À propos
Actions
Données et outils
Évenements
Actualités
Mini-Congress-Daily-April-23--evening-header

2024 Congress Daily evening edition: Tuesday, April 23

Good evening! Here’s a quick wrap-up of some key events that took place on Day 2 of the WFH 2024 World Congress.

Aussi disponible en : English Español

Recap of today’s “Gene therapy registry” session

Today’s session on the WFH Gene Therapy Registry (GTR) included updates on the registry’s implementation and an overview of its governance structure, presented by the co-chairs of the GTR Scientific Advisory Board, Barbara Konkle, MD, and Flora Peyvandi, MD.  This was followed by discussions on the importance of having one unified global database to monitor the long-term safety of all patients undergoing gene therapy. Each stakeholder in this unique partnership contributed to the dialogue, including Vanessa Newman from the industry perspective, Andrea Laslop representing regulatory views, Samantha Gouw discussing the National Registry perspective, Cedric Hermans, MD presenting the HTC perspective, and Brian O’Mahony offering insights from the patient perspective. The session ended with a Q&A period.

How to claim CME credits

To ensure you get your CME credits, remember to scan your badge once when you arrive, and once when you leave the conference centre at the end of each day. You will need an EBAH account in order to claim credits.

Don’t have an account? You can create a free account here. If you are having difficulties creating a new EBAH account, please note you will be able to complete your account after Congress on the EBAH website.

To find out more about CME credits at Congress, click here.

Recap: “Transitioning through life stages for women and girls with bleeding disorders”

Today’s session, “Transitioning through life stages for women and girls with bleeding disorders” featured talks by several experts on how to best care for WGBDs as they mature. The talks covered going through life stages—including gender transitioning. The role of the healthcare practitioner and WGBDs clinics was also discussed.

Congrès et développement durable

The WFH is taking steps to ensure that Congress is a sustainable event by hiring vendors with sustainability initiatives, providing a carbon emission offset tool, making water fountains available in the exhibit hall (to reduce the need for bottled water) and reducing the quantity of printed material distributed at the event.

Recap: “Gene therapy: A comprehensive look”

“Gene therapy: A comprehensive look” covered many facets related to developments in gene therapy for hemophilia. Experts covered an overview of where we are now in terms of medical progress, followed by how to establish patient readiness for gene therapy, and how nurses can care for people undergoing gene therapy treatment. The session also featured a patient panel, where PWH shared their experiences with gene therapy.

Don’t forget to drop by the poster gallery in the exhibit hall

More than 300 posters will be displayed in our in-person and virtual poster galleries. Grab a snack and a coffee and join the discussion in our moderated poster sessions during the coffee break tomorrow morning. Having a quick look at the posters on display can be a nice way to take a break and get inspired for your next session. Come any time during the Exhibit Hall opening hours. To see online posters, click here.

Location: Poster gallery and poster pods, Exhibit Hall 9

Program at a glance for tomorrow

Lastest News

Des avancées en diagnostic au Congrès mondial 2026 de la FMH

Des avancées en diagnostic au Congrès mondial 2026 de la FMH

À l’échelle mondiale, plus de 75 % des personnes atteintes d’un trouble de la coagulation ne sont toujours pas diagnostiquées....

Other Congress News

Nouveauté au Congrès : capsules interactives et facilités linguistiques

Découvrez les nouveautés qui vous attendent en avril au Congrès mondial 2026 de la FMH….

Nouvelle date limite pour le tarif anticipé, options d’hébergement et nouvelles sessions au programme

Nous avons le plaisir de vous annoncer de nouvelles sessions de présentation libre au Congrès mondial 2026 de la FMH ! Nouvelle date limite pour le tarif anticipé !…

Dernière semaine : 15 % de réduction

Du 19 au 22 avril 2026, des personnes du monde entier se réuniront à Kuala Lumpur (Malaisie) pour quatre jours d’apprentissage et de rencontres, répartis en deux volets généraux (Médical et Personnes atteintes d’un trouble de la coagulation) et six volets de formation professionnelle, dont Soins infirmiers, Santé musculosquelettique et…

Les soins de l’hémophilie dans un monde de crises : ne manquez pas la session plénière conjointe du Congrès mondial 2026 de la FMH

Le lundi 20 avril, les participant·es au Congrès mondial 2026 de la FMH sont invité·es à assister à une session plénière commune qui rassemblera les deux volets Médical et Personnes atteintes d’un trouble de la coagulation, pour une conversation très opportune sur les soins de l’hémophilie dans un monde de…

Prix du bénévolat de la FMH : l’appel à nominations est ouvert !

Les bénévoles sont le socle de la Fédération mondiale de l’hémophilie (FMH). Leur dévouement, leur expertise et leur engagement altruiste sont les moteurs qui font avancer notre mission et nous rapprochent de notre vision du Traitement pour tous. En donnant de leur temps et en partageant leurs connaissances, les bénévoles…

Les Prix de la FMH remis à l’occasion du Congrès mondial 2024

La Fédération mondiale de l’hémophilie (FMH) et ses organisations nationales membres (ONM) fonctionnent grâce à des individus dévoués, convaincus qu’ensemble, un avenir meilleur est possible pour les personnes atteintes d’un trouble de la coagulation du monde entier. Les prix de la FMH permettent de leur rendre hommage, pour les remercier…

WFH 2024 World Congress concludes on high note

The WFH 2024 World Congress has officially concluded! Held from April 21 to 24 in Madrid, Spain, the event attracted over 3,000 delegates from 135 countries. The Congress was the most comprehensive international event on bleeding disorders this year, and the first fully in-person event for the WFH since the…

2024 Congress Daily morning edition: Wednesday, April 24

Good morning and welcome to Day 3 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Tuesday, April 23

Good evening! Here’s a quick wrap-up of some key events that took place on Day 2 of the WFH 2024 World Congress….

2024 Congress Daily morning edition: Tuesday, April 23

Good morning and welcome to Day 2 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Monday, April 22

Good evening! Here’s a quick wrap-up of some key events that took place on Day 1 of the WFH 2024 World Congress….

2024 Congress Daily morning edition: Monday, April 22

Good morning and welcome to day 1 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day….

2024 Congress Daily evening edition: Sunday, April 21

Good evening! Here’s a quick wrap-up of some key events that took place today. We look forward to welcoming you to the official first day of the WFH 2024 World Congress tomorrow….

Assemblée générale annuelle 2024

L’Assemblée générale 2024 de la Fédération mondiale de l’hémophilie (FMH) a eu lieu à Madrid (Espagne), dans le cadre du Congrès mondial 2024 de la FMH. Pendant la réunion, des rapports ont été présentés par les membres du conseil d’administration de la FMH ; des organisations nationales membres (ONM) de…

2024 Congress Daily morning edition: Sunday, April 21

Good morning and welcome to the WFH 2024 World Congress! Check in on this page daily in the mornings and evenings to learn about what not to miss, and to get a recap of the key events that took place during the day….

We’ve accomplished a lot this year, we need your help to continue strong.

Would you like to read more about similar articles?

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.