PROGRAM

MADRID, SPAIN    APRIL 21‑24, 2024

ORGANIZED BY:

HOSTED BY:

Program

WFH 2024 World Congress
[email protected]

ORGANIZED BY:
World Federation of Hemophilia

HOSTED BY:
Federación Española de Hemofilia

The WFH 2024 World Congress will include over 90 hours of continuing educational sessions across Medical and People with Bleeding Disorders (PWBD) tracks, and six professional development tracks: Nurses, Dental, Laboratory Sciences, Psychosocial, Musculoskeletal (MSK) and Women and Girls with Bleeding Disorders (WGBD). The World Congress will feature world-class plenary and session speakers, interactive sessions, workshops, panel discussions and innovative industry symposia.

CME CREDITS

The WFH 2024 World Congress has been accredited with 32 credits by the European Board for Accreditation in Hematology (EBAH), an accreditation body supported and endorsed by the European Hematology Association (EHA). 

Participants have until May 15, 2024, 23:59 EST to create an EBAH account and complete the daily surveys in order to obtain CME credits. Participants will be able to print their EBAH-CME certificate via the EBAH-CME system after May 31, 2024.

Daily questionnaires

Please fill out a form for each day you wish to claim credits for.
Click here to access the questionnaire.

Participants should only claim credits for the time actually spent at the World Congress.

EBAH account

To find your EBAH-CME number, log in to your EBAH account (login) or create an EBAH CME account if you do not already have one (create account).

  1. Creating an EBAH CME account or logging in is simple and free.
  2. Please add your EBAH CME account number in the questionnaires

Within the EBAH-CME system, you will be able to:

  • Print your EBAH-CME certificates.
  • Review and manage your personal account.
  • Search for accredited events based on the European Hematology Curriculum.

For further assistance with your EBAH account please contact:

EBAH Office
Koninginnegracht 12b, 2514 AA – The Hague, The Netherlands
Phone: +31 (0)70 3020 099
Email: [email protected]

  • 1 hour of CME-CPD activity = 1 EBAH CME-CPD credit point
  • Maximum of 8.0 EBAH CME credit points per Congress day

Participants will be asked to complete a questionnaire for each day they are claiming credits, in order to confirm their participation in our scientific program.

SYMPOSIA SCHEDULE

Explore our dynamic symposia schedule, offering a diverse array of engaging topics. All symposia will be held in Exhibit Hall 9.

12:45-13:45

ROOM 1: Takeda

Unleashing the management of patients with hemophilia A with inhibitors – from expert opinion to clinical decision


12:45-13:45

ROOM 2: WFH session – supported by CSL Behring

Living the gene therapy treatment journey (WFH)


12:45-13:45

ROOM 3: Sobi Sanofi

Reaching new heights in hemophilia A: the impact of higher factor levels


18:30-19:30

ROOM 1: Pfizer

New horizons: The value of continued innovation in hemophilia


18:30-19:30

ROOM 2: Hoffmann-La Roche

Dreaming the future – how can we achieve optimal care and make health equity a reality for all people living with hemophilia A?


18:30-19:30

ROOM 3: Octapharma

Must-have Insights on prophylaxis in hemophilia A and von Willebrand disease

12:45-13:45

ROOM 1: Biomarin

Gene therapy in hemophilia: from decision to dosing


12:45-13:45

ROOM 2: CSL Behring

Optimizing the patient journey in von Willebrand disease: experiences and learnings as the navigator


12:45-13:45

ROOM 3: Sanofi

Redefining hemophilia: finding hemostatic balance within the evolving treatment landscape

*

The World Federation of Hemophilia does not endorse particular treatment products or manufacturers; any reference to a product name is not an endorsement by the WFH. The WFH is not a regulatory agency and cannot make recommendations relating to safety of manufacturing of specific treatment products. Some sessions may be accessible to healthcare professionals only.

NETWORKING OPPORTUNITIES

Join us as we blend knowledge and conviviality during this international gathering. Our Opening Ceremony promises to offer opportunities to network, relax, and celebrate in the captivating backdrop of Madrid’s rich cultural tapestry. Let’s make the WFH 2024 World Congress not only a platform for learning but also a source of inspiration and connection!

Please note that in adherence to Madrid regulations, cultural events and entertainment at social gatherings organized by the host (WFH) are not permitted during the WFH 2024 World Congress. We appreciate your understanding and eagerly anticipate providing you with a seamless and enriching, knowledge-focused experience at this year’s Congress. Your participation is highly valued, and we look forward to making this event as informative and enjoyable as possible.

PRESENTATION THEATRE

Stop by the presentation theatre in Exhibit Hall 9 for a number of exciting sessions.

ABSTRACTS AND POSTERS

View the 2024 ePoster gallery now.

The WFH would like to thank our expert Abstract Review Committee for the time they took to review the 2024 abstract submissions. Their contribution in the impartial review process has allowed the WFH to maintain a high level of quality for the WFH 2024 World Congress program.

There will be as many as 45 free paper oral presentations and 75 moderated poster presentations, in addition to the 300+ posters displayed in our in-person and virtual poster galleries. For more information on our free paper and moderated poster sessions, please visit our full program.

Poster and presentation guidelines

Presenting authors should download and carefully read the following guidelines prior to preparing and submitting their poster and/or presentation.

Free paper presentation

Click on the button below to access the free paper presentation guidelines.

Moderated poster presentation

Click on the button below to access the moderated poster presentation guidelines.

Poster submission guidelines

Click on the button below to access the poster submission guidelines.

How to submit an abstract

Before submitting, please make sure to carefully read the abstract submission guidelines.

To submit your abstract

Step 1: Create your profile and login to access the Abstract Scorecard

Step 2: Complete all the tasks to submit your abstract

Step 3: Once completed, be sure to click submit

Editing a submission

You may edit your abstract after submitting it, up to the submission deadline of February 14, 2024 at 11:59pm ET.

Step 1: To edit your abstract, login to the Abstract Scorecard site to access your submission(s), where you will be able to edit them by accessing and updating the already completed tasks.

Important notes:

Abstracts should only be submitted through the online system. Abstracts sent via post or email will not be considered.
Only abstracts which have been submitted properly will be considered. Incomplete abstracts will be automatically rejected.

The Abstract Review Committee for the WFH 2024 Congress is composed of accomplished professionals representing a broad range of specialty areas and scientific approaches.

Prem Roop Alva

Jan Astermark

Cindy Bailey

Branislav Bajkin

Marlène Beijlevelt

Erik Berntorp

Greig Blamey

Megan Brown

Tyler Buckner

Patricia Cabré

Manuel Carcao

Alessandro Casini

Giancarlo Castaman

Nathan Connell

Elvira Correa

Susan Cutter

Emmanuel Favaloro

Antonio Gavrilovski

Gaby Golan

Emna Gouider

Cesar Haddad

Cathy Harrison

Cedric Hermans

Shannon Jackson

Paula James

Christine Kempton

Kate Khair

Steve Kitchen

Christoph Königs

Barbara Konkle

Roshni Kulkarni

Riitta Lassila

Michelle Lavin

David Lillicrap

Johnny Mahlangu

Mike Makris

Tadashi Matsushita

Paul McLaughlin

Wolfgang Miesbach

Richa Mohan

Lochana Nanayakkara

Margareth Ozelo

David Page

Gianluigi Pasta

Glenn Pierce

Steve Pipe

Debra Pollard

Margaret Rand

Hortensia de la Corte Rodriguez

Dawn Rotellini

Thomas Sannié

Veena Selvaratnam

Roger Schutgens

Midori Shima

Robert Sidonio

Mauricio Silva

Mark Skinner

Penni Jo Smith

Alok Srivastava

Jeff Stonebraker

Sophie Susen

Merel Timmer

Graeme Ting

Pierre Toulon

Nanda Uitslager

Angela Weyand

Sarah Whitaker

Abstract Public Release (Embargo) Dates and Times

Late-breaking abstracts (LBAs) will be publicly released throughout the WFH 2024 World Congress. The complete embargo dates and public release schedule for LBAs is detailed below.

All other abstracts, including those submitted during the late-breaking submission time period but not selected as late-breaking abstracts, will be publicly released at 9:00 a.m. CEST on April 21, 2024, and available online.

ABSTRACTS
Abstracts published in the Haemophilia journal Embargo will lift
9:00 a.m. CEST on April 21, 2024
LATE-BREAKING ABSTRACTS
Free paper presentation date Embargo will lift
Monday, April 22 9:00 a.m. CEST on April 22, 2024
Tuesday, April 23 9:00 a.m. CEST on April 23, 2024
Wednesday, April 24 9:00 a.m. CEST on April 24, 2024

The Congress will be the most comprehensive international event on bleeding disorders in 2024. Presenting authors will be able expect to share their work amongst top experts and researchers from around the world.

Selected abstracts may be eligible for:

Display in the virtual poster gallery – Available online for 60 days
Publication in Haemophilia, the official journal of the WFH
Oral presentation in a free paper session
Lightning round presentation in a moderated poster session
Printed poster and presentation during the poster networking event and breaks
Christine Lee Young Researcher Award for best oral presentation
Christine Lee Young Researcher Award for best poster presentation – New this year!
Outstanding abstract travel awards – New this year!

We look forward to seeing you in Madrid!

KEY DATES
Call for abstracts opensSeptember 15, 2023
Abstract submission deadlineNovember 30, 2023, 11:59 p.m. ET
Notification to authorsDecember 22, 2023
Presenting author registration deadlineJanuary 31, 2024
LATE-BREAKING ABSTRACTS
Late-breaking abstract submission opensJanuary 17, 2024
Late-breaking abstract deadlineFebruary 14, 2024, 11:59 p.m. ET
Notification to authorsMarch 15, 2024
Presenting author registration deadlineMarch 31, 2024

Please download and carefully read the following guidelines prior to submitting an abstract online:

Abstract submission guidelines

The late-breaking abstract (LBA) submission period is from January 17, 2024 to February 14, 2024.

Late-breaking abstracts should describe the latest advances that will change daily clinical practice and should highlight novel and practice-changing studies. The selection process will favor abstracts with ground-breaking and unique data that would not otherwise have been presented at the Congress. In every case, the results should not be fully available by the regular abstract submission deadline.

Abstract Public Release (Embargo) Dates and Times

Late-breaking abstracts (LBAs) will be publicly released throughout the WFH 2024 World Congress. The complete embargo dates and public release schedule for LBAs is detailed below.

All other abstracts, including those submitted during the late-breaking submission time period but not selected as late-breaking abstracts, will be publicly released at 9:00 a.m. CEST on April 21, 2024, and available online.

ABSTRACTS
Abstracts published in the Haemophilia journalEmbargo will lift
9:00 a.m. CEST on April 21, 2024
LATE-BREAKING ABSTRACTS
Free paper presentation dateEmbargo will lift
Monday, April 229:00 a.m. CEST on April 22, 2024
Tuesday, April 239:00 a.m. CEST on April 23, 2024
Wednesday, April 249:00 a.m. CEST on April 24, 2024

The Abstract Review Committee for the WFH 2024 Congress is composed of accomplished professionals representing a broad range of specialty areas and scientific approaches.

Poster networking event

When: Monday, April 22 – 19:30-20:30
Where: Poster gallery within the exhibit hall


Learn more about the work and research showcased in our poster gallery, from the authors themselves! Join us for an evening of sharing information, fostering connections, sparking conversations, and inspiring collaboration within the bleeding disorders community.

Submit an abstract

Submit your work today and join thousands of leading experts to discuss the latest advances in the treatment and care of people with bleeding disorders.

Questions? Contact us at [email protected].

HAEMOPHILIA SUPPLEMENTS

WFH 2024 State of the Art Book

This peer reviewed supplement reflects the best clinical practice advice and expert opinion within the various subspecialties of bleeding disorders and related fields that will be presented in the scientific program of the WFH 2024 World Congress.


WFH 2024 Book of Abstracts

Plan your calendar for free paper sessions, moderated poster presentations, and a comprehensive poster gallery, all showcasing the research and work presented on the abstracts of the WFH 2024 World Congress.

ABSTRACT AWARDS

Christine Lee Young Researcher Awards

Established in 2012 by the World Federation of Hemophilia (WFH) and Wiley, the Christine Lee Young Researcher Award (formerly the Christine Lee Haemophilia Journal Award) is given in recognition to a top young researcher (graduate student or postdoctoral fellow) who is the primary author and presenter of a highly rated submitted abstract in any discipline involving hemophilia or other related bleeding disorders.


Best oral presentation

A prize of $3,000 USD and a three-year online personal subscription to Haemophilia is provided for this award.


Best poster presentation

A prize of $1,000 USD and a three-year online personal subscription to Haemophilia is provided for this award.

Eligibility

The selection committee—including the journal’s editors and WFH representatives on the editorial board—will choose the best presented abstracts at the WFH 2024 World Congress. There will be one recipient per prize.

The young researcher must be under the age of 40 at the time the abstract is submitted. If there are multiple authors, the lead author and presenter must be under the age of 40 at the time the abstract is submitted.

Outstanding abstract travel awards

The WFH is pleased to offer five (5) grants of $1,000 USD each to the five (5) highest scoring abstracts submitted for the WFH 2024 World Congress.

Please indicate if you would like to be considered for a travel award during the submission process. If you have access to an alternate source of funding, kindly prioritize this to allow a maximum number of attendees to benefit from the WFH travel awards.

ABSTRACTS FAQ

Q
How long should my abstract be?
A

Your abstract should be no longer than 350 words. This does not include the author’s details, titles, tables, and graphs.

Q
Can I include tables/graphs in my abstract?
A

A maximum of two tables and/or graphs can be included in an abstract. Please make sure to add headings to each of the tables and/or graphs, and reference them within the abstract. Please do not include the author list on the figure/table you are uploading, as we operate by blind review.

Q
How many abstracts can I submit?
A

There is no limit on the number of abstracts a single author can submit.

Q
How many abstracts can I present?
A

Each presenting author may present a maximum of two abstracts at Congress. Should an author have more than two abstracts accepted, a co-author must be named as the presenting author for the third or more abstracts.

Q
Can I submit my abstract by email?
A

No. Abstracts should only be submitted through the online submission system. Abstracts sent via email will not be accepted.

Q
Can I submit an abstract in a language other than English?
A

No. Abstracts will only be accepted in written English. Abstracts submitted in any language other than English will be automatically rejected.

Q
How many authors can be listed for each submission?
A

A maximum of 20 authors is permitted on each abstract.

Q
Can I edit/make changes to my abstract?
A

Revisions can be made until the late-breaking abstract submission deadline: February 14, 2024 at 11:59pm ET. To ensure the integrity of the review process, no revisions will be allowed after the late-breaking abstract submission deadline.

Q
Can I submit a trial-in-progress abstract?
A

Yes. The WFH is accepting trials-in-progress abstracts. Please consult the abstract submission guidelines for details.

Q
Can an administrator/third party submit an abstract on behalf of the authors?
A

Yes. However, note that if the abstract is accepted, all subsequent notifications and correspondence will be addressed to the presenting author.

Q
When will I know if my abstract has been accepted?
A

You will be notified if your abstract has been accepted no later than December 22, 2023. You will be notified if your late-breaking abstract has been accepted no later than March 15, 2024.

Q
Do I need to register to attend the World Congress?
A

Yes. All regular abstract presenting authors must register to attend the WFH 2024 World Congress by January 31, 2024. All LBA presenting authors must register to attend the WFH World Congress by March 31, 2024. After this date, presenting authors who have not registered and paid their registration fees will be excluded from the program as well as from the Haemophilia journal publication. Registration fees will not be waived.

Q
Can I present virtually?
A

No. The 2024 World Congress will take place in-person only. Presenting authors will therefore be required to be onsite in Madrid, Spain.

Q
When will my accepted abstract be published?
A

Abstracts selected for publication will be made available in the online Haemophilia journal publication by April 21, 2024. The publication will be available on the Wiley website, the WFH 2024 World Congress website, and the Congress mobile app. Late-breaking abstracts selected for publication will be made available after Congress. More information to come.

Q
Will the WFH be accepting late-breaking abstracts?
A

Yes. The call for late-breaking abstracts will open on January 17, 2024 and will close on February 14, 2024.

Additional questions? Please contact us at [email protected].

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.

Hemophilia Alliance

Recognizing that training women leaders ensures the diversity our community need to thrive; the Hemophilia Alliance has been a longtime supporter of the Susan Skinner Memorial Fund. They deepened their engagement with the global community through the establishment of the Travel Grant Program, which allows US-based multidisciplinary healthcare professionals the opportunity to attend WFH global training workshops. The wealth of experience and perspective attendees bring back home to their communities helps patients across the country. Their patience and support as we grappled with changing norms in these challenging times gave us the flexibility to meet our community’s needs with revamped programming.

India - Mumbai

Year of IHTC designation: 2000

National Institute of Immunohaematology (ICMR) and KEM Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Orthopedic care
  • Physiotherapy

India - Vellore

Year of IHTC designation: 2000

Christian Medical College, Vellore

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics with antenatal diagnosis
  • Nursing
  • Musculoskeletal management – physical and occupational therapy with physiatry
  • Orthopedic care and surgery
  • Blood banking
  • Dental care
  • Psychology/Social services
  • Antenatal diagnosis

Singapore - Singapore

Year of IHTC designation: 2002

Singapore General Hospital Haemophilia Treatment Clinic

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis
  • Nursing
  • Dental care
  • Orthopedic care (no surgeries)
  • Physiotherapy
  • Psychology

Senegal - Dakar

Year of IHTC designation: 2016

Centre International de Traitement de l’Hémophilie (CITH) de Dakar
Centre National de Transfusion Sanguin (CNTS)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy

Russia - Moscow and St. Petersburg

Year of IHTC designation: 2010

National Medical Research Center of Hematology of the Russian Academy of Medical Sciences

Areas of Specialty

  • Adult hematology
  • Nursing
  • Orthopedic surgery

Netherlands - Utrecht

Year of IHTC designation: 1996

Van Creveldkliniek
University Medical Centre Utrecht

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hematology
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy

Japan - Nara

Year of IHTC designation: 1998

Nara Hemophilia Centre
Nara Medical University

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic care and surgery
  • Laboratory diagnosis and Molecular genetics
  • Physiotherapy

Italy - Milan

Year of IHTC designation: 1972

Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Blood banking
  • Orthopedic care and surgery
  • Physiotherapy
  • Diagnostic assessment of platelet functional defects

Israel - Tel Hashomer

Year of IHTC designation: 1993

National Hemophilia Center, Tel Hashomer
Sheba Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic surgery
  • Nursing
  • Physiotherapy
  • Dental care
  • Laboratory diagnosis (not genetics)
  • Psychology

France - Paris

Year of IHTC designation: 1972

Paris Haemophilia Centre (Necker (N) and Kremlin Bicetre (KB) Hospitals)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Dental care
  • Orthopedic care and surgery
  • Psychology and Social services

Spain - Madrid

Year of IHTC designation: 2018

Hospital Universitario La Paz

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Spain - Valencia

Year of IHTC designation: 1997

Haemostasis and Thrombosis Unit
Haematology Service, University and Polytechnic Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and Social services

Egypt - Cairo

Year of IHTC designation: 2015

Shabrawishi Hospital, Egyptian Society of Hemophilia, and Cairo University

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Molecular genetics
  • Blood banking
  • Physiotherapy

Canada - Toronto

Year of IHTC designation: 2018

University of Toronto Hemophilia Centres
St. Michael’s Hospital

Areas of Specialty

  • Adult hematology services
  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Brazil - Campinas, SP

Year of IHTC designation: 2008

Hemocentro – “Unidade de Hemofilia Cláudio Luiz Pizzigatti Corrêa”
Hemocentro Unicamp, University of Campinas

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and molecular genetics
  • Nursing
  • Dentistry
  • Physiotherapy

Belgium - Brussels

Year of IHTC designation: 2013

Haemostasis and Thrombosis Unit
Division of Haematology
Cliniques universitaires Saint-Luc

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Orthopedic care and surgery

Belgium - Leuven

Year of IHTC designation: 1972

Hemofiliecentrum Leuven, University of Leuven

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis (not genetics)
  • Nursing
  • Psychology
  • Social services
  • Orthopedic care and surgery

Austria - Vienna

Year of IHTC designation: 1972

Medical University of Vienna
Department of Medicine I
Clinical Division of Hematology and Hemostaseology

Areas of Specialty

  • Adult hematology

Australia - Melbourne

Year of IHTC designation: 2005

Ronald Sawers Haemophilia Centre

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Dental care
  • Blood banking
  • Psychology
  • Social work

Argentina - Buenos Aires

Year of IHTC designation: 1974

Instituto Asistencial “Dr. Alfredo Pavlovsky”
(Fundación de la Hemofilia)

Instituto De Investigaciones Hematológicas “Dr. Mariano R. Castex” (IIHEMA
(Academia Nacional de Medicina)

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy
  • Dental care
  • Orthopaedic care and surgery
  • Laboratory diagnosis and genetic diagnosis
  • Nursing
  • Psychology
  • Social services

South Africa - Johannesburg

Year of IHTC designation: 2016

Haemophilia Comprehensive Care Centre
Charlotte Maxeke Johannesburg Academic Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Physiotherapy

Sweden - Malmö

Year of IHTC designation: 1976

Malmö Centre for Thrombosis and Haemostasis
Department for Hematology and Coagulation Disorders, Skåne University Hospital
Skåne University Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Blood banking (on request)

Hemophilia of Georgia

Hemophilia of Georgia has stood with us for over three decades, playing an early role in distributing donated factor via the WFH Humanitarian Aid program. Our relationship has deepened over the years as they continued to support this program and came on board as a founding Chapter Challenge champion in 2016. Their belief in educating future leaders is clear in their investment in the Youth Leadership Workshops, which has led to the training of over 50 young adults. They also support workshops devoted to educating providers and patient leaders on how to collect and use data to advocate for better patient care. Their staff generously volunteer their time as trainers and as well as serving on various committees.

WFH President's Award - Recipients

National Bleeding Disorders Foundation

The National Bleeding Disorders Foundation helps advance our mission on several fronts. They inspire others to follow their lead as a founding champion of the NHF Chapter Challenge. Their commitment to equality of access is demonstrated in their support of the Cornerstone Initiative, which lays the foundation for care in the world's most underserved regions, as well as programs that aim to raise awareness and improve care of women with bleeding disorders and those with von Willebrand disease. We also benefit from their steadfast engagement with various programs including the WFH Twinning Program and their individual leaders’ contribution to our leadership and committees.

Legacy Gift

Do you sometimes wish you could do more? A bequest is a simple way for you to make a significant gift without changing anything about your financial security and lifestyle today. Your legacy will sustain care for the generations to come.

Download these sample clauses to give to your legal advisor.

We understand if you prefer to remain anonymous, but we would be very honoured if you would let us know of your intentions so that we may thank you personally. We would also be happy to answer any questions you may have or give you additional information. Please contact Jennifer Laliberté at 514‑875‑7944 ext.2822 or [email protected].

Disclaimer

The information on the WFH USA website is provided for general information purposes only. The WFH USA does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH USA recommends that you contact your physician or local treatment centre. Before administering any products, the WFH USA urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH USA does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH USA discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH USA social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH USA recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH USA. The WFH USA is not responsible and assumes no liability for the content of any linked websites.

Website privacy policy

The WFH USA does not collect personally identifying information about you when you visit our site, unless you choose to provide such information to us. Providing such information is strictly voluntary. This policy is your guide to how we will handle information we learn about you from your visit to our website.

Use of links

Throughout our website, we provide links to other servers which may contain information of interest to our readers. We take no responsibility for, and exercise no control over, the organizations, views, or accuracy of the information contained on other servers. When linking to the WFH USA, we request that you ensure that there are no associated connections for commercial purposes. Any official use of the name WFH USA or the use of its logo needs to be approved by the WFH USA. If you have a link you’d like us to consider adding to our website, please send an email to [email protected] with the subject “Link request.”

Use of text and images

All information, photographs, graphics, and other material on this website are protected by copyright. While users of this website may use the content for personal, non-commercial use, none of the content of this website can be modified, translated, transferred or sold, copied, reproduced, published, or distributed, in whole or in part, without the prior written consent of the WFH USA. To view a copy of the WFH USA’s permissions guidelines, click here.

The WFH USA encourages the dissemination of its information and welcomes proposals on the reprinting, redistribution, and translation of its materials. If you would like to publish information that you find on our website, please send your request to [email protected].

Accessibility

If you have suggestions on how to make the site more accessible, please contact us at [email protected].

Opt-Out or Change Your Contact Information

Our website provides users the opportunity to opt-out of receiving communications from us through a special online form or via the communication they have received. You may, at all times, choose to receive which communications within the organization you can receive or none at all. You may also update your contact information previously provided to us via another online form.

Questions about our policies

If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you can contact us at [email protected].