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Juan Andrés Pereira de Souza

Juan Andrés Pereira de Souza
Professor
Asociación De Hemofilia Del Uruguay
Montevideo, Uruguay

Juan Andrés Pereira de Souza is a 42-year-old person with severe haemophilia type A. He is a teacher and teacher-trainer of English in Uruguay, South America. He holds an MA in Teaching English as a Foreign Language and is finishing his master’s in Teaching Spanish as a Foreign Language. Apart from education, he is a Head of Department of Administration and Logistics at a state company in his country. He started working as a volunteer for the Uruguayan Haemophilia Association (AHU) in 2010 and the next year he was appointed vice president. For the following 2 years, he acted as surrogate president and lead a project that took the AHU to the different regions of the country, holding medical and social workshops and gathering key data about the community. In 2017, he cofounded the youth group of the AHU. The following year, he was a delegate for the AHU in the WFH World Congress held in Glasgow. This event gave him the opportunity to broaden his knowledge about haemophilia worldwide, meet and share experiences with other NMO leaders and understand the realities and challenges faced by others. He is still in touch with many of them, a connection which has been enriching and fundamental for him. In 2020, he was invited to join the Coalition of the Americas in the role of Coordinator of Education. The challenge imposed by the pandemic that year, implied that all training sessions had to be done virtually. His background in education and IT gave him the necessary strategies to coordinate and supervise online courses, interviews, and workshops, which are meant to empower leaders and other volunteers of the American continent. Last year, he was elected Secretary of the AHU for the period 2021-2023 and he still acts as mentor of the Youth Committee, which has served as a source of generational change in the main board of the AHU. He was also chosen for the first cohort of the PACT Academy, a course that has given him further insight into advocacy strategies and the relationships with stakeholders and HTA agencies. In his private life, Andrés is an avid reader and traveller and likes to spend his free time with his two dogs.

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