ПРОГРАММА

МАДРИД, ИСПАНИЯ    21‑24 АПРЕЛЯ 2024 Г.

ОРГАНИЗОВАНО:

ПРИНИМАЮЩАЯ СТОРОНА:

Программа

Также доступно в: English Français Español 日本語

Всемирный конгресс WFH 2024
[email protected]

ОРГАНИЗОВАНО:
Всемирная федерация гемофилии

ПРИНИМАЮЩАЯ СТОРОНА:
Federación Española de Hemofilia

В рамках Всемирного конгресса WFH 2024 будет организовано более 90 часов непрерывных учебных сессий по таким направлениям, как «Медицина» и «Люди, страдающие геморрагическими заболеваниями» (PWBD), а также по шести направлениям профессионального развития: сестринское дело, стоматология, лабораторное дело, социально-психологические аспекты, опорно-двигательный аппарат (MSK) и женщины и девушки с геморрагическими заболеваниями (WGBD). В рамках Всемирного конгресса прозвучат пленарные и сессионные доклады мирового уровня, пройдут интерактивные сессии, семинары, панельные дискуссии и инновационные отраслевые симпозиумы.

ЦЕРЕМОНИЯ ОТКРЫТИЯ

Присоединяйтесь к нам, чтобы совместить знания и общение во время этой международной встречи. Наша церемония открытия обещает предоставить возможности пообщаться, отдохнуть и весело провести время на фоне богатого культурного гобелена Мадрида. Давайте сделаем Всемирный конгресс WFH 2024 не только платформой для обучения, но и источником вдохновения и общения!

Please note that in adherence to Madrid regulations, cultural events and entertainment at social gatherings organized by the host (WFH) are not permitted during the WFH 2024 World Congress. We appreciate your understanding and eagerly anticipate providing you with a seamless and enriching, knowledge-focused experience at this year’s Congress. Your participation is highly valued, and we look forward to making this event as informative and enjoyable as possible.

ПРИЕМ ТЕЗИСОВ

The call for late-breaking abstracts will open on January 17, 2024 and close on February 14, 2024 at 11:59 p.m. ET.

Программные комитеты WFH 2024 приглашают подавать тезисы для устных и постерных докладов на Всемирный конгресс WFH 2024, который пройдет в Мадриде (Испания) с 21 по 24 апреля 2024 года.

В программу конгресса 2024 года войдут последние достижения и инновации в нашей области, начиная с вопросов здравоохранения и заканчивая предстоящими задачами по ведению и лечению гемофилии, болезни фон Виллебранда, редких дефицитов факторов и врожденных заболеваний тромбоцитов. Этот аспект конгресса – собрать в одном месте самых лучших и талантливых специалистов в нашей области – очень важен для развития новых идей и подходов.

Мы призываем будущих делегатов, желающих представить свою работу на Конгрессе в устной или постерной форме, подать тезисы на рассмотрение Программных комитетов Конгресса 2024 г. Все тезисы будут представлены на слепое рецензирование международной группой экспертов.

Для просмотра полного списка категорий тезисов нажмите здесь.

Как подать тезисы

Пожалуйста, предварительно внимательно ознакомьтесь с правилами подачи тезисов.

Чтобы подать тезисы

Шаг 1: Создайте свой профиль и войдите в систему, чтобы получить доступ к оценочному листу тезисов

Шаг 2: Выполните все действия для подачи тезисов.

Шаг 3: По завершении работы нажмите кнопку «Отправить».

Редактирование заявки

Вы можете редактировать свои тезисы после их подачи до 14 февраля 2024 года.

Шаг 1: Для редактирования тезисов войдите на сайт Abstract Scorecard, чтобы получить доступ к своей заявке (заявкам), где вы сможете редактировать их, обращаясь к уже выполненным задачам и обновляя их.

Важные примечания:

Тезисы должны подаваться только через онлайн-систему. Тезисы, присланные по почте или электронной почте, рассматриваться не будут.
К рассмотрению принимаются только тезисы, которые были оформлены надлежащим образом. Неполные тезисы будут автоматически отклонены.

Подать тезисы

Подайте свою работу сегодня и присоединитесь к тысячам ведущих экспертов для обсуждения последних достижений в области лечения и ухода за людьми, страдающими геморрагическими заболеваниями.

Вопросы? Свяжитесь с нами по адресу [email protected].

КЛЮЧЕВЫЕ ДАТЫ
Прием тезисов открывается 15 сентября 2023 г.
Крайний срок подачи тезисов 30 ноября 2023 г. в 23:59 p.m. ET
Уведомление авторов Декабрь 2023 г.
Крайний срок регистрации докладчиков 31 января 2024 г.
ПОЗДНИЕ ТЕЗИСЫ
Подача поздних тезисов открывается 17 января 2024 г.
Крайний срок подачи поздних тезисов 14 февраля 2024 г. в 23:59 ET
Уведомление авторов 15 марта 2024 г.
Крайний срок регистрации докладчиков 31 марта 2024 г.

Пожалуйста, скачайте и внимательно ознакомьтесь со следующими рекомендациями перед подачей тезисов в режиме онлайн:

Правилами подачи тезисов

Abstract Public Release (Embargo) Dates and Times

Late-breaking abstracts (LBAs) will be publicly released throughout the WFH 2024 World Congress. The complete embargo dates and public release schedule for LBAs is detailed below.

All other abstracts, including those submitted during the late-breaking submission time period but not selected as late-breaking abstracts, will be publicly released at 9:00 a.m. CEST on April 21, 2024, and available online.

ABSTRACTS
Abstracts published in the Haemophilia journal Embargo will lift
9:00 a.m. CEST on April 21, 2024
LATE-BREAKING ABSTRACTS
Free paper presentation date Embargo will lift
Monday, April 22 9:00 a.m. CEST on April 22, 2024
Tuesday, April 23 9:00 a.m. CEST on April 23, 2024
Wednesday, April 24 9:00 a.m. CEST on April 24, 2024

В состав Комитета по рассмотрению тезисов на Конгрессе WFH 2024 входят опытные специалисты, представляющие широкий спектр специальностей и научных подходов.

В 2024 году Конгресс станет самым масштабным международным мероприятием по геморрагичесим заболеваниям. Докладчики получат возможность представить свою работу ведущим экспертам и исследователям со всего мира.

Отобранные тезисы могут претендовать на:

Показ в виртуальной постерной галерее — Доступно онлайн в течение 60 дней
Публикацию в журнале Haemophilia, официальном журнале WFH
Устный доклад в рамках сессии докладов в свободной форме
Молниеносный доклад на модерируемой постерной сессии
Печатный постерный доклад во время постерного cетевого мероприятия и перерывов
Премию Кристин Ли для молодых исследователей за лучший устный доклад
Премию Кристин Ли для молодых исследователей за лучший постерный доклад — Новинка этого года!
Гранты на поездки за выдающиеся тезисы — Новинка этого года!

Мы с нетерпением ждем встречи с вами в Мадриде!

КЛЮЧЕВЫЕ ДАТЫ
Прием тезисов открывается 15 сентября 2023 г.
Крайний срок подачи тезисов 30 ноября 2023 г. в 23:59 p.m. ET
Уведомление авторов Декабрь 2023 г.
Крайний срок регистрации докладчиков 31 января 2024 г.
ПОЗДНИЕ ТЕЗИСЫ
Подача поздних тезисов открывается 17 января 2024 г.
Крайний срок подачи поздних тезисов 14 февраля 2024 г. в 23:59 ET
Уведомление авторов 15 марта 2024 г.
Крайний срок регистрации докладчиков 31 марта 2024 г.

Пожалуйста, скачайте и внимательно ознакомьтесь со следующими рекомендациями перед подачей тезисов в режиме онлайн:

Правилами подачи тезисов

Срок подачи поздних тезисов (LBA) — с 17 января 2024 года по 14 февраля 2024 года.

Поздние тезисы должны описывать новейшие достижения, которые изменят повседневную клиническую практику, и освещать новые и меняющие практику исследования. В процессе отбора предпочтение будет отдаваться тезисам с принципиально новыми и уникальными данными, которые в противном случае не были бы представлены на конгрессе. При этом результаты не должны быть полностью доступны к обычному сроку подачи тезисов.

Abstract Public Release (Embargo) Dates and Times

Late-breaking abstracts (LBAs) will be publicly released throughout the WFH 2024 World Congress. The complete embargo dates and public release schedule for LBAs is detailed below.

All other abstracts, including those submitted during the late-breaking submission time period but not selected as late-breaking abstracts, will be publicly released at 9:00 a.m. CEST on April 21, 2024, and available online.

ABSTRACTS
Abstracts published in the Haemophilia journal Embargo will lift
9:00 a.m. CEST on April 21, 2024
LATE-BREAKING ABSTRACTS
Free paper presentation date Embargo will lift
Monday, April 22 9:00 a.m. CEST on April 22, 2024
Tuesday, April 23 9:00 a.m. CEST on April 23, 2024
Wednesday, April 24 9:00 a.m. CEST on April 24, 2024

В состав Комитета по рассмотрению тезисов на Конгрессе WFH 2024 входят опытные специалисты, представляющие широкий спектр специальностей и научных подходов.

НАГРАДЫ ЗА ТЕЗИСЫ

Премия Кристин Ли для молодых исследователей

Учрежденная в 2012 году Всемирной федерацией гемофилии (WFH) и компанией Wiley, премия Кристин Ли для молодых исследователей (Christine Lee Young Researcher Award, ранее Christine Lee Haemophilia Journal Award) присуждается в знак признания заслуг молодого исследователя (аспиранта или постдокторанта), который является основным автором и докладчиком получившего высокую оценку реферата, представленного по любой дисциплине, связанной с гемофилией или другими геморрагическими заболеваниями.


Лучший устный доклад

Награда в размере 3 000 долларов США и трехлетняя персональная онлайновая подписка на журнал «Haemophilia».


Лучший постерный доклад

Награда в размере 1000 долларов США и трехлетняя онлайновая персональная подписка на журнал «Haemophilia».

Условия участия

Отборочная комиссия, включающая редакторов журнала и представителей WFH в редакционном совете, определит лучшие тезисы, представленные на Всемирном конгрессе WFH 2024. Каждая награда будет присуждаться только одному лауреату.

Молодой исследователь должен быть моложе 40 лет на момент подачи тезисов. Если авторов несколько, то основной автор и докладчик должны быть моложе 40 лет на момент подачи тезисов.

Гранты на поездки за выдающиеся тезисы

WFH предлагает пять (5) грантов по 1000 долларов США каждый для пяти (5) тезисов, получивших наибольшее количество баллов на Всемирном конгрессе WFH 2024.

Пожалуйста, в процессе подачи заявки укажите, хотите ли вы, чтобы вас рассматривали на получение гранта на поездку. Если у вас есть доступ к альтернативному источнику финансирования, пожалуйста, отдайте предпочтение этому источнику, чтобы максимальное число участников могло воспользоваться грантами на поездки WFH.

ABSTRACTS FAQ

Q
How long should my abstract be?
A

Your abstract should be no longer than 350 words. This does not include the author’s details, titles, tables, and graphs.

Q
Can I include tables/graphs in my abstract?
A

A maximum of two tables and/or graphs can be included in an abstract. Please make sure to add headings to each of the tables and/or graphs, and reference them within the abstract. Please do not include the author list on the figure/table you are uploading, as we operate by blind review.

Q
How many abstracts can I submit?
A

There is no limit on the number of abstracts a single author can submit.

Q
How many abstracts can I present?
A

Each presenting author may present a maximum of two abstracts at Congress. Should an author have more than two abstracts accepted, a co-author must be named as the presenting author for the third or more abstracts.

Q
Can I submit my abstract by email?
A

No. Abstracts should only be submitted through the online submission system. Abstracts sent via email will not be accepted.

Q
Can I submit an abstract in a language other than English?
A

No. Abstracts will only be accepted in written English. Abstracts submitted in any language other than English will be automatically rejected.

Q
How many authors can be listed for each submission?
A

A maximum of 20 authors is permitted on each abstract.

Q
Can I edit/make changes to my abstract?
A

Revisions can be made until the late-breaking abstract submission deadline: February 14, 2024 at 11:59pm ET. To ensure the integrity of the review process, no revisions will be allowed after the late-breaking abstract submission deadline.

Q
Can I submit a trial-in-progress abstract?
A

Yes. The WFH is accepting trials-in-progress abstracts. Please consult the abstract submission guidelines for details.

Q
Can an administrator/third party submit an abstract on behalf of the authors?
A

Yes. However, note that if the abstract is accepted, all subsequent notifications and correspondence will be addressed to the presenting author.

Q
When will I know if my abstract has been accepted?
A

You will be notified if your abstract has been accepted no later than December 22, 2023. You will be notified if your late-breaking abstract has been accepted no later than March 15, 2024.

Q
Do I need to register to attend the World Congress?
A

Yes. All regular abstract presenting authors must register to attend the WFH 2024 World Congress by January 31, 2024. All LBA presenting authors must register to attend the WFH World Congress by March 31, 2024. After this date, presenting authors who have not registered and paid their registration fees will be excluded from the program as well as from the Haemophilia journal publication. Registration fees will not be waived.

Q
Can I present virtually?
A

No. The 2024 World Congress will take place in-person only. Presenting authors will therefore be required to be onsite in Madrid, Spain.

Q
When will my accepted abstract be published?
A

Abstracts selected for publication will be made available in the online Haemophilia journal publication by April 21, 2024. The publication will be available on the Wiley website, the WFH 2024 World Congress website, and the Congress mobile app. Late-breaking abstracts selected for publication will be made available after Congress. More information to come.

Q
Will the WFH be accepting late-breaking abstracts?
A

Yes. The call for late-breaking abstracts will open on January 17, 2024 and will close on February 14, 2024.

Additional questions? Please contact us at [email protected].

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.

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Hemophilia Alliance

Recognizing that training women leaders ensures the diversity our community need to thrive; the Hemophilia Alliance has been a longtime supporter of the Susan Skinner Memorial Fund. They deepened their engagement with the global community through the establishment of the Travel Grant Program, which allows US-based multidisciplinary healthcare professionals the opportunity to attend WFH global training workshops. The wealth of experience and perspective attendees bring back home to their communities helps patients across the country. Their patience and support as we grappled with changing norms in these challenging times gave us the flexibility to meet our community’s needs with revamped programming.

Israel - Tel Hashomer

Year of IHTC designation: 1993

National Hemophilia Center, Tel Hashomer
Sheba Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic surgery
  • Nursing
  • Physiotherapy
  • Dental care
  • Laboratory diagnosis (not genetics)
  • Psychology

South Africa - Johannesburg

Year of IHTC designation: 2016

Haemophilia Comprehensive Care Centre
Charlotte Maxeke Johannesburg Academic Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Physiotherapy

Singapore - Singapore

Year of IHTC designation: 2002

Singapore General Hospital Haemophilia Treatment Clinic

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis
  • Nursing
  • Dental care
  • Orthopedic care (no surgeries)
  • Physiotherapy
  • Psychology

Senegal - Dakar

Year of IHTC designation: 2016

Centre International de Traitement de l’Hémophilie (CITH) de Dakar
Centre National de Transfusion Sanguin (CNTS)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy

Russia - Moscow and St. Petersburg

Year of IHTC designation: 2010

National Medical Research Center of Hematology of the Russian Academy of Medical Sciences

Areas of Specialty

  • Adult hematology
  • Nursing
  • Orthopedic surgery

Netherlands - Utrecht

Year of IHTC designation: 1996

Van Creveldkliniek
University Medical Centre Utrecht

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hematology
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy

Japan - Nara

Year of IHTC designation: 1998

Nara Hemophilia Centre
Nara Medical University

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic care and surgery
  • Laboratory diagnosis and Molecular genetics
  • Physiotherapy

Italy - Milan

Year of IHTC designation: 1972

Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Blood banking
  • Orthopedic care and surgery
  • Physiotherapy
  • Diagnostic assessment of platelet functional defects

India - Mumbai

Year of IHTC designation: 2000

National Institute of Immunohaematology (ICMR) and KEM Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Orthopedic care
  • Physiotherapy

India - Vellore

Year of IHTC designation: 2000

Christian Medical College, Vellore

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics with antenatal diagnosis
  • Nursing
  • Musculoskeletal management – physical and occupational therapy with physiatry
  • Orthopedic care and surgery
  • Blood banking
  • Dental care
  • Psychology/Social services
  • Antenatal diagnosis

Sweden - Malmö

Year of IHTC designation: 1976

Malmö Centre for Thrombosis and Haemostasis
Department for Hematology and Coagulation Disorders, Skåne University Hospital
Skåne University Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Blood banking (on request)

France - Paris

Year of IHTC designation: 1972

Paris Haemophilia Centre (Necker (N) and Kremlin Bicetre (KB) Hospitals)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Dental care
  • Orthopedic care and surgery
  • Psychology and Social services

Egypt - Cairo

Year of IHTC designation: 2015

Shabrawishi Hospital, Egyptian Society of Hemophilia, and Cairo University

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Molecular genetics
  • Blood banking
  • Physiotherapy

Canada - Toronto

Year of IHTC designation: 2018

University of Toronto Hemophilia Centres
St. Michael’s Hospital

Areas of Specialty

  • Adult hematology services
  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Brazil - Campinas, SP

Year of IHTC designation: 2008

Hemocentro – “Unidade de Hemofilia Cláudio Luiz Pizzigatti Corrêa”
Hemocentro Unicamp, University of Campinas

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and molecular genetics
  • Nursing
  • Dentistry
  • Physiotherapy

Belgium - Brussels

Year of IHTC designation: 2013

Haemostasis and Thrombosis Unit
Division of Haematology
Cliniques universitaires Saint-Luc

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Orthopedic care and surgery

Belgium - Leuven

Year of IHTC designation: 1972

Hemofiliecentrum Leuven, University of Leuven

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis (not genetics)
  • Nursing
  • Psychology
  • Social services
  • Orthopedic care and surgery

Austria - Vienna

Year of IHTC designation: 1972

Medical University of Vienna
Department of Medicine I
Clinical Division of Hematology and Hemostaseology

Areas of Specialty

  • Adult hematology

Australia - Melbourne

Year of IHTC designation: 2005

Ronald Sawers Haemophilia Centre

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Dental care
  • Blood banking
  • Psychology
  • Social work

Argentina - Buenos Aires

Year of IHTC designation: 1974

Instituto Asistencial “Dr. Alfredo Pavlovsky”
(Fundación de la Hemofilia)

Instituto De Investigaciones Hematológicas “Dr. Mariano R. Castex” (IIHEMA
(Academia Nacional de Medicina)

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy
  • Dental care
  • Orthopaedic care and surgery
  • Laboratory diagnosis and genetic diagnosis
  • Nursing
  • Psychology
  • Social services

Spain - Madrid

Year of IHTC designation: 2018

Hospital Universitario La Paz

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Spain - Valencia

Year of IHTC designation: 1997

Haemostasis and Thrombosis Unit
Haematology Service, University and Polytechnic Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and Social services

Thailand - Bangkok

Year of IHTC designation: 1984

International Hemophilia Training Center – Bangkok
Ramathibodi Hospital
Mahidol University

Areas of Specialty

  • Adult and pediatric hemostasis
  • Molecular genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and social services

Hemophilia of Georgia

Hemophilia of Georgia has stood with us for over three decades, playing an early role in distributing donated factor via the WFH Humanitarian Aid program. Our relationship has deepened over the years as they continued to support this program and came on board as a founding Chapter Challenge champion in 2016. Their belief in educating future leaders is clear in their investment in the Youth Leadership Workshops, which has led to the training of over 50 young adults. They also support workshops devoted to educating providers and patient leaders on how to collect and use data to advocate for better patient care. Their staff generously volunteer their time as trainers and as well as serving on various committees.

WFH President's Award - Recipients

National Bleeding Disorders Foundation

The National Bleeding Disorders Foundation helps advance our mission on several fronts. They inspire others to follow their lead as a founding champion of the NHF Chapter Challenge. Their commitment to equality of access is demonstrated in their support of the Cornerstone Initiative, which lays the foundation for care in the world's most underserved regions, as well as programs that aim to raise awareness and improve care of women with bleeding disorders and those with von Willebrand disease. We also benefit from their steadfast engagement with various programs including the WFH Twinning Program and their individual leaders’ contribution to our leadership and committees.

Legacy Gift

Do you sometimes wish you could do more? A bequest is a simple way for you to make a significant gift without changing anything about your financial security and lifestyle today. Your legacy will sustain care for the generations to come.

Download these sample clauses to give to your legal advisor.

We understand if you prefer to remain anonymous, but we would be very honoured if you would let us know of your intentions so that we may thank you personally. We would also be happy to answer any questions you may have or give you additional information. Please contact Jennifer Laliberté at 514‑875‑7944 ext.2822 or [email protected].

Disclaimer

The information on the WFH USA website is provided for general information purposes only. The WFH USA does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH USA recommends that you contact your physician or local treatment centre. Before administering any products, the WFH USA urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH USA does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH USA discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH USA social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH USA recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH USA. The WFH USA is not responsible and assumes no liability for the content of any linked websites.

Website privacy policy

The WFH USA does not collect personally identifying information about you when you visit our site, unless you choose to provide such information to us. Providing such information is strictly voluntary. This policy is your guide to how we will handle information we learn about you from your visit to our website.

Use of links

Throughout our website, we provide links to other servers which may contain information of interest to our readers. We take no responsibility for, and exercise no control over, the organizations, views, or accuracy of the information contained on other servers. When linking to the WFH USA, we request that you ensure that there are no associated connections for commercial purposes. Any official use of the name WFH USA or the use of its logo needs to be approved by the WFH USA. If you have a link you’d like us to consider adding to our website, please send an email to [email protected] with the subject “Link request.”

Use of text and images

All information, photographs, graphics, and other material on this website are protected by copyright. While users of this website may use the content for personal, non-commercial use, none of the content of this website can be modified, translated, transferred or sold, copied, reproduced, published, or distributed, in whole or in part, without the prior written consent of the WFH USA. To view a copy of the WFH USA’s permissions guidelines, click here.

The WFH USA encourages the dissemination of its information and welcomes proposals on the reprinting, redistribution, and translation of its materials. If you would like to publish information that you find on our website, please send your request to [email protected].

Accessibility

If you have suggestions on how to make the site more accessible, please contact us at [email protected].

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Our website provides users the opportunity to opt-out of receiving communications from us through a special online form or via the communication they have received. You may, at all times, choose to receive which communications within the organization you can receive or none at all. You may also update your contact information previously provided to us via another online form.

Questions about our policies

If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you can contact us at [email protected].

Fraud alert

Unauthorized solicitations – Warning

The WFH USA has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH USA staff or falsely stating that they are associated with the WFH USA. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH USA, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH USA emails come from @wfhusa.org or @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH USA at [email protected] or call 1-877-417-7944.

International Award for Outstanding Service - Recipients

International Lifetime Achievement Award - Recipients

Previous years

2012Christine Lee
United Kingdom
2006Dr. Bruce Evatt
United States

International Healthcare Volunteer Award - Recipients

Previous years

2012 Piet de Kleijn
The Netherlands
2010 Dr. Mammen Chandy
India
2008 Dr. Man-Chiu Poon
Canada
2006 Dr. Norma de Bosch
Venezuela
2004 Dr. Parttraporn Insarangkura
Thailand

Dr. Carol K. Kasper
United States

United Kingdom - London

Year of IHTC designation: 1970

Katharine Dormandy Haemophilia Centre and Thrombosis Unit
Royal Free Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy
  • Molecular genetics
  • Psychology/Social services

United Kingdom - Manchester

Year of IHTC designation: 2008

Manchester Haemophilia Comprehensive Care Centre (Children’s and Adult’s)
Manchester Royal Infirmary and Manchester Children’s Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • National Hemophilia database

United Kingdom - Oxford

Year of IHTC designation: 1972

Oxford Haemophilia Centre and Thrombosis Centre
Churchill Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • Physiotherapy/Occupational therapy

United Kingdom - Sheffield

Year of IHTC designation: 1992

Sheffield Haemophilia and Thrombosis Centre
Royal Hallamshire Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics

Twins of the Year Awards

2020 Aluva (India) – Newcastle (UK)
2019 Yogyakarta / Solo (Indonesia) – Utrecht (Netherlands)
2018 Abidjan (Ivory Coast) – Brussels (Belgium)
2017 Santa Cruz de la Sierra (Bolivia) – Buenos Aires (Argentina)
2016 Kampala (Uganda) – London (UK)
2015 Varna (Bulgaria) – Bonn (Germany)
2014 Arequipa (Peru) – Los Angeles (USA)
2013 Davangere (India) – Liverpool (UK)
Ludhiana (India) – Detroit (USA)
2012 Hanoi (Vietnam) – Melbourne (Australia)
2011 Manado (Indonesia) – Utrecht (Netherlands)
2010 Delhi (India) – Winnipeg (Canada)
Yaoundé (Cameroon) – Geneva (Switzerland)
2009 Chisinau (Moldova) – Warsaw (Poland)
Colombo (Sri Lanka) – Vellore (India)
2008 Gaborone (Botswana) – Philadelphia (USA)
2007 Vientiane (Laos) – Brest (France)
Damascus (Syria) – Montpellier (France)
2006 Lima (Peru) – Fort Worth (USA)
2005 Yerevan (Armenia) – Minneapolis (USA)
Casablanca (Morocco) – Caen (France)
2004 Beirut (Lebanon) – Geneva (Switzerland)
Santo Domingo (Dominican Republic) – Caracas (Venezuela)
2003 Cairo (Egypt) – Knoxville (USA)
2002 Moscow (Russia) – Liverpool (UK)
Panama – Valencia (Spain)
2001