نبذة عن الاتحاد

الاتحاد العالمي للهيموفيليا منظمة غير ربحية تكرّس جهودها للارتقاء بجودة واستدامة الرعاية المقدمة للمصابين باضطرابات النزيف الوراثية في جميع أنحاء العالم.

وفي الاتحاد العالمي للهيموفيليا، تعمل المنظمات الوطنية الأعضاء مع المهنيين الصحيين سوياً من أجل توفير الرعاية للمصابين باضطرابات النزيف الوراثية حول العالم، حيث نتشارك مع الحكومات ومراكز علاج الهيموفيليا بغرض تطوير المعارف من خلال التدريب، وتوفير الأدوات التي يحتاجونها للتعرّف على مرضى اضطرابات النزيف في مجتمعاتهم ودعمهم وعلاجهم، مع تعزيز جهود المناصرة والتعاون العالمية الرامية إلى تحقيق أهدافنا المشتركة.

رؤيتنا ورسالتنا

Learn more about our overall organizational objectives.

تاريخ الاتحاد

Learn more about the history of the WFH.

WFH Annual Report 2025

The WFH 2025 Annual Report shows how the World Federation of Hemophilia (WFH) worked towards our vision of Treatment for All in 2025.

الحوكمة ومجلس الإدارة

يولي اتحادنا اهتماماً كبيراً بمبدأ التمثيل المتكافئ، حيث يضم مجلس إدارة الاتحاد العالمي للهيموفيليا ممثلين عن الأشخاص المتأثرين باضطرابات النزيف إضافة إلى المهنيين الطبيين.

NMO accreditation card

اعتماد المنظمات الوطنية الأعضاء

اكتشفوا المزيد حول طريقة انضمام المنظمات الوطنية إلى عضوية الاتحاد العالمي للهيموفيليا.

لجان الاتحاد

كل لجنة من لجان الاتحاد تقدم لنا الدعم في إنجاز مهام عملنا في مجال محدد من مجالات تركيزنا.

2026–2030 Strategic Plan

The 2026–2030 Strategic Plan is designed to define the direction of the federation moving forward to maximize impact to the global inherited bleeding disorders community while addressing the needs of all stakeholders. The 2026–2030 Strategic Plan builds on our successes and lessons learned to continue the federation’s journey towards its vision of Treatment for All—a world where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, age, or where they live.

بيان الالتزام بالإنصاف والتنوع والاشتمالية

يلتزم الاتحاد العالمي للهيموفيليا ببناء منظمة تتميز بالإنصاف والتنوع والاشتمالية. والاتحاد العالمي للهيموفيليا يلتزم بمبادئ الإنصاف والتنوع والاشتمالية في تعامله مع أعضائه وموظفيه والمتطوعين وأعضاء مجلس الإدارة الذين ينتمون إجمالاً إلى أكثر من 147 دولة حول العالم.

Annual Reports

Annual Report 2021

Annual Report 2020

Financial Reports

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.

Our vision and mission

Our vision of Treatment for All is for a world where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, or where they live. Our mission is to improve and sustain care for people with inherited bleeding disorders around the world.

WFH Board of Directors

President
Cesar Garrido
Venezuela

Vice-president, medical
Cedric Hermans
Belgium

Vice-president, finance
Carlos Safadi Márquez
Argentina

Vice-president, NMO
Emna Gouider
Tunisia

Members:

Miguel Escobar
Medical member
U.S.A.

Mathieu Jackson
Lay member
Canada

Maria Elisa Mancuso
Medical member
Italy

Marko Marinic
Lay member
Croatia

Bradley Rayner
Lay member
South Africa

Alok Srivastava
Medical member
India

Ekawat Suwantaroj
Lay member
Thailand

NMO accreditation

In order to be accredited by the WFH as a national member organization (NMO), patient associations must represent the best interests of the majority of people with hemophilia and other inherited bleeding disorders and their families in a country. NMO membership consists of a single NMO in each country.

For more information about NMO Accreditation, contact us at [email protected]

Our history

The WFH was established in 1963 by Frank Schnabel, a Canadian businessman born with severe hemophilia A. He believed that patient organizations could be much more effective—and do more to represent the interests of people living with bleeding disorders—if they worked together. The first WFH Congress was held in Copenhagen, Denmark, on June 25, 1963, and was attended by representatives from 12 countries. Now, the WFH and our global network of national member organizations (NMOs) represent the interests of people with hemophilia and other inherited bleeding disorders in 152 nations.