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Coming soon: the WFH Shared Decision Making Tool for Hemophilia Treatment

The World Federation of Hemophilia (WFH) is proud to announce that we are developing a new tool that will optimize the treatment decision-making process for people with hemophilia: the WFH Shared Decision Making Tool for Hemophilia Treatment.

Also available in: Français Español

With the introduction of new non-factor treatment options for people with hemophilia (PWH), the landscape of hemophilia treatment has become more complex, which has made the decision-making process for both patients and physicians more complex as well. This reality makes a shared decision-making tool to facilitate the discussion between PWH and healthcare professionals on treatment options essential. The aim of the WFH Shared Decision Making Tool for Hemophilia Treatment is to facilitate the patient-healthcare professional discussion on personal preferences and goals, provide education on the attributes of all therapies, and ultimately, allow PWH to make a truly informed treatment decision.  

The shared decision-making model is “a stepwise process that relies on reciprocal information sharing between the practitioner and patient, resulting in health care decisions stemming from the informed preferences of both parties.”

— Valentino LA, et al., The Journal of Haemophilia Practice, 2021

The WFH has partnered with COR2ED, an independent medical education organization, to develop the tool, allowing us to offer a world-class, online, evidence-based, shared decision-making resource. Development is currently underway, and we are on track to launch the WFH Shared Decision Making Tool for Hemophilia Treatment to the community in 2023.

The tool will be offered free of charge to the global hemophilia community and will be available to all WFH national member organizations (NMOs) and all hemophilia treatment centres (HTCs). It will be available on the WFH website in English, with plans to offer it in other languages in the future.  

The WFH Hemophilia Treatment Shared Decision Making Tool is supported by funding from BioMarin Pharmaceutical Inc., CSL Behring, Pfizer, and Spark Therapeutics.  

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.