1.	PURPOSE
1.1	This WFH Digital Platforms Privacy Policy (hereinafter "Policy" or "Privacy Policy") explains not only how we collect, use, disclose and store any information related to your personal data when you visit any Website (or "Websites") or mobile applications ("Applications" or "Platforms") operated by WFH, but also how you can access, update or take control of your personal information.
1.2	This Policy replaces and updates the WFH Website Privacy Policy (IT 003).

2.	SCOPE
2.1	This Policy generally applies to: any personal information of a factual or subjective nature about an identifiable individual collected through the Websites and/or Platforms on which this Policy is posted, or through any other interactions you may have with us; WFH staff members (regular employees, temporary employees and contractual resources) and senior management who handle personal information held by WFH; visitors to our Websites and/or Platforms, our volunteers and Board members, and any person or company acting for or on behalf of WFH.
2.2	External links. This Policy does not apply to links to third-party websites, plug-ins, services, social networks or applications, including those offered via hyperlinks displayed on our Websites and/or Platforms. If you follow a link to a third-party website or use a third-party plug-in, please note that these third parties have their own privacy policies and we do not accept any responsibility or liability for those policies. We do not control these third-party websites and encourage you to read the privacy policy of each site you visit before providing them with any personal information.

3.	DEFINITION OF "PERSONAL INFORMATION"
3.1	When used in this Privacy Policy, “personal information” means any information about an individual that can be used to identify an individual, including, but not limited to, your name, address, email address, telephone number, gender, banking details, employment, health or other information.

4.	RESPONSIBILITIES OF WFH
4.1	The WFH will fulfill all requirements to protect, collect, use, disclose and retain personal information under the Acts and all other applicable laws and regulations. We attach great importance to the proper management of your data and take full responsibility for it.
4.2	The WFH will also ensure that it has reasonable security measures in place to protect and respect the confidentiality of any personal information in its custody and control.

5.	HOW DO WE COLLECT YOUR CONSENT?
5.1	The WFH considers you to have validly consented to the collection, use or disclosure of your personal information if (i) you give your express written or oral consent; (ii) you voluntarily provide personal information for an obvious purpose; or (iii) if you do not object to the collection, use or disclosure of personal information by the WFH within a reasonable time after the WFH has given you clear notice, including through this Policy, of its intention to do so and the intended purposes.
5.2	In some cases, the WFH may collect personal information about an individual without their consent in accordance with the Acts or any other law or regulation that permits doing so.

6.	WHY WE COLLECT PERSONAL INFORMATION
6.1	We strongly believe in both minimizing the information we collect and limiting its use and purpose. WFH uses your personal information only for the purposes and for the duration required for which it was collected, or for any use that may be required or permitted by legal compliance, government request, court order or other lawful purpose.
6.2	We collect personal information for a variety of reasons. In general, WFH collects only the personal information necessary to fulfill its mission. We may also collect information for administrative purposes — to better understand the visitors who come to our websites and/or Platforms and the content of our websites and/or Platforms that is of interest to them. The purposes for which we collect personal information include, but are not limited to: Improve the content, offering, appearance and usefulness of our Websites and/or Platforms; Send, subject to your right to withdraw your consent as set out in this Policy, periodic emails; Personalize your experience by responding to your needs; Provide you with information or resources you have requested; Process a donation and issue tax receipts; Meet legal and regulatory requirements; Prevent potentially prohibited or illegal activities for risk management, fraud detection and security purposes.
6.3	Wherever possible, rather than using personal information, we will anonymize and/or aggregate personal information so that it no longer identifies an individual and use it for the purposes stated above or for any purpose permitted by law.
6.4	If we ever wish to use or disclose your personal information for purposes other than those specifically described in this Policy, we will obtain your consent.

7.	WHAT PERSONAL INFORMATION DO WE COLLECT?
7.1	WFH only collects personal information that is directly related to one of our programs or activities. We take steps to ensure that the personal information we collect about you is adequate, relevant, not excessive and used for limited purposes. We collect only the information we need.
7.2	The WFH collects information on its Websites and/or Platforms in two ways:
7.2.1	Information you provide directly to us: In many cases, we collect personal information directly from you when you provide your information by subscribing to our Newsletter, when you fill out other forms on our Websites and/or Platforms, when you make an inquiry or when you contact us in person or through the WFH Websites and/or Platforms. The provision of this information is strictly voluntary. We strongly encourage you not to provide any information beyond what is necessary.
7.2.2	Information collected automatically: You should be aware that when you access or browse our Websites and/or Platforms, an exchange of information, subject to your prior consent, takes place automatically between your device and WFH's hosting environment. This exchange is required only because of the technological demands inherent in Internet browsing and is used for statistical purposes to improve your experience — the information exchanged does not identify you personally. The information exchanged is as follow: The domain name of your internet service provider; Your computer's truncated IP address (your IP address is changed, making it impossible to link to you); The type of browser (Chrome, Edge, Firefox, Safari, etc.) and operating system (Windows, Mac OS, etc.) used; The date and time of your visit; The pages you consult and the duration of these consultations; The address of the referring site, if you access WFH Websites and Platforms from another site. WFH retains only the information necessary to count the number of visitors, the most frequently visited pages, the technology used by visitors, the referring sites and the country of origin of visitors. This information is not used in any way to compile, communicate or exchange lists of users/visitors.
7.3	By using the WFH Websites and/or Platforms, you agree to the terms and conditions set forth in this Privacy Policy.

8.	USE OF COOKIES
8.1	The main types of data collected on WFH Websites and/or Platforms are cookies and personalization settings. Cookies are small text files that are downloaded when you visit certain pages of a site and stored in the memory of the device you are using. Cookies are completely harmless and cannot contain any viruses. They enable certain information (browser type, language, country, identifier, etc.) to be recorded and retrieved by the server on subsequent visits. Under no circumstances do cookies allow visitors to be identified. The data remains completely anonymous and is used only to facilitate browsing and improve the WFH’s Websites and/or Platforms based on the needs of its visitors.
8.2	If you do not wish cookies to be used, your browser options can be configured to refuse and/or delete cookies. Please note that disabling or deleting cookies may deprive you of certain functions offered on our Websites and/or Platforms. In addition, this procedure must be repeated for each browser and computer used.
8.3	Google Analytics. We also gather information automatically about visits to our Websites and/or Platforms to help us maintain and improve its design, and to evaluate traffic statistics, such as the times of day and days of week at which we see peak traffic, and to assess the relative popularity of different areas of the Websites and/or Platforms. We use Google Analytics to gather this data and analyze it. Google Analytics collects information about the date and time in which our Websites and/or Platforms were accessed, and may also track a visitor’s movement within the site, but does not collect personal information about the visitor. You can install the Google Analytics Opt-out Browser Add-on to prevent information about your visits to our Websites and/or Platforms being sent to Google Analytics. Our web statistics software (Google Analytics) collects information about the date and time in which our Websites and/or Platforms were accessed, and we may also track a user’s movement within the Websites and/or Platforms. We use this data to improve our Websites and/or Platforms performance.
8.4	Meta Pixel. WFH also uses web beacons (“Pixels”) to analyze visitor activity to our Websites and/or Platforms. We use Meta Pixel to collect information about your interactions with our Websites and/or Platforms, such as pages visited, actions taken, buttons clicked and any pages visited as a result of the button clicks. Web beacons do not contain any personal information but may contain a unique identifier necessary for retargeting and targeted advertising. Meta Pixel allows us to measure the effectiveness of our advertising by understanding the actions you take on our Websites and/or Platforms. We use this data solely for analytical purposes to improve our services and deliver more relevant content.

9.	RESPONSES TO JOB OFFERS
9.1	If you have applied for a job with WFH, we will use your personal information for recruitment and other human resources purposes. We keep the documents sent (CV, cover letter, etc.) by the candidates for a maximum of three (3) years. Documents are then securely destroyed.

10.	PROTECTION OF THE PRIVACY OF MINORS
10.1	WFH does not knowingly collect personal information from children under the age of 14 without the consent of the child's parent or legal guardian. If we learn that we have collected or received personal information from a child for whom parental confirmation was required, we will delete that information. If you believe that we may have received information from or about a child for whom we should have obtained parental consent, please contact us.

11.	DO WE DISCLOSE YOUR PERSONAL INFORMATION TO THIRD PARTIES?
11.1	Rest assured that WFH will never sell, trade, rent, share or transfer your personal information to third parties (organizations or individuals) for commercial purposes without your consent, except in the exceptional cases specifically provided for in this Policy.
11.2	As part of the services offered by our external suppliers. WFH may transfer personal information that we collect or that you provide as described in this Policy to service providers and other third parties we use to support our organization. Such third parties are contractually obligated to keep personal information confidential, use it only for the purposes for which we disclose it and process personal information in accordance with the standards set out in this Policy and in compliance with the Acts.
11.3	In the context of a legal obligation. WFH may disclose your personal information to comply with any court order, law or legal process, including to respond to any government or regulatory request, in accordance with applicable law, to combat fraud or harms to WFH or our members, or if we believe that disclosure is necessary or appropriate to protect the rights, property or safety of WFH or others.

12.	SHARING PERSONAL INFORMATION OUTSIDE QUÉBEC
12.1	Your personal information is processed and stored in Québec. In order to carry out our mission, we may in some cases store, process and transfer your information around the world, including outside Québec or to jurisdictions outside your country of residence — if you are located in the Economic European Area or Switzerland, please review Appendix A "Additional terms" which apply to you in addition to the main terms of this Policy. Data may also be stored locally on the devices you use to access WFH Websites and/or Platforms.
12.2	In such cases, the transfer will only take place if we find that the information would be adequately protected, in particular considering the sensitivity of the information, the purpose for which it is used, the protection the information would be afforded, and the legal framework applicable in the state or province where the information would be transferred. Any transfer will also be subject to appropriate contractual agreements to ensure adequate protection.

13.	HOW DO WE PROTECT YOUR PERSONAL INFORMATION?
13.1	The security of your personal information is very important to us. The personal information we collect is stored in a secure environment using industry-recognized technologies. We will protect personal information against loss or theft, unauthorized access, use or disclosure, copying, modification or destruction.
13.2	When you visit our Websites and/or Platforms and are asked for personal information, this information is used exclusively by WFH. In order to protect your personal information, we have implemented customary security measures that are appropriate to the sensitivity of the information collected, including the following physical, organizational, contractual and technological measures: Information stored in a protected database; Encrypted communications using the TLS protocol; Access to your personal information is restricted to those employees who need it to perform their duties (authorized and/or concerned persons) — these employees will treat the information as strictly confidential and will not give access to this information to any unauthorized person; Report any violation of this Policy or the Acts to the WFH Privacy Officer; Network monitoring software; Anti-virus and anti-malware; End-user device encryptions; Passwords and multi-factor authentication; Firewall; Secure Web site donation page; content encrypted or encoded to make information unreadable; Paper files kept in locked filing cabinets wherever possible; Access codes to WFH premises; Security personnel.
13.3	Individuals working for WFH or acting on our behalf must make reasonable efforts to minimize the risk of unintentional disclosure of personal information. In addition, our policies, procedures and codes of conduct are clearly communicated to our employees, contractors, volunteers, consultants and subcontractors and WFH will ensure that they are adhered to and respected. All individuals who fail to comply with the principles and procedures of this Policy will be subject to corrective measures, including termination of their employment relationship, tenure or contract.
13.4	Despite these precautions, no method of transmission or storage is 100% secure or error-free. As a result, we cannot guarantee absolute security. If you have reason to believe that your interaction with us is no longer secure, please contact us immediately.
13.5	If we become aware of a security breach involving your personal information, we will notify you and the appropriate authorities as soon as possible, in accordance with the Acts.

14.	RETENTION AND DESTRUCTION OF PERSONAL INFORMATION
14.1	Except as permitted or required by the Acts or any applicable law or regulation, WFH will retain your personal information only for as long as necessary to fulfill the purposes for which we collected it, including for the purposes of satisfying legal, accounting or reporting requirements to the appropriate government and regulatory bodies.
14.2	Personal information that is no longer required for the purposes for which it was collected will be destroyed, erased or made anonymous in accordance with applicable laws.
14.3	Under some circumstances, we may anonymize your personal information so that it can no longer be associated with you. We reserve the right to use de-identified and anonymized data for any legitimate purpose without further notice to you or your consent.
14.4	If the WFH uses personal information to make a decision that directly affects an individual, we will retain that information for as long as necessary to fulfill the purposes for which the information was collected. Once the information has been used, individuals may access their personal information as set out in the Acts.

15.	ACCESSING, CORRECTING, DE-INDEXING AND PORTABILITY OF YOUR PERSONAL INFORMATION
15.1	It is important that the personal information we hold about you is accurate and current. Please keep us informed if your personal information changes. You can contact us via the WFH Online Contact Form or email us at [email protected].
15.2	Upon request, an individual is entitled to be informed of the existence, use and disclosure of their personal information and to obtain access to that information, or to obtain a copy of their personal information in electronic or non-electronic format subject to appropriate notice. An individual has the right to challenge the accuracy and completeness of their personal information, have it amended, or withdraw consent to the use of their information. In addition, WFH complies with all laws regarding access to and correction of your personal information.
15.3	An individual has also the right to receive computerized personal information collected from them in a structured, machine-readable, and commonly used format. In certain circumstances, the individual may also ask WFH to transfer their computerized personal information directly to third parties. An individual has the right to request that the dissemination of their personal information cease, or to request that any hyperlinks associated with their name and that provide access to personal information be de-indexed or re-indexed.
15.4	No request for access, rectification, de-indexation or data portability may be considered unless it is made in writing and addressed to the WFH Privacy Officer. You must provide enough detail to enable the WFH to process the request. The Privacy Officer will respond within 30 days of the receipt of a request, unless it extends the time as authorized under the Acts.

16.	WITHDRAWING YOUR CONSENT
16.1	If you have given your consent to the collection, use and transfer of your personal information, you may have the legal right to withdraw your consent under certain circumstances. To withdraw your consent, if applicable, contact us at [email protected].
16.2	Please note that if you withdraw your consent, we may not be able to provide you with certain services. We will explain the impact of withdrawing your consent to help you make a decision.

17.	CHANGES TO OUR PRIVACY POLICY
17.1	WFH will review and update its policies and procedures as required to keep current with rules and regulations, new technologies and standards. Our Privacy Policy may therefore change from time to time. We will post any Policy changes on our Websites and Platforms and, if the changes are significant, we will provide a more prominent notice. You are responsible for periodically visiting our Websites and/or Platforms and this Policy to check for any changes.
17.2	Please note that both the English and French versions of our Privacy Policy have equal legal value.

18.	CONTACT DETAILS FOR THE PRIVACY OFFICER
If you have any comments, questions or requests regarding this Policy or our privacy practices, or to report any abuse by third parties, please do not hesitate to contact Antonio José Almeida, WFH Senior Director, Operations and Privacy Officer by e-mail at [email protected] or at the following postal address:
c/o Privacy Officer, World Federation of Hemophilia 1425, boul. René-Lévesque West Suite 1200 Montreal, Québec H3G 1T7 Canada
We have procedures in place to receive and respond to complaints or inquiries about our handling of personal information, our compliance with this Policy and applicable privacy laws. If you are not satisfied with WFH's handling of your personal information, you may file a complaint with WFH. The complaint will be investigated by the WFH Privacy Officer, who will determine whether the handling of the information complies with WFH policies and practices and any other applicable laws. The Privacy Officer will make every reasonable effort to resolve complaints. The person filing the complaint will be informed of any progress or outcome of the investigation within a maximum of 30 working days of receipt of the request and/or any additional time required to complete the investigation.

APPENDIX A
ADDITIONAL TERMS FOR USERS LOCATED IN THE ECONOMIC EUROPEAN AREA (EEA) AND SWITZERLAND
If you are located in the European Economic Area (EEA) or Switzerland, these additional terms apply to you in addition to the main terms of WFH Privacy Policy. In case of a contradiction between the Privacy Policy and these additional terms, the latter will prevail.
1	LEGAL BASIS FOR PROCESSING PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
1.1	If you are from the European Economic Area (EEA) or Switzerland, WFH’s legal basis for collecting and using the personal information described in this Privacy Policy depends on the personal information we collect and the specific context in which we collect it. We only process your Personal information if we have a legal basis to do so, which includes: Consent: where you have given us your consent, you have given us permission to do so, or where processing is necessary for the performance of a service you have requested; or Legitimate interests: for example, we may process your personal information to protect you, us, or others from threats (such as security threats or fraud), to comply with laws that apply to us.
If you have any questions about the lawful bases upon which we collect and use your personal data, please contact: Antonio José Almeida, WFH Senior Director, Operations and Privacy Officer by e-mail at [email protected] or at the following postal address: c/o Privacy Officer, World Federation of Hemophilia, 1425, boul. René-Lévesque, West Suite 1200, Montreal, Québec, H3G 1T7, Canada
2	TRANSFER OF YOUR PERSONAL INFORMATION OUTSIDE OF THE EEA OR SWITZERLAND
2.1	We may process information outside of the EEA or Switzerland, including Canada and the USA.
3	ADDITIONAL RIGHTS REGARDING YOUR PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
3.1	If you are a resident of the European Economic Area (EEA) or Switzerland, you have certain data protection rights. WFH aims to take reasonable steps to allow you to correct, amend, delete or limit the use of your personal information.
3.2	If you wish to be informed about what personal information we hold about you and if you want it to be removed from our systems, please contact us.
3.3	In addition to the rights mentioned in the section 15 ("Accessing, correcting, de-indexing and portability of your personal information") and in section 16 ("Withdrawing your consent"), in certain circumstances, you also have the following data protection right: The right to delete the information we have on you. Whenever made possible, you can request deletion of your personal information, in which case we will carry out this request unless certain exceptional reasons arise permitting us to keep certain information about you; The right to object. You have the right to object to our processing of your personal information in certain circumstances, such as those described in the “Legitimate interests” section 1.1 b) above. We may however continue to process your personal Information unless your interests, rights and freedoms override our legitimate interests; and The right of restriction. You have the right to request that we restrict or limit the ways in which we process your personal information for instance where you believe your data is inaccurate. Please note that we may ask you to verify your identity before responding to such requests.

APPENDIX A
ADDITIONAL TERMS FOR USERS LOCATED IN THE ECONOMIC EUROPEAN AREA (EEA) AND SWITZERLAND
If you are located in the European Economic Area (EEA) or Switzerland, these additional terms apply to you in addition to the main terms of WFH Privacy Policy. In case of a contradiction between the Privacy Policy and these additional terms, the latter will prevail.
1	LEGAL BASIS FOR PROCESSING PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
1.1	If you are from the European Economic Area (EEA) or Switzerland, WFH’s legal basis for collecting and using the personal information described in this Privacy Policy depends on the personal information we collect and the specific context in which we collect it. We only process your Personal information if we have a legal basis to do so, which includes: Consent: where you have given us your consent, you have given us permission to do so, or where processing is necessary for the performance of a service you have requested; or Legitimate interests: for example, we may process your personal information to protect you, us, or others from threats (such as security threats or fraud), to comply with laws that apply to us.
If you have any questions about the lawful bases upon which we collect and use your personal data, please contact: Antonio José Almeida, WFH Senior Director, Operations and Privacy Officer by e-mail at [email protected] or at the following postal address: c/o Privacy Officer, World Federation of Hemophilia, 1425, boul. René-Lévesque, West Suite 1200, Montreal, Québec, H3G 1T7, Canada
2	TRANSFER OF YOUR PERSONAL INFORMATION OUTSIDE OF THE EEA OR SWITZERLAND
2.1	We may process information outside of the EEA or Switzerland, including Canada and the USA.
3	ADDITIONAL RIGHTS REGARDING YOUR PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
3.1	If you are a resident of the European Economic Area (EEA) or Switzerland, you have certain data protection rights. WFH aims to take reasonable steps to allow you to correct, amend, delete or limit the use of your personal information.
3.2	If you wish to be informed about what personal information we hold about you and if you want it to be removed from our systems, please contact us.
3.3	In addition to the rights mentioned in the section 15 ("Accessing, correcting, de-indexing and portability of your personal information") and in section 16 ("Withdrawing your consent"), in certain circumstances, you also have the following data protection right: The right to delete the information we have on you. Whenever made possible, you can request deletion of your personal information, in which case we will carry out this request unless certain exceptional reasons arise permitting us to keep certain information about you; The right to object. You have the right to object to our processing of your personal information in certain circumstances, such as those described in the “Legitimate interests” section 1.1 b) above. We may however continue to process your personal Information unless your interests, rights and freedoms override our legitimate interests; and The right of restriction. You have the right to request that we restrict or limit the ways in which we process your personal information for instance where you believe your data is inaccurate. Please note that we may ask you to verify your identity before responding to such requests.

WFH awards presented during WFH 2024 World Congress

The World Federation of Hemophilia (WFH) and its national member organizations (NMO) are powered by dedicated individuals who believe that together, a better future can be brought to those living with a bleeding disorder around the world. WFH awards serve to recognize these individuals who have dedicated their time to supporting our shared vision of Treatment for All.

Also available in: Français Español

During the WFH 2024 World Congress, six WFH awards were bestowed—to individuals and one organization—recognizing their contributions to the global inherited bleeding disorders community.

International Lifetime Achievement Award

Jan Willem Andre de la Porte—a former WFH Patron—was presented with the International Lifetime Achievement Award, honouring his exemplary leadership, compassion, and commitment to youth within the bleeding disorders community.

Jan Willem Andre de la Porte first became involved with the WFH in 1994 and led the fundraising committee for many years. At WFH Congresses, he has mentored numerous youth fellows, sharing his experiences and offering invaluable guidance. With an international background spanning the Netherlands, South Africa, and now Belgium, his advocacy efforts are informed by a unique perspective.

International Frank Schnabel Volunteer Award

Former WFH Board member and Chair of the Youth Committee, Deon York, received the International Frank Schnabel Volunteer Award in recognition of his global contributions to training and advocacy work.

Deon York has been involved with the New Zealand NMO since the late nineties, holding many board-level positions, and currently serving as their Board Chair. He has contributed to the WFH through the WFH Congress Multidisciplinary Committee, played a key role in developing the Global NMO Training program, and currently mentors in the PACT Advocacy Academy and supports the Fiji NMO through the HOT Twinning Program.

WFH International Healthcare Volunteer Award

Sukesh Nair, MD, former chair of the WFH Lab Sciences Committee, was awarded the WFH International Healthcare Volunteer Award for his commitment to patient care, education, global healthcare enhancement and external quality control.

As a strong advocate of external quality control, Sukesh Nair’s leadership as Chair of the International External Quality Assessment Scheme (IEQAS) committee has helped enhance the program’s success. His support has been instrumental in establishing IEQAS in the Philippines, China, Thailand, Sri Lanka, Egypt and South Africa. As Vice Chair—and, later, Chair of the Lab Sciences committee—he contributed to the success of IEQAS during a period where diagnosis became an increasingly important focus for the WFH.

Bülent Zülfikar, MD, President of the Hemophilia Society of Turkey

WFH President’s Award

The Hemophilia Society of Turkey received the WFH President’s Award for their exemplary support of patients and healthcare providers, spanning beyond Turkey to countries like Azerbaijan, Kyrgyzstan, Lebanon, Palestine, and Syria.

The society’s efforts include hosting summer camps, and training and education programs for healthcare providers and patients as well as their parents from neighbouring countries. They also provide essential care for individuals and refugees from Syria, Lebanon and Palestine. Additionally, they’ve collaborated on significant initiatives like the WFH 2008 World Congress in Istanbul and the WFH Twinning Program—proof of their commitment to global advancement.

Christine Lee Young Researcher Award

Geneviève McCluskey and Rodrigo Núñez-Cortés received the Christine Lee Young Researcher Award for best oral and best poster, respectively.

To find out more about WFH awards, please click here.

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May 6, 2024

WFH awards presented during WFH 2024 World Congress

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Don’t miss sessions: WFH 2024 World Congress

December 15, 2023

The WFH 2024 World Congress program has been published! Next year’s Congress will include over 90 hours of educational sessions across medical and people with bleeding disorders (PWBDs) tracks, as well was six professional development tracks. You can take a look at the full Program now to see what’s on…

WFH 2024 World Congress: Madrid, Spain’s exciting capital

November 24, 2023

The World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) are excited to welcome the global bleeding disorders community to the WFH 2024 World Congress in Madrid, Spain next year from April 21 to 24. This in-person event will be the most the comprehensive international event on…

Abstract submission deadline extended

November 16, 2023

Great news for researchers who want to showcase their work to the world: the WFH 2024 World Congress abstract deadline has been extended to November 30, 2023, at 11:59 p.m. ET….

You’re officially invited to the WFH 2024 World Congress

October 16, 2023

On behalf of Cesar Garrido, President of the World Federation of Hemophilia (WFH) and Daniel-Aníbal García Diego, President of La Federación Española de Hemofilia (Fedhemo), you are officially invited to the WFH 2024 World Congress in Madrid, Spain! Taking place from April 21 to 24, 2024. This event will be…

It’s official! Registration and accommodations open for WFH 2024 World Congress

September 22, 2023

Registration and accommodations are officially open for the WFH 2024 World Congress in Madrid, Spain from April 21 to 24. Our competitive registration rates and our many hotel options make it easy for you to take part in what will be the biggest event for the global inherited bleeding disorders…

WFH 2024 World Congress call for abstract submissions opening soon!

September 6, 2023

Next year, the World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) will host the WFH 2024 World Congress in Madrid, Spain, from April 21 to 24. The event will be the most comprehensive one of the year in our field, with over 90 hours of continuing…

Learn more about the WFH 2024 World Congress

July 26, 2023

Next year will be a big one for the global bleeding disorders community, as the World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) will host the WFH 2024 World Congress in Madrid, Spain, from April 21 to 24. The event will be the most comprehensive one…

Mark your calendars! WFH 2024 World Congress coming to Madrid next year

May 11, 2023

WFH 2024 World Congress to take place in Madrid

November 18, 2022

Today, an Extraordinary Meeting of the of the World Federation of Hemophilia (WFH) General Assembly (GA) was called to decide the location of the WFH 2024 World Congress. We are pleased to announce that Madrid, Spain, has been selected as the location for the next WFH World Congress. The NMO,…

WFH to call special meeting of the General Assembly

September 26, 2022

The COVID-19 pandemic has had major impacts on the bleeding disorders community over the last two years, including the cancellation or postponement of events. Changes related to these effects have now necessitated the calling of a special World Federation of Hemophilia (WFH) General Assembly (GA) meeting to decide the location…

New Associate NMO: Safe Motherhood and Hemophilia Foundation The Gambia

July 5, 2022

On May 7, 2022, during the World Federation of Hemophilia (WFH) Annual Meeting of the General Assembly, the Safe Motherhood and Hemophilia Foundation The Gambia (SMHF) was welcomed as a WFH associate national member organization (NMO). The SMHF is now part of a family of 147 NMOs from around the…

Complimentary On-Demand 2022 Congress content now available

June 13, 2022

The WFH 2022 World Congress was an immense success with thousands of attendees joining from 145 countries, both in-person in Montreal and virtually. The WFH is now happy to offer you complimentary On-Demand content from the event….

Ekawat Suwantaroj co-opted to WFH Board of Directors

May 31, 2022

The World Federation of Hemophilia (WFH) is very pleased to announce that Ekawat Suwantaroj has been co-opted to its Board of Directors as a lay member from May 26, 2022, to the next Annual Meeting of the General Assembly in 2024….

General Plenary: VP Medical address with Glenn Pierce

May 12, 2022

At the WFH 2022 World Congress in Montreal, Canada, Glenn Pierce, MD, PhD, Vice President Medical at the World Federation of Hemophilia (WFH), gave his plenary address, “Looking Forward with the View of Learnings of the Past”. In his presentation, Pierce addressed where we are, and where we need to…

WFH 2022 World Congress concludes on high note

May 12, 2022

The WFH 2022 World Congress concluded today in Montreal. Many guests gathered for the farewell dinner in a comfortable setting that reflected the positive feeling and sense of camaraderie that was present for the whole Congress….

Congress Daily Recap – Day 3

May 12, 2022

The challenge of evaluating and managing pain

May 11, 2022

Today, the session “The challenge of evaluating and managing pain” was given at the WFH 2022 World Congress. The event was chaired by Barbara Konkle, Research Director and Professor of Medicine at the Washington Center for Bleeding Disorders, U.S.A., and World Federation of Hemophilia medical board member….

We are looking forward to seeing you in Buenos Aires and Kuala Lumpur!

May 11, 2022

On behalf of everyone at the WFH, thank you for being part of the WFH 2022 World Congress in Montreal, Canada….

Don’t forget to drop by the WFH Resource Centre

May 11, 2022

WFH Humanitarian Aid Program officially signs new contract with CSL Behring

May 11, 2022

In April, the WFH and WFH USA announced a new WFH Humanitarian Aid Program partnership with CSL Behring which included a donation of 500 million IUs of factor VIII in addition to the original 3-year commitment of 17 million IUs per year of factor VIII and IX….

Congress Daily Recap – Day 2

May 11, 2022

Magdy El Ekiaby receives 2022 WFH International Healthcare Volunteer Award

May 11, 2022

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions help drive our progress towards the WFH vision of Treatment for All….

Today at the WFH 2022 World Congress – May 11

May 11, 2022

Welcome to day 4 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today….

Hemophilia gene therapy: update on new country initiatives

May 10, 2022

Today, “Hemophilia gene therapy: update on new country initiatives” was held at the WFH 2022 World Congress in Montreal, Canada. The talk was chaired by Alok Srivastava, Professor at the Department of Hematology – Christian Medical College, Vellore, India, and covered gene therapy developments at the country level. Gene therapy…

Free paper session: Oral health

May 10, 2022

The WFH 2022 World Congress in Montreal, Canada today held a session called “Free paper session: Oral health”….

Memorial art: remembering the past, changing the future

May 10, 2022

What role does the memorialization of tragedy play in healing? What roles do story-based memorials offer that names-based memorials can’t? Some of these questions were explored today at the WFH 2022 World Congress….

Perspectives on curing hemophilia

May 10, 2022

“Perspectives on curing hemophilia” was held at the WFH 2022 World Congress in Montreal, Canada….

Plenary: Gene therapy – are we ready now?

May 10, 2022

Hemophilia therapy has evolved from rudimentary transfusion-based approaches to an unprecedented level of innovation with the potential of a functional cure brought by gene therapy….

Congress Daily Recap – Day 1

May 10, 2022

Roche extends commitment to WFH Humanitarian Aid Program

May 10, 2022

The World Federation of Hemophilia (WFH) and WFH USA are pleased to announce that Roche will extend its commitment to the WFH Humanitarian Aid Program until the end of 2028….

Humanitarian Aid, a path to sustainable care

May 10, 2022

At the WFH 2022 World Congress in Montreal, Canada, the many successes of the WFH Humanitarian Aid Program were covered in the session, “Humanitarian Aid, A path to sustainable care”. The event was chaired by Glenn Pierce, MD, PhD, Vice President Medical, World Federation of Hemophilia (U.S.A)….

Don’t miss: WFH Twinning event to celebrate long lasting partnerships

May 10, 2022

The World Federation of Hemophilia (WFH) Twinning Program creates collaborative partnerships between hemophilia treatment centres (HTCs), patient organizations and their youth groups to help improve treatment and care for people living with an inherited bleeding disorder around the world….

Today at the WFH 2022 World Congress – May 10

May 10, 2022

Welcome to day 3 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

Health issues in women and girls affected by hemophilia

May 9, 2022

The session, “Health issues in women and girls affected by hemophilia with a focus on nomenclature, heavy menstrual bleeding, and musculoskeletal issues” was held today at the WFH 2022 World Congress in Montreal, Canada. Chaired by Roseline d’Oiron, Director at the Reference Centre for Haemophilia and Congenital Bleeding Disorders, University…

Changing treatment, changes diagnosis

May 9, 2022

Today, “Changing treatment, changes diagnosis” was held at the WFH 2022 World Congress in Montreal, Canada….

Susan Skinner Memorial Fund Scholarship empowers women—you’re invited!

May 9, 2022

Despite the uncertainties leading up to the WFH 2022 World Congress, the 2022 Susan Skinner Memorial Fund Scholarship (SSMF) recipients have still been able to connect in person….

Young Researchers free paper sessions – part 1

May 9, 2022

Today, “Young Researchers free paper sessions – Part 1” was held at the WFH 2022 World Congress in Montreal, Canada. The talk was chaired by Johnny Mahlangu, Professor at the University of the Witwatersrand and NHLS, Johannesburg, South Africa….

WFH President Cesar Garrido delivers plenary talk at Congress

May 9, 2022

Today at the WFH 2022 World Congress in Montreal, Canada, WFH President Cesar Garrido delivered his plenary to participants and the greater global bleeding disorders community….

Nurul Islam receives 2022 WFH President’s Award

May 9, 2022

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

Introducing the myWBDR mobile app: a new WBDR data collection tool

May 9, 2022

There’s a new data collection tool that people with hemophilia (PWH) can use with the WFH World Bleeding Disorders Registry (WBDR)!…

Don’t miss: women’s networking event

May 9, 2022

Today at the WFH 2022 World Congress – May 9

May 9, 2022

Welcome to day 2 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

Community comes together at opening ceremony

May 8, 2022

Michael Soucie receives 2022 WFH International Lifetime Achievement Award

May 8, 2022

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

Bradley Rayner receives 2022 WFH International Frank Schnabel Volunteer Award

May 8, 2022

Every two years, the World Federation of Hemophilia (WFH) recognizes the outstanding volunteers who generously share their time, expertise, and energy with the global bleeding disorders community. Their contributions drive our progress towards the WFH vision of Treatment for All….

PROGRAM CHANGES: WFH 2022 World Congress

May 8, 2022

Please note that there have been changes to the program for the WFH 2022 World Congress….

Celebrating 50 years of the IHTC Fellowship Program

May 8, 2022

Live demonstrations of WFH resources in exhibition hall

May 8, 2022

Live demonstrations of WFH Data Collection platforms and our enhanced eLearning Platform are taking place at the WFH Resource Centre in the exhibition hall!…

Today at the WFH 2022 World Congress – May 8

May 8, 2022

Welcome to day 1 of the WFH 2022 World Congress. Here are a few “must see” sessions we have curated for you today. To read full program, please click here….

2022 Annual Meeting of the General Assembly held

May 7, 2022

The World Federation of Hemophilia (WFH) 2022 Annual Meeting of the General Assembly was held today in Montreal, Canada. Several positions were affirmed with the re-election of incumbents; new board members were voted in; and several national member organizations (NMOs) joined the WFH family as full or associate NMOs….

LAST CHANCE TO REGISTER VIRTUALLY FOR THE WFH 2022 WORLD CONGRESS!

May 4, 2022

There is still time to register virtually for the WFH 2022 World Congress and enjoy select sessions and content from the comfort of your home or office….

WFH 2022 WORLD CONGRESS – Time is running out!

April 29, 2022

You can still join us in person or virtually for the WFH 2022 World Congress. Online registrations for the in-person component of the WFH 2022 World Congress are open until midnight EST on Sunday, May 1….

WFH 2022 World Congress – final program available!

April 20, 2022

The final program for the WFH 2022 World Congress is now available! Read about all the sessions we’re offering this year in our Program at a glance and Schedule at a glance….

Don’t miss sessions: WFH 2022 World Congress

April 8, 2022

The WFH 2022 World Congress is coming soon! Next month—from May 8 to 11, 2022—the hybrid Congress will bring you the latest medical and multidisciplinary developments in our field. Here are five sessions you shouldn’t miss this May….

WFH 2022 World Congress: latest program updates!

April 7, 2022

COVID-19 restrictions are being lifted throughout Canada! As of right now, the vaccination passport in no longer required in Quebec. As of April 1, 2022, there will no longer be pre-arrival COVID-19 testing requirements for visitors to Canada. For more information, read Pandemic restrictions in Montreal: what you need to…

WFH 2022 World Congress: the hybrid format has an option for everyone!

March 24, 2022

The WFH 2022 World Congress will be held as a hybrid event, allowing delegates to join in-person at the Montreal convention centre or online via the virtual platform….

Pandemic restrictions in Montreal: what you need to know

March 8, 2022

Almost all major COVID-19 restrictions will be easing in Montreal, Canada in the coming weeks, making it possible for the World Federation of Hemophilia (WFH) to offer the WFH 2022 World Congress in a hybrid format from May 8 to 11, 2022. You can attend Congress virtually and in person—and…

Take advantage of the early bird rate and save today!

March 8, 2022

The WFH 2022 World Congress will take place as scheduled in May 2022

February 22, 2022

Around the world, COVID-19 pandemic restrictions are being lifted, and Montreal is no exception. Congress halls, restaurants and other venues are now reopening to their full capacity and travel will be easier starting in March. In many countries, the loosening of restrictions will continue in the coming weeks….

Call for late-breaking abstracts now open

February 15, 2022

The WFH 2022 World Congress—a major event in the international bleeding disorders community this year—is just around the corner! The WFH is happy to announce that the call for late-breaking abstracts is now open….

Submit your memorial art at the WFH 2022 World Congress

January 13, 2022

Memorial art—which is used to honour and remember people lost due to a tragedy—has many forms. Well known examples are the NAMES Project AIDS Memorial Quilt, and the Vietnam Veterans Memorial….

Program at a glance: WFH 2022 World Congress

December 15, 2021

As 2021 draws to a close, the World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) are both gearing up to bring you the WFH 2022 World Congress from May 8 to 11, 2022….

Abstract submission deadline is coming soon!

November 19, 2021

It’s not too late to submit your abstract for the WFH 2022 World Congress taking place in Montreal, Canada next year. The deadline to submit an abstract is November 22, 2021, at 11:59 PM ET. Submissions must be done online through the abstract scorecard, and cannot be done via email….

Montreal: ready to host the WFH 2022 World Congress

October 28, 2021

Next year, the World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) will be welcoming the global bleeding disorders community to Montreal, Canada for the WFH 2022 World Congress from May 8 to 11, 2022….

WFH 2022 World Congress registration and abstract submission now open!

September 28, 2021

The WFH is pleased to officially invite you to the WFH 2022 World Congress—the first major hybrid event in the international bleeding disorders community! Registration is now open, and so is the call for abstracts….

Montreal to welcome WFH 2022 World Congress

August 11, 2021

The World Federation of Hemophilia (WFH) and the Canadian Hemophilia Society (CHS) are excited to welcome the global bleeding disorders community to the WFH 2022 World Congress—the first major hybrid event of the international bleeding disorders community….

Amanda Brito del Pino: Q&A with a Susan Skinner Memorial Fund recipient

July 17, 2018

Amanda Brito del Pino is a 2018 SSMF Scholarship recipient. We asked her a few questions about what it means to receive a SSMF Scholarship….

WFH Humanitarian Aid Program: catalyst towards global change

June 19, 2018

The highly-anticipated and well-attended “WFH Humanitarian Aid Program: Catalyst towards global change” session was one of the most popular sessions of this year’s Congress and delegates left with a broader understanding of the efforts of the World Federation of Hemophilia (WFH) to reach Treatment for All….

Global VWD Call to Action promoted at Congress

May 23, 2018

Luisa Durante, Program Development Manger, World Federation of Hemophilia (WFH) gathered people with von Willebrand disease (VWD) at the Resource Centre of the WFH 2018 World Congress to promote the Global VWD Call to Action….

Jeanne White-Ginder: mother of Ryan White

July 6, 2016

Hear the Ryan White Story as told by his mother, Jeanne White-Ginder. Ryan was a boy living with hemophilia and diagnosed with AIDS following a transfusion of tainted clotting factor in December 1984….

We’ve accomplished a lot this year, we need your help to continue strong.

Would you like to read more about similar articles?

2012	Christine Lee United Kingdom
2006	Dr. Bruce Evatt United States

2012	Piet de Kleijn The Netherlands
2010	Dr. Mammen Chandy India
2008	Dr. Man-Chiu Poon Canada
2006	Dr. Norma de Bosch Venezuela
2004	Dr. Parttraporn Insarangkura Thailand Dr. Carol K. Kasper United States

2022	Amman (Jordan) – Dublin (Ireland)
2021	Addis Ababa (Ethiopia) – Minneapolis (U.S.A) and Tehran (Iran) – Milan (Italy)
2020	Aluva (India) – Newcastle (UK)
2019	Yogyakarta / Solo (Indonesia) – Utrecht (Netherlands)
2018	Abidjan (Ivory Coast) – Brussels (Belgium)
2017	Santa Cruz de la Sierra (Bolivia) – Buenos Aires (Argentina)
2016	Kampala (Uganda) – London (UK)
2015	Varna (Bulgaria) – Bonn (Germany)
2014	Arequipa (Peru) – Los Angeles (USA)
2013	Davangere (India) – Liverpool (UK) Ludhiana (India) – Detroit (USA)
2012	Hanoi (Vietnam) – Melbourne (Australia)
2011	Manado (Indonesia) – Utrecht (Netherlands)
2010	Delhi (India) – Winnipeg (Canada) Yaoundé (Cameroon) – Geneva (Switzerland)
2009	Chisinau (Moldova) – Warsaw (Poland) Colombo (Sri Lanka) – Vellore (India)
2008	Gaborone (Botswana) – Philadelphia (USA)
2007	Vientiane (Laos) – Brest (France) Damascus (Syria) – Montpellier (France)
2006	Lima (Peru) – Fort Worth (USA)
2005	Yerevan (Armenia) – Minneapolis (USA) Casablanca (Morocco) – Caen (France)
2004	Beirut (Lebanon) – Geneva (Switzerland) Santo Domingo (Dominican Republic) – Caracas (Venezuela)
2003	Cairo (Egypt) – Knoxville (USA)
2002	Moscow (Russia) – Liverpool (UK) Panama – Valencia (Spain)
2001	Bangalore (India) – St. Louis (USA)
2000	Pune (India) – Bradford (UK)
1999	Montevideo (Uruguay) – Buenos Aires (Argentina) Tianjin (China) – Calgary (Canada)
1998	Plovdiv (Bulgaria) – Bonn (Germany)
1997	Bogota (Colombia) – Los Angeles (USA) Tartu (Estonia) – Stockholm (Sweden)
1996	Timisoara (Romania) – Munich (Germany) Riga (Latvia) – Munster (Germany)
1995	Klaipeda (Lithuania) – Malmo (Sweden)
1994	Bratislava (Slovakia) – Tel Hashomer (Israel)

2022	Serbia – Manitoba (Canada)
2021	Palestine – Venezuela
2020	NHF (USA) – HFI (India)
2019	Madagascar – Brittany (France)
2018	Kenya – Scotland
2017	Mongolia – Manitoba (Canada)
2016	Tanzania – Ontario (Canada)
2015	Bangladesh – Canada
2014	Nicaragua – Quebec (Canada)
2013	Mauritius – South Africa
2012	Vietnam – Ireland
2011	Cambodia – New Zealand
2010	Tunisia – Quebec (Canada)
2009	Peru – Galicia (Spain)
2008	South Africa – Canada
2007	Honduras – Georgia (USA)
2006	Bosnia and Herzegovina – Ireland
2005	Pakistan – Malaysia
2004	Dominican Republic – Venezuela
2003	Jordan – Toronto (Canada)
2002	Nicaragua – Venezuela
2001	Philippines – Victoria (Australia)
2000	Georgia – Minnesota (USA) Uruguay – Argentina
1999	Nepal – Sweden Mexico – Texas (USA)
1998	Latvia – Germany
1997	India – Denmark
1995	Israel – Slovakia

2023	Nicholas Goddard United Kingdom
2021	Axel Seuser Germany
2019	Dr. Adolfo Llinás Colombia
2017	Pamela Hilliard Canada
2015	Kathy Mulder Canada
2013	James Luck United States
2012	Piet de Kleijn The Netherlands
2011	Dr. Lily Heijnen The Netherlands
2010	Dr. Horacio Caviglia Argentina
2009	Jerome D. Wiedel United States
2008	Dr. Federico Fernández-Palazzi Venezuela
2007	Michael Heim Israel
2006	Brenda Buzzard United Kingdom
2005	Dr. Marvin Gilbert United States

WFH Digital Platforms Privacy Policy

INTRODUCTION

1.

PURPOSE

2.

SCOPE

3.

DEFINITION OF "PERSONAL INFORMATION"

4.

RESPONSIBILITIES OF WFH

5.

HOW DO WE COLLECT YOUR CONSENT?

6.

WHY WE COLLECT PERSONAL INFORMATION

7.

WHAT PERSONAL INFORMATION DO WE COLLECT?

8.

USE OF COOKIES

9.

RESPONSES TO JOB OFFERS

10.

PROTECTION OF THE PRIVACY OF MINORS

11.

DO WE DISCLOSE YOUR PERSONAL INFORMATION TO THIRD PARTIES?

12.

SHARING PERSONAL INFORMATION OUTSIDE QUÉBEC

13.

HOW DO WE PROTECT YOUR PERSONAL INFORMATION?

14.

RETENTION AND DESTRUCTION OF PERSONAL INFORMATION

15.

ACCESSING, CORRECTING, DE-INDEXING AND PORTABILITY OF YOUR PERSONAL INFORMATION

16.

WITHDRAWING YOUR CONSENT

17.

CHANGES TO OUR PRIVACY POLICY

18.

CONTACT DETAILS FOR THE PRIVACY OFFICER

APPENDIX A

APPENDIX A

Terms and Conditions of use of WFH Digital Platforms

WFH awards presented during WFH 2024 World Congress

Bülent Zülfikar, MD, President of the Hemophilia Society of Turkey

WFH awards presented during WFH 2024 World Congress

WFH 2024 World Congress concludes on high note

2024 Congress Daily morning edition: Wednesday, April 24

2024 Congress Daily evening edition: Tuesday, April 23

2024 Congress Daily morning edition: Tuesday, April 23

2024 Congress Daily evening edition: Monday, April 22

2024 Congress Daily morning edition: Monday, April 22

2024 Congress Daily evening edition: Sunday, April 21

2024 Annual Meeting of the General Assembly held

2024 Congress Daily morning edition: Sunday, April 21

WFH 2024 World Congress just around the corner

Earn CME credits at the WFH 2024 World Congress

WFH 2024 World Congress speakers share passion on Instagram reels

New free paper sessions added to Congress program

Expand your horizons with free workshops at the WFH 2024 World Congress

Add these to your agenda! Key sessions at the WFH 2024 World Congress

Top 5 reasons to attend the WFH 2024 World Congress

Don’t miss speakers: WFH 2024 World Congress

Don’t miss sessions: WFH 2024 World Congress

WFH 2024 World Congress: Madrid, Spain’s exciting capital

Abstract submission deadline extended

You’re officially invited to the WFH 2024 World Congress

It’s official! Registration and accommodations open for WFH 2024 World Congress

WFH 2024 World Congress call for abstract submissions opening soon!

Learn more about the WFH 2024 World Congress

Mark your calendars! WFH 2024 World Congress coming to Madrid next year

WFH 2024 World Congress to take place in Madrid

WFH to call special meeting of the General Assembly

New Associate NMO: Safe Motherhood and Hemophilia Foundation The Gambia

Complimentary On-Demand 2022 Congress content now available

Ekawat Suwantaroj co-opted to WFH Board of Directors

General Plenary: VP Medical address with Glenn Pierce

WFH 2022 World Congress concludes on high note

Congress Daily Recap – Day 3

The challenge of evaluating and managing pain

We are looking forward to seeing you in Buenos Aires and Kuala Lumpur!

Don’t forget to drop by the WFH Resource Centre