О нас

Всемирная федерация гемофилии (ВФГ) является некоммерческой организацией, деятельность которой направлена на улучшение помощи людям с наследственными коагулопатиями и ее стабильное оказание в разных странах мира.

At the WFH, national member organizations (NMOs) and health care professionals (HCPs) work together to provide care for people with inherited bleeding disorders around the world. We partner with governments and hemophilia treatment centres to enhance knowledge through training and provide tools they need to identify, support and treat people living with bleeding disorders in their communities, while promoting global advocacy and collaboration to achieve our common goals.

Наше видение и миссия

In Mumbai, a large group of people of all ages smile and wave

Подробнее об основных задачах нашей организации.

Наша история

Two people converse in front of banners showing the history of the WFH

Подробнее об истории ВФГ

WFH Annual Report 2025

The WFH 2025 Annual Report shows how the World Federation of Hemophilia (WFH) worked towards our vision of Treatment for All in 2025.

Representitives of the WFH holding up paddles with their country names to cast a vote

УПРАВЛЕНИЕ И СОВЕТ ДИРЕКТОРОВ

Для нас важно равное представительство. В совет директоров ВФГ входят как люди, на чью жизнь влияет коагулопатия (ЛсК), так и медицинские специалисты.

A row of flags from across the world

АККРЕДИТАЦИЯ НЧО

Find out more about becoming a WFH National Member Organization.

A group of people sit around a table reviewing documents

НАШИ КОМИТЕТЫ

Каждый из наших комитетов поддерживает общую миссию, сосредотачиваясь при этом на определенной сфере.

2026–2030 Strategic Plan

The 2026–2030 Strategic Plan is designed to define the direction of the federation moving forward to maximize impact to the global inherited bleeding disorders community while addressing the needs of all stakeholders. The 2026–2030 Strategic Plan builds on our successes and lessons learned to continue the federation’s journey towards its vision of Treatment for All—a world where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, age, or where they live.

Statement of commitment to Equity, Diversity and Inclusion (EDI)

WFH is committed to building an equitable, diverse and inclusive organization. With members, staff, volunteers and Board members from over 147 countries around the world, the World Federation of Hemophilia (WFH) adheres to the principles of equity, diversity and inclusion (EDI).

Annual Reports

Annual Report 2021

Annual Report 2020

Financial Reports

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations — Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.

Наше видение и миссия

Наше видение «Лечение для всех» — это мир, в котором все люди с наследственными коагулопатиями имеют доступ к лечению, независимо от вида коагулопатии, пола и места проживания. Наша миссия состоит в улучшении помощи людям с наследственными коагулопатиями и ее стабильном оказании во всем мире.

WFH Board of Directors

President
Cesar Garrido
Venezuela

Vice-president, medical
Cedric Hermans
Belgium

Vice-president, finance
Carlos Safadi Márquez
Argentina

Vice-president, NMO
Emna Gouider
Tunisia

Members:

Miguel Escobar
Medical member
U.S.A.

Mathieu Jackson
Lay member
Canada

Maria Elisa Mancuso
Medical member
Italy

Marko Marinic
Lay member
Croatia

Bradley Rayner
Lay member
South Africa

Alok Srivastava
Medical member
India

Ekawat Suwantaroj
Lay member
Thailand

NMO accreditation

In order to be accredited by the WFH as a national member organization (NMO), patient associations must represent the best interests of the majority of people with hemophilia and other inherited bleeding disorders and their families in a country. NMO membership consists of a single NMO in each country.

For more information about NMO Accreditation, contact us at [email protected]

Наше видение и миссия

Наше видение «Лечение для всех» — это мир, в котором все люди с наследственными коагулопатиями имеют доступ к лечению, независимо от вида коагулопатии, пола и места проживания. Наша миссия состоит в улучшении помощи людям с наследственными коагулопатиями и ее стабильном оказании во всем мире.

Наша история

Всемирная федерация гемофилии основана в 1963 г. канадским бизнесменом Франком Шнабелем, у которого была врожденная тяжелая гемофилия А. Он верил в то, что сообща пациентские организации способны значительно повысить свою эффективность и достигнуть большего в интересах людей с коагулопатиями. На первом конгрессе ВФГ в Копенгагене (Дания), прошедшем 25 июня 1963 г., присутствовали представители 12 стран. Сегодня в глобальную сеть ВФГ входят национальные членские организации (НЧО), которые представляют интересы лиц с гемофилией и другими наследственными коагулопатиями из 152 стран.