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Mini-Congress-Daily---Don't-miss---pre-Congress

2024 Congress Daily morning edition: Sunday, April 21

Good morning and welcome to the WFH 2024 World Congress! Check in on this page daily in the mornings and evenings to learn about what not to miss, and to get a recap of the key events that took place during the day.

Also available in: Français Español

Registration open in exhibit hall

Haven’t registered for Congress yet? Online registration is closed, but in-person registration is certainly open. Head on to the registration desk in the exhibit hall. Our team will get you set up in no time.

Stay connected with the official Congress app

Access all on-site resources conveniently through our Congress app, including the program schedule, speaker information, floor plans, and much more!

  1. Download the Aventri Events app from the Apple App Store or the Google Play store
  2. Enter the Congress access code: 463419
  3. Login (case sensitive):
    • Username: The email address you used to register (all lowercase)
    • Password: Your last name (only capitalize the first letter)

A world of workshops taking place today

Congress officially kicks off tomorrow, but we have plenty in store to get you warmed up. Today features a wide range of workshops for all interests. Get hands-on experience with your peers in these interactive sessions from challenging clinical cases to ultrasound imaging. Space is limited and will be allotted on a first-come first-served basis. Every effort will be made to accommodate all delegates, subject to space availability. See you there!  Find out more here.

Publication of SOA and Book of Abstracts

Haemophilia—the official journal of the WFH—is set to release two supplemental issues for Congress: the State of the Art Book and the Book of Abstracts. Stay tuned for links to these invaluable resources later today!

Opening ceremonies to kick off Congress

We have a full day’s worth of workshops for you today—but it’s just a warm up! This evening at 18:30, Congress officially kicks off with the opening ceremony and welcome reception. Join us and hear from WFH and FEDHEMO leaders. Get inspired and excited for what will be three days of learning and networking.

Opening ceremony: 18:30 to 19:15
Location:
N103/104
Welcome reception: 19:15 to 20:00
Location: Under the roof exterior of the North Convention Center

Shuttle bus schedule

The WFH will be providing a shuttle service between the official WFH hotels and the IFEMA Convention Center on Congress days (April 21 to 24). Several shuttles will travel between the Meliá Castilla, Novotel Madrid Center, Hotel H10 Tribeca, Ilunion Alcalá Norte, Ilunion Atrium, Marriott Auditorium, and the RIU Plaza España. Shuttles will depart approximately every thirty minutes and will loop continuously throughout the morning and late afternoon. WFH 2024 Congress signs will be posted at all boarding sites identifying the location as a WFH Shuttle pick-up and drop-off site.

DayFrom Congress hotelsFrom IFEMA
Sunday, April 217:00 to 9:0017:00 to 21:30
Monday, April 227:00 to 9:0017:00 to 21:00
Tuesday, April 237:00 to 9:0017:00 to 19:00
Wednesday, April 247:00 to 9:0017:00 to 19:00

Lastest News

WFH awards presented during WFH 2024 World Congress

The World Federation of Hemophilia (WFH) and its national member organizations (NMO) are powered by dedicated individuals who believe that together, a better future can be brought to those living with a bleeding disorder around the world. WFH awards serve to recognize these individuals who have dedicated their time to supporting our shared vision of Treatment for All....

Other Congress News

WFH 2024 World Congress concludes on high note

The WFH 2024 World Congress has officially concluded! Held from April 21 to 24 in Madrid, Spain, the event attracted over 3,000 delegates from 135 countries. The Congress was the most comprehensive international event on bleeding disorders this year, and the first fully in-person event for the WFH since the…

2024 Congress Daily morning edition: Wednesday, April 24

Good morning and welcome to Day 3 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Tuesday, April 23

Good evening! Here’s a quick wrap-up of some key events that took place on Day 2 of the WFH 2024 World Congress….

2024 Congress Daily morning edition: Tuesday, April 23

Good morning and welcome to Day 2 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Monday, April 22

Good evening! Here’s a quick wrap-up of some key events that took place on Day 1 of the WFH 2024 World Congress….

2024 Congress Daily morning edition: Monday, April 22

Good morning and welcome to Day 1 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Sunday, April 21

Good evening! Here’s a quick wrap-up of some key events that took place today. We look forward to welcoming you to the official first day of the WFH 2024 World Congress tomorrow….

2024 Annual Meeting of the General Assembly held

The World Federation of Hemophilia (WFH) 2024 Annual Meeting of the General Assembly was held today in Madrid, Spain, as part of the WFH 2024 World Congress. The meeting featured reports given by WFH board members and was attended by WFH national member organizations (NMOs)….

2024 Congress Daily morning edition: Sunday, April 21

Good morning and welcome to the WFH 2024 World Congress! Check in on this page daily in the mornings and evenings to learn about what not to miss, and to get a recap of the key events that took place during the day….

WFH 2024 World Congress just around the corner

After two years of anticipation, the WFH 2024 World Congress is finally here! In just a few days, thousands of visitors will come to Madrid to take part in the most comprehensive international event in the bleeding disorders community. If you haven’t already, it’s not too late to book your…

Earn CME credits at the WFH 2024 World Congress

The WFH 2024 World Congress—taking place in just a few weeks from April 21 to 24!—has been accredited for 32 CME credits by the European Board for Accreditation in Hematology (EBAH), an accreditation body supported and endorsed by the European Hematology Association (EHA)….

WFH 2024 World Congress speakers share passion on Instagram reels

The WFH 2024 World Congress is coming soon! People from all around the world are getting excited about joining their colleagues in Madrid this April. This includes our many registrants, as well as the speakers, industry stakeholders, key opinion leaders, and other movers and shakers who will be coming together…

New free paper sessions added to Congress program

The WFH 2024 World Congress is just a few weeks away, and we’re happy to announce that ten new free paper sessions have been added to the program. The sessions will showcase top-scoring abstracts submitted by experts in the field. Take part in these sessions and delve into groundbreaking research…

Expand your horizons with free workshops at the WFH 2024 World Congress

The WFH 2024 World Congress will kick-off on Sunday, April 21, 2024, at 8:00 a.m. CEST, with more than ten interactive professional development workshops—offered free to all registered attendees. These workshops will give participants a unique opportunity to interact closely with experts and peers and get hands-on experience on a…

Add these to your agenda! Key sessions at the WFH 2024 World Congress

In December, we highlighted eight key sessions from the WFH 2024 World Congress that are not to be missed. Today, we bring you eight new sessions you’ll want to add to your agenda for this April in Madrid. These talks will explore a wide range of topics within the Medical…

Top 5 reasons to attend the WFH 2024 World Congress

If you’re interested in attending the largest meeting for the bleeding disorders community this year, then look no further than the WFH 2024 World Congress. In just a few months, we will welcome people from around the world to Madrid, Spain, to learn about the very latest developments in our…

Don’t miss speakers: WFH 2024 World Congress

Welcome to 2024—the year of the WFH 2024 World Congress! In just a few months, the World Federation of Hemophilia (WFH) will be welcoming thousands of delegates to Madrid for the biggest event for our community this year. Participants can expect to enjoy over 90 hours of educational sessions across…

Don’t miss sessions: WFH 2024 World Congress

The WFH 2024 World Congress program has been published! Next year’s Congress will include over 90 hours of educational sessions across medical and people with bleeding disorders (PWBDs) tracks, as well was six professional development tracks. You can take a look at the full Program now to see what’s on…

WFH 2024 World Congress: Madrid, Spain’s exciting capital

The World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) are excited to welcome the global bleeding disorders community to the WFH 2024 World Congress in Madrid, Spain next year from April 21 to 24. This in-person event will be the most the comprehensive international event on…

Abstract submission deadline extended

Great news for researchers who want to showcase their work to the world: the WFH 2024 World Congress abstract deadline has been extended to November 30, 2023, at 11:59 p.m. ET….

You’re officially invited to the WFH 2024 World Congress

On behalf of Cesar Garrido, President of the World Federation of Hemophilia (WFH) and Daniel-Aníbal García Diego, President of La Federación Española de Hemofilia (Fedhemo), you are officially invited to the WFH 2024 World Congress in Madrid, Spain! Taking place from April 21 to 24, 2024. This event will be…

It’s official! Registration and accommodations open for WFH 2024 World Congress

Registration and accommodations are officially open for the WFH 2024 World Congress in Madrid, Spain from April 21 to 24. Our competitive registration rates and our many hotel options make it easy for you to take part in what will be the biggest event for the global inherited bleeding disorders…

WFH 2024 World Congress call for abstract submissions opening soon!

Next year, the World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) will host the WFH 2024 World Congress in Madrid, Spain, from April 21 to 24. The event will be the most comprehensive one of the year in our field, with over 90 hours of continuing…

Learn more about the WFH 2024 World Congress

Next year will be a big one for the global bleeding disorders community, as the World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) will host the WFH 2024 World Congress in Madrid, Spain, from April 21 to 24. The event will be the most comprehensive one…

Mark your calendars! WFH 2024 World Congress coming to Madrid next year

The World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) are excited to welcome the global bleeding disorders community to the WFH 2024 World Congress in Madrid, Spain next year from April 21 to 24….

WFH 2024 World Congress to take place in Madrid

Today, an Extraordinary Meeting of the of the World Federation of Hemophilia (WFH) General Assembly (GA) was called to decide the location of the WFH 2024 World Congress. We are pleased to announce that Madrid, Spain, has been selected as the location for the next WFH World Congress. The NMO,…

WFH to call special meeting of the General Assembly

The COVID-19 pandemic has had major impacts on the bleeding disorders community over the last two years, including the cancellation or postponement of events. Changes related to these effects have now necessitated the calling of a special World Federation of Hemophilia (WFH) General Assembly (GA) meeting to decide the location…

New Associate NMO: Safe Motherhood and Hemophilia Foundation The Gambia

On May 7, 2022, during the World Federation of Hemophilia (WFH) Annual Meeting of the General Assembly, the Safe Motherhood and Hemophilia Foundation The Gambia (SMHF) was welcomed as a WFH associate national member organization (NMO). The SMHF is now part of a family of 147 NMOs from around the…

Complimentary On-Demand 2022 Congress content now available

The WFH 2022 World Congress was an immense success with thousands of attendees joining from 145 countries, both in-person in Montreal and virtually. The WFH is now happy to offer you complimentary On-Demand content from the event….

Ekawat Suwantaroj co-opted to WFH Board of Directors

The World Federation of Hemophilia (WFH) is very pleased to announce that Ekawat Suwantaroj has been co-opted to its Board of Directors as a lay member from May 26, 2022, to the next Annual Meeting of the General Assembly in 2024….

General Plenary: VP Medical address with Glenn Pierce

At the WFH 2022 World Congress in Montreal, Canada, Glenn Pierce, MD, PhD, Vice President Medical at the World Federation of Hemophilia (WFH), gave his plenary address, “Looking Forward with the View of Learnings of the Past”. In his presentation, Pierce addressed where we are, and where we need to…

WFH 2022 World Congress concludes on high note

The WFH 2022 World Congress concluded today in Montreal. Many guests gathered for the farewell dinner in a comfortable setting that reflected the positive feeling and sense of camaraderie that was present for the whole Congress….

The challenge of evaluating and managing pain

Today, the session “The challenge of evaluating and managing pain” was given at the WFH 2022 World Congress. The event was chaired by Barbara Konkle, Research Director and Professor of Medicine at the Washington Center for Bleeding Disorders, U.S.A., and World Federation of Hemophilia medical board member….

We are looking forward to seeing you in Buenos Aires and Kuala Lumpur!

On behalf of everyone at the WFH, thank you for being part of the WFH 2022 World Congress in Montreal, Canada….

WFH Humanitarian Aid Program officially signs new contract with CSL Behring

In April, the WFH and WFH USA announced a new WFH Humanitarian Aid Program partnership with CSL Behring which included a donation of 500 million IUs of factor VIII in addition to the original 3-year commitment of 17 million IUs per year of factor VIII and IX….

Magdy El Ekiaby receives 2022 WFH International Healthcare Volunteer Award

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions help drive our progress towards the WFH vision of Treatment for All….

Today at the WFH 2022 World Congress – May 11

Welcome to day 4 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today….

Hemophilia gene therapy: update on new country initiatives

Today, “Hemophilia gene therapy: update on new country initiatives” was held at the WFH 2022 World Congress in Montreal, Canada. The talk was chaired by Alok Srivastava, Professor at the Department of Hematology – Christian Medical College, Vellore, India, and covered gene therapy developments at the country level. Gene therapy…

Free paper session: Oral health

The WFH 2022 World Congress in Montreal, Canada today held a session called “Free paper session: Oral health”….

Memorial art: remembering the past, changing the future

What role does the memorialization of tragedy play in healing? What roles do story-based memorials offer that names-based memorials can’t? Some of these questions were explored today at the WFH 2022 World Congress….

Perspectives on curing hemophilia

“Perspectives on curing hemophilia” was held at the WFH 2022 World Congress in Montreal, Canada….

Plenary: Gene therapy – are we ready now?

Hemophilia therapy has evolved from rudimentary transfusion-based approaches to an unprecedented level of innovation with the potential of a functional cure brought by gene therapy….

Roche extends commitment to WFH Humanitarian Aid Program

The World Federation of Hemophilia (WFH) and WFH USA are pleased to announce that Roche will extend its commitment to the WFH Humanitarian Aid Program until the end of 2028….

Humanitarian Aid, a path to sustainable care

At the WFH 2022 World Congress in Montreal, Canada, the many successes of the WFH Humanitarian Aid Program were covered in the session, “Humanitarian Aid, A path to sustainable care”. The event was chaired by Glenn Pierce, MD, PhD, Vice President Medical, World Federation of Hemophilia (U.S.A)….

Don’t miss: WFH Twinning event to celebrate long lasting partnerships

The World Federation of Hemophilia (WFH) Twinning Program creates collaborative partnerships between hemophilia treatment centres (HTCs), patient organizations and their youth groups to help improve treatment and care for people living with an inherited bleeding disorder around the world….

Today at the WFH 2022 World Congress – May 10

Welcome to day 3 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

Health issues in women and girls affected by hemophilia

The session, “Health issues in women and girls affected by hemophilia with a focus on nomenclature, heavy menstrual bleeding, and musculoskeletal issues” was held today at the WFH 2022 World Congress in Montreal, Canada. Chaired by Roseline d’Oiron, Director at the Reference Centre for Haemophilia and Congenital Bleeding Disorders, University…

Changing treatment, changes diagnosis

Today, “Changing treatment, changes diagnosis” was held at the WFH 2022 World Congress in Montreal, Canada….

Susan Skinner Memorial Fund Scholarship empowers women—you’re invited!

Despite the uncertainties leading up to the WFH 2022 World Congress, the 2022 Susan Skinner Memorial Fund Scholarship (SSMF) recipients have still been able to connect in person….

Young Researchers free paper sessions – part 1

Today, “Young Researchers free paper sessions – Part 1” was held at the WFH 2022 World Congress in Montreal, Canada. The talk was chaired by Johnny Mahlangu, Professor at the University of the Witwatersrand and NHLS, Johannesburg, South Africa….

WFH President Cesar Garrido delivers plenary talk at Congress

Today at the WFH 2022 World Congress in Montreal, Canada, WFH President Cesar Garrido delivered his plenary to participants and the greater global bleeding disorders community….

Nurul Islam receives 2022 WFH President’s Award

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

Introducing the myWBDR mobile app: a new WBDR data collection tool

There’s a new data collection tool that people with hemophilia (PWH) can use with the WFH World Bleeding Disorders Registry (WBDR)!…

Today at the WFH 2022 World Congress – May 9

Welcome to day 2 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

Michael Soucie receives 2022 WFH International Lifetime Achievement Award

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

Bradley Rayner receives 2022 WFH International Frank Schnabel Volunteer Award

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

PROGRAM CHANGES: WFH 2022 World Congress

Please note that there have been changes to the program for the WFH 2022 World Congress….

Live demonstrations of WFH resources in exhibition hall

Live demonstrations of WFH Data Collection platforms and our enhanced eLearning Platform are taking place at the WFH Resource Centre in the exhibition hall!…

Today at the WFH 2022 World Congress – May 8

Welcome to day 1 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

2022 Annual Meeting of the General Assembly held

The World Federation of Hemophilia (WFH) 2022 Annual Meeting of the General Assembly was held today in Montreal, Canada. Several positions were affirmed with the re-election of incumbents; new board members were voted in; and several national member organizations (NMOs) joined the WFH family as full or associate NMOs….

LAST CHANCE TO REGISTER VIRTUALLY FOR THE WFH 2022 WORLD CONGRESS!

There is still time to register virtually for the WFH 2022 World Congress and enjoy select sessions and content from the comfort of your home or office….

WFH 2022 WORLD CONGRESS – Time is running out!

You can still join us in person or virtually for the WFH 2022 World Congress. Online registrations for the in-person component of the WFH 2022 World Congress are open until midnight EST on Sunday, May 1….

WFH 2022 World Congress – final program available!

The final program for the WFH 2022 World Congress is now available! Read about all the sessions we’re offering this year in our Program at a glance and Schedule at a glance….

Don’t miss sessions: WFH 2022 World Congress

The WFH 2022 World Congress is coming soon! Next month—from May 8 to 11, 2022—the hybrid Congress will bring you the latest medical and multidisciplinary developments in our field. Here are five sessions you shouldn’t miss this May….

WFH 2022 World Congress: latest program updates!

COVID-19 restrictions are being lifted throughout Canada! As of right now, the vaccination passport in no longer required in Quebec. As of April 1, 2022, there will no longer be pre-arrival COVID-19 testing requirements for visitors to Canada. For more information, read Pandemic restrictions in Montreal: what you need to…

WFH 2022 World Congress: the hybrid format has an option for everyone!

The WFH 2022 World Congress will be held as a hybrid event, allowing delegates to join in-person at the Montreal convention centre or online via the virtual platform….

Pandemic restrictions in Montreal: what you need to know

Almost all major COVID-19 restrictions will be easing in Montreal, Canada in the coming weeks, making it possible for the World Federation of Hemophilia (WFH) to offer the WFH 2022 World Congress in a hybrid format from May 8 to 11, 2022. You can attend Congress virtually and in person—and…

Take advantage of the early bird rate and save today!

Register for the WFH 2022 World Congress before March 11, 2022, and save up to 20% on registration fees!…

The WFH 2022 World Congress will take place as scheduled in May 2022

Around the world, COVID-19 pandemic restrictions are being lifted, and Montreal is no exception. Congress halls, restaurants and other venues are now reopening to their full capacity and travel will be easier starting in March. In many countries, the loosening of restrictions will continue in the coming weeks….

Call for late-breaking abstracts now open

The WFH 2022 World Congress—a major event in the international bleeding disorders community this year—is just around the corner! The WFH is happy to announce that the call for late-breaking abstracts is now open….

Submit your memorial art at the WFH 2022 World Congress

Memorial art—which is used to honour and remember people lost due to a tragedy—has many forms. Well known examples are the NAMES Project AIDS Memorial Quilt, and the Vietnam Veterans Memorial….

Program at a glance: WFH 2022 World Congress

As 2021 draws to a close, the World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) are both gearing up to bring you the WFH 2022 World Congress from May 8 to 11, 2022….

Abstract submission deadline is coming soon!

It’s not too late to submit your abstract for the WFH 2022 World Congress taking place in Montreal, Canada next year. The deadline to submit an abstract is November 22, 2021, at 11:59 PM ET. Submissions must be done online through the abstract scorecard, and cannot be done via email….

Montreal: ready to host the WFH 2022 World Congress

Next year, the World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) will be welcoming the global bleeding disorders community to Montreal, Canada for the WFH 2022 World Congress from May 8 to 11, 2022….

WFH 2022 World Congress registration and abstract submission now open!

The WFH is pleased to officially invite you to the WFH 2022 World Congress—the first major hybrid event in the international bleeding disorders community! Registration is now open, and so is the call for abstracts….

Montreal to welcome WFH 2022 World Congress

The World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) are excited to welcome the global bleeding disorders community to the WFH 2022 World Congress—the first major hybrid event of the international bleeding disorders community….

Amanda Brito del Pino: Q&A with a Susan Skinner Memorial Fund recipient

Amanda Brito del Pino is a 2018 SSMF Scholarship recipient. We asked her a few questions about what it means to receive a SSMF Scholarship….

WFH Humanitarian Aid Program: catalyst towards global change

The highly-anticipated and well-attended “WFH Humanitarian Aid Program: Catalyst towards global change” session was one of the most popular sessions of this year’s Congress and delegates left with a broader understanding of the efforts of the World Federation of Hemophilia (WFH) to reach Treatment for All….

Global VWD Call to Action promoted at Congress

Luisa Durante, Program Development Manger, World Federation of Hemophilia (WFH) gathered people with von Willebrand disease (VWD) at the Resource Centre of the WFH 2018 World Congress to promote the Global VWD Call to Action….

Jeanne White-Ginder: mother of Ryan White

Hear the Ryan White Story as told by his mother, Jeanne White-Ginder. Ryan was a boy living with hemophilia and diagnosed with AIDS following a transfusion of tainted clotting factor in December 1984….

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.

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Hemophilia Alliance

Recognizing that training women leaders ensures the diversity our community need to thrive; the Hemophilia Alliance has been a longtime supporter of the Susan Skinner Memorial Fund. They deepened their engagement with the global community through the establishment of the Travel Grant Program, which allows US-based multidisciplinary healthcare professionals the opportunity to attend WFH global training workshops. The wealth of experience and perspective attendees bring back home to their communities helps patients across the country. Their patience and support as we grappled with changing norms in these challenging times gave us the flexibility to meet our community’s needs with revamped programming.

India - Mumbai

Year of IHTC designation: 2000

National Institute of Immunohaematology (ICMR) and KEM Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Nursing
  • Orthopedic care
  • Physiotherapy

India - Vellore

Year of IHTC designation: 2000

Christian Medical College, Vellore

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics with antenatal diagnosis
  • Nursing
  • Musculoskeletal management – physical and occupational therapy with physiatry
  • Orthopedic care and surgery
  • Blood banking
  • Dental care
  • Psychology/Social services
  • Antenatal diagnosis

Senegal - Dakar

Year of IHTC designation: 2016

Centre International de Traitement de l’Hémophilie (CITH) de Dakar
Centre National de Transfusion Sanguin (CNTS)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy

Russia - Moscow and St. Petersburg

Year of IHTC designation: 2010

National Medical Research Center of Hematology of the Russian Academy of Medical Sciences

Areas of Specialty

  • Adult hematology
  • Nursing
  • Orthopedic surgery

Netherlands - Utrecht

Year of IHTC designation: 1996

Van Creveldkliniek
University Medical Centre Utrecht

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hematology
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy
  • Psychology and social services

Japan - Nara

Year of IHTC designation: 1998

Nara Hemophilia Centre
Nara Medical University

Areas of Specialty

  • Adult and pediatric hematology
  • Dental care
  • Laboratory diagnosis and Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy

Italy - Milan

Year of IHTC designation: 1972

Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico

Areas of Specialty

  • Adult and pediatric hematology
  • Blood banking
  • Dental care
  • Diagnostic assessment of platelet functional defects
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Psychology and social services

Israel - Tel Hashomer

Year of IHTC designation: 1993

National Hemophilia Center, Tel Hashomer
Sheba Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic surgery
  • Nursing
  • Physiotherapy
  • Dental care
  • Laboratory diagnosis (not genetics)
  • Psychology

France - Paris

Year of IHTC designation: 1972

Paris Haemophilia Centre (Necker (N) and Kremlin Bicêtre (KB) Hospitals)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Dental care
  • Orthopedic care and surgery
  • Physiotherapy
  • Psychology and Social services

South Africa - Johannesburg

Year of IHTC designation: 2016

Haemophilia Comprehensive Care Centre
Charlotte Maxeke Johannesburg Academic Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Dental care
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic surgery
  • Physiotherapy

Egypt - Cairo

Year of IHTC designation: 2015

Shabrawishi Hospital, Egyptian Society of Hemophilia, and Cairo University

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Molecular genetics
  • Blood banking
  • Physiotherapy

Canada - Toronto

Year of IHTC designation: 2018

University of Toronto Hemophilia Centres
St. Michael’s Hospital

Areas of Specialty

  • Adult hematology services
  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Brazil - Campinas, SP

Year of IHTC designation: 2008

Hemocentro – “Unidade de Hemofilia Cláudio Luiz Pizzigatti Corrêa”
Hemocentro Unicamp, University of Campinas

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and molecular genetics
  • Nursing
  • Dentistry
  • Orthopedic care and surgery
  • Physiotherapy

Belgium - Brussels

Year of IHTC designation: 2013

Haemostasis and Thrombosis Unit
Division of Haematology
Cliniques universitaires Saint-Luc

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Orthopedic care and surgery
  • Physiotherapy

Austria - Vienna

Year of IHTC designation: 1972

Medical University of Vienna
Department of Medicine I
Clinical Division of Hematology and Hemostaseology

Areas of Specialty

  • Adult and pediatric hematology

Australia - Melbourne

Year of IHTC designation: 2005

Ronald Sawers Haemophilia Treatment Centre

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Dental care
  • Blood banking
  • Psychology
  • Social work

Argentina - Buenos Aires

Year of IHTC designation: 1974

Instituto Asistencial “Dr. Alfredo Pavlovsky”
(Fundación de la Hemofilia)

Instituto De Investigaciones Hematológicas “Dr. Mariano R. Castex” (IIHEMA
(Academia Nacional de Medicina)

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy
  • Dental care
  • Orthopaedic care and surgery
  • Laboratory diagnosis and genetic diagnosis
  • Nursing
  • Psychology
  • Social services

Singapore - Singapore

Year of IHTC designation: 2002

Singapore General Hospital Haemophilia Treatment Clinic

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis
  • Nursing
  • Dental care
  • Orthopedic care (no surgeries)
  • Physiotherapy
  • Psychology

Spain - Madrid

Year of IHTC designation: 2018

Hospital Universitario La Paz

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Spain - Valencia

Year of IHTC designation: 1997

Haemostasis and Thrombosis Unit
Haematology Service, University and Polytechnic Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and Social services

Hemophilia of Georgia

Hemophilia of Georgia has stood with us for over three decades, playing an early role in distributing donated factor via the WFH Humanitarian Aid program. Our relationship has deepened over the years as they continued to support this program and came on board as a founding Chapter Challenge champion in 2016. Their belief in educating future leaders is clear in their investment in the Youth Leadership Workshops, which has led to the training of over 50 young adults. They also support workshops devoted to educating providers and patient leaders on how to collect and use data to advocate for better patient care. Their staff generously volunteer their time as trainers and as well as serving on various committees.

Twins of the Year Awards

2022 Amman (Jordan) – Dublin (Ireland)
2021 Addis Ababa (Ethiopia) – Minneapolis (U.S.A) and
Tehran (Iran) – Milan (Italy)
2020 Aluva (India) – Newcastle (UK)
2019 Yogyakarta / Solo (Indonesia) – Utrecht (Netherlands)
2018 Abidjan (Ivory Coast) – Brussels (Belgium)
2017 Santa Cruz de la Sierra (Bolivia) – Buenos Aires (Argentina)
2016 Kampala (Uganda) – London (UK)
2015 Varna (Bulgaria) – Bonn (Germany)
2014 Arequipa (Peru) – Los Angeles (USA)
2013 Davangere (India) – Liverpool (UK)
Ludhiana (India) – Detroit (USA)
2012 Hanoi (Vietnam) – Melbourne (Australia)
2011 Manado (Indonesia) – Utrecht (Netherlands)
2010 Delhi (India) – Winnipeg (Canada)
Yaoundé (Cameroon) – Geneva (Switzerland)
2009 Chisinau (Moldova) – Warsaw (Poland)
Colombo (Sri Lanka) – Vellore (India)
2008 Gaborone (Botswana) – Philadelphia (USA)
2007 Vientiane (Laos) – Brest (France)
Damascus (Syria) – Montpellier (France)
2006 Lima (Peru) – Fort Worth (USA)
2005 Yerevan (Armenia) – Minneapolis (USA)
Casablanca (Morocco) – Caen (France)
2004 Beirut (Lebanon) – Geneva (Switzerland)
Santo Domingo (Dominican Republic) – Caracas (Venezuela)
2003 Cairo (Egypt) – Knoxville (USA)
2002 Moscow (Russia) – Liverpool (UK)
Panama – Valencia (Spain)
2001 Bangalore (India) – St. Louis (USA)
2000 Pune (India) – Bradford (UK)
1999 Montevideo (Uruguay) – Buenos Aires (Argentina)
Tianjin (China) – Calgary (Canada)
1998 Plovdiv (Bulgaria) – Bonn (Germany)
1997 Bogota (Colombia) – Los Angeles (USA)
Tartu (Estonia) – Stockholm (Sweden)
1996 Timisoara (Romania) – Munich (Germany)
Riga (Latvia) – Munster (Germany)
1995 Klaipeda (Lithuania) – Malmo (Sweden)
1994 Bratislava (Slovakia) – Tel Hashomer (Israel)

National Bleeding Disorders Foundation

The National Bleeding Disorders Foundation helps advance our mission on several fronts. They inspire others to follow their lead as a founding champion of the NHF Chapter Challenge. Their commitment to equality of access is demonstrated in their support of the Cornerstone Initiative, which lays the foundation for care in the world's most underserved regions, as well as programs that aim to raise awareness and improve care of women with bleeding disorders and those with von Willebrand disease. We also benefit from their steadfast engagement with various programs including the WFH Twinning Program and their individual leaders’ contribution to our leadership and committees.

Legacy Gift

Do you sometimes wish you could do more? A bequest is a simple way for you to make a significant gift without changing anything about your financial security and lifestyle today. Your legacy will sustain care for the generations to come.

Download these sample clauses to give to your legal advisor.

We understand if you prefer to remain anonymous, but we would be very honoured if you would let us know of your intentions so that we may thank you personally. We would also be happy to answer any questions you may have or give you additional information. Please contact Jennifer Laliberté at 514‑875‑7944 ext.2822 or [email protected].

Disclaimer

The information on the WFH USA website is provided for general information purposes only. The WFH USA does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH USA recommends that you contact your physician or local treatment centre. Before administering any products, the WFH USA urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH USA does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH USA discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH USA social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH USA recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH USA. The WFH USA is not responsible and assumes no liability for the content of any linked websites.

Website privacy policy

The WFH USA does not collect personally identifying information about you when you visit our site, unless you choose to provide such information to us. Providing such information is strictly voluntary. This policy is your guide to how we will handle information we learn about you from your visit to our website.

Use of links

Throughout our website, we provide links to other servers which may contain information of interest to our readers. We take no responsibility for, and exercise no control over, the organizations, views, or accuracy of the information contained on other servers. When linking to the WFH USA, we request that you ensure that there are no associated connections for commercial purposes. Any official use of the name WFH USA or the use of its logo needs to be approved by the WFH USA. If you have a link you’d like us to consider adding to our website, please send an email to [email protected] with the subject “Link request.”

Use of text and images

All information, photographs, graphics, and other material on this website are protected by copyright. While users of this website may use the content for personal, non-commercial use, none of the content of this website can be modified, translated, transferred or sold, copied, reproduced, published, or distributed, in whole or in part, without the prior written consent of the WFH USA. To view a copy of the WFH USA’s permissions guidelines, click here.

The WFH USA encourages the dissemination of its information and welcomes proposals on the reprinting, redistribution, and translation of its materials. If you would like to publish information that you find on our website, please send your request to [email protected].

Accessibility

If you have suggestions on how to make the site more accessible, please contact us at [email protected].

Opt-Out or Change Your Contact Information

Our website provides users the opportunity to opt-out of receiving communications from us through a special online form or via the communication they have received. You may, at all times, choose to receive which communications within the organization you can receive or none at all. You may also update your contact information previously provided to us via another online form.

Questions about our policies

If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you can contact us at [email protected].

Fraud alert

Unauthorized solicitations – Warning

The WFH USA has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH USA staff or falsely stating that they are associated with the WFH USA. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH USA, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH USA emails come from @wfhusa.org or @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH USA at [email protected] or call 1-877-417-7944.

International Award for Outstanding Service - Recipients

International Healthcare Volunteer Award - Recipients

Previous years

2012 Piet de Kleijn
The Netherlands
2010 Dr. Mammen Chandy
India
2008 Dr. Man-Chiu Poon
Canada
2006 Dr. Norma de Bosch
Venezuela
2004 Dr. Parttraporn Insarangkura
Thailand

Dr. Carol K. Kasper
United States

Pietrogrande Prize

2023 Nicholas Goddard
United Kingdom
2021 Axel Seuser
Germany
2019 Dr. Adolfo Llinás
Colombia
2017 Pamela Hilliard
Canada
2015 Kathy Mulder
Canada
2013 James Luck
United States
2012 Piet de Kleijn
The Netherlands
2011 Dr. Lily Heijnen
The Netherlands
2010 Dr. Horacio Caviglia
Argentina
2009 Jerome D. Wiedel
United States
2008 Dr. Federico Fernández-Palazzi
Venezuela
2007 Michael Heim
Israel
2006 Brenda Buzzard
United Kingdom
2005 Dr. Marvin Gilbert
United States

Sweden - Malmö

Year of IHTC designation: 1976

Malmö Centre for Thrombosis and Haemostasis
Department for Hematology and Coagulation Disorders, Skåne University Hospital
Skåne University Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Blood banking (on request)
  • Dental care and surgery
  • Laboratory diagnosis and genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy

Henri Horoszowski Award

2021 Baolai Hua
Yangzhou College, Xuzhou Medical University
The effects of intra-articular injection of TNF-alpha Antagonists in treatment of haemophilic synovitis
2019 Maarten Eerdekens
Belgium
Association between multi-segment foot kinetics and blood induced joint damage in adult patients with hemophilic ankle arthropathy
2017 Fabio Souza
Brazil
Decrease in joint inflammation, swelling and pain after a swimming protocol in animal model of experimental-induced hemarthrosis
2015 SM Javd Mortazavi
Iran
Bilateral total knee arthroplasty in patients with hemophilia: A safe and cost-effective procedure
2013 Lize F.D. van Vulpen
United States
A fusion protein of IL4 and IL10, is equally effective in protecting cartilage from blood-induced damage compared to the individual components
2012 Horacio Caviglia
Argentina
Pseudotumor Surgery in Haemophilia A patients: Comparitive results between inhibitor and non-inhibitor patients
2011 Nick Goddard
United Kingdom and
Monique van Meegeren
The Netherlands
Early onset administration of IL-4 and IL-10 prevents blood-induced cartilage damage in vitro
2010 Lydia Abad-Franch
Spain
Influence of an Aquatic Training Protocol on the Reduced Risk of Cardiovascular Morbidity and Mortality in a Hemophiliac
2009 Sebastien Lobet
Belgium
Impact of Hemophilia Ankle Arthropathy on Gait Disability: Analysis of Energetic and Mechanical Variables
2008 Jose Alberto Tlacuilo-Parra
Mexico
Bone Turnover Markers and Bone Mineral Density in Children with Hemophilia
2007 Natalie Jansen
The Netherlands
Protective Abilities of Interleukin-10 in Blood-induced Cartilage Damage
2006 Axel Seuser and E. Kusch
Germany
Multi-Center Study of Orthopedic Outcome of the Lower Extremities in 249 Children with Hemophilia
2005 Frank van Genderen, Nico van Meeteren, Lily Heijnen, Piet de Kleijn, Marijke van den Berg, Paul Helders
The Netherlands
The Hemophilia Activities List: Final development and validation of a hemophilic-specific self-assessment questionnaire on functional abilities
2004 Goris Roosendaal, Zalima N Jahangier, Kim MG Jacobs, Johannes WJ Bijlsma, Floris PJG Lafeber
The Netherlands
Radiosynoviorthesis using YTTRIUM-90 results in adverse direct effects on cartilage: a human in vitro study
2003 Axel Seuser, Thomas Wallny, Günter Schumpe, Elmar Trunz, Hans-Hermann Brackman
Germany
How to advise young haemophiliacs to find the right sport? A new and safe algorithm
2002 James Luck, Jr. and Mauricio Silva
United States
Long-Term Review of Total Knee Arthroplasty
2001 Federico Fernández-Palazzi
Venezuela
Oxytetracycline Chlorohydrate: A new material for chemical synovial orthoses
2000 Horacio Caviglia
Argentina
Pseudotumours
1999 William J. Ribbans and J.L. Hicks
United Kingdom
Communication and Co-operation for the New Millennium – The Future of the Musculoskeletal Committee in the 21st Century
1998 Adolfo Llinas, Mauricio Silva, Monica Duarte, Gonzalo Ucros, Graciela Perini, Angela Maria Cerquera, Andres Forero
Colombia
Chromic phosphate synoviorthesis without age restriction should be the first treatment option for chronic active hemophilic synovitis

International Frank Schnabel Volunteer Award - Recipients

Previous years

2012Martha Patricia Monteros Rincon
Mexico
2010Antonia Luque de Garrido
Venezuela
2008Jean Michel Bouchez
France
2006Yuri Zhulyov
Russia
2004Ashok Verma
India

Functional Scales

The outcomes of interest collected by the WBDR include demographic characteristics, clinical and treatment-related outcomes, burden of disease outcomes, and patient-reported outcomes.

The WBDR includes five functional scales as part of its extended data set:

WBDR hemophilia data sets

WBDR Minimal Data Set

The WBDR Minimal Data Set (MDS) is a set of data on demographics, diagnosis, symptoms and treatment which are collected on patients participating in the WBDR.

WBDR Extended Data Set

The WBDR Extended Data Set (EDS) is a larger set of data, with more details than the MDS, which includes questions on patient demographics, diagnosis, symptoms, treatment and burden of disease. The EDS can be used by hemophilia treatment centers to collect data on patients participating in the WBDR. The WBDR Extended Data Set (EDS), was added to the database in March 2019.

United States - Columbus, Ohio

Year of IHTC designation: 2018

Nationwide Children’s Hospital

Areas of Specialty

  • Dental care
  • Laboratory diagnosis
  • Nursing
  • Orthopedic care and surgery
  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Psychology/social services

United States - Houston, Texas

Year of IHTC designation: 2000

Gulf States Hemophilia and Thrombophilia Center
University of Texas Health Science Center at Houston

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy/ Occupational therapy
  • Psychology/Social services

United States - Los Angeles, California

Year of IHTC designation: 1970

Lifespan Orthopaedic Hemophilia Treatment Center at Luskin Orthopedic Institute for Children

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Psychology/Social services

United States - New York, New York

Year of IHTC designation: 1993

Mount Sinai School of Medicine
Mount Sinai Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Molecular genetics
  • Social services

United States - Rochester, Minnesota

Year of IHTC designation: 1974

Mayo (Rochester) Comprehensive Hemophilia Center, and International Hemophilia Training Center (WFH)
Mayo Clinic/Foundation and Mayo Medical School

Areas of Specialty

  • Adult and pediatric hematology
  • Blood banking
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Psychology/ Social services

United States - San Diego, California

Year of IHTC designation: 2018

Hemophilia & Thrombosis Treatment Center
University of California San Diego

Areas of Specialty

  • Adult hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

United Kingdom - London

Year of IHTC designation: 1970

Katharine Dormandy Haemophilia Centre and Thrombosis Unit
Royal Free Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy
  • Molecular genetics
  • Psychology/Social services

United Kingdom - Oxford

Year of IHTC designation: 1972

Oxford Haemophilia and Thrombosis Centre
Churchill Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • Physiotherapy/Occupational therapy
  • Psychology and social services

United Kingdom - Sheffield

Year of IHTC designation: 1992

Sheffield Haemophilia and Thrombosis Centre
Royal Hallamshire Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics

Thailand - Bangkok

Year of IHTC designation: 1984

International Hemophilia Training Center – Bangkok
Ramathibodi Hospital
Mahidol University

Areas of Specialty

  • Adult and pediatric hematology
  • Blood banking
  • Dental care and surgery
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Psychology and social services

Our history

The WFH was established in 1963 by Frank Schnabel, a Canadian businessman born with severe hemophilia A. He believed that patient organizations could be much more effective—and do more to represent the interests of people living with bleeding disorders—if they worked together. The first WFH Congress was held in Copenhagen, Denmark, on June 25, 1963, and was attended by representatives from 12 countries. Now, the WFH and our global network of national member organizations (NMOs) represent the interests of people with hemophilia and other inherited bleeding disorders in 152 nations.