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MADRID, ESPAGNE    21‑24 AVRIL 2024

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Congrès mondial 2024 de la FMH

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Congrès mondial 2024 de la FMH
[email protected]

La Fédération mondiale de l’hémophilie (FMH) et la Federación española de hemofilia (Fedhemo) sont ravies d’accueillir la communauté mondiale des troubles de la coagulation au Congrès mondial 2024 de la FMH à Madrid, en Espagne, l’année prochaine, du 21 au 24 avril.

Cet événement sera le congrès international le plus important dédié aux troubles de la coagulation en 2024 et réunira en un seul lieu les personnes atteintes de troubles de la coagulation et d’autres parties prenantes. Le Congrès aura lieu au Centre des congrès IFEMA de Madrid, un lieu de renommée internationale dans une ville de classe mondiale facilement accessible aux voyageurs internationaux. Au nom de la FMH et de la communauté mondiale des troubles de la coagulation, nous sommes ravis de vous accueillir à nouveau en présentiel pour une occasion unique d’établir des liens, d’apprendre et de collaborer.

APPEL À SYNTHÈSES DE TRAVAUX

L’appel à synthèse de travaux de dernière minute ouvrira le 17 janvier 2024 et se terminera le 14 février 2024 à 23h59 heure de Montréal.

Les synthèses de travaux de dernière minute doivent décrire les dernières avancées qui changeront la pratique clinique quotidienne et mettre en lumière des études inédites et susceptibles de modifier cette pratique. Le processus de sélection donnera la priorité aux synthèses présentant des données inédites et uniques qui, sans cela, n’auraient pas été présentées au Congrès.

ACTUALITÉS DU CONGRÈS

Informations sur le Congrès Mondial 2024 de la FMH

L’année prochaine sera une grande année pour la communauté mondiale des troubles de la coagulation, car la Fédération mondiale de l’hémophilie (FMH) et la Federación Española de Hemofilia (Fedhemo) co-organiseront le Congrès mondial 2024 de la FMH à Madrid (Espagne) du 21 au 24 avril. Cet évènement sera le plus complet de l’année dans notre secteur, et rassemblera toutes les parties prenantes de la communauté mondiale des troubles de la coagulation. En résumé, c’est un événement à ne pas rater ! L’objectif de ce Congrès est d’encourager les progrès dans le traitement de l’hémophilie grâce à des approches innovantes, des progrès dans la recherche et des efforts communs. Rejoignez-nous pour renforcer vos connaissances et votre réseau, tout en apportant votre soutien à la FMH, afin que nous puissions continuer à proposer notre aide dans le monde entier....

À vos calendriers ! Le Congrès 2024 de la FMH se tiendra à Madrid

La Fédération mondiale de l’hémophilie (FMH) et la Federación Española de Hemofilia (Fedhemo) sont heureuses d’accueillir la communauté mondiale des troubles de la coagulation l’an prochain à Madrid (Espagne), pour le Congrès mondial 2024 de la FMH qui aura lieu du 21 au 24 avril. ...

Le Congrès mondial 2024 de la FMH aura lieu à Madrid

Aujourd’hui, une réunion extraordinaire de l’assemblée générale (AG) de la Fédération mondiale de l’hémophilie (FMH) s’est tenue pour décider du lieu du Congrès mondial de la FMH pour 2024. Nous avons le plaisir d’annoncer que c’est la ville espagnole de Madrid qui a été choisie pour ce prochain Congrès. L’ONM d’Espagne, la Fedhemo, (Federación Española de Hemofilia), en sera l’organisatrice....

Boîte à outils destinés aux réseaux sociaux du Congrès

Aidez‑nous à créer le buzz grâce à notre boîte à outils consacrés aux réseaux sociaux et à faire connaître le Congrès mondial 2024 de la FMH. Ensemble, nous avons le pouvoir de réinventer l’avenir des personnes atteintes de troubles de la coagulation. Partagez votre enthousiasme et faites passer le mot aux quatre coins du monde !

MESSAGE DES PRÉSIDENTS

La Fédération mondiale de l’hémophilie (FMH) et la Federación Española de Hemofilia (Fedhemo) sont heureuses d’accueillir la communauté mondiale des troubles de la coagulation l’an prochain à Madrid (Espagne), pour le Congrès mondial 2024 de la FMH qui aura lieu du 21 au 24 avril. Cet événement sera l’événement international le plus complet de l’année 2024 en matière de troubles de la coagulation, et rassemblera au même endroit les personnes atteintes d’un trouble de la coagulation et divers acteurs du secteur. Le Congrès se tiendra au centre de congrès IFEMA de Madrid, un lieu d’exception dans une ville extraordinaire, facilement accessible pour les touristes du monde entier. Au nom de la FMH et de toute la communauté des troubles de la coagulation, nous sommes ravis de vous accueillir à nouveau en présentiel, pour une opportunité unique de nous rencontrer, d’apprendre et de collaborer.

Que vous soyez une personne atteinte d’un trouble de la coagulation, un membre de la famille, un·e professionnel·le de la santé, un chercheur ou une chercheuse, un·e responsable politique, un·e militant·e ou un membre du secteur pharmaceutique, ce Congrès est fait pour vous. Le programme se penchera sur les dernières évolutions et innovations dans notre domaine, depuis les questions de santé publique jusqu’aux difficultés qui nous attendent dans la prise en charge et le traitement de l’hémophilie, de la maladie de Willebrand, des déficiences rares en facteur et des troubles plaquettaires héréditaires. Le fait que ce Congrès rassemble les meilleur·es spécialistes de notre domaine est essentiel pour encourager l’émergence de nouvelles idées et de nouvelles approches.

Votre participation au Congrès 2024 de la FMH permettra à la Fédération de continuer à proposer des programmes et des événements qui sont fondamentaux pour notre communauté, en particulier dans les pays disposant de ressources limitées. Rejoignez-nous en tant que délégué·e, intervenant·e, bénévole ou sponsor et prenez part à cet événement passionnant. Votre venue elle-même et votre rencontre avec d’autres professionnel·les feront déjà la différence.

Au nom de la FMH et de la Fedhemo, nous souhaitons chaleureusement la bienvenue à toute la communauté mondiale. En avril 2024 à Madrid, travaillons ensemble en faveur du Traitement pour tous.

Cordialement,

Cesar Garrido
Président
Fédération mondiale de l’hémophilie

Daniel-Aníbal García Diego
Président
Federación Española de Hemofilia

PARTENAIRES

Merci aux partenaires du Congrès mondial 2024 de la FMH pour leur soutien sans faille !

PARTENAIRES PLATINE
PARTENAIRES OR
PARTENAIRE SUPPORTEUR
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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

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Alerte à la fraude ! Attention aux agences de voyage ou de logement non autorisées

Soyez vigilants si vous êtes contactés par des agences de voyage ou de logement qui vous demandent des informations personnels à propos de votre réservation d’hôtel et/ou de voyage pour le Congrès mondial de la FMH 2024. La correspondance officielle lié au Congrès mondial doit parvenir d’un membre reconnu du personnel de la FMH, du Bureau du logement de la FMH ([email protected]), du Secrétariat du Congrès de la FMH ([email protected]) ou d’une autre adresse officielle @wfh.org.

Il peut s’agir d’un hameçonnage si :

  • vous ne reconnaissez pas le nom, l’adresse électronique ou le numéro de téléphone de l’expéditeur
  • vous remarquez de nombreuses fautes d’orthographe et de grammaire
  • l’expéditeur vous demande des informations personnelles ou confidentielles, ou vous demande de vous connecter via un lien fourni
  • l’expéditeur fait une demande urgente comportant une date limite.

Si vous recevez quelque chose de suspect, ou si vous avez le moindre doute, veuillez nous en informer immédiatement à l’adresse [email protected].

Israel - Tel Hashomer

Year of IHTC designation: 1993

National Hemophilia Center, Tel Hashomer
Sheba Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic surgery
  • Nursing
  • Physiotherapy
  • Dental care
  • Laboratory diagnosis (not genetics)
  • Psychology

South Africa - Johannesburg

Year of IHTC designation: 2016

Haemophilia Comprehensive Care Centre
Charlotte Maxeke Johannesburg Academic Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Physiotherapy

Singapore - Singapore

Year of IHTC designation: 2002

Singapore General Hospital Haemophilia Treatment Clinic

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis
  • Nursing
  • Dental care
  • Orthopedic care (no surgeries)
  • Physiotherapy
  • Psychology

Senegal - Dakar

Year of IHTC designation: 2016

Centre International de Traitement de l’Hémophilie (CITH) de Dakar
Centre National de Transfusion Sanguin (CNTS)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy

Russia - Moscow and St. Petersburg

Year of IHTC designation: 2010

National Medical Research Center of Hematology of the Russian Academy of Medical Sciences

Areas of Specialty

  • Adult hematology
  • Nursing
  • Orthopedic surgery

Netherlands - Utrecht

Year of IHTC designation: 1996

Van Creveldkliniek
University Medical Centre Utrecht

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hematology
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy

Japan - Nara

Year of IHTC designation: 1998

Nara Hemophilia Centre
Nara Medical University

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic care and surgery
  • Laboratory diagnosis and Molecular genetics
  • Physiotherapy

Italy - Milan

Year of IHTC designation: 1972

Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Blood banking
  • Orthopedic care and surgery
  • Physiotherapy
  • Diagnostic assessment of platelet functional defects

India - Mumbai

Year of IHTC designation: 2000

National Institute of Immunohaematology (ICMR) and KEM Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Orthopedic care
  • Physiotherapy

India - Vellore

Year of IHTC designation: 2000

Christian Medical College, Vellore

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics with antenatal diagnosis
  • Nursing
  • Musculoskeletal management – physical and occupational therapy with physiatry
  • Orthopedic care and surgery
  • Blood banking
  • Dental care
  • Psychology/Social services
  • Antenatal diagnosis

Sweden - Malmö

Year of IHTC designation: 1976

Malmö Centre for Thrombosis and Haemostasis
Department for Hematology and Coagulation Disorders, Skåne University Hospital
Skåne University Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Blood banking (on request)

France - Paris

Year of IHTC designation: 1972

Paris Haemophilia Centre (Necker (N) and Kremlin Bicetre (KB) Hospitals)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Dental care
  • Orthopedic care and surgery
  • Psychology and Social services

Egypt - Cairo

Year of IHTC designation: 2015

Shabrawishi Hospital, Egyptian Society of Hemophilia, and Cairo University

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Molecular genetics
  • Blood banking
  • Physiotherapy

Canada - Toronto

Year of IHTC designation: 2018

University of Toronto Hemophilia Centres
St. Michael’s Hospital

Areas of Specialty

  • Adult hematology services
  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Brazil - Campinas, SP

Year of IHTC designation: 2008

Hemocentro – “Unidade de Hemofilia Cláudio Luiz Pizzigatti Corrêa”
Hemocentro Unicamp, University of Campinas

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and molecular genetics
  • Nursing
  • Dentistry
  • Physiotherapy

Belgium - Brussels

Year of IHTC designation: 2013

Haemostasis and Thrombosis Unit
Division of Haematology
Cliniques universitaires Saint-Luc

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Orthopedic care and surgery

Belgium - Leuven

Year of IHTC designation: 1972

Hemofiliecentrum Leuven, University of Leuven

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis (not genetics)
  • Nursing
  • Psychology
  • Social services
  • Orthopedic care and surgery

Austria - Vienna

Year of IHTC designation: 1972

Medical University of Vienna
Department of Medicine I
Clinical Division of Hematology and Hemostaseology

Areas of Specialty

  • Adult hematology

Australia - Melbourne

Year of IHTC designation: 2005

Ronald Sawers Haemophilia Centre

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Dental care
  • Blood banking
  • Psychology
  • Social work

Argentina - Buenos Aires

Year of IHTC designation: 1974

Instituto Asistencial “Dr. Alfredo Pavlovsky”
(Fundación de la Hemofilia)

Instituto De Investigaciones Hematológicas “Dr. Mariano R. Castex” (IIHEMA
(Academia Nacional de Medicina)

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy
  • Dental care
  • Orthopaedic care and surgery
  • Laboratory diagnosis and genetic diagnosis
  • Nursing
  • Psychology
  • Social services

Spain - Madrid

Year of IHTC designation: 2018

Hospital Universitario La Paz

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Spain - Valencia

Year of IHTC designation: 1997

Haemostasis and Thrombosis Unit
Haematology Service, University and Polytechnic Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and Social services

Thailand - Bangkok

Year of IHTC designation: 1984

International Hemophilia Training Center – Bangkok
Ramathibodi Hospital
Mahidol University

Areas of Specialty

  • Adult and pediatric hemostasis
  • Molecular genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and social services

Hemophilia Alliance

Recognizing that training women leaders ensures the diversity our community need to thrive; the Hemophilia Alliance has been a longtime supporter of the Susan Skinner Memorial Fund. They deepened their engagement with the global community through the establishment of the Travel Grant Program, which allows US-based multidisciplinary healthcare professionals the opportunity to attend WFH global training workshops. The wealth of experience and perspective attendees bring back home to their communities helps patients across the country. Their patience and support as we grappled with changing norms in these challenging times gave us the flexibility to meet our community’s needs with revamped programming.

Prix spécial de la présidence - lauréats

Hemophilia of Georgia

Hemophilia of Georgia has stood with us for over three decades, playing an early role in distributing donated factor via the WFH Humanitarian Aid program. Our relationship has deepened over the years as they continued to support this program and came on board as a founding Chapter Challenge champion in 2016. Their belief in educating future leaders is clear in their investment in the Youth Leadership Workshops, which has led to the training of over 50 young adults. They also support workshops devoted to educating providers and patient leaders on how to collect and use data to advocate for better patient care. Their staff generously volunteer their time as trainers and as well as serving on various committees.

National Bleeding Disorders Foundation

The National Bleeding Disorders Foundation helps advance our mission on several fronts. They inspire others to follow their lead as a founding champion of the NHF Chapter Challenge. Their commitment to equality of access is demonstrated in their support of the Cornerstone Initiative, which lays the foundation for care in the world's most underserved regions, as well as programs that aim to raise awareness and improve care of women with bleeding disorders and those with von Willebrand disease. We also benefit from their steadfast engagement with various programs including the WFH Twinning Program and their individual leaders’ contribution to our leadership and committees.

Legacy Gift

Do you sometimes wish you could do more? A bequest is a simple way for you to make a significant gift without changing anything about your financial security and lifestyle today. Your legacy will sustain care for the generations to come.

Download these sample clauses to give to your legal advisor.

We understand if you prefer to remain anonymous, but we would be very honoured if you would let us know of your intentions so that we may thank you personally. We would also be happy to answer any questions you may have or give you additional information. Please contact Jennifer Laliberté at 514‑875‑7944 ext.2822 or [email protected].

Disclaimer

The information on the WFH USA website is provided for general information purposes only. The WFH USA does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH USA recommends that you contact your physician or local treatment centre. Before administering any products, the WFH USA urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH USA does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH USA discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH USA social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH USA recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH USA. The WFH USA is not responsible and assumes no liability for the content of any linked websites.

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