February 14, 2024.

Late-breaking abstracts should describe the latest advances that will change daily clinical practice and should highlight novel and practice-changing studies. The selection process will favor abstracts with ground-breaking and unique data that would not otherwise have been presented at the Congress. In every case, the results should not be fully available by the regular abstract submission deadline.

Abstract Public Release (Embargo) Dates and Times

Late-breaking abstracts (LBAs) will be publicly released throughout the WFH 2024 World Congress. The complete embargo dates and public release schedule for LBAs is detailed below.

All other abstracts, including those submitted during the late-breaking submission time period but not selected as late-breaking abstracts, will be publicly released at 9:00 a.m. CEST on April 21, 2024, and available online.

ABSTRACTS
Abstracts published in the Haemophilia journalEmbargo will lift
9:00 a.m. CEST on April 21, 2024
LATE-BREAKING ABSTRACTS
Free paper presentation dateEmbargo will lift
Monday, April 229:00 a.m. CEST on April 22, 2024
Tuesday, April 239:00 a.m. CEST on April 23, 2024
Wednesday, April 249:00 a.m. CEST on April 24, 2024

The Abstract Review Committee for the WFH 2024 Congress is composed of accomplished professionals representing a broad range of specialty areas and scientific approaches.

ABSTRACT AWARDS

Christine Lee Young Researcher Awards

Established in 2012 by the World Federation of Hemophilia (WFH) and Wiley, the Christine Lee Young Researcher Award (formerly the Christine Lee Haemophilia Journal Award) is given in recognition to a top young researcher (graduate student or postdoctoral fellow) who is the primary author and presenter of a highly rated submitted abstract in any discipline involving hemophilia or other related bleeding disorders.


Best oral presentation

A prize of $3,000 USD and a three-year online personal subscription to Haemophilia is provided for this award.


Best poster presentation

A prize of $1,000 USD and a three-year online personal subscription to Haemophilia is provided for this award.

Eligibility

The selection committee—including the journal’s editors and WFH representatives on the editorial board—will choose the best presented abstracts at the WFH 2024 World Congress. There will be one recipient per prize.

The young researcher must be under the age of 40 at the time the abstract is submitted. If there are multiple authors, the lead author and presenter must be under the age of 40 at the time the abstract is submitted.

Outstanding abstract travel awards

The WFH is pleased to offer five (5) grants of $1,000 USD each to the five (5) highest scoring abstracts submitted for the WFH 2024 World Congress.

Please indicate if you would like to be considered for a travel award during the submission process. If you have access to an alternate source of funding, kindly prioritize this to allow a maximum number of attendees to benefit from the WFH travel awards.

ABSTRACTS FAQ

Q
How long should my abstract be?
A

Your abstract should be no longer than 350 words. This does not include the author’s details, titles, tables, and graphs.

Q
Can I include tables/graphs in my abstract?
A

A maximum of two tables and/or graphs can be included in an abstract. Please make sure to add headings to each of the tables and/or graphs, and reference them within the abstract. Please do not include the author list on the figure/table you are uploading, as we operate by blind review.

Q
How many abstracts can I submit?
A

There is no limit on the number of abstracts a single author can submit.

Q
How many abstracts can I present?
A

Each presenting author may present a maximum of two abstracts at Congress. Should an author have more than two abstracts accepted, a co-author must be named as the presenting author for the third or more abstracts.

Q
Can I submit my abstract by email?
A

No. Abstracts should only be submitted through the online submission system. Abstracts sent via email will not be accepted.

Q
Can I submit an abstract in a language other than English?
A

No. Abstracts will only be accepted in written English. Abstracts submitted in any language other than English will be automatically rejected.

Q
How many authors can be listed for each submission?
A

A maximum of 20 authors is permitted on each abstract.

Q
Can I edit/make changes to my abstract?
A

Revisions can be made until the late-breaking abstract submission deadline: February 14, 2024 at 11:59pm ET. To ensure the integrity of the review process, no revisions will be allowed after the late-breaking abstract submission deadline.

Q
Can I submit a trial-in-progress abstract?
A

Yes. The WFH is accepting trials-in-progress abstracts. Please consult the abstract submission guidelines for details.

Q
Can an administrator/third party submit an abstract on behalf of the authors?
A

Yes. However, note that if the abstract is accepted, all subsequent notifications and correspondence will be addressed to the presenting author.

Q
When will I know if my abstract has been accepted?
A

You will be notified if your abstract has been accepted no later than December 22, 2023. You will be notified if your late-breaking abstract has been accepted no later than March 15, 2024.

Q
Do I need to register to attend the World Congress?
A

Yes. All regular abstract presenting authors must register to attend the WFH 2024 World Congress by January 31, 2024. All LBA presenting authors must register to attend the WFH World Congress by March 31, 2024. After this date, presenting authors who have not registered and paid their registration fees will be excluded from the program as well as from the Haemophilia journal publication. Registration fees will not be waived.

Q
Can I present virtually?
A

No. The 2024 World Congress will take place in-person only. Presenting authors will therefore be required to be onsite in Madrid, Spain.

Q
When will my accepted abstract be published?
A

Abstracts selected for publication will be made available in the online Haemophilia journal publication by April 21, 2024. The publication will be available on the Wiley website, the WFH 2024 World Congress website, and the Congress mobile app. Late-breaking abstracts selected for publication will be made available after Congress. More information to come.

Q
Will the WFH be accepting late-breaking abstracts?
A

Yes. The call for late-breaking abstracts will open on January 17, 2024 and will close on February 14, 2024.

Additional questions? Please contact us at [email protected].

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.

Hemophilia Alliance

Recognizing that training women leaders ensures the diversity our community need to thrive; the Hemophilia Alliance has been a longtime supporter of the Susan Skinner Memorial Fund. They deepened their engagement with the global community through the establishment of the Travel Grant Program, which allows US-based multidisciplinary healthcare professionals the opportunity to attend WFH global training workshops. The wealth of experience and perspective attendees bring back home to their communities helps patients across the country. Their patience and support as we grappled with changing norms in these challenging times gave us the flexibility to meet our community’s needs with revamped programming.

Israel - Tel Hashomer

Year of IHTC designation: 1993

National Hemophilia Center, Tel Hashomer
Sheba Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic surgery
  • Nursing
  • Physiotherapy
  • Dental care
  • Laboratory diagnosis (not genetics)
  • Psychology

South Africa - Johannesburg

Year of IHTC designation: 2016

Haemophilia Comprehensive Care Centre
Charlotte Maxeke Johannesburg Academic Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Physiotherapy

Singapore - Singapore

Year of IHTC designation: 2002

Singapore General Hospital Haemophilia Treatment Clinic

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis
  • Nursing
  • Dental care
  • Orthopedic care (no surgeries)
  • Physiotherapy
  • Psychology

Senegal - Dakar

Year of IHTC designation: 2016

Centre International de Traitement de l’Hémophilie (CITH) de Dakar
Centre National de Transfusion Sanguin (CNTS)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy

Russia - Moscow and St. Petersburg

Year of IHTC designation: 2010

National Medical Research Center of Hematology of the Russian Academy of Medical Sciences

Areas of Specialty

  • Adult hematology
  • Nursing
  • Orthopedic surgery

Netherlands - Utrecht

Year of IHTC designation: 1996

Van Creveldkliniek
University Medical Centre Utrecht

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hematology
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy

Japan - Nara

Year of IHTC designation: 1998

Nara Hemophilia Centre
Nara Medical University

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic care and surgery
  • Laboratory diagnosis and Molecular genetics
  • Physiotherapy

Italy - Milan

Year of IHTC designation: 1972

Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Blood banking
  • Orthopedic care and surgery
  • Physiotherapy
  • Diagnostic assessment of platelet functional defects

India - Mumbai

Year of IHTC designation: 2000

National Institute of Immunohaematology (ICMR) and KEM Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Orthopedic care
  • Physiotherapy

India - Vellore

Year of IHTC designation: 2000

Christian Medical College, Vellore

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics with antenatal diagnosis
  • Nursing
  • Musculoskeletal management – physical and occupational therapy with physiatry
  • Orthopedic care and surgery
  • Blood banking
  • Dental care
  • Psychology/Social services
  • Antenatal diagnosis

Sweden - Malmö

Year of IHTC designation: 1976

Malmö Centre for Thrombosis and Haemostasis
Department for Hematology and Coagulation Disorders, Skåne University Hospital
Skåne University Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Blood banking (on request)

France - Paris

Year of IHTC designation: 1972

Paris Haemophilia Centre (Necker (N) and Kremlin Bicetre (KB) Hospitals)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Dental care
  • Orthopedic care and surgery
  • Psychology and Social services

Egypt - Cairo

Year of IHTC designation: 2015

Shabrawishi Hospital, Egyptian Society of Hemophilia, and Cairo University

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Molecular genetics
  • Blood banking
  • Physiotherapy

Canada - Toronto

Year of IHTC designation: 2018

University of Toronto Hemophilia Centres
St. Michael’s Hospital

Areas of Specialty

  • Adult hematology services
  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Brazil - Campinas, SP

Year of IHTC designation: 2008

Hemocentro – “Unidade de Hemofilia Cláudio Luiz Pizzigatti Corrêa”
Hemocentro Unicamp, University of Campinas

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and molecular genetics
  • Nursing
  • Dentistry
  • Physiotherapy

Belgium - Brussels

Year of IHTC designation: 2013

Haemostasis and Thrombosis Unit
Division of Haematology
Cliniques universitaires Saint-Luc

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Orthopedic care and surgery

Belgium - Leuven

Year of IHTC designation: 1972

Hemofiliecentrum Leuven, University of Leuven

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis (not genetics)
  • Nursing
  • Psychology
  • Social services
  • Orthopedic care and surgery

Austria - Vienna

Year of IHTC designation: 1972

Medical University of Vienna
Department of Medicine I
Clinical Division of Hematology and Hemostaseology

Areas of Specialty

  • Adult hematology

Australia - Melbourne

Year of IHTC designation: 2005

Ronald Sawers Haemophilia Centre

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Dental care
  • Blood banking
  • Psychology
  • Social work

Argentina - Buenos Aires

Year of IHTC designation: 1974

Instituto Asistencial “Dr. Alfredo Pavlovsky”
(Fundación de la Hemofilia)

Instituto De Investigaciones Hematológicas “Dr. Mariano R. Castex” (IIHEMA
(Academia Nacional de Medicina)

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy
  • Dental care
  • Orthopaedic care and surgery
  • Laboratory diagnosis and genetic diagnosis
  • Nursing
  • Psychology
  • Social services

Spain - Madrid

Year of IHTC designation: 2018

Hospital Universitario La Paz

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Spain - Valencia

Year of IHTC designation: 1997

Haemostasis and Thrombosis Unit
Haematology Service, University and Polytechnic Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and Social services

Thailand - Bangkok

Year of IHTC designation: 1984

International Hemophilia Training Center – Bangkok
Ramathibodi Hospital
Mahidol University

Areas of Specialty

  • Adult and pediatric hemostasis
  • Molecular genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and social services

Hemophilia of Georgia

Hemophilia of Georgia has stood with us for over three decades, playing an early role in distributing donated factor via the WFH Humanitarian Aid program. Our relationship has deepened over the years as they continued to support this program and came on board as a founding Chapter Challenge champion in 2016. Their belief in educating future leaders is clear in their investment in the Youth Leadership Workshops, which has led to the training of over 50 young adults. They also support workshops devoted to educating providers and patient leaders on how to collect and use data to advocate for better patient care. Their staff generously volunteer their time as trainers and as well as serving on various committees.

WFH President's Award - Recipients

National Bleeding Disorders Foundation

The National Bleeding Disorders Foundation helps advance our mission on several fronts. They inspire others to follow their lead as a founding champion of the NHF Chapter Challenge. Their commitment to equality of access is demonstrated in their support of the Cornerstone Initiative, which lays the foundation for care in the world's most underserved regions, as well as programs that aim to raise awareness and improve care of women with bleeding disorders and those with von Willebrand disease. We also benefit from their steadfast engagement with various programs including the WFH Twinning Program and their individual leaders’ contribution to our leadership and committees.

Legacy Gift

Do you sometimes wish you could do more? A bequest is a simple way for you to make a significant gift without changing anything about your financial security and lifestyle today. Your legacy will sustain care for the generations to come.

Download these sample clauses to give to your legal advisor.

We understand if you prefer to remain anonymous, but we would be very honoured if you would let us know of your intentions so that we may thank you personally. We would also be happy to answer any questions you may have or give you additional information. Please contact Jennifer Laliberté at 514‑875‑7944 ext.2822 or [email protected].

Disclaimer

The information on the WFH USA website is provided for general information purposes only. The WFH USA does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH USA recommends that you contact your physician or local treatment centre. Before administering any products, the WFH USA urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH USA does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH USA discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH USA social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH USA recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH USA. The WFH USA is not responsible and assumes no liability for the content of any linked websites.

Website privacy policy

The WFH USA does not collect personally identifying information about you when you visit our site, unless you choose to provide such information to us. Providing such information is strictly voluntary. This policy is your guide to how we will handle information we learn about you from your visit to our website.

Use of links

Throughout our website, we provide links to other servers which may contain information of interest to our readers. We take no responsibility for, and exercise no control over, the organizations, views, or accuracy of the information contained on other servers. When linking to the WFH USA, we request that you ensure that there are no associated connections for commercial purposes. Any official use of the name WFH USA or the use of its logo needs to be approved by the WFH USA. If you have a link you’d like us to consider adding to our website, please send an email to [email protected] with the subject “Link request.”

Use of text and images

All information, photographs, graphics, and other material on this website are protected by copyright. While users of this website may use the content for personal, non-commercial use, none of the content of this website can be modified, translated, transferred or sold, copied, reproduced, published, or distributed, in whole or in part, without the prior written consent of the WFH USA. To view a copy of the WFH USA’s permissions guidelines, click here.

The WFH USA encourages the dissemination of its information and welcomes proposals on the reprinting, redistribution, and translation of its materials. If you would like to publish information that you find on our website, please send your request to [email protected].

Accessibility

If you have suggestions on how to make the site more accessible, please contact us at [email protected].

Opt-Out or Change Your Contact Information

Our website provides users the opportunity to opt-out of receiving communications from us through a special online form or via the communication they have received. You may, at all times, choose to receive which communications within the organization you can receive or none at all. You may also update your contact information previously provided to us via another online form.

Questions about our policies

If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you can contact us at [email protected].

Fraud alert

Unauthorized solicitations – Warning

The WFH USA has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH USA staff or falsely stating that they are associated with the WFH USA. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH USA, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH USA emails come from @wfhusa.org or @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH USA at [email protected] or call 1-877-417-7944.

International Award for Outstanding Service - Recipients

International Lifetime Achievement Award - Recipients

Previous years

2012Christine Lee
United Kingdom
2006Dr. Bruce Evatt
United States

International Healthcare Volunteer Award - Recipients

Previous years

2012 Piet de Kleijn
The Netherlands
2010 Dr. Mammen Chandy
India
2008 Dr. Man-Chiu Poon
Canada
2006 Dr. Norma de Bosch
Venezuela
2004 Dr. Parttraporn Insarangkura
Thailand

Dr. Carol K. Kasper
United States

United Kingdom - London

Year of IHTC designation: 1970

Katharine Dormandy Haemophilia Centre and Thrombosis Unit
Royal Free Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy
  • Molecular genetics
  • Psychology/Social services

United Kingdom - Manchester

Year of IHTC designation: 2008

Manchester Haemophilia Comprehensive Care Centre (Children’s and Adult’s)
Manchester Royal Infirmary and Manchester Children’s Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • National Hemophilia database

United Kingdom - Oxford

Year of IHTC designation: 1972

Oxford Haemophilia Centre and Thrombosis Centre
Churchill Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • Physiotherapy/Occupational therapy

United Kingdom - Sheffield

Year of IHTC designation: 1992

Sheffield Haemophilia and Thrombosis Centre
Royal Hallamshire Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics

Twins of the Year Awards

2020 Aluva (India) – Newcastle (UK)
2019 Yogyakarta / Solo (Indonesia) – Utrecht (Netherlands)
2018 Abidjan (Ivory Coast) – Brussels (Belgium)
2017 Santa Cruz de la Sierra (Bolivia) – Buenos Aires (Argentina)
2016 Kampala (Uganda) – London (UK)
2015 Varna (Bulgaria) – Bonn (Germany)
2014 Arequipa (Peru) – Los Angeles (USA)
2013 Davangere (India) – Liverpool (UK)
Ludhiana (India) – Detroit (USA)
2012 Hanoi (Vietnam) – Melbourne (Australia)
2011 Manado (Indonesia) – Utrecht (Netherlands)
2010 Delhi (India) – Winnipeg (Canada)
Yaoundé (Cameroon) – Geneva (Switzerland)
2009 Chisinau (Moldova) – Warsaw (Poland)
Colombo (Sri Lanka) – Vellore (India)
2008 Gaborone (Botswana) – Philadelphia (USA)
2007 Vientiane (Laos) – Brest (France)
Damascus (Syria) – Montpellier (France)
2006 Lima (Peru) – Fort Worth (USA)
2005 Yerevan (Armenia) – Minneapolis (USA)
Casablanca (Morocco) – Caen (France)
2004 Beirut (Lebanon) – Geneva (Switzerland)
Santo Domingo (Dominican Republic) – Caracas (Venezuela)
2003 Cairo (Egypt) – Knoxville (USA)
2002 Moscow (Russia) – Liverpool (UK)
Panama – Valencia (Spain)
2001 Bangalore (India) – St. Louis (USA)
2000 Pune (India) – Bradford (UK)
1999 Montevideo (Uruguay) – Buenos Aires (Argentina)
Tianjin (China) – Calgary (Canada)
1998 Plovdiv (Bulgaria) – Bonn (Germany)
1997 Bogota (Colombia) – Los Angeles (USA)
Tartu (Estonia) – Stockholm (Sweden)
1996 Timisoara (Romania) – Munich (Germany)
Riga (Latvia) – Munster (Germany)
1995 Klaipeda (Lithuania) – Malmo (Sweden)
1994 Bratislava (Slovakia) – Tel Hashomer (Israel)

Pietrogrande Prize

2021 Axel Seuser
Germany
2019 Dr. Adolfo Llinás
Colombia
2017 Pamela Hilliard
Canada
2015 Kathy Mulder
Canada
2013 James Luck
United States
2012 Piet de Kleijn
The Netherlands
2011 Dr. Lily Heijnen
The Netherlands
2010 Dr. Horacio Caviglia
Argentina
2009 Jerome D. Wiedel
United States
2008 Dr. Federico Fernández-Palazzi
Venezuela
2007 Michael Heim
Israel
2006 Brenda Buzzard
United Kingdom
2005 Dr. Marvin Gilbert
United States

Henri Horoszowski Award

2021 Baolai Hua
Yangzhou College, Xuzhou Medical University
The effects of intra-articular injection of TNF-alpha Antagonists in treatment of haemophilic synovitis
2019 Maarten Eerdekens
Belgium
Association between multi-segment foot kinetics and blood induced joint damage in adult patients with hemophilic ankle arthropathy
2017 Fabio Souza
Brazil
Decrease in joint inflammation, swelling and pain after a swimming protocol in animal model of experimental-induced hemarthrosis
2015 SM Javd Mortazavi
Iran
Bilateral total knee arthroplasty in patients with hemophilia: A safe and cost-effective procedure
2013 Lize F.D. van Vulpen
United States
A fusion protein of IL4 and IL10, is equally effective in protecting cartilage from blood-induced damage compared to the individual components
2012 Horacio Caviglia
Argentina
Pseudotumor Surgery in Haemophilia A patients: Comparitive results between inhibitor and non-inhibitor patients
2011 Nick Goddard
United Kingdom and
Monique van Meegeren
The Netherlands
Early onset administration of IL-4 and IL-10 prevents blood-induced cartilage damage in vitro
2010 Lydia Abad-Franch
Spain
Influence of an Aquatic Training Protocol on the Reduced Risk of Cardiovascular Morbidity and Mortality in a Hemophiliac
2009 Sebastien Lobet
Belgium
Impact of Hemophilia Ankle Arthropathy on Gait Disability: Analysis of Energetic and Mechanical Variables
2008 Jose Alberto Tlacuilo-Parra
Mexico
Bone Turnover Markers and Bone Mineral Density in Children with Hemophilia
2007 Natalie Jansen
The Netherlands
Protective Abilities of Interleukin-10 in Blood-induced Cartilage Damage
2006 Axel Seuser and E. Kusch
Germany
Multi-Center Study of Orthopedic Outcome of the Lower Extremities in 249 Children with Hemophilia
2005 Frank van Genderen, Nico van Meeteren, Lily Heijnen, Piet de Kleijn, Marijke van den Berg, Paul Helders
The Netherlands
The Hemophilia Activities List: Final development and validation of a hemophilic-specific self-assessment questionnaire on functional abilities
2004 Goris Roosendaal, Zalima N Jahangier, Kim MG Jacobs, Johannes WJ Bijlsma, Floris PJG Lafeber
The Netherlands
Radiosynoviorthesis using YTTRIUM-90 results in adverse direct effects on cartilage: a human in vitro study
2003 Axel Seuser, Thomas Wallny, Günter Schumpe, Elmar Trunz, Hans-Hermann Brackman
Germany
How to advise young haemophiliacs to find the right sport? A new and safe algorithm
2002 James Luck, Jr. and Mauricio Silva
United States
Long-Term Review of Total Knee Arthroplasty
2001 Federico Fernández-Palazzi
Venezuela
Oxytetracycline Chlorohydrate: A new material for chemical synovial orthoses
2000 Horacio Caviglia
Argentina
Pseudotumours
1999 William J. Ribbans and J.L. Hicks
United Kingdom
Communication and Co-operation for the New Millennium – The Future of the Musculoskeletal Committee in the 21st Century
1998 Adolfo Llinas, Mauricio Silva, Monica Duarte, Gonzalo Ucros, Graciela Perini, Angela Maria Cerquera, Andres Forero
Colombia
Chromic phosphate synoviorthesis without age restriction should be the first treatment option for chronic active hemophilic synovitis

International Frank Schnabel Volunteer Award - Recipients

Previous years

2012Martha Patricia Monteros Rincon
Mexico
2010Antonia Luque de Garrido
Venezuela
2008Jean Michel Bouchez
France
2006Yuri Zhulyov
Russia
2004Ashok Verma
India