WFH 2025 Annual Report released

WFH 2025 Annual Report released

The World Federation of Hemophilia (WFH) 2025 Annual Report has been released, and the publication documents a year of major progress, with expanded advocacy efforts, the release of new educational resources, and strong results tied to the federation’s five-year strategic plan.

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One of the most significant accomplishments of the WFH in 2025 was the successful mobilization of the global community to secure landmark improvements to the World Health Organization’s (WHO) Essential Medicines List, helping expand access to safer and more effective therapies worldwide. The WFH also represented the bleeding disorders community at the 78th World Health Assembly, advocating for stronger international commitments to care and treatment.

Important achievements were also realized across the goals outlined in the WFH 2021–2025 Strategic Plan, including:

Additional highlights included the publication of new clinical and educational resources, the expansion of the Shared Decision Making tool, and successful global events such as the 14th WFH Global Forum, the fourth WFH Global Summit on Women and Girls with Bleeding Disorders, and the fourth edition of the WFH Global Policy and Access Summit (GPAS).

The WFH extends its thanks to the many organizations and stakeholders who helped to make these accomplishments possible, including national member organizations (NMOs), healthcare providers, governments, and corporate partners. Each one of these stakeholders remain central to improving access to safe and sustainable care worldwide and advancing the WFH vision of Treatment for All.

To read the WFH 2025 Annual Report, please click here.

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

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While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

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Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.

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Functional Scales

The outcomes of interest collected by the WBDR include demographic characteristics, clinical and treatment-related outcomes, burden of disease outcomes, and patient-reported outcomes.

The WBDR includes five functional scales as part of its extended data set:

WBDR hemophilia data sets

WBDR Minimal Data Set

The WBDR Minimal Data Set (MDS) is a set of data on demographics, diagnosis, symptoms and treatment which are collected on patients participating in the WBDR.

WBDR Extended Data Set

The WBDR Extended Data Set (EDS) is a larger set of data, with more details than the MDS, which includes questions on patient demographics, diagnosis, symptoms, treatment and burden of disease. The EDS can be used by hemophilia treatment centers to collect data on patients participating in the WBDR. The WBDR Extended Data Set (EDS), was added to the database in March 2019.