1.	PURPOSE
1.1	This WFH Digital Platforms Privacy Policy (hereinafter "Policy" or "Privacy Policy") explains not only how we collect, use, disclose and store any information related to your personal data when you visit any Website (or "Websites") or mobile applications ("Applications" or "Platforms") operated by WFH, but also how you can access, update or take control of your personal information.
1.2	This Policy replaces and updates the WFH Website Privacy Policy (IT 003).

2.	SCOPE
2.1	This Policy generally applies to: any personal information of a factual or subjective nature about an identifiable individual collected through the Websites and/or Platforms on which this Policy is posted, or through any other interactions you may have with us; WFH staff members (regular employees, temporary employees and contractual resources) and senior management who handle personal information held by WFH; visitors to our Websites and/or Platforms, our volunteers and Board members, and any person or company acting for or on behalf of WFH.
2.2	External links. This Policy does not apply to links to third-party websites, plug-ins, services, social networks or applications, including those offered via hyperlinks displayed on our Websites and/or Platforms. If you follow a link to a third-party website or use a third-party plug-in, please note that these third parties have their own privacy policies and we do not accept any responsibility or liability for those policies. We do not control these third-party websites and encourage you to read the privacy policy of each site you visit before providing them with any personal information.

3.	DEFINITION OF "PERSONAL INFORMATION"
3.1	When used in this Privacy Policy, “personal information” means any information about an individual that can be used to identify an individual, including, but not limited to, your name, address, email address, telephone number, gender, banking details, employment, health or other information.

4.	RESPONSIBILITIES OF WFH
4.1	The WFH will fulfill all requirements to protect, collect, use, disclose and retain personal information under the Acts and all other applicable laws and regulations. We attach great importance to the proper management of your data and take full responsibility for it.
4.2	The WFH will also ensure that it has reasonable security measures in place to protect and respect the confidentiality of any personal information in its custody and control.

5.	HOW DO WE COLLECT YOUR CONSENT?
5.1	The WFH considers you to have validly consented to the collection, use or disclosure of your personal information if (i) you give your express written or oral consent; (ii) you voluntarily provide personal information for an obvious purpose; or (iii) if you do not object to the collection, use or disclosure of personal information by the WFH within a reasonable time after the WFH has given you clear notice, including through this Policy, of its intention to do so and the intended purposes.
5.2	In some cases, the WFH may collect personal information about an individual without their consent in accordance with the Acts or any other law or regulation that permits doing so.

6.	WHY WE COLLECT PERSONAL INFORMATION
6.1	We strongly believe in both minimizing the information we collect and limiting its use and purpose. WFH uses your personal information only for the purposes and for the duration required for which it was collected, or for any use that may be required or permitted by legal compliance, government request, court order or other lawful purpose.
6.2	We collect personal information for a variety of reasons. In general, WFH collects only the personal information necessary to fulfill its mission. We may also collect information for administrative purposes — to better understand the visitors who come to our websites and/or Platforms and the content of our websites and/or Platforms that is of interest to them. The purposes for which we collect personal information include, but are not limited to: Improve the content, offering, appearance and usefulness of our Websites and/or Platforms; Send, subject to your right to withdraw your consent as set out in this Policy, periodic emails; Personalize your experience by responding to your needs; Provide you with information or resources you have requested; Process a donation and issue tax receipts; Meet legal and regulatory requirements; Prevent potentially prohibited or illegal activities for risk management, fraud detection and security purposes.
6.3	Wherever possible, rather than using personal information, we will anonymize and/or aggregate personal information so that it no longer identifies an individual and use it for the purposes stated above or for any purpose permitted by law.
6.4	If we ever wish to use or disclose your personal information for purposes other than those specifically described in this Policy, we will obtain your consent.

7.	WHAT PERSONAL INFORMATION DO WE COLLECT?
7.1	WFH only collects personal information that is directly related to one of our programs or activities. We take steps to ensure that the personal information we collect about you is adequate, relevant, not excessive and used for limited purposes. We collect only the information we need.
7.2	The WFH collects information on its Websites and/or Platforms in two ways:
7.2.1	Information you provide directly to us: In many cases, we collect personal information directly from you when you provide your information by subscribing to our Newsletter, when you fill out other forms on our Websites and/or Platforms, when you make an inquiry or when you contact us in person or through the WFH Websites and/or Platforms. The provision of this information is strictly voluntary. We strongly encourage you not to provide any information beyond what is necessary.
7.2.2	Information collected automatically: You should be aware that when you access or browse our Websites and/or Platforms, an exchange of information, subject to your prior consent, takes place automatically between your device and WFH's hosting environment. This exchange is required only because of the technological demands inherent in Internet browsing and is used for statistical purposes to improve your experience — the information exchanged does not identify you personally. The information exchanged is as follow: The domain name of your internet service provider; Your computer's truncated IP address (your IP address is changed, making it impossible to link to you); The type of browser (Chrome, Edge, Firefox, Safari, etc.) and operating system (Windows, Mac OS, etc.) used; The date and time of your visit; The pages you consult and the duration of these consultations; The address of the referring site, if you access WFH Websites and Platforms from another site. WFH retains only the information necessary to count the number of visitors, the most frequently visited pages, the technology used by visitors, the referring sites and the country of origin of visitors. This information is not used in any way to compile, communicate or exchange lists of users/visitors.
7.3	By using the WFH Websites and/or Platforms, you agree to the terms and conditions set forth in this Privacy Policy.

8.	USE OF COOKIES
8.1	The main types of data collected on WFH Websites and/or Platforms are cookies and personalization settings. Cookies are small text files that are downloaded when you visit certain pages of a site and stored in the memory of the device you are using. Cookies are completely harmless and cannot contain any viruses. They enable certain information (browser type, language, country, identifier, etc.) to be recorded and retrieved by the server on subsequent visits. Under no circumstances do cookies allow visitors to be identified. The data remains completely anonymous and is used only to facilitate browsing and improve the WFH’s Websites and/or Platforms based on the needs of its visitors.
8.2	If you do not wish cookies to be used, your browser options can be configured to refuse and/or delete cookies. Please note that disabling or deleting cookies may deprive you of certain functions offered on our Websites and/or Platforms. In addition, this procedure must be repeated for each browser and computer used.
8.3	Google Analytics. We also gather information automatically about visits to our Websites and/or Platforms to help us maintain and improve its design, and to evaluate traffic statistics, such as the times of day and days of week at which we see peak traffic, and to assess the relative popularity of different areas of the Websites and/or Platforms. We use Google Analytics to gather this data and analyze it. Google Analytics collects information about the date and time in which our Websites and/or Platforms were accessed, and may also track a visitor’s movement within the site, but does not collect personal information about the visitor. You can install the Google Analytics Opt-out Browser Add-on to prevent information about your visits to our Websites and/or Platforms being sent to Google Analytics. Our web statistics software (Google Analytics) collects information about the date and time in which our Websites and/or Platforms were accessed, and we may also track a user’s movement within the Websites and/or Platforms. We use this data to improve our Websites and/or Platforms performance.
8.4	Meta Pixel. WFH also uses web beacons (“Pixels”) to analyze visitor activity to our Websites and/or Platforms. We use Meta Pixel to collect information about your interactions with our Websites and/or Platforms, such as pages visited, actions taken, buttons clicked and any pages visited as a result of the button clicks. Web beacons do not contain any personal information but may contain a unique identifier necessary for retargeting and targeted advertising. Meta Pixel allows us to measure the effectiveness of our advertising by understanding the actions you take on our Websites and/or Platforms. We use this data solely for analytical purposes to improve our services and deliver more relevant content.

9.	RESPONSES TO JOB OFFERS
9.1	If you have applied for a job with WFH, we will use your personal information for recruitment and other human resources purposes. We keep the documents sent (CV, cover letter, etc.) by the candidates for a maximum of three (3) years. Documents are then securely destroyed.

10.	PROTECTION OF THE PRIVACY OF MINORS
10.1	WFH does not knowingly collect personal information from children under the age of 14 without the consent of the child's parent or legal guardian. If we learn that we have collected or received personal information from a child for whom parental confirmation was required, we will delete that information. If you believe that we may have received information from or about a child for whom we should have obtained parental consent, please contact us.

11.	DO WE DISCLOSE YOUR PERSONAL INFORMATION TO THIRD PARTIES?
11.1	Rest assured that WFH will never sell, trade, rent, share or transfer your personal information to third parties (organizations or individuals) for commercial purposes without your consent, except in the exceptional cases specifically provided for in this Policy.
11.2	As part of the services offered by our external suppliers. WFH may transfer personal information that we collect or that you provide as described in this Policy to service providers and other third parties we use to support our organization. Such third parties are contractually obligated to keep personal information confidential, use it only for the purposes for which we disclose it and process personal information in accordance with the standards set out in this Policy and in compliance with the Acts.
11.3	In the context of a legal obligation. WFH may disclose your personal information to comply with any court order, law or legal process, including to respond to any government or regulatory request, in accordance with applicable law, to combat fraud or harms to WFH or our members, or if we believe that disclosure is necessary or appropriate to protect the rights, property or safety of WFH or others.

12.	SHARING PERSONAL INFORMATION OUTSIDE QUÉBEC
12.1	Your personal information is processed and stored in Québec. In order to carry out our mission, we may in some cases store, process and transfer your information around the world, including outside Québec or to jurisdictions outside your country of residence — if you are located in the Economic European Area or Switzerland, please review Appendix A "Additional terms" which apply to you in addition to the main terms of this Policy. Data may also be stored locally on the devices you use to access WFH Websites and/or Platforms.
12.2	In such cases, the transfer will only take place if we find that the information would be adequately protected, in particular considering the sensitivity of the information, the purpose for which it is used, the protection the information would be afforded, and the legal framework applicable in the state or province where the information would be transferred. Any transfer will also be subject to appropriate contractual agreements to ensure adequate protection.

13.	HOW DO WE PROTECT YOUR PERSONAL INFORMATION?
13.1	The security of your personal information is very important to us. The personal information we collect is stored in a secure environment using industry-recognized technologies. We will protect personal information against loss or theft, unauthorized access, use or disclosure, copying, modification or destruction.
13.2	When you visit our Websites and/or Platforms and are asked for personal information, this information is used exclusively by WFH. In order to protect your personal information, we have implemented customary security measures that are appropriate to the sensitivity of the information collected, including the following physical, organizational, contractual and technological measures: Information stored in a protected database; Encrypted communications using the TLS protocol; Access to your personal information is restricted to those employees who need it to perform their duties (authorized and/or concerned persons) — these employees will treat the information as strictly confidential and will not give access to this information to any unauthorized person; Report any violation of this Policy or the Acts to the WFH Privacy Officer; Network monitoring software; Anti-virus and anti-malware; End-user device encryptions; Passwords and multi-factor authentication; Firewall; Secure Web site donation page; content encrypted or encoded to make information unreadable; Paper files kept in locked filing cabinets wherever possible; Access codes to WFH premises; Security personnel.
13.3	Individuals working for WFH or acting on our behalf must make reasonable efforts to minimize the risk of unintentional disclosure of personal information. In addition, our policies, procedures and codes of conduct are clearly communicated to our employees, contractors, volunteers, consultants and subcontractors and WFH will ensure that they are adhered to and respected. All individuals who fail to comply with the principles and procedures of this Policy will be subject to corrective measures, including termination of their employment relationship, tenure or contract.
13.4	Despite these precautions, no method of transmission or storage is 100% secure or error-free. As a result, we cannot guarantee absolute security. If you have reason to believe that your interaction with us is no longer secure, please contact us immediately.
13.5	If we become aware of a security breach involving your personal information, we will notify you and the appropriate authorities as soon as possible, in accordance with the Acts.

14.	RETENTION AND DESTRUCTION OF PERSONAL INFORMATION
14.1	Except as permitted or required by the Acts or any applicable law or regulation, WFH will retain your personal information only for as long as necessary to fulfill the purposes for which we collected it, including for the purposes of satisfying legal, accounting or reporting requirements to the appropriate government and regulatory bodies.
14.2	Personal information that is no longer required for the purposes for which it was collected will be destroyed, erased or made anonymous in accordance with applicable laws.
14.3	Under some circumstances, we may anonymize your personal information so that it can no longer be associated with you. We reserve the right to use de-identified and anonymized data for any legitimate purpose without further notice to you or your consent.
14.4	If the WFH uses personal information to make a decision that directly affects an individual, we will retain that information for as long as necessary to fulfill the purposes for which the information was collected. Once the information has been used, individuals may access their personal information as set out in the Acts.

15.	ACCESSING, CORRECTING, DE-INDEXING AND PORTABILITY OF YOUR PERSONAL INFORMATION
15.1	It is important that the personal information we hold about you is accurate and current. Please keep us informed if your personal information changes. You can contact us via the WFH Online Contact Form or email us at [email protected].
15.2	Upon request, an individual is entitled to be informed of the existence, use and disclosure of their personal information and to obtain access to that information, or to obtain a copy of their personal information in electronic or non-electronic format subject to appropriate notice. An individual has the right to challenge the accuracy and completeness of their personal information, have it amended, or withdraw consent to the use of their information. In addition, WFH complies with all laws regarding access to and correction of your personal information.
15.3	An individual has also the right to receive computerized personal information collected from them in a structured, machine-readable, and commonly used format. In certain circumstances, the individual may also ask WFH to transfer their computerized personal information directly to third parties. An individual has the right to request that the dissemination of their personal information cease, or to request that any hyperlinks associated with their name and that provide access to personal information be de-indexed or re-indexed.
15.4	No request for access, rectification, de-indexation or data portability may be considered unless it is made in writing and addressed to the WFH Privacy Officer. You must provide enough detail to enable the WFH to process the request. The Privacy Officer will respond within 30 days of the receipt of a request, unless it extends the time as authorized under the Acts.

16.	WITHDRAWING YOUR CONSENT
16.1	If you have given your consent to the collection, use and transfer of your personal information, you may have the legal right to withdraw your consent under certain circumstances. To withdraw your consent, if applicable, contact us at [email protected].
16.2	Please note that if you withdraw your consent, we may not be able to provide you with certain services. We will explain the impact of withdrawing your consent to help you make a decision.

17.	CHANGES TO OUR PRIVACY POLICY
17.1	WFH will review and update its policies and procedures as required to keep current with rules and regulations, new technologies and standards. Our Privacy Policy may therefore change from time to time. We will post any Policy changes on our Websites and Platforms and, if the changes are significant, we will provide a more prominent notice. You are responsible for periodically visiting our Websites and/or Platforms and this Policy to check for any changes.
17.2	Please note that both the English and French versions of our Privacy Policy have equal legal value.

18.	CONTACT DETAILS FOR THE PRIVACY OFFICER
If you have any comments, questions or requests regarding this Policy or our privacy practices, or to report any abuse by third parties, please do not hesitate to contact Antonio José Almeida, WFH Senior Director, Operations and Privacy Officer by e-mail at [email protected] or at the following postal address:
c/o Privacy Officer, World Federation of Hemophilia 1425, boul. René-Lévesque West Suite 1200 Montreal, Québec H3G 1T7 Canada
We have procedures in place to receive and respond to complaints or inquiries about our handling of personal information, our compliance with this Policy and applicable privacy laws. If you are not satisfied with WFH's handling of your personal information, you may file a complaint with WFH. The complaint will be investigated by the WFH Privacy Officer, who will determine whether the handling of the information complies with WFH policies and practices and any other applicable laws. The Privacy Officer will make every reasonable effort to resolve complaints. The person filing the complaint will be informed of any progress or outcome of the investigation within a maximum of 30 working days of receipt of the request and/or any additional time required to complete the investigation.

APPENDIX A
ADDITIONAL TERMS FOR USERS LOCATED IN THE ECONOMIC EUROPEAN AREA (EEA) AND SWITZERLAND
If you are located in the European Economic Area (EEA) or Switzerland, these additional terms apply to you in addition to the main terms of WFH Privacy Policy. In case of a contradiction between the Privacy Policy and these additional terms, the latter will prevail.
1	LEGAL BASIS FOR PROCESSING PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
1.1	If you are from the European Economic Area (EEA) or Switzerland, WFH’s legal basis for collecting and using the personal information described in this Privacy Policy depends on the personal information we collect and the specific context in which we collect it. We only process your Personal information if we have a legal basis to do so, which includes: Consent: where you have given us your consent, you have given us permission to do so, or where processing is necessary for the performance of a service you have requested; or Legitimate interests: for example, we may process your personal information to protect you, us, or others from threats (such as security threats or fraud), to comply with laws that apply to us.
If you have any questions about the lawful bases upon which we collect and use your personal data, please contact: Antonio José Almeida, WFH Senior Director, Operations and Privacy Officer by e-mail at [email protected] or at the following postal address: c/o Privacy Officer, World Federation of Hemophilia, 1425, boul. René-Lévesque, West Suite 1200, Montreal, Québec, H3G 1T7, Canada
2	TRANSFER OF YOUR PERSONAL INFORMATION OUTSIDE OF THE EEA OR SWITZERLAND
2.1	We may process information outside of the EEA or Switzerland, including Canada and the USA.
3	ADDITIONAL RIGHTS REGARDING YOUR PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
3.1	If you are a resident of the European Economic Area (EEA) or Switzerland, you have certain data protection rights. WFH aims to take reasonable steps to allow you to correct, amend, delete or limit the use of your personal information.
3.2	If you wish to be informed about what personal information we hold about you and if you want it to be removed from our systems, please contact us.
3.3	In addition to the rights mentioned in the section 15 ("Accessing, correcting, de-indexing and portability of your personal information") and in section 16 ("Withdrawing your consent"), in certain circumstances, you also have the following data protection right: The right to delete the information we have on you. Whenever made possible, you can request deletion of your personal information, in which case we will carry out this request unless certain exceptional reasons arise permitting us to keep certain information about you; The right to object. You have the right to object to our processing of your personal information in certain circumstances, such as those described in the “Legitimate interests” section 1.1 b) above. We may however continue to process your personal Information unless your interests, rights and freedoms override our legitimate interests; and The right of restriction. You have the right to request that we restrict or limit the ways in which we process your personal information for instance where you believe your data is inaccurate. Please note that we may ask you to verify your identity before responding to such requests.

APPENDIX A
ADDITIONAL TERMS FOR USERS LOCATED IN THE ECONOMIC EUROPEAN AREA (EEA) AND SWITZERLAND
If you are located in the European Economic Area (EEA) or Switzerland, these additional terms apply to you in addition to the main terms of WFH Privacy Policy. In case of a contradiction between the Privacy Policy and these additional terms, the latter will prevail.
1	LEGAL BASIS FOR PROCESSING PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
1.1	If you are from the European Economic Area (EEA) or Switzerland, WFH’s legal basis for collecting and using the personal information described in this Privacy Policy depends on the personal information we collect and the specific context in which we collect it. We only process your Personal information if we have a legal basis to do so, which includes: Consent: where you have given us your consent, you have given us permission to do so, or where processing is necessary for the performance of a service you have requested; or Legitimate interests: for example, we may process your personal information to protect you, us, or others from threats (such as security threats or fraud), to comply with laws that apply to us.
If you have any questions about the lawful bases upon which we collect and use your personal data, please contact: Antonio José Almeida, WFH Senior Director, Operations and Privacy Officer by e-mail at [email protected] or at the following postal address: c/o Privacy Officer, World Federation of Hemophilia, 1425, boul. René-Lévesque, West Suite 1200, Montreal, Québec, H3G 1T7, Canada
2	TRANSFER OF YOUR PERSONAL INFORMATION OUTSIDE OF THE EEA OR SWITZERLAND
2.1	We may process information outside of the EEA or Switzerland, including Canada and the USA.
3	ADDITIONAL RIGHTS REGARDING YOUR PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
3.1	If you are a resident of the European Economic Area (EEA) or Switzerland, you have certain data protection rights. WFH aims to take reasonable steps to allow you to correct, amend, delete or limit the use of your personal information.
3.2	If you wish to be informed about what personal information we hold about you and if you want it to be removed from our systems, please contact us.
3.3	In addition to the rights mentioned in the section 15 ("Accessing, correcting, de-indexing and portability of your personal information") and in section 16 ("Withdrawing your consent"), in certain circumstances, you also have the following data protection right: The right to delete the information we have on you. Whenever made possible, you can request deletion of your personal information, in which case we will carry out this request unless certain exceptional reasons arise permitting us to keep certain information about you; The right to object. You have the right to object to our processing of your personal information in certain circumstances, such as those described in the “Legitimate interests” section 1.1 b) above. We may however continue to process your personal Information unless your interests, rights and freedoms override our legitimate interests; and The right of restriction. You have the right to request that we restrict or limit the ways in which we process your personal information for instance where you believe your data is inaccurate. Please note that we may ask you to verify your identity before responding to such requests.

2024 Congress Daily morning edition: Tuesday, April 23

Good morning and welcome to Day 2 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day.

Also available in: Français Español

Medical and PWBD concurrent plenaries this morning

It’s hard to choose—but you just might have to! Today at 10:15, we will be hosting our first concurrent plenaries. In the medical track, “Defining success in hemophilia care – Are we doing it right?” Alok Srivastava, MD, will look at our definitions of success, to explore whether we are using the correct approach to determine if we’re making progress for our community. In the PWBD track, “Oral health and quality of life: Let’s talk intimacy, pain and self esteem” Zikra Alkhayal, ABPD, will explore the intimate connection between oral health, sexuality, and overall quality of life. To find out more, have a look at the full Congress program here.

Time: 10:15 to 10:45
Location:
MEDICAL PLENARY: Defining success in hemophilia care – Are we doing it right?
N103-N104, 1^st floor, North Convention Center
PWBD PLENARY: Oral health and quality of life: Let’s talk intimacy, pain and self esteem
N101-N102, 1^st floor, North Convention Center

Late breaking session coming up this afternoon

“Late breaking session: New tech” will be chaired by Flora Peyvandi, MD, PhD, and WFH Vice President, Glenn Pierce, MD, PhD. The event will cover new information shared by leading organizations in the field. To find out more, have a look at the full Congress program here.

Time: 16:00 to 17:00
Location: N103-N104, 1^st floor, North Convention Center

Don’t miss this: two Presentation Theatre sessions today

Day 2 of Congress will feature two Presentation Theatre sessions covering hereditary factor X deficiency at 11:00, and plasminogen replacement therapy for the treatment of patients with congenital plasminogen deficiency at 15:30. We encourage you to take part in these important talks! Find out more about the Presentation Theatre sessions by clicking here.

Time: 11:00 to 11:20 and 15:30 to 15:50
Location: Presentation Theatre in Exhibit Hall 9

Young researcher free paper session taking place at 11:30

This morning’s young researcher free paper session will feature several promising scientists and researchers who are working to improve the lives of PWBDs. Four speakers from around the world will cover a variety of topics, including pro-hemostatic activity, the Self-BAT screening tool, inhibitors, and women and girls with hemophilia. To find out more, have a look at the full Congress program here.

Time: 11:30 to 12:30
Location: N106, 1^st floor, North Convention Center

Spotlight on rare bleeding disorders: three sessions to check out

Day two of Congress will feature three spotlight sessions you may want to pencil into your agenda. These events focus on rare bleeding disorders—conditions which are all-too-often overlooked. To find out more, have a look at the full Congress program here.

Dental management of people with complex or rare bleeding disorders
Track: DENTAL
Time: 11:30 to 12:30
Location: N107-N108, 1st floor, North Convention Center

Rare bleeding disorders: advances in management
Track: MEDICAL
Time: 14:00 to 15:15
Location: N103-104, 1^st floor, North Convention Center

Who are we today? Spotlight on “rarely” heard narratives
Track: PWBD
Time: 16:00 to 17:00
Location: N105, 1st floor, North Convention Center

Industry symposia taking place at 12:45

Three industry symposia will take place today and you’re invited! Come to learn more about gene therapy in hemophilia, optimizing the patient experience with von Willebrand disease, and finding hemostatic balance within the evolving treatment landscape. Find out more about industry symposia by clicking here.

Time: 12:45 to 13:45
Location: Exhibit Hall 9 in rooms 1, 2 and 3

Visit our poster gallery in the exhibit hall to get the pulse of the bleeding disorders community

More than 300 posters will be displayed in our in-person and virtual poster galleries. Why not take a few minutes while you’re strolling in the Exhibit Hall to see the opportunities that researchers are exploring today? Come any time during the Exhibit Hall opening hours. To see online posters, click here.

Location: Poster gallery, Exhibit Hall 9

Why not drop by the WFH Resource Centre today!

The WFH Resource Centre at Congress is your chance to learn about WFH programs, and the free educational content that is available to all. Drop by to chat with our friendly WFH staff and learn more about WFH resources and programs. We look forward to seeing you there!

Want to learn how to use the WFH Annual Global Survey (AGS), the WFH World Bleeding Disorders Registry (WBDR) or the WFH Shared Decision Making Tool (SDM) to the fullest? Head over to the WFH Resource Centre and take part in free demos taking place today!

WFH Annual Global Survey (AGS): 13:00 to 14:00
WFH World Bleeding Disorders Registry (WBDR): 13:00 to 14:00
Location: WFH Resource Center, Exhibit Hall 9

Gene therapy registry takes centre stage at 17:15

Join us this afternoon for a WFH highlight session on the WFH Gene Therapy Registry. Talks will look at the importance of a gene therapy registry from the perspective of various stakeholders, including participating hemophilia treatment centres, national registries, patients, regulatory bodies, and industry. To find out more, have a look at the full Congress program here.

Time: 17:15 to 18:15
Location: N101-N102, 1^st floor, North Convention Center

Network with peers on the Women and Girls with Bleeding Disorders Initiative

Networking is a big part of Congress, and if you have an interest in the issues faced by WGBDs, we encourage you to join us at the WGBD networking event to share experiences with colleagues. And, as a bonus: you’ll find out who the recipients of the 2024 Susan Skinner Memorial Fund Scholarship are! For more details, have a look at the full Congress program here.

Time: 18:30 to 19:30
Location: Neptuno, 2^nd floor, North Convention Center

Scan to earn your CME credits!

The WFH 2024 World Congress is accredited for 32 CME credits by the European Board for Accreditation in Hematology (EBAH). To ensure you get your credits, remember to scan your badge twice: once when you arrive, and once when you leave the conference centre at the end of each day. To find out more about CME credits at Congress, click here.

Scan your badge at one of two CME locations:

1^st floor of the North Convention Center, next to room N113
Registration desk in Exhibit Hall 9

Registration open in exhibit hall

Haven’t registered for Congress yet? Online registration is closed, but in-person registration is still open. Head on to the registration desk in the exhibit hall. Our team will get you set up in no time.

Stay connected with the official Congress app

Access all on-site resources conveniently through our Congress app, including the program schedule, interpretation offering, speaker information, floor plans, and much more!

Download the Aventri Events app from the Apple App Store or the Google Play store
Enter the Congress access code: 463419
Login (case sensitive):
- Username: the email address you used to register (all lowercase)
- Password: your last name (only capitalize the first letter

Shuttle bus schedule

The WFH will be providing a shuttle service between the official WFH hotels and the IFEMA Convention Center on Congress days (April 21 to 24). Several shuttles will travel between the Meliá Castilla, Novotel Madrid Center, Hotel H10 Tribeca, Ilunion Alcalá Norte, Ilunion Atrium, Marriott Auditorium, and the RIU Plaza España. Shuttles will depart approximately every thirty minutes and will loop continuously throughout the morning and late afternoon. WFH 2024 Congress signs will be posted at all boarding sites identifying the location as a WFH Shuttle pick-up and drop-off site.

Day	From Congress hotels	From IFEMA
Sunday, April 21	7:00 to 9:00	17:00 to 21:30
Monday, April 22	7:00 to 9:00	17:00 to 21:00
Tuesday, April 23	7:00 to 9:00	17:00 to 19:00
Wednesday, April 24	7:00 to 9:00	17:00 to 19:00

Lastest News

May 6, 2024

WFH awards presented during WFH 2024 World Congress

The World Federation of Hemophilia (WFH) and its national member organizations (NMO) are powered by dedicated individuals who believe that together, a better future can be brought to those living with a bleeding disorder around the world. WFH awards serve to recognize these individuals who have dedicated their time to supporting our shared vision of Treatment for All....

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WFH 2024 World Congress concludes on high note

April 24, 2024

The WFH 2024 World Congress has officially concluded! Held from April 21 to 24 in Madrid, Spain, the event attracted over 3,000 delegates from 135 countries. The Congress was the most comprehensive international event on bleeding disorders this year, and the first fully in-person event for the WFH since the…

2024 Congress Daily morning edition: Wednesday, April 24

April 24, 2024

Good morning and welcome to Day 3 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Tuesday, April 23

April 23, 2024

Good evening! Here’s a quick wrap-up of some key events that took place on Day 2 of the WFH 2024 World Congress….

2024 Congress Daily morning edition: Tuesday, April 23

April 23, 2024

2024 Congress Daily evening edition: Monday, April 22

April 22, 2024

Good evening! Here’s a quick wrap-up of some key events that took place on Day 1 of the WFH 2024 World Congress….

2024 Congress Daily morning edition: Monday, April 22

April 22, 2024

Good morning and welcome to Day 1 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Sunday, April 21

April 21, 2024

Good evening! Here’s a quick wrap-up of some key events that took place today. We look forward to welcoming you to the official first day of the WFH 2024 World Congress tomorrow….

2024 Annual Meeting of the General Assembly held

April 21, 2024

The World Federation of Hemophilia (WFH) 2024 Annual Meeting of the General Assembly was held today in Madrid, Spain, as part of the WFH 2024 World Congress. The meeting featured reports given by WFH board members and was attended by WFH national member organizations (NMOs)….

2024 Congress Daily morning edition: Sunday, April 21

April 21, 2024

Good morning and welcome to the WFH 2024 World Congress! Check in on this page daily in the mornings and evenings to learn about what not to miss, and to get a recap of the key events that took place during the day….

WFH 2024 World Congress just around the corner

April 18, 2024

After two years of anticipation, the WFH 2024 World Congress is finally here! In just a few days, thousands of visitors will come to Madrid to take part in the most comprehensive international event in the bleeding disorders community. If you haven’t already, it’s not too late to book your…

Earn CME credits at the WFH 2024 World Congress

April 3, 2024

The WFH 2024 World Congress—taking place in just a few weeks from April 21 to 24!—has been accredited for 32 CME credits by the European Board for Accreditation in Hematology (EBAH), an accreditation body supported and endorsed by the European Hematology Association (EHA)….

WFH 2024 World Congress speakers share passion on Instagram reels

March 27, 2024

The WFH 2024 World Congress is coming soon! People from all around the world are getting excited about joining their colleagues in Madrid this April. This includes our many registrants, as well as the speakers, industry stakeholders, key opinion leaders, and other movers and shakers who will be coming together…

New free paper sessions added to Congress program

March 12, 2024

The WFH 2024 World Congress is just a few weeks away, and we’re happy to announce that ten new free paper sessions have been added to the program. The sessions will showcase top-scoring abstracts submitted by experts in the field. Take part in these sessions and delve into groundbreaking research…

Expand your horizons with free workshops at the WFH 2024 World Congress

February 21, 2024

The WFH 2024 World Congress will kick-off on Sunday, April 21, 2024, at 8:00 a.m. CEST, with more than ten interactive professional development workshops—offered free to all registered attendees. These workshops will give participants a unique opportunity to interact closely with experts and peers and get hands-on experience on a…

Add these to your agenda! Key sessions at the WFH 2024 World Congress

February 16, 2024

In December, we highlighted eight key sessions from the WFH 2024 World Congress that are not to be missed. Today, we bring you eight new sessions you’ll want to add to your agenda for this April in Madrid. These talks will explore a wide range of topics within the Medical…

Top 5 reasons to attend the WFH 2024 World Congress

January 25, 2024

If you’re interested in attending the largest meeting for the bleeding disorders community this year, then look no further than the WFH 2024 World Congress. In just a few months, we will welcome people from around the world to Madrid, Spain, to learn about the very latest developments in our…

Don’t miss speakers: WFH 2024 World Congress

January 18, 2024

Welcome to 2024—the year of the WFH 2024 World Congress! In just a few months, the World Federation of Hemophilia (WFH) will be welcoming thousands of delegates to Madrid for the biggest event for our community this year. Participants can expect to enjoy over 90 hours of educational sessions across…

Don’t miss sessions: WFH 2024 World Congress

December 15, 2023

The WFH 2024 World Congress program has been published! Next year’s Congress will include over 90 hours of educational sessions across medical and people with bleeding disorders (PWBDs) tracks, as well was six professional development tracks. You can take a look at the full Program now to see what’s on…

WFH 2024 World Congress: Madrid, Spain’s exciting capital

November 24, 2023

The World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) are excited to welcome the global bleeding disorders community to the WFH 2024 World Congress in Madrid, Spain next year from April 21 to 24. This in-person event will be the most the comprehensive international event on…

Abstract submission deadline extended

November 16, 2023

Great news for researchers who want to showcase their work to the world: the WFH 2024 World Congress abstract deadline has been extended to November 30, 2023, at 11:59 p.m. ET….

You’re officially invited to the WFH 2024 World Congress

October 16, 2023

On behalf of Cesar Garrido, President of the World Federation of Hemophilia (WFH) and Daniel-Aníbal García Diego, President of La Federación Española de Hemofilia (Fedhemo), you are officially invited to the WFH 2024 World Congress in Madrid, Spain! Taking place from April 21 to 24, 2024. This event will be…

It’s official! Registration and accommodations open for WFH 2024 World Congress

September 22, 2023

Registration and accommodations are officially open for the WFH 2024 World Congress in Madrid, Spain from April 21 to 24. Our competitive registration rates and our many hotel options make it easy for you to take part in what will be the biggest event for the global inherited bleeding disorders…

WFH 2024 World Congress call for abstract submissions opening soon!

September 6, 2023

Next year, the World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) will host the WFH 2024 World Congress in Madrid, Spain, from April 21 to 24. The event will be the most comprehensive one of the year in our field, with over 90 hours of continuing…

Learn more about the WFH 2024 World Congress

July 26, 2023

Next year will be a big one for the global bleeding disorders community, as the World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) will host the WFH 2024 World Congress in Madrid, Spain, from April 21 to 24. The event will be the most comprehensive one…

Mark your calendars! WFH 2024 World Congress coming to Madrid next year

May 11, 2023

WFH 2024 World Congress to take place in Madrid

November 18, 2022

Today, an Extraordinary Meeting of the of the World Federation of Hemophilia (WFH) General Assembly (GA) was called to decide the location of the WFH 2024 World Congress. We are pleased to announce that Madrid, Spain, has been selected as the location for the next WFH World Congress. The NMO,…

WFH to call special meeting of the General Assembly

September 26, 2022

The COVID-19 pandemic has had major impacts on the bleeding disorders community over the last two years, including the cancellation or postponement of events. Changes related to these effects have now necessitated the calling of a special World Federation of Hemophilia (WFH) General Assembly (GA) meeting to decide the location…

New Associate NMO: Safe Motherhood and Hemophilia Foundation The Gambia

July 5, 2022

On May 7, 2022, during the World Federation of Hemophilia (WFH) Annual Meeting of the General Assembly, the Safe Motherhood and Hemophilia Foundation The Gambia (SMHF) was welcomed as a WFH associate national member organization (NMO). The SMHF is now part of a family of 147 NMOs from around the…

Complimentary On-Demand 2022 Congress content now available

June 13, 2022

The WFH 2022 World Congress was an immense success with thousands of attendees joining from 145 countries, both in-person in Montreal and virtually. The WFH is now happy to offer you complimentary On-Demand content from the event….

Ekawat Suwantaroj co-opted to WFH Board of Directors

May 31, 2022

The World Federation of Hemophilia (WFH) is very pleased to announce that Ekawat Suwantaroj has been co-opted to its Board of Directors as a lay member from May 26, 2022, to the next Annual Meeting of the General Assembly in 2024….

General Plenary: VP Medical address with Glenn Pierce

May 12, 2022

At the WFH 2022 World Congress in Montreal, Canada, Glenn Pierce, MD, PhD, Vice President Medical at the World Federation of Hemophilia (WFH), gave his plenary address, “Looking Forward with the View of Learnings of the Past”. In his presentation, Pierce addressed where we are, and where we need to…

WFH 2022 World Congress concludes on high note

May 12, 2022

The WFH 2022 World Congress concluded today in Montreal. Many guests gathered for the farewell dinner in a comfortable setting that reflected the positive feeling and sense of camaraderie that was present for the whole Congress….

Congress Daily Recap – Day 3

May 12, 2022

The challenge of evaluating and managing pain

May 11, 2022

Today, the session “The challenge of evaluating and managing pain” was given at the WFH 2022 World Congress. The event was chaired by Barbara Konkle, Research Director and Professor of Medicine at the Washington Center for Bleeding Disorders, U.S.A., and World Federation of Hemophilia medical board member….

We are looking forward to seeing you in Buenos Aires and Kuala Lumpur!

May 11, 2022

On behalf of everyone at the WFH, thank you for being part of the WFH 2022 World Congress in Montreal, Canada….

Don’t forget to drop by the WFH Resource Centre

May 11, 2022

WFH Humanitarian Aid Program officially signs new contract with CSL Behring

May 11, 2022

In April, the WFH and WFH USA announced a new WFH Humanitarian Aid Program partnership with CSL Behring which included a donation of 500 million IUs of factor VIII in addition to the original 3-year commitment of 17 million IUs per year of factor VIII and IX….

Congress Daily Recap – Day 2

May 11, 2022

Magdy El Ekiaby receives 2022 WFH International Healthcare Volunteer Award

May 11, 2022

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions help drive our progress towards the WFH vision of Treatment for All….

Today at the WFH 2022 World Congress – May 11

May 11, 2022

Welcome to day 4 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today….

Hemophilia gene therapy: update on new country initiatives

May 10, 2022

Today, “Hemophilia gene therapy: update on new country initiatives” was held at the WFH 2022 World Congress in Montreal, Canada. The talk was chaired by Alok Srivastava, Professor at the Department of Hematology – Christian Medical College, Vellore, India, and covered gene therapy developments at the country level. Gene therapy…

Free paper session: Oral health

May 10, 2022

The WFH 2022 World Congress in Montreal, Canada today held a session called “Free paper session: Oral health”….

Memorial art: remembering the past, changing the future

May 10, 2022

What role does the memorialization of tragedy play in healing? What roles do story-based memorials offer that names-based memorials can’t? Some of these questions were explored today at the WFH 2022 World Congress….

Perspectives on curing hemophilia

May 10, 2022

“Perspectives on curing hemophilia” was held at the WFH 2022 World Congress in Montreal, Canada….

Plenary: Gene therapy – are we ready now?

May 10, 2022

Hemophilia therapy has evolved from rudimentary transfusion-based approaches to an unprecedented level of innovation with the potential of a functional cure brought by gene therapy….

Congress Daily Recap – Day 1

May 10, 2022

Roche extends commitment to WFH Humanitarian Aid Program

May 10, 2022

The World Federation of Hemophilia (WFH) and WFH USA are pleased to announce that Roche will extend its commitment to the WFH Humanitarian Aid Program until the end of 2028….

Humanitarian Aid, a path to sustainable care

May 10, 2022

At the WFH 2022 World Congress in Montreal, Canada, the many successes of the WFH Humanitarian Aid Program were covered in the session, “Humanitarian Aid, A path to sustainable care”. The event was chaired by Glenn Pierce, MD, PhD, Vice President Medical, World Federation of Hemophilia (U.S.A)….

Don’t miss: WFH Twinning event to celebrate long lasting partnerships

May 10, 2022

The World Federation of Hemophilia (WFH) Twinning Program creates collaborative partnerships between hemophilia treatment centres (HTCs), patient organizations and their youth groups to help improve treatment and care for people living with an inherited bleeding disorder around the world….

Today at the WFH 2022 World Congress – May 10

May 10, 2022

Welcome to day 3 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

Health issues in women and girls affected by hemophilia

May 9, 2022

The session, “Health issues in women and girls affected by hemophilia with a focus on nomenclature, heavy menstrual bleeding, and musculoskeletal issues” was held today at the WFH 2022 World Congress in Montreal, Canada. Chaired by Roseline d’Oiron, Director at the Reference Centre for Haemophilia and Congenital Bleeding Disorders, University…

Changing treatment, changes diagnosis

May 9, 2022

Today, “Changing treatment, changes diagnosis” was held at the WFH 2022 World Congress in Montreal, Canada….

Susan Skinner Memorial Fund Scholarship empowers women—you’re invited!

May 9, 2022

Despite the uncertainties leading up to the WFH 2022 World Congress, the 2022 Susan Skinner Memorial Fund Scholarship (SSMF) recipients have still been able to connect in person….

Young Researchers free paper sessions – part 1

May 9, 2022

Today, “Young Researchers free paper sessions – Part 1” was held at the WFH 2022 World Congress in Montreal, Canada. The talk was chaired by Johnny Mahlangu, Professor at the University of the Witwatersrand and NHLS, Johannesburg, South Africa….

WFH President Cesar Garrido delivers plenary talk at Congress

May 9, 2022

Today at the WFH 2022 World Congress in Montreal, Canada, WFH President Cesar Garrido delivered his plenary to participants and the greater global bleeding disorders community….

Nurul Islam receives 2022 WFH President’s Award

May 9, 2022

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

Introducing the myWBDR mobile app: a new WBDR data collection tool

May 9, 2022

There’s a new data collection tool that people with hemophilia (PWH) can use with the WFH World Bleeding Disorders Registry (WBDR)!…

Don’t miss: women’s networking event

May 9, 2022

Today at the WFH 2022 World Congress – May 9

May 9, 2022

Welcome to day 2 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

Community comes together at opening ceremony

May 8, 2022

Michael Soucie receives 2022 WFH International Lifetime Achievement Award

May 8, 2022

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

Bradley Rayner receives 2022 WFH International Frank Schnabel Volunteer Award

May 8, 2022

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

PROGRAM CHANGES: WFH 2022 World Congress

May 8, 2022

Please note that there have been changes to the program for the WFH 2022 World Congress….

Celebrating 50 years of the IHTC Fellowship Program

May 8, 2022

Live demonstrations of WFH resources in exhibition hall

May 8, 2022

Live demonstrations of WFH Data Collection platforms and our enhanced eLearning Platform are taking place at the WFH Resource Centre in the exhibition hall!…

Today at the WFH 2022 World Congress – May 8

May 8, 2022

Welcome to day 1 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

2022 Annual Meeting of the General Assembly held

May 7, 2022

The World Federation of Hemophilia (WFH) 2022 Annual Meeting of the General Assembly was held today in Montreal, Canada. Several positions were affirmed with the re-election of incumbents; new board members were voted in; and several national member organizations (NMOs) joined the WFH family as full or associate NMOs….

LAST CHANCE TO REGISTER VIRTUALLY FOR THE WFH 2022 WORLD CONGRESS!

May 4, 2022

There is still time to register virtually for the WFH 2022 World Congress and enjoy select sessions and content from the comfort of your home or office….

WFH 2022 WORLD CONGRESS – Time is running out!

April 29, 2022

You can still join us in person or virtually for the WFH 2022 World Congress. Online registrations for the in-person component of the WFH 2022 World Congress are open until midnight EST on Sunday, May 1….

WFH 2022 World Congress – final program available!

April 20, 2022

The final program for the WFH 2022 World Congress is now available! Read about all the sessions we’re offering this year in our Program at a glance and Schedule at a glance….

Don’t miss sessions: WFH 2022 World Congress

April 8, 2022

The WFH 2022 World Congress is coming soon! Next month—from May 8 to 11, 2022—the hybrid Congress will bring you the latest medical and multidisciplinary developments in our field. Here are five sessions you shouldn’t miss this May….

WFH 2022 World Congress: latest program updates!

April 7, 2022

COVID-19 restrictions are being lifted throughout Canada! As of right now, the vaccination passport in no longer required in Quebec. As of April 1, 2022, there will no longer be pre-arrival COVID-19 testing requirements for visitors to Canada. For more information, read Pandemic restrictions in Montreal: what you need to…

WFH 2022 World Congress: the hybrid format has an option for everyone!

March 24, 2022

The WFH 2022 World Congress will be held as a hybrid event, allowing delegates to join in-person at the Montreal convention centre or online via the virtual platform….

Pandemic restrictions in Montreal: what you need to know

March 8, 2022

Almost all major COVID-19 restrictions will be easing in Montreal, Canada in the coming weeks, making it possible for the World Federation of Hemophilia (WFH) to offer the WFH 2022 World Congress in a hybrid format from May 8 to 11, 2022. You can attend Congress virtually and in person—and…

Take advantage of the early bird rate and save today!

March 8, 2022

The WFH 2022 World Congress will take place as scheduled in May 2022

February 22, 2022

Around the world, COVID-19 pandemic restrictions are being lifted, and Montreal is no exception. Congress halls, restaurants and other venues are now reopening to their full capacity and travel will be easier starting in March. In many countries, the loosening of restrictions will continue in the coming weeks….

Call for late-breaking abstracts now open

February 15, 2022

The WFH 2022 World Congress—a major event in the international bleeding disorders community this year—is just around the corner! The WFH is happy to announce that the call for late-breaking abstracts is now open….

Submit your memorial art at the WFH 2022 World Congress

January 13, 2022

Memorial art—which is used to honour and remember people lost due to a tragedy—has many forms. Well known examples are the NAMES Project AIDS Memorial Quilt, and the Vietnam Veterans Memorial….

Program at a glance: WFH 2022 World Congress

December 15, 2021

As 2021 draws to a close, the World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) are both gearing up to bring you the WFH 2022 World Congress from May 8 to 11, 2022….

Abstract submission deadline is coming soon!

November 19, 2021

It’s not too late to submit your abstract for the WFH 2022 World Congress taking place in Montreal, Canada next year. The deadline to submit an abstract is November 22, 2021, at 11:59 PM ET. Submissions must be done online through the abstract scorecard, and cannot be done via email….

Montreal: ready to host the WFH 2022 World Congress

October 28, 2021

Next year, the World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) will be welcoming the global bleeding disorders community to Montreal, Canada for the WFH 2022 World Congress from May 8 to 11, 2022….

WFH 2022 World Congress registration and abstract submission now open!

September 28, 2021

The WFH is pleased to officially invite you to the WFH 2022 World Congress—the first major hybrid event in the international bleeding disorders community! Registration is now open, and so is the call for abstracts….

Montreal to welcome WFH 2022 World Congress

August 11, 2021

The World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) are excited to welcome the global bleeding disorders community to the WFH 2022 World Congress—the first major hybrid event of the international bleeding disorders community….

Amanda Brito del Pino: Q&A with a Susan Skinner Memorial Fund recipient

July 17, 2018

Amanda Brito del Pino is a 2018 SSMF Scholarship recipient. We asked her a few questions about what it means to receive a SSMF Scholarship….

WFH Humanitarian Aid Program: catalyst towards global change

June 19, 2018

The highly-anticipated and well-attended “WFH Humanitarian Aid Program: Catalyst towards global change” session was one of the most popular sessions of this year’s Congress and delegates left with a broader understanding of the efforts of the World Federation of Hemophilia (WFH) to reach Treatment for All….

Global VWD Call to Action promoted at Congress

May 23, 2018

Luisa Durante, Program Development Manger, World Federation of Hemophilia (WFH) gathered people with von Willebrand disease (VWD) at the Resource Centre of the WFH 2018 World Congress to promote the Global VWD Call to Action….

Jeanne White-Ginder: mother of Ryan White

July 6, 2016

Hear the Ryan White Story as told by his mother, Jeanne White-Ginder. Ryan was a boy living with hemophilia and diagnosed with AIDS following a transfusion of tainted clotting factor in December 1984….

We’ve accomplished a lot this year, we need your help to continue strong.

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2022	Amman (Jordan) – Dublin (Ireland)
2021	Addis Ababa (Ethiopia) – Minneapolis (U.S.A) and Tehran (Iran) – Milan (Italy)
2020	Aluva (India) – Newcastle (UK)
2019	Yogyakarta / Solo (Indonesia) – Utrecht (Netherlands)
2018	Abidjan (Ivory Coast) – Brussels (Belgium)
2017	Santa Cruz de la Sierra (Bolivia) – Buenos Aires (Argentina)
2016	Kampala (Uganda) – London (UK)
2015	Varna (Bulgaria) – Bonn (Germany)
2014	Arequipa (Peru) – Los Angeles (USA)
2013	Davangere (India) – Liverpool (UK) Ludhiana (India) – Detroit (USA)
2012	Hanoi (Vietnam) – Melbourne (Australia)
2011	Manado (Indonesia) – Utrecht (Netherlands)
2010	Delhi (India) – Winnipeg (Canada) Yaoundé (Cameroon) – Geneva (Switzerland)
2009	Chisinau (Moldova) – Warsaw (Poland) Colombo (Sri Lanka) – Vellore (India)
2008	Gaborone (Botswana) – Philadelphia (USA)
2007	Vientiane (Laos) – Brest (France) Damascus (Syria) – Montpellier (France)
2006	Lima (Peru) – Fort Worth (USA)
2005	Yerevan (Armenia) – Minneapolis (USA) Casablanca (Morocco) – Caen (France)
2004	Beirut (Lebanon) – Geneva (Switzerland) Santo Domingo (Dominican Republic) – Caracas (Venezuela)
2003	Cairo (Egypt) – Knoxville (USA)
2002	Moscow (Russia) – Liverpool (UK) Panama – Valencia (Spain)
2001	Bangalore (India) – St. Louis (USA)
2000	Pune (India) – Bradford (UK)
1999	Montevideo (Uruguay) – Buenos Aires (Argentina) Tianjin (China) – Calgary (Canada)
1998	Plovdiv (Bulgaria) – Bonn (Germany)
1997	Bogota (Colombia) – Los Angeles (USA) Tartu (Estonia) – Stockholm (Sweden)
1996	Timisoara (Romania) – Munich (Germany) Riga (Latvia) – Munster (Germany)
1995	Klaipeda (Lithuania) – Malmo (Sweden)
1994	Bratislava (Slovakia) – Tel Hashomer (Israel)

2022	Serbia – Manitoba (Canada)
2021	Palestine – Venezuela
2020	NHF (USA) – HFI (India)
2019	Madagascar – Brittany (France)
2018	Kenya – Scotland
2017	Mongolia – Manitoba (Canada)
2016	Tanzania – Ontario (Canada)
2015	Bangladesh – Canada
2014	Nicaragua – Quebec (Canada)
2013	Mauritius – South Africa
2012	Vietnam – Ireland
2011	Cambodia – New Zealand
2010	Tunisia – Quebec (Canada)
2009	Peru – Galicia (Spain)
2008	South Africa – Canada
2007	Honduras – Georgia (USA)
2006	Bosnia and Herzegovina – Ireland
2005	Pakistan – Malaysia
2004	Dominican Republic – Venezuela
2003	Jordan – Toronto (Canada)
2002	Nicaragua – Venezuela
2001	Philippines – Victoria (Australia)
2000	Georgia – Minnesota (USA) Uruguay – Argentina
1999	Nepal – Sweden Mexico – Texas (USA)
1998	Latvia – Germany
1997	India – Denmark
1995	Israel – Slovakia

2012	Piet de Kleijn The Netherlands
2010	Dr. Mammen Chandy India
2008	Dr. Man-Chiu Poon Canada
2006	Dr. Norma de Bosch Venezuela
2004	Dr. Parttraporn Insarangkura Thailand Dr. Carol K. Kasper United States

2023	Nicholas Goddard United Kingdom
2021	Axel Seuser Germany
2019	Dr. Adolfo Llinás Colombia
2017	Pamela Hilliard Canada
2015	Kathy Mulder Canada
2013	James Luck United States
2012	Piet de Kleijn The Netherlands
2011	Dr. Lily Heijnen The Netherlands
2010	Dr. Horacio Caviglia Argentina
2009	Jerome D. Wiedel United States
2008	Dr. Federico Fernández-Palazzi Venezuela
2007	Michael Heim Israel
2006	Brenda Buzzard United Kingdom
2005	Dr. Marvin Gilbert United States

2021	Baolai Hua Yangzhou College, Xuzhou Medical University	The effects of intra-articular injection of TNF-alpha Antagonists in treatment of haemophilic synovitis
2019	Maarten Eerdekens Belgium	Association between multi-segment foot kinetics and blood induced joint damage in adult patients with hemophilic ankle arthropathy
2017	Fabio Souza Brazil	Decrease in joint inflammation, swelling and pain after a swimming protocol in animal model of experimental-induced hemarthrosis
2015	SM Javd Mortazavi Iran	Bilateral total knee arthroplasty in patients with hemophilia: A safe and cost-effective procedure
2013	Lize F.D. van Vulpen United States	A fusion protein of IL4 and IL10, is equally effective in protecting cartilage from blood-induced damage compared to the individual components
2012	Horacio Caviglia Argentina	Pseudotumor Surgery in Haemophilia A patients: Comparitive results between inhibitor and non-inhibitor patients
2011	Nick Goddard United Kingdom and Monique van Meegeren The Netherlands	Early onset administration of IL-4 and IL-10 prevents blood-induced cartilage damage in vitro
2010	Lydia Abad-Franch Spain	Influence of an Aquatic Training Protocol on the Reduced Risk of Cardiovascular Morbidity and Mortality in a Hemophiliac
2009	Sebastien Lobet Belgium	Impact of Hemophilia Ankle Arthropathy on Gait Disability: Analysis of Energetic and Mechanical Variables
2008	Jose Alberto Tlacuilo-Parra Mexico	Bone Turnover Markers and Bone Mineral Density in Children with Hemophilia
2007	Natalie Jansen The Netherlands	Protective Abilities of Interleukin-10 in Blood-induced Cartilage Damage
2006	Axel Seuser and E. Kusch Germany	Multi-Center Study of Orthopedic Outcome of the Lower Extremities in 249 Children with Hemophilia
2005	Frank van Genderen, Nico van Meeteren, Lily Heijnen, Piet de Kleijn, Marijke van den Berg, Paul Helders The Netherlands	The Hemophilia Activities List: Final development and validation of a hemophilic-specific self-assessment questionnaire on functional abilities
2004	Goris Roosendaal, Zalima N Jahangier, Kim MG Jacobs, Johannes WJ Bijlsma, Floris PJG Lafeber The Netherlands	Radiosynoviorthesis using YTTRIUM-90 results in adverse direct effects on cartilage: a human in vitro study
2003	Axel Seuser, Thomas Wallny, Günter Schumpe, Elmar Trunz, Hans-Hermann Brackman Germany	How to advise young haemophiliacs to find the right sport? A new and safe algorithm
2002	James Luck, Jr. and Mauricio Silva United States	Long-Term Review of Total Knee Arthroplasty
2001	Federico Fernández-Palazzi Venezuela	Oxytetracycline Chlorohydrate: A new material for chemical synovial orthoses
2000	Horacio Caviglia Argentina	Pseudotumours
1999	William J. Ribbans and J.L. Hicks United Kingdom	Communication and Co-operation for the New Millennium – The Future of the Musculoskeletal Committee in the 21st Century
1998	Adolfo Llinas, Mauricio Silva, Monica Duarte, Gonzalo Ucros, Graciela Perini, Angela Maria Cerquera, Andres Forero Colombia	Chromic phosphate synoviorthesis without age restriction should be the first treatment option for chronic active hemophilic synovitis

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RETENTION AND DESTRUCTION OF PERSONAL INFORMATION

15.

ACCESSING, CORRECTING, DE-INDEXING AND PORTABILITY OF YOUR PERSONAL INFORMATION

16.

WITHDRAWING YOUR CONSENT

17.

CHANGES TO OUR PRIVACY POLICY

18.

CONTACT DETAILS FOR THE PRIVACY OFFICER

APPENDIX A

APPENDIX A

Terms and Conditions of use of WFH Digital Platforms

2024 Congress Daily morning edition: Tuesday, April 23

Medical and PWBD concurrent plenaries this morning

Late breaking session coming up this afternoon

Don’t miss this: two Presentation Theatre sessions today

Young researcher free paper session taking place at 11:30

Spotlight on rare bleeding disorders: three sessions to check out

Industry symposia taking place at 12:45

Visit our poster gallery in the exhibit hall to get the pulse of the bleeding disorders community

Why not drop by the WFH Resource Centre today!

Gene therapy registry takes centre stage at 17:15

Network with peers on the Women and Girls with Bleeding Disorders Initiative

Scan to earn your CME credits!

Registration open in exhibit hall

Stay connected with the official Congress app

Shuttle bus schedule

WFH awards presented during WFH 2024 World Congress

WFH 2024 World Congress concludes on high note

2024 Congress Daily morning edition: Wednesday, April 24

2024 Congress Daily evening edition: Tuesday, April 23

2024 Congress Daily morning edition: Tuesday, April 23

2024 Congress Daily evening edition: Monday, April 22

2024 Congress Daily morning edition: Monday, April 22

2024 Congress Daily evening edition: Sunday, April 21

2024 Annual Meeting of the General Assembly held

2024 Congress Daily morning edition: Sunday, April 21

WFH 2024 World Congress just around the corner

Earn CME credits at the WFH 2024 World Congress

WFH 2024 World Congress speakers share passion on Instagram reels

New free paper sessions added to Congress program

Expand your horizons with free workshops at the WFH 2024 World Congress

Add these to your agenda! Key sessions at the WFH 2024 World Congress

Top 5 reasons to attend the WFH 2024 World Congress

Don’t miss speakers: WFH 2024 World Congress

Don’t miss sessions: WFH 2024 World Congress

WFH 2024 World Congress: Madrid, Spain’s exciting capital

Abstract submission deadline extended

You’re officially invited to the WFH 2024 World Congress

It’s official! Registration and accommodations open for WFH 2024 World Congress

WFH 2024 World Congress call for abstract submissions opening soon!