INTRODUCTION

Thank you for visiting our Websites and Platforms and reviewing our Privacy Policy, as well as our personal information and privacy practices.

The World Federation of Hemophilia (hereinafter "the WFH" or "WFH") recognizes that privacy is everyone's business and takes the confidentiality and security of your personal information very seriously. For this reason, we have taken steps to ensure that any personal information we collect about you is protected by a range of rigorous procedures and security measures to ensure that your information is kept confidential and used only for the purposes detailed in this Policy, unless otherwise authorized by law.

WFH is committed to protecting the privacy of all individuals about whom it collects personal information. To this end, this policy aims to establish responsible and transparent practices for the management of personal information, and to meet the requirements of the rules established by the Act Respecting the Protection of Personal Information in the Private Sector ("ARPPIPS", CQLR c. P-39.1) and the Personal Information Protection and Electronic Documents Act ("PIPEDA", S.C. 2000, c. 5) (hereinafter the "Acts"). WFH is also subject to the provisions of the European General Data Protection Regulation ("GDPR").

1. PURPOSE

2. SCOPE

3. DEFINITION OF "PERSONAL INFORMATION"

4. RESPONSIBILITIES OF WFH

5. HOW DO WE COLLECT YOUR CONSENT?

6. WHY WE COLLECT PERSONAL INFORMATION

7. WHAT PERSONAL INFORMATION DO WE COLLECT?

8. USE OF COOKIES

9. RESPONSE TO JOB OFFERS

10. PROTECTION OF THE PRIVACY OF MINORS

11. DO WE DISCLOSE YOUR PERSONAL INFORMATION TO THIRD PARTIES?

12. SHARING PERSONAL INFORMATION OUTSIDE QUÉBEC

13. HOW DO WE PROTECT YOUR PERSONAL INFORMATION?

14. RETENTION AND DESTRUCTION OF PERSONAL INFORMATION

15. ACCESSING, CORRECTING, DE-INDEXING AND PORTABILITY OF YOUR PERSONAL INFORMATION

16. WITHDRAWING YOUR CONSENT

17. CHANGES TO OUR PRIVACY POLICY

18. CONTACT DETAILS FOR THE PRIVACY OFFICER

APPENDIX A

1.	PURPOSE
1.1	This WFH Digital Platforms Privacy Policy (hereinafter "Policy" or "Privacy Policy") explains not only how we collect, use, disclose and store any information related to your personal data when you visit any Website (or "Websites") or mobile applications ("Applications" or "Platforms") operated by WFH, but also how you can access, update or take control of your personal information.
1.2	This Policy replaces and updates the WFH Website Privacy Policy (IT 003).

1. PURPOSE

1.1 This WFH Digital Platforms Privacy Policy (hereinafter "Policy" or "Privacy Policy") explains not only how we collect, use, disclose and store any information related to your personal data when you visit any Website (or "Websites") or mobile applications ("Applications" or "Platforms") operated by WFH, but also how you can access, update or take control of your personal information.

1.2 This Policy replaces and updates the WFH Website Privacy Policy (IT 003).

2.	SCOPE
2.1	This Policy generally applies to: any personal information of a factual or subjective nature about an identifiable individual collected through the Websites and/or Platforms on which this Policy is posted, or through any other interactions you may have with us; WFH staff members (regular employees, temporary employees and contractual resources) and senior management who handle personal information held by WFH; visitors to our Websites and/or Platforms, our volunteers and Board members, and any person or company acting for or on behalf of WFH.
2.2	External links. This Policy does not apply to links to third-party websites, plug-ins, services, social networks or applications, including those offered via hyperlinks displayed on our Websites and/or Platforms. If you follow a link to a third-party website or use a third-party plug-in, please note that these third parties have their own privacy policies and we do not accept any responsibility or liability for those policies. We do not control these third-party websites and encourage you to read the privacy policy of each site you visit before providing them with any personal information.

5.	HOW DO WE COLLECT YOUR CONSENT?
5.1	The WFH considers you to have validly consented to the collection, use or disclosure of your personal information if (i) you give your express written or oral consent; (ii) you voluntarily provide personal information for an obvious purpose; or (iii) if you do not object to the collection, use or disclosure of personal information by the WFH within a reasonable time after the WFH has given you clear notice, including through this Policy, of its intention to do so and the intended purposes.
5.2	In some cases, the WFH may collect personal information about an individual without their consent in accordance with the Acts or any other law or regulation that permits doing so.

10.	PROTECTION OF THE PRIVACY OF MINORS
10.1	WFH does not knowingly collect personal information from children under the age of 14 without the consent of the child's parent or legal guardian. If we learn that we have collected or received personal information from a child for whom parental confirmation was required, we will delete that information. If you believe that we may have received information from or about a child for whom we should have obtained parental consent, please contact us.

12.	SHARING PERSONAL INFORMATION OUTSIDE QUÉBEC
12.1	Your personal information is processed and stored in Québec. In order to carry out our mission, we may in some cases store, process and transfer your information around the world, including outside Québec or to jurisdictions outside your country of residence — if you are located in the Economic European Area or Switzerland, please review Appendix A "Additional terms" which apply to you in addition to the main terms of this Policy. Data may also be stored locally on the devices you use to access WFH Websites and/or Platforms.
12.2	In such cases, the transfer will only take place if we find that the information would be adequately protected, in particular considering the sensitivity of the information, the purpose for which it is used, the protection the information would be afforded, and the legal framework applicable in the state or province where the information would be transferred. Any transfer will also be subject to appropriate contractual agreements to ensure adequate protection.

17.	CHANGES TO OUR PRIVACY POLICY
17.1	WFH will review and update its policies and procedures as required to keep current with rules and regulations, new technologies and standards. Our Privacy Policy may therefore change from time to time. We will post any Policy changes on our Websites and Platforms and, if the changes are significant, we will provide a more prominent notice. You are responsible for periodically visiting our Websites and/or Platforms and this Policy to check for any changes.
17.2	Please note that both the English and French versions of our Privacy Policy have equal legal value.

18.	CONTACT DETAILS FOR THE PRIVACY OFFICER
If you have any comments, questions or requests regarding this Policy or our privacy practices, or to report any abuse by third parties, please do not hesitate to contact Antonio José Almeida, WFH Senior Director, Operations and Privacy Officer by e-mail at [email protected] or at the following postal address:
c/o Privacy Officer, World Federation of Hemophilia 1425, boul. René-Lévesque West Suite 1200 Montreal, Québec H3G 1T7 Canada
We have procedures in place to receive and respond to complaints or inquiries about our handling of personal information, our compliance with this Policy and applicable privacy laws. If you are not satisfied with WFH's handling of your personal information, you may file a complaint with WFH. The complaint will be investigated by the WFH Privacy Officer, who will determine whether the handling of the information complies with WFH policies and practices and any other applicable laws. The Privacy Officer will make every reasonable effort to resolve complaints. The person filing the complaint will be informed of any progress or outcome of the investigation within a maximum of 30 working days of receipt of the request and/or any additional time required to complete the investigation.

APPENDIX A
ADDITIONAL TERMS FOR USERS LOCATED IN THE ECONOMIC EUROPEAN AREA (EEA) AND SWITZERLAND
If you are located in the European Economic Area (EEA) or Switzerland, these additional terms apply to you in addition to the main terms of WFH Privacy Policy. In case of a contradiction between the Privacy Policy and these additional terms, the latter will prevail.
1	LEGAL BASIS FOR PROCESSING PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
1.1	If you are from the European Economic Area (EEA) or Switzerland, WFH’s legal basis for collecting and using the personal information described in this Privacy Policy depends on the personal information we collect and the specific context in which we collect it. We only process your Personal information if we have a legal basis to do so, which includes: Consent: where you have given us your consent, you have given us permission to do so, or where processing is necessary for the performance of a service you have requested; or Legitimate interests: for example, we may process your personal information to protect you, us, or others from threats (such as security threats or fraud), to comply with laws that apply to us.
If you have any questions about the lawful bases upon which we collect and use your personal data, please contact: Antonio José Almeida, WFH Senior Director, Operations and Privacy Officer by e-mail at [email protected] or at the following postal address: c/o Privacy Officer, World Federation of Hemophilia, 1425, boul. René-Lévesque, West Suite 1200, Montreal, Québec, H3G 1T7, Canada
2	TRANSFER OF YOUR PERSONAL INFORMATION OUTSIDE OF THE EEA OR SWITZERLAND
2.1	We may process information outside of the EEA or Switzerland, including Canada and the USA.
3	ADDITIONAL RIGHTS REGARDING YOUR PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
3.1	If you are a resident of the European Economic Area (EEA) or Switzerland, you have certain data protection rights. WFH aims to take reasonable steps to allow you to correct, amend, delete or limit the use of your personal information.
3.2	If you wish to be informed about what personal information we hold about you and if you want it to be removed from our systems, please contact us.
3.3	In addition to the rights mentioned in the section 15 ("Accessing, correcting, de-indexing and portability of your personal information") and in section 16 ("Withdrawing your consent"), in certain circumstances, you also have the following data protection right: The right to delete the information we have on you. Whenever made possible, you can request deletion of your personal information, in which case we will carry out this request unless certain exceptional reasons arise permitting us to keep certain information about you; The right to object. You have the right to object to our processing of your personal information in certain circumstances, such as those described in the “Legitimate interests” section 1.1 b) above. We may however continue to process your personal Information unless your interests, rights and freedoms override our legitimate interests; and The right of restriction. You have the right to request that we restrict or limit the ways in which we process your personal information for instance where you believe your data is inaccurate. Please note that we may ask you to verify your identity before responding to such requests.

1. PURPOSE

1.2 This Policy replaces and updates the WFH Website Privacy Policy (IT 003).

2. SCOPE

2.1

This Policy generally applies to:

any personal information of a factual or subjective nature about an identifiable individual collected through the Websites and/or Platforms on which this Policy is posted, or through any other interactions you may have with us;
WFH staff members (regular employees, temporary employees and contractual resources) and senior management who handle personal information held by WFH;
visitors to our Websites and/or Platforms, our volunteers and Board members, and any person or company acting for or on behalf of WFH.

2.2 External links. This Policy does not apply to links to third-party websites, plug-ins, services, social networks or applications, including those offered via hyperlinks displayed on our Websites and/or Platforms. If you follow a link to a third-party website or use a third-party plug-in, please note that these third parties have their own privacy policies and we do not accept any responsibility or liability for those policies. We do not control these third-party websites and encourage you to read the privacy policy of each site you visit before providing them with any personal information.

3. DEFINITION OF "PERSONAL INFORMATION"

3.1	When used in this Privacy Policy, “personal information” means any information about an individual that can be used to identify an individual, including, but not limited to, your name, address, email address, telephone number, gender, banking details, employment, health or other information.

4. RESPONSIBILITIES OF WFH

4.1	The WFH will fulfill all requirements to protect, collect, use, disclose and retain personal information under the Acts and all other applicable laws and regulations. We attach great importance to the proper management of your data and take full responsibility for it.
4.2	The WFH will also ensure that it has reasonable security measures in place to protect and respect the confidentiality of any personal information in its custody and control.

5. HOW DO WE COLLECT YOUR CONSENT?

5.1 The WFH considers you to have validly consented to the collection, use or disclosure of your personal information if (i) you give your express written or oral consent; (ii) you voluntarily provide personal information for an obvious purpose; or (iii) if you do not object to the collection, use or disclosure of personal information by the WFH within a reasonable time after the WFH has given you clear notice, including through this Policy, of its intention to do so and the intended purposes.

5.2 In some cases, the WFH may collect personal information about an individual without their consent in accordance with the Acts or any other law or regulation that permits doing so.

6. WHY WE COLLECT PERSONAL INFORMATION

6.1	We strongly believe in both minimizing the information we collect and limiting its use and purpose. WFH uses your personal information only for the purposes and for the duration required for which it was collected, or for any use that may be required or permitted by legal compliance, government request, court order or other lawful purpose.
6.2	We collect personal information for a variety of reasons. In general, WFH collects only the personal information necessary to fulfill its mission. We may also collect information for administrative purposes — to better understand the visitors who come to our websites and/or Platforms and the content of our websites and/or Platforms that is of interest to them. The purposes for which we collect personal information include, but are not limited to: Improve the content, offering, appearance and usefulness of our Websites and/or Platforms; Send, subject to your right to withdraw your consent as set out in this Policy, periodic emails; Personalize your experience by responding to your needs; Provide you with information or resources you have requested; Process a donation and issue tax receipts; Meet legal and regulatory requirements; Prevent potentially prohibited or illegal activities for risk management, fraud detection and security purposes.
6.3	Wherever possible, rather than using personal information, we will anonymize and/or aggregate personal information so that it no longer identifies an individual and use it for the purposes stated above or for any purpose permitted by law.
6.4	If we ever wish to use or disclose your personal information for purposes other than those specifically described in this Policy, we will obtain your consent.

7. WHAT PERSONAL INFORMATION DO WE COLLECT?

7.1	WFH only collects personal information that is directly related to one of our programs or activities. We take steps to ensure that the personal information we collect about you is adequate, relevant, not excessive and used for limited purposes. We collect only the information we need.
7.2	The WFH collects information on its Websites and/or Platforms in two ways:
7.2.1	Information you provide directly to us: In many cases, we collect personal information directly from you when you provide your information by subscribing to our Newsletter, when you fill out other forms on our Websites and/or Platforms, when you make an inquiry or when you contact us in person or through the WFH Websites and/or Platforms. The provision of this information is strictly voluntary. We strongly encourage you not to provide any information beyond what is necessary.
7.2.2	Information collected automatically: You should be aware that when you access or browse our Websites and/or Platforms, an exchange of information, subject to your prior consent, takes place automatically between your device and WFH's hosting environment. This exchange is required only because of the technological demands inherent in Internet browsing and is used for statistical purposes to improve your experience — the information exchanged does not identify you personally. The information exchanged is as follow: The domain name of your internet service provider; Your computer's truncated IP address (your IP address is changed, making it impossible to link to you); The type of browser (Chrome, Edge, Firefox, Safari, etc.) and operating system (Windows, Mac OS, etc.) used; The date and time of your visit; The pages you consult and the duration of these consultations; The address of the referring site, if you access WFH Websites and Platforms from another site. WFH retains only the information necessary to count the number of visitors, the most frequently visited pages, the technology used by visitors, the referring sites and the country of origin of visitors. This information is not used in any way to compile, communicate or exchange lists of users/visitors.
7.3	By using the WFH Websites and/or Platforms, you agree to the terms and conditions set forth in this Privacy Policy.

8. USE OF COOKIES

8.1	The main types of data collected on WFH Websites and/or Platforms are cookies and personalization settings. Cookies are small text files that are downloaded when you visit certain pages of a site and stored in the memory of the device you are using. Cookies are completely harmless and cannot contain any viruses. They enable certain information (browser type, language, country, identifier, etc.) to be recorded and retrieved by the server on subsequent visits. Under no circumstances do cookies allow visitors to be identified. The data remains completely anonymous and is used only to facilitate browsing and improve the WFH’s Websites and/or Platforms based on the needs of its visitors.
8.2	If you do not wish cookies to be used, your browser options can be configured to refuse and/or delete cookies. Please note that disabling or deleting cookies may deprive you of certain functions offered on our Websites and/or Platforms. In addition, this procedure must be repeated for each browser and computer used.
8.3	Google Analytics. We also gather information automatically about visits to our Websites and/or Platforms to help us maintain and improve its design, and to evaluate traffic statistics, such as the times of day and days of week at which we see peak traffic, and to assess the relative popularity of different areas of the Websites and/or Platforms. We use Google Analytics to gather this data and analyze it. Google Analytics collects information about the date and time in which our Websites and/or Platforms were accessed, and may also track a visitor’s movement within the site, but does not collect personal information about the visitor. You can install the Google Analytics Opt-out Browser Add-on to prevent information about your visits to our Websites and/or Platforms being sent to Google Analytics. Our web statistics software (Google Analytics) collects information about the date and time in which our Websites and/or Platforms were accessed, and we may also track a user’s movement within the Websites and/or Platforms. We use this data to improve our Websites and/or Platforms performance.
8.4	Meta Pixel. WFH also uses web beacons (“Pixels”) to analyze visitor activity to our Websites and/or Platforms. We use Meta Pixel to collect information about your interactions with our Websites and/or Platforms, such as pages visited, actions taken, buttons clicked and any pages visited as a result of the button clicks. Web beacons do not contain any personal information but may contain a unique identifier necessary for retargeting and targeted advertising. Meta Pixel allows us to measure the effectiveness of our advertising by understanding the actions you take on our Websites and/or Platforms. We use this data solely for analytical purposes to improve our services and deliver more relevant content.

9. RESPONSE TO JOB OFFERS

9.1	If you have applied for a job with WFH, we will use your personal information for recruitment and other human resources purposes. We keep the documents sent (CV, cover letter, etc.) by the candidates for a maximum of three (3) years. Documents are then securely destroyed.

10. PROTECTION OF THE PRIVACY OF MINORS

10.1 WFH does not knowingly collect personal information from children under the age of 14 without the consent of the child's parent or legal guardian. If we learn that we have collected or received personal information from a child for whom parental confirmation was required, we will delete that information. If you believe that we may have received information from or about a child for whom we should have obtained parental consent, please contact us.

11. DO WE DISCLOSE YOUR PERSONAL INFORMATION TO THIRD PARTIES?

11.1	Rest assured that WFH will never sell, trade, rent, share or transfer your personal information to third parties (organizations or individuals) for commercial purposes without your consent, except in the exceptional cases specifically provided for in this Policy.
11.2	As part of the services offered by our external suppliers. WFH may transfer personal information that we collect or that you provide as described in this Policy to service providers and other third parties we use to support our organization. Such third parties are contractually obligated to keep personal information confidential, use it only for the purposes for which we disclose it and process personal information in accordance with the standards set out in this Policy and in compliance with the Acts.
11.3	In the context of a legal obligation. WFH may disclose your personal information to comply with any court order, law or legal process, including to respond to any government or regulatory request, in accordance with applicable law, to combat fraud or harms to WFH or our members, or if we believe that disclosure is necessary or appropriate to protect the rights, property or safety of WFH or others.

12. SHARING PERSONAL INFORMATION OUTSIDE QUÉBEC

12.1 Your personal information is processed and stored in Québec. In order to carry out our mission, we may in some cases store, process and transfer your information around the world, including outside Québec or to jurisdictions outside your country of residence — if you are located in the Economic European Area or Switzerland, please review Appendix A "Additional terms" which apply to you in addition to the main terms of this Policy. Data may also be stored locally on the devices you use to access WFH Websites and/or Platforms.

12.2 In such cases, the transfer will only take place if we find that the information would be adequately protected, in particular considering the sensitivity of the information, the purpose for which it is used, the protection the information would be afforded, and the legal framework applicable in the state or province where the information would be transferred. Any transfer will also be subject to appropriate contractual agreements to ensure adequate protection.

13. HOW DO WE PROTECT YOUR PERSONAL INFORMATION?

13.1	The security of your personal information is very important to us. The personal information we collect is stored in a secure environment using industry-recognized technologies. We will protect personal information against loss or theft, unauthorized access, use or disclosure, copying, modification or destruction.
13.2	When you visit our Websites and/or Platforms and are asked for personal information, this information is used exclusively by WFH. In order to protect your personal information, we have implemented customary security measures that are appropriate to the sensitivity of the information collected, including the following physical, organizational, contractual and technological measures: Information stored in a protected database; Encrypted communications using the TLS protocol; Access to your personal information is restricted to those employees who need it to perform their duties (authorized and/or concerned persons) — these employees will treat the information as strictly confidential and will not give access to this information to any unauthorized person; Report any violation of this Policy or the Acts to the WFH Privacy Officer; Network monitoring software; Anti-virus and anti-malware; End-user device encryptions; Passwords and multi-factor authentication; Firewall; Secure Web site donation page; content encrypted or encoded to make information unreadable; Paper files kept in locked filing cabinets wherever possible; Access codes to WFH premises; Security personnel.
13.3	Individuals working for WFH or acting on our behalf must make reasonable efforts to minimize the risk of unintentional disclosure of personal information. In addition, our policies, procedures and codes of conduct are clearly communicated to our employees, contractors, volunteers, consultants and subcontractors and WFH will ensure that they are adhered to and respected. All individuals who fail to comply with the principles and procedures of this Policy will be subject to corrective measures, including termination of their employment relationship, tenure or contract.
13.4	Despite these precautions, no method of transmission or storage is 100% secure or error-free. As a result, we cannot guarantee absolute security. If you have reason to believe that your interaction with us is no longer secure, please contact us immediately.
13.5	If we become aware of a security breach involving your personal information, we will notify you and the appropriate authorities as soon as possible, in accordance with the Acts.

14. RETENTION AND DESTRUCTION OF PERSONAL INFORMATION

14.1	Except as permitted or required by the Acts or any applicable law or regulation, WFH will retain your personal information only for as long as necessary to fulfill the purposes for which we collected it, including for the purposes of satisfying legal, accounting or reporting requirements to the appropriate government and regulatory bodies.
14.2	Personal information that is no longer required for the purposes for which it was collected will be destroyed, erased or made anonymous in accordance with applicable laws.
14.3	Under some circumstances, we may anonymize your personal information so that it can no longer be associated with you. We reserve the right to use de-identified and anonymized data for any legitimate purpose without further notice to you or your consent.
14.4	If the WFH uses personal information to make a decision that directly affects an individual, we will retain that information for as long as necessary to fulfill the purposes for which the information was collected. Once the information has been used, individuals may access their personal information as set out in the Acts.

15. ACCESSING, CORRECTING, DE-INDEXING AND PORTABILITY OF YOUR PERSONAL INFORMATION

15.1	It is important that the personal information we hold about you is accurate and current. Please keep us informed if your personal information changes. You can contact us via the WFH Online Contact Form or email us at [email protected].
15.2	Upon request, an individual is entitled to be informed of the existence, use and disclosure of their personal information and to obtain access to that information, or to obtain a copy of their personal information in electronic or non-electronic format subject to appropriate notice. An individual has the right to challenge the accuracy and completeness of their personal information, have it amended, or withdraw consent to the use of their information. In addition, WFH complies with all laws regarding access to and correction of your personal information.
15.3	An individual has also the right to receive computerized personal information collected from them in a structured, machine-readable, and commonly used format. In certain circumstances, the individual may also ask WFH to transfer their computerized personal information directly to third parties. An individual has the right to request that the dissemination of their personal information cease, or to request that any hyperlinks associated with their name and that provide access to personal information be de-indexed or re-indexed.
15.4	No request for access, rectification, de-indexation or data portability may be considered unless it is made in writing and addressed to the WFH Privacy Officer. You must provide enough detail to enable the WFH to process the request. The Privacy Officer will respond within 30 days of the receipt of a request, unless it extends the time as authorized under the Acts.

16. WITHDRAWING YOUR CONSENT

16.1	If you have given your consent to the collection, use and transfer of your personal information, you may have the legal right to withdraw your consent under certain circumstances. To withdraw your consent, if applicable, contact us at [email protected].
16.2	Please note that if you withdraw your consent, we may not be able to provide you with certain services. We will explain the impact of withdrawing your consent to help you make a decision.

17. CHANGES TO OUR PRIVACY POLICY

17.1 WFH will review and update its policies and procedures as required to keep current with rules and regulations, new technologies and standards. Our Privacy Policy may therefore change from time to time. We will post any Policy changes on our Websites and Platforms and, if the changes are significant, we will provide a more prominent notice. You are responsible for periodically visiting our Websites and/or Platforms and this Policy to check for any changes.

17.2 Please note that both the English and French versions of our Privacy Policy have equal legal value.

18. CONTACT DETAILS FOR THE PRIVACY OFFICER

If you have any comments, questions or requests regarding this Policy or our privacy practices, or to report any abuse by third parties, please do not hesitate to contact Antonio José Almeida, WFH Senior Director, Operations and Privacy Officer by e-mail at [email protected] or at the following postal address:
c/o Privacy Officer, World Federation of Hemophilia 1425, boul. René-Lévesque West Suite 1200 Montreal, Québec H3G 1T7 Canada
We have procedures in place to receive and respond to complaints or inquiries about our handling of personal information, our compliance with this Policy and applicable privacy laws. If you are not satisfied with WFH's handling of your personal information, you may file a complaint with WFH. The complaint will be investigated by the WFH Privacy Officer, who will determine whether the handling of the information complies with WFH policies and practices and any other applicable laws. The Privacy Officer will make every reasonable effort to resolve complaints. The person filing the complaint will be informed of any progress or outcome of the investigation within a maximum of 30 working days of receipt of the request and/or any additional time required to complete the investigation.

APPENDIX A

APPENDIX A
ADDITIONAL TERMS FOR USERS LOCATED IN THE ECONOMIC EUROPEAN AREA (EEA) AND SWITZERLAND
If you are located in the European Economic Area (EEA) or Switzerland, these additional terms apply to you in addition to the main terms of WFH Privacy Policy. In case of a contradiction between the Privacy Policy and these additional terms, the latter will prevail.
1	LEGAL BASIS FOR PROCESSING PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
1.1	If you are from the European Economic Area (EEA) or Switzerland, WFH’s legal basis for collecting and using the personal information described in this Privacy Policy depends on the personal information we collect and the specific context in which we collect it. We only process your Personal information if we have a legal basis to do so, which includes: Consent: where you have given us your consent, you have given us permission to do so, or where processing is necessary for the performance of a service you have requested; or Legitimate interests: for example, we may process your personal information to protect you, us, or others from threats (such as security threats or fraud), to comply with laws that apply to us.
If you have any questions about the lawful bases upon which we collect and use your personal data, please contact: Antonio José Almeida, WFH Senior Director, Operations and Privacy Officer by e-mail at [email protected] or at the following postal address: c/o Privacy Officer, World Federation of Hemophilia, 1425, boul. René-Lévesque, West Suite 1200, Montreal, Québec, H3G 1T7, Canada
2	TRANSFER OF YOUR PERSONAL INFORMATION OUTSIDE OF THE EEA OR SWITZERLAND
2.1	We may process information outside of the EEA or Switzerland, including Canada and the USA.
3	ADDITIONAL RIGHTS REGARDING YOUR PERSONAL INFORMATION UNDER THE GENERAL DATA PROTECTION REGULATION (GDPR)
3.1	If you are a resident of the European Economic Area (EEA) or Switzerland, you have certain data protection rights. WFH aims to take reasonable steps to allow you to correct, amend, delete or limit the use of your personal information.
3.2	If you wish to be informed about what personal information we hold about you and if you want it to be removed from our systems, please contact us.
3.3	In addition to the rights mentioned in the section 15 ("Accessing, correcting, de-indexing and portability of your personal information") and in section 16 ("Withdrawing your consent"), in certain circumstances, you also have the following data protection right: The right to delete the information we have on you. Whenever made possible, you can request deletion of your personal information, in which case we will carry out this request unless certain exceptional reasons arise permitting us to keep certain information about you; The right to object. You have the right to object to our processing of your personal information in certain circumstances, such as those described in the “Legitimate interests” section 1.1 b) above. We may however continue to process your personal Information unless your interests, rights and freedoms override our legitimate interests; and The right of restriction. You have the right to request that we restrict or limit the ways in which we process your personal information for instance where you believe your data is inaccurate. Please note that we may ask you to verify your identity before responding to such requests.

The use of all websites and Platforms belonging to the World Federation of Hemophilia (WFH) is subject to the following terms and conditions:

By using these websites and/or Platforms, you agree to its terms and conditions, effective as of the date you first use these websites and/or Platforms.
The World Federation of Hemophilia reserves the right to change these terms and conditions at any time by posting a modification notice online. Continued use of these websites and/or Platforms following the posting of changes constitutes your acceptance of these terms, as modified.
You agree to use these websites and/or Platforms only for lawful purposes and in a manner that does not infringe the rights of third parties or restrict or impede their enjoyment of use of this site.
These websites and/or Platforms and the information contained therein, names, images, photographs, and logos concerning or making reference to the World Federation of Hemophilia are provided “as is” without any additional representation or condition and without any implicit or explicit guarantee of any sort. Under no circumstance will the World Federation of Hemophilia be responsible for any damages, including, but not limited to, indirect damages, or any other damages caused by the use of or related to the loss of use of the websites and/or Platforms, whether by contract or negligence.
The World Federation of Hemophilia does not guarantee the site’s operations will not be interrupted and/or are exempt from error, or shortcomings will be corrected.
The World Federation of Hemophilia does not guarantee that the websites and/or Platforms or server will be free of viruses or bugs, or even its full functionality or the precision and exactness of its content.
Copyright restrictions:
- All information, photographs, graphics, and other material on these websites and/or Platforms are protected by copyright. While users of these websites and/or Platforms may use the content for personal, non-commercial use, none of the content of these websites and/or Platforms can be modified, translated, transferred or sold, copied, reproduced, published, or distributed, in whole or in part, without the prior written consent of the WFH.
- Notwithstanding the above, certain documents and photos have been published on these websites and/or Platforms with the consent of the said copyright owners (who are not the World Federation of Hemophilia). All rights to these documents and/or photos are reserved and may not be reproduced without the consent of the copyright owners.
- The WFH encourages the dissemination of its information and welcomes proposals on the reprinting, redistribution, and translation of its materials. If you would like to publish information that you find on our websites and/or Platforms, please send your request to [email protected].
- The logo of the World Federation of Hemophilia and its explicitly associated graphic image elements may not be reproduced for commercial or promotional purposes without formal authorization from World Federation of Hemophilia.
If you have any questions about the practices of our websites and/or Platforms or suggestions on how to make these websites and/or Platforms more accessible, please contact us at [email protected].
The World Federation of Hemophilia is not responsible for the content of external websites to which its site may link. Throughout our websites and/or Platforms, we provide links to other servers which may contain information of interest to our readers. We assume no responsibility for, and exercise no control over, the organizations, views or accuracy of information contained on other servers. When linking to the WFH, we request that you ensure that there are no associated connections for commercial purposes. If you have a link you’d like us to consider adding to our website, please send an email to [email protected] with the subject “Link request”.
Any communication or material that is publicly transmitted or posted on these other servers, including any data, questions, suggestions, comments or other information, will be treated as non-confidential and non-proprietary information.
The World Federation of Hemophilia respects the privacy of its members and visitors to these websites and/or Platforms. In this regard, please refer to our Digital Platforms Privacy Policy.
In the event of any conflict between the terms and conditions of use herein and any specific guidelines or terms of use appearing on these websites and/or Platforms relating to specific material, the latter shall prevail. If there is a conflict between the conditions and/or regulations of this site and those applying to a specific document that may be posted, the latter takes precedent.
These terms and conditions of use shall be governed by and construed in accordance with the laws of Canada and Quebec. Any dispute shall be subject to the exclusive jurisdiction of the courts of Canada and Quebec. If the terms and conditions of use are not accepted in their entirety, use of these websites and/or Platforms must cease immediately.

VIAJE Y ALOJAMIENTO

Alojamiento

Hacer su reservación

Sala de tratamiento

Preguntas frecuentes sobre alojamiento

Servicio de transporte

Viaje

Madrid en resumen

Requisitos de VISA

MADRID, ESPAÑA 21‑24 ABRIL 2024

ORGANIZADOR:

ANFITRIÓN:

Viaje y alojamiento

También disponible en: English Français Русский 日本語

Congreso Mundial 2024 de la FMH
[email protected]

ORGANIZADOR:
Federación Mundial de Hemofilia

ANFITRIÓN:
Federación Española de Hemofilia

La Federación Mundial de Hemofilia (FMH) y la Federación Española de Hemofilia (Fedhemo) tienen el gusto de dar la bienvenida a la comunidad mundial de trastornos de la coagulación al Congreso Mundial 2024 de la FMH, el cual tendrá lugar en Madrid, España, del 21 al 24 de abril.

ALOJAMIENTO

Entendemos que encontrar un alojamiento adecuado para el evento es importante para su comodidad y conveniencia. La oficina oficial de alojamiento esta cerrada, sin embargo nos complace ofrecerle una solución alternativa para ayudarle a conseguir alojamiento para su estancia en Madrid.

Nos hemos asociado con Stay22, una plataforma de reservas completa que colabora con las principales agencias de reservas de viajes en línea, como Booking.com, Trivago, Expedia, Hotels.com, VRBO, Kayak, etc. Stay22 está diseñada para ayudarle a encontrar las mejores ofertas de hoteles adaptadas a sus preferencias.

Tenga en cuenta que no se proporciona transporte entre los hoteles de Stay22 y el centro de convenciones IFEMA. Sin embargo, le animamos a explorar varias opciones de transporte disponibles en Madrid, incluyendo el transporte público, taxis, servicios de viajes compartidos, o coches de alquiler, para asegurar un viaje sin problemas desde y hacia el lugar del evento.

Para cualquier consulta o asistencia con respecto a su reserva, el servicio de atención al cliente será proporcionado por nuestro socio de reservas, Stay22, y no por la Federación Mundial de Hemofilia.

Haga clic aquí para ver las opciones de alojamiento.

¡Alerta de estafas! Tenga cuidado con empresas de alojamiento no autorizadas

Agradeceremos se mantenga vigilante en caso de ser contactado por cualquier servicio de alojamiento, que no sea el Secretariado del Congreso Mundial 2024 de la FMH o la Oficina de alojamiento de la FMH ([email protected]), que pretenda o afirme ser el “proveedor oficial de alojamiento” para el Congreso Mundial 2024 de la FMH.

Las reservaciones hechas a través de otra agencia que no sea el Secretariado del Congreso Mundial 2024 de la FMH o la Oficina de alojamiento de la FMH serán por su cuenta y riesgo. Agradeceremos nos notifique escribiendo a [email protected] si se comunicara con usted cualquier agencia que afirme representar a la FMH.

Hoteles oficiales del Congreso Mundial 2024 de la FMH

Lista Cuadro

Hotel H10 Tribeca ‑ Agotado

5 C. de Pedro Teixeira, Madrid, Spain

20 minutos en bus VER MAPA

$188 USD

Novotel Madrid Center ‑ Agotado

53 Calle de O'Donnell, Madrid, Spain

20 minutos en bus VER MAPA

$199 USD

RIU Plaza España ‑ Agotado

84 C/ Gran Vía, Madrid, Spain

20 minutos en bus VER MAPA

$278 USD

Meliá Castilla ‑ Agotado

43 C. del Poeta Joan Maragall, Madrid, Spain

20 minutos en bus VER MAPA

$302 USD

Novotel Madrid Campo de las Naciones ‑ Agotado

N° 3 C. de Ámsterdam, Madrid, Spain

10 minutos caminando VER MAPA

$337 USD

Pullman Madrid Airport & Feria ‑ Agotado

Accorinvest Spain S.A Feria De Madrid, Campo De Las Naciones, Madrid, Spain

10 minutos caminando VER MAPA

$350 USD

Hotel	Tarifa/noche (USD*)	Servicio de transporte del Congreso
Hotel H10 Tribeca – Agotado Habitación Estándar Sencilla	$188*	20 minutos en bus
Novotel Madrid Center – Agotado Habitación Estándar Sencilla	$199*	20 minutos en bus
RIU Plaza España – Agotado Habitación Estándar Sencilla	$278*	20 minutos en bus
Meliá Castilla – Agotado Habitación Estándar Sencilla	$302*	20 minutos en bus
Novotel Madrid Campo de las Naciones – Agotado Habitación Estándar Sencilla	$337*	10 minutos caminando
Pullman Madrid Airport & Feria – Agotado Habitación Estándar Sencilla	$350*	10 minutos caminando

Punto de partida:

Destino:

HACER SU RESERVACIÓN

¿Por qué reservar a través de la Oficina de alojamiento de la FMH?

Hacer su reservación a través de la Oficina de alojamiento de la FMH le ofrece múltiples ventajas, entre ellas las siguientes:

Tarifas preferenciales garantizadas en los hoteles designados como parte del Congreso Mundial 2024 de la FMH.
Sin cargos por reservación ni costos sorpresivos, ya que todas las tarifas incluyen acceso a internet e impuestos.
Transacciones de reservación seguras y protegidas.
Dirección de correo electrónico exclusiva y personal in situ para ayudarle.
Transporte gratuito hacia y desde el Centro de Convenciones IFEMA.

Página internet de la FMH para reservaciones de hotel

La manera más fácil y segura de completar su reservación es a través de nuestro sistema de reservación en línea. Sírvase notar que solamente se aceptan pagos con tarjetas de crédito (Visa o MasterCard) en línea. Los hoteles estarán disponibles hasta el 22 de marzo de 2024 (o hasta agotarse los bloques de habitaciones reservadas). Después del 22 de marzo de 2024 las habitaciones de hotel estarán sujetas a disponibilidad y las tarifas no podrán garantizarse. Para verificar la disponibilidad después del 22 de marzo de 20204 escriba a [email protected].

Reservaciones grupales

Una reservación grupal consiste en diez o más habitaciones. Será necesario designar a una persona como contacto, para fungir como coordinadora del grupo y hacerse responsable de toda la correspon-dencia con la gerencia de alojamiento de la FMH.

Si deseara reservar diez habitaciones o más consulte la lista de hoteles para elegir el de su preferencia, descargue y complete el Formulario de solicitud de reservación grupal, especifique el número de habitaciones requeridas por día y devuelva el formulario completado por correo electrónico a [email protected]. No envíe el formulario directamente al hotel.

La Oficina de alojamiento de la FMH responderá a su solicitud dentro de un plazo de tres (3) días. Sírvase notar que los bloques de habitaciones se asignarán conforme se reciban las solicitudes.

Pago

El depósito requerido puede hacerse mediante tarjeta de crédito (Visa o Mastercard) o transferencia bancaria. A partir del 1^o de marzo de 2024 solo se aceptarán pagos con tarjeta de crédito. Cualquier pregunta o solicitud de información adicional, modificaciones o cancelaciones de las reservaciones de habitaciones deberán dirigirse por escrito a la Oficina de alojamiento de la FMH. Agradeceremos que no se comunique directamente con el hotel.

1. Pago con tarjeta de crédito: La Oficina de alojamiento de la FMH cargará a su tarjeta de crédito un depósito equivalente a una (1) noche de toda su estancia. Este depósito no es reembolsable. Cincuenta (50) días antes el evento (1^o de marzo de 2024) se cargará el saldo de su estancia completa. Las reservaciones de habitaciones se confirmarán una vez que la Oficina de alojamiento de la FMH haya recibido su solicitud de reservación completada con un número de tarjeta de crédito válida.
2. Transferencia bancariaire: Si no pudiera proporcionar una garantía con tarjeta de crédito (Visa o Mastercard), complete la reservación usando la herramienta de reservación en línea y seleccione transferencia bancaria como método de pago. Se le facturará un depósito equivalente al cien por ciento (100%) del costo total de su alojamiento, en dólares estadounidenses. No se confirmará su reservación de hotel a menos que se reciba el pago dentro de los siete (7) días hábiles siguientes a la recepción de la factura. No procese la transferencia bancaria hasta recibir su factura. Puede consultar la información de nuestra cuenta bancaria en dólares estadounidenses aquí.

Confirmación

Se le enviará un correo electrónico de confirmación dentro de las 48 horas siguientes a su solicitud de reservación. La confirmación indicará el nombre y la dirección del hotel, así como el costo por noche. No se comunique con el hotel directamente ya que todas las reservaciones se manejarán a través de la Oficina de alojamiento de la FMH.

Cambios y cancelaciones

Cualquier cambio o cancelación de su reservación deberá enviarse por escrito a [email protected]. Le haremos llegar una confirmación del cambio o la cancelación de la reservación. Todas las solicitudes estarán sujetas a las siguientes condiciones:

No se permiten cambios de nombre.
Si su reservación estuviera totalmente prepagada, las solicitudes de cancelación deberán recibirse a más tardar el 1^o de marzo de 2024.
Se emitirá un reembolso menos un cargo administrativo equivalente a una noche de alojamiento.
En caso de cancelaciones recibidas después del 1^o de marzo de 2024 no se otorgarán reembolsos.
Si únicamente hubiera pagado el depósito de una noche, este depósito no es reembolsable.
Si necesitara dejar el hotel antes de lo previsto no se otorgarán reembolsos.
Todos los reembolsos (de ser pertinentes) se procesarán dentro de los 30 días posteriores al evento.

Reservaciones de hotel fuera del periodo de inscripción

Solicitamos a todos los asistentes que se inscriban y reserven sus habitaciones de hotel al mismo tiempo, usando el enlace para la inscripción en línea. Esto garantizará que su inscripción al evento quede vinculada a su reservación de hotel. También garantizará que usted reciba la mejor tarifa negociada para su habitación. Quienes no puedan inscribirse al Congreso en este momento, pero aun así quisieran reservar sus habitaciones de hotel pueden escribir a [email protected].

Preguntas sobre alojamiento

Dirija todas sus preguntas sobre alojamiento a la siguiente dirección:

Oficina de alojamiento de la FMH
1425, boul. René-Lévesque Ouest, Bureau 1200
Montréal, Québec H3G 1T7 Canada
Tel: +1 (514) 394-2834
Fax: +1 (514) 875-8916
Correo-e: [email protected]

SALA DE TRATAMIENTO

Una sala de tratamiento estará disponible para todos los participantes en el Congreso Mundial 2024 de la FMH. Para obtener detalles sobre el tratamiento médico en España, llevar su propio factor, la sala de tratamiento del congreso y más, consulte a continuación.

Tratamiento médico mientras visita España

Se proporciona la siguiente información a fin de ayudarle a planificar su viaje a España:

El tratamiento médico gratuito generalmente NO está disponible para personas extranjeras que visitan España.
Se recomienda que adquiera un seguro de viaje personal para su visita a España, a fin de cubrir atención y tratamiento médicos de emergencia en caso de cualquier otra enfermedad o accidente que pudiera presentarse, incluso si no pudiera obtener un seguro para su(s) trastorno(s) médicos preexistentes.
En general, debería traer consigo una cantidad suficiente de factor de coagulación para el tratamiento de su hemofilia durante la totalidad de su estancia.
Si fuera a viajar a diferentes partes de España antes o después del Congreso Mundial 2024 de la FMH, sírvase notar que los concentrados de factor para una emergencia en España podrían encontrarse solamente en los hospitales más grandes. En la página internet de la organización anfitriona, la Federación Española de Hemofilia (Fedhemo), encontrará una lista de los centros de tratamiento de hemofilia en España: (haga clic aquí para más información).
Se habilitará una sala de tratamiento, con concentrados de factor donados, durante la totalidad del Congreso Mundial 2024 de la FMH.

Llevar consigo su factor de coagulación y otros medicamentos a España

Usted puede llevar consigo a España una provisión de medicamentos recetados para su uso personal sin necesidad de un permiso, siempre y cuando sean de preparación y fabricación comercial. Esto abarca sus medicamentos recetados y concentrados de factor habituales.

CONSEJOS ÚTILES PARA TODOS LOS MEDICAMENTOS Y PRODUCTOS DE CONCENTRADOS DE FACTOR

Mantenga el medicamento en su empaque original con la etiqueta del producto visible.
Asegúrese de llevar con usted una carta de su médico, escrita en inglés, explicando que necesita estos medicamentos y/o concentrados de factor de coagulación para su trastorno médico y que se le ha recetado una provisión de menos de tres meses para llevarla consigo a España. La carta de su médico debería indicar si usted necesita llevar consigo agujas o jeringas, además de los dispositivos de administración proporcionados por el fabricante de los medicamentos. Puede utilizar nuestra carta de ejemplo, aquí.
Declare sus medicamentos en la aduana de España y presente la carta de su médico al ingresar a España.
Se recomienda que lleve sus medicamentos en su equipaje de mano, y no en el equipaje registrado.
Es su responsabilidad empacar sus medicamentos y concentrados de factor de manera que cumplan con las recomendaciones de los fabricantes para el control de temperatura, y verificar que su empaque en frío cumpla con los requisitos de seguridad de la aerolínea.

Información general sobre la sala de tratamiento

Se habilitará una sala de tratamiento de hemofilia/hemorragias durante todo el Congreso IFEMA Madrid, en el nivel 2, salón de reuniones Colón, Centro de Convenciones Norte, cercano al salón de plenarias y a los salones de todas las sesiones. Habrá médicos y enfermeras especializados disponibles para valorar situaciones de emergencia y semiurgentes relacionadas con su trastorno de la coagulación y para proporcionar ayuda con las infusiones. Habrá fisioterapeutas disponibles en el mismo lugar, en horarios designados, del 20 al 25 de abril, para ofrecer tratamiento adecuado y asesoramiento a pacientes que presenten un episodio hemorrágico agudo o subagudo. Los voluntarios ayudarán a los delegados a llegar a la sala de tratamiento desde el escritorio de la sala de tratamiento ubicado en el vestíbulo de la sala de exposiciones. Un número limitado de scooters, sillas de ruedas, muletas y andaderas estarán disponibles, previa solicitud.

Horario de funcionamiento

Congreso y servicio AMGA IFEMA Madrid: Salón de reuniones Colón, 2^o piso, Centro de Convenciones Norte
Sábado 20 de abril	Enfermería	14:00 a 18:00
Domingo 21 de abril	Enfermería y fisioterapia	8:00 a 18:00
Lunes 22 de abril	Enfermería y fisioterapia	8:00 a 18:00
Martes 23 de abril	Enfermería y fisioterapia	8:00 a 18:00
Miércoles 24 de abril	Enfermería y fisioterapia	8:00 a 18:00
Jueves 25 de abril	Enfermería	8:00 a 14:00

Servicios de emergencia para incidentes tanto hemorrágicos como no hemorrágicos fuera del horario de funcionamiento de la sala de tratamiento

Para problemas graves, por favor, comuníquese con el Hospital Universitario La Paz.

Hospital Universitario La Paz
Paseo de la Castellana, 261, Madrid
Servicios de urgencia las 24 horas.
Tel.: 91 727 7339

Nota: Si la emergencia estuviera relacionada con un trastorno de la coagulación asegúrese de mencionar esto al llamar o llegar al hospital.

Hematología y hemoterapia
8:00 a. m. a 14:30 p. m.
Tel.: 91 727 7225

Otros problemas médicos NO relacionados con un trastorno de la coagulación

Si su problema médico no estuviera relacionado con su trastorno de la coagulación se sugiere comunicarse con un médico a través de su hotel/alojamiento.

Atención médica y emergencias en IFEMA Madrid

IFEMA Madrid ofrece una zona exclusiva, ubicada en el primer piso, entre los salones 7 y 9, para asistencia médica y emergencias. Para cualquier consulta o asistencia puede comunicarse al 91 722 5400. Esta línea de atención opera 24/7 y funciona como punto centralizado para todas las acciones y consultas relevantes.

Centros de tratamiento de hemofilia en España

Para obtener la lista de centros de tratamiento de hemofilia en España visite la página internet de la Federación Española de Hemofilia (Fedhemo) aquí.

¿Lo sabía usted?

El Congreso Mundial 2024 de la FMH se asegura de que todo el personal de los proveedores de servicios para el evento haya recibido capacitación para su concientización sobre la hemofilia. Esto es parte de nuestro esfuerzo por garantizar que todos los asistentes tengan una experiencia agradable y segura durante el Congreso.

PREGUNTAS FRECUENTES SOBRE ALOJAMIENTO

¿Por qué reservar a través de la Oficina de alojamiento de la FMH?

Reservar a través de la Oficina de alojamiento de la FMH le ofrece muchas ventajas, entre ellas las siguientes:

Tarifas preferenciales garantizadas en los hoteles designados como parte del Congreso Mundial 2024 de la FMH.
Sin cargos por reservación ni costos sorpresivos, ya que todas las tarifas incluyen acceso a internet e impuestos.
Transacciones de reservación seguras y protegidas.
Dirección de correo electrónico exclusiva y personal in situ para ayudarle.
Transporte gratuito hacia y desde el Centro de Convenciones IFEMA.

¿Cómo reservo y pago mi habitación de hotel?

La inscripción y el alojamiento deben realizarse simultáneamente usando el enlace para la inscripción en línea. Para confirmar su reservación se cargará un depósito equivalente a una noche de alojamiento. Este depósito puede realizarse mediante tarjeta de crédito (Visa o Mastercard) o transferencia bancaria. Si necesitara cancelar se cobrará el equivalente a una noche de alojamiento. Para reservaciones de diez habitaciones o más escriba a [email protected].

¿Me comunico directamente con el hotel para nuevas reservaciones o para cambios a reservaciones existentes?

La Oficina de alojamiento de la FMH es la única agencia oficial del Congreso Mundial 2024 de la FMH, de modo que las habitaciones deben reservarse directamente a través de esta oficina. No se comunique directamente con el hotel para hacer reservaciones o cambios a su reservación. Para solicitudes o cambios escriba a [email protected].

Tengo una pregunta específica sobre el hotel, ¿puedo comunicarme directamente con el hotel o debería comunicarme con la Oficina de alojamiento de la FMH?

Para cualquier pregunta sobre el hotel en general o para su reservación de hotel escriba a la Oficina de alojamiento de la FMH a [email protected].

Llamé al hotel y no tienen ningún registro de mi reservación. ¿Qué debería hacer?

Las reservaciones las retendrá la FMH hasta el 1o de abril de 2024. Después de esa fecha se enviará la lista de nombres a los hoteles.

¿Ofrece alguno de los hoteles cuartos para fumadores?

Todos los hoteles seleccionados para el Congreso de la FMH son inmuebles exclusivamente para no fumadores.

¿Alguno de los hoteles de la FMH tiene facilidad de acceso?

Todos los hoteles seleccionados por la FMH ofrecen facilidad de acceso.

¿Puedo reservar con llegada temprana o salida tardía?

Puede solicitar llegada temprana y/o salida tardía y los hoteles harán todo lo posible por satisfacer su solicitud. Para llegadas tempranas o salidas tardías garantizadas se cobrará una noche de hospedaje adicional.

¿Qué pasaría si se cancelara el Congreso Mundial 2024 de la FMH?

Su reservación sería reembolsable al 100% en caso de que el Congreso se cancelara debido a la COVID-19 o a otra circunstancia inevitable. Esto solo se aplica a reservaciones de habitaciones realizadas directamente a través de la Oficina de alojamiento de la FMH. Si hubiera reservado su habitación con otro agente o plataforma no se aplicará está política de cancelación.

SERVICIO DE TRANSPORTE

La FMH proporcionará servicio de transporte entre los hoteles oficiales del Congreso y el Centro de Convenciones IFEMA durante los días del Congreso (21 al 24 de abril). La transportación estará disponible para los hoteles Meliá Castilla, Hotel H10 y RIU Plaza España. El transporte saldrá aproximadamente cada treinta minutos y realizará viajes de ida y vuelta continuos durante la mañana y el final de la tarde. Habrá letreros del Congreso 2024 de la FMH colocados en todos los lugares de abordaje identificándolos como sitios de ascenso y descenso para el transporte de la FMH.

Si necesitara transporte que cumpla con lo dispuesto por la ley ADA escriba a [email protected].

VIAJE

La FMH exhorta a todos los delegados a viajar al Congreso de la manera más sustentable posible. Tome en cuenta sus opciones:

¿Le interesa saber más sobre el impacto ambiental de su viaje al Congreso? ¡use nuestra calculadora de emisiones de carbono ahora!

Llegar en avión

El principal aeropuerto de Madrid es el Adolfo Suárez Madrid–Barajas. Para obtener más información sobre este aeropuerto consulte su página internet aquí.

LA AEROLÍNEA OFICIAL DEL CONGRESO ES IBERIA

Nos complace ofrecerle el siguiente descuento:
Código de descuento: WFHMAD2024

El código de descuento se introduce en la última página del proceso de reserva.

Vea arriba un ejemplo de la ventana de descuento

Descuento

10% de descuento sobre el precio final (impuestos incluidos)

Validez

Compras en www.iberia.com, en cualquier vuelo operado por Iberia / Iberia Express o Iberia Regional AirNostrum.

Fecha de compra

Hasta el 24 de abril de 2024

Fechas de vuelos entrantes

Del 16 de abril de 2024 al 24 de abril de 2024

Fechas de los vuelos salientes

Del 21 de abril de 2024 al 30 de abril de 2024

Descuentos atractivos, hasta -15%, en una amplia variedad de tarifas públicas en todos los vuelos de AIR FRANCE, KLM y sus vuelos compartidos en todo el mundo.

Evento

Congreso Mundial 2024 de la FMH

Código ID

41061AF

Periodo de validez del viaje

14 de abril de 2024 a 1 de mayo de 2024

Lugar del evento

Madrid, España

Para reservar, visite:
https://globalmeetings.airfranceklm.com/Search/promoDefault.aspx?vendor=AFR&promocode=41061AF

Trasladarse a la ciudad desde los aeropuertos

metro

La línea 8 (rosa) del Metro le permite trasladarse desde las cuatro terminales aeroportuarias hasta el centro de la ciudad (estación Nuevos Ministerios) en menos de media hora.

autobús

La línea 200, que opera desde las 6:00 a. m. hasta las 11:30 p. m., y pasa por todas las terminales, le llevará hasta la estación Avenida América, en media hora, por €1.50. Desde esta estación puede conectarse con otras líneas del metro.

tren

La forma más rápida de trasladarse del aeropuerto de Madrid al centro de la ciudad es tomar el tren C1, que cuesta €2.60, más medio euro por la tarjeta de viaje.

Llegar en tren

Los trenes de alta velocidad (AVE) llegan a las estaciones Atocha y Chamartín de Madrid desde muchas ciudades de España y Europa. Para obtener más información consulte los siguientes recursos:

Trenes internacionales:

Renfe

Trenes nacionales:

Ouigo
Iryo

Transporte público en Madrid

El transporte público en la ciudad de Madrid abarca el metro, el metro ligero, autobuses y trenes suburbanos. Haga clic aquí para consultar la página relacionada con el transporte público en Madrid.

Vehículos privados

Uber, Cabify y taxis normales están disponibles en Madrid.

Restricciones de viaje relacionadas con la COVID-19

Actualmente no hay restricciones de viaje hacia España o dentro del país relacionadas con la COVID-19. No obstante, para evitar problemas relacionados con cualquier cambio en la situación epidemiológica consulte aquí página internet oficial del gobierno español sobre las restricciones relativas a la COVID-19.

MADRID EN RESUMEN

Transportación

Mapas y guías

Documentos de viaje

Salud y emergencias

Qué hacer en Madrid

Dinero en Madrid

MADRID

Clima

Información sobre el coronavirus

MADRID

Transportación

Qué hacer en Madrid

Mapas y guías

Dinero en Madrid

Documentos de viaje

Clima

Salud y emergencias

Información sobre el coronavirus

MADRID

Transportación

Qué hacer en Madrid

Mapas y guías

Dinero en Madrid

Documentos de viaje

Clima

Salud y emergencias

Información sobre el coronavirus

¿Tiene problemas para acceder a los enlaces anteriores? Para obtener una versión en PDF (sólo en inglés), pulse aquí. Si desea información más detallada sobre viajes, visite www.turismomadrid.es/en/.

REQUISITOS DE VISA

Antes de planear su viaje a Madrid asegúrese de contar con todos los documentos de viaje adecuados. Sírvase notar que el pasaporte que detente determina si necesitará o no una visa para viajar a Madrid.

España es miembro del Acuerdo de Schengen, de modo que visitantes de cualquiera de los estados miembros del Acuerdo de Schengen gozan de libre movimiento y no hay control de fronteras. Si este no fuera su caso, sencillamente solicite una visa de turista a la Embajada de España en su país de residencia. Para mayores detalles visite la página internet de información sobre visas del gobierno español.

Carta de invitación con fines de visa

Para solicitar su carta de invitación con fines de visa escriba a [email protected].

Premios a los hermanamientos del año

2022	Ammán (Jordania) – Dublín (Irlanda)
2021	Addis Abeba (Etiopía) – Minneapolis (EE.UU.) y Teherán (Irán) – Milán (Italia)
2020	Aluva (India) – Newcastle (Reino Unido)
2019	Yogyakarta / Solo (Indonesia) – Utrecht (Países Bajos)
2018	Abidjan (Costa de Marfil) – Bruselas (Bélgica)
2017	Santa Cruz de la Sierra (Bolivia) – Buenos Aires (Argentina)
2016	Kampala (Uganda) – Londres (Reino Unido)
2015	Varna (Bulgaria) – Bonn (Alemania)
2014	Arequipa (Perú) – Los Ángeles (Estados Unidos)
2013	Davangere (India) – Liverpool (Reino Unido) Ludhiana (India) – Detroit (Estados Unidos)
2012	Hanói (Vietnam) – Melbourne (Australia)
2011	Manado (Indonesia) – Utrecht (Países Bajos)
2010	Delhi (India) – Winnipeg (Canadá) Yaoundé (Camerún) – Ginebra (Suiza)
2009	Chisinau (Moldovia) – Varsovia (Polonia) Colombo (Sri Lanka) – Vellore (India)
2008	Gaborone (Botswana) – Filadelfia (Estados Unidos)
2007	Vientiane (Laos) – Brest (Francia) Damasco (Siria) – Montpellier (Francia)
2006	Lima (Perú) – Fort Worth (Estados Unidos)
2005	Ereván (Armenia) – Minneapolis (Estados Unidos) Casablanca (Marruecos) – Caen (Francia)
2004	Beirut (Líbano) – Ginebra (Suiza) Santo Domingo (República Dominicana) – Caracas (Venezuela)
2003	El Cairo (Egipto) – Knoxville (Estados Unidos)
2002	Moscú (Rusia) – Liverpool (Reino Unido) Panamá – Valencia (España)
2001	Bangalore (India) – St. Louis (Estados Unidos)
2000	Pune (India) – Bradford (Reino Unido)
1999	Montevideo (Uruguay) – Buenos Aires (Argentina) Tianjin (China) – Calgary (Canadá)
1998	Plovdiv (Bulgaria) – Bonn (Alemania)
1997	Bogotá (Colombia) – Los Ángeles (Estados Unidos) Tartu (Estonia) – Estocolmo (Suecia)
1996	Timisoara (Rumanía) – Múnich (Alemania) Riga (Letonia) – Munster (Alemania)
1995	Klaipeda (Lituania) – Malmo (Suecia)
1994	Bratislava (Eslovaquia) – Tel Hashomer (Israel)

Premio Henri Horoszowski

2021	Baolai Hua Yangzhou College, Xuzhou Medical University	The effects of intra-articular injection of TNF-alpha Antagonists in treatment of haemophilic synovitis
2019	Maarten Eerdekens Bélgica	Asociación entre la cinética multisegmento del pie y el daño articular inducido por la sangre en pacientes adultos con artropatía hemofílica del tobillo
2017	Fabio Souza Brasil	Decrease in joint inflammation, swelling and pain after a swimming protocol in animal model of experimental-induced hemarthrosis
2015	SM Javd Mortazavi Irán	Bilateral total knee arthroplasty in patients with hemophilia: A safe and cost-effective procedure
2013	Lize F.D. van Vulpen Estados Unidos	Una proteína de fusión de IL4 e IL10 es igualmente eficaz para proteger el cartílago del daño inducido por la sangre en comparación con los componentes
2012	Horacio Caviglia Argentina	Cirugía de pseudotumor en pacientes con hemofilia A: resultados comparativos entre pacientes inhibidores y no inhibidores
2011	Nick Goddard Reino Unido y Monique van Meegeren Países Bajos	La administración temprana de IL-4 e IL-10 previene el daño del cartílago inducido por la sangre in vitro
2010	Lydia Abad-Franch España	Influencia de un protocolo de entrenamiento acuático en la reducción del riesgo de morbilidad y mortalidad cardiovascular en un hemofílico
2009	Sebastien Lobet Bélgica	Impacto de la artropatía del tobillo con hemofilia en la discapacidad de la marcha: análisis de variables energéticas y mecánicas
2008	Jose Alberto Tlacuilo-Parra México	Marcadores de rotación ósea y densidad mineral ósea en niños con hemofilia
2007	Natalie Jansen Países Bajos	Capacidades protectoras de la interleucina-10 en el daño del cartílago inducido por la sangre
2006	Axel Seuser y E. Kusch Alemania	Estudio multicéntrico del resultado ortopédico de las extremidades inferiores en 249 niños con hemofilia
2005	Frank van Genderen, Nico van Meeteren, Lily Heijnen, Piet de Kleijn, Marijke van den Berg, Paul Helders Países Bajos	Lista de actividades para la hemofilia: desarrollo final y validación de un cuestionario de autoevaluación específico para hemofilia sobre las capacidades funcionales
2004	Goris Roosendaal, Zalima N Jahangier, Kim MG Jacobs, Johannes WJ Bijlsma, Floris PJG Lafeber Países Bajos	La radiosinoviortesis con YTTRIUM-90 da como resultado efectos directos adversos sobre el cartílago: un estudio in vitro en humanos
2003	Axel Seuser, Thomas Wallny, Günter Schumpe, Elmar Trunz, Hans-Hermann Brackman Alemania	¿Cómo aconsejar a los jóvenes hemofílicos que encuentren el deporte adecuado? Un algoritmo nuevo y seguro
2002	James Luck, Jr. y Mauricio Silva Estados Unidos	Revisión a largo plazo de la artroplastia total de rodilla
2001	Federico Fernández-Palazzi Venezuela	Clorhidrato de oxitetraciclina: un nuevo material para las órtesis sinoviales químicas
2000	Horacio Caviglia Argentina	Pseudotumores
1999	William J. Ribbans y J.L. Hicks Reino Unido	Comunicación y cooperación para el nuevo milenio: el futuro del comité musculoesquelético en el siglo XXI
1998	Adolfo Llinas, Mauricio Silva, Monica Duarte, Gonzalo Ucros, Graciela Perini, Angela Maria Cerquera, Andres Forero Colombia	La sinoviortesis de fosfato crómico sin restricción de edad debería ser la primera opción de tratamiento para la sinovitis hemofílica activa crónica

2023	Nicholas Goddard Reino Unido
2021	Axel Seuser Alemania
2019	Dr. Adolfo Llinás Colombia
2017	Pamela Hilliard Canadá
2015	Kathy Mulder Canadá
2013	James Luck Estados Unidos
2012	Piet de Kleijn Países Bajos
2011	Dr. Lily Heijnen Países Bajos
2010	Dr. Horacio Caviglia Argentina
2009	Jerome D. Wiedel Estados Unidos
2008	Dr. Federico Fernández-Palazzi Venezuela
2007	Michael Heim Israel
2006	Brenda Buzzard Reino Unido
2005	Dr. Marvin Gilbert Estados Unidos

Política de privacidad de las plataformas digitales de la FMH

INTRODUCTION

1.

PURPOSE

2.

SCOPE

3.

DEFINITION OF "PERSONAL INFORMATION"

4.

RESPONSIBILITIES OF WFH

5.

HOW DO WE COLLECT YOUR CONSENT?

6.

WHY WE COLLECT PERSONAL INFORMATION

7.

WHAT PERSONAL INFORMATION DO WE COLLECT?

8.

USE OF COOKIES

9.

RESPONSES TO JOB OFFERS

10.

PROTECTION OF THE PRIVACY OF MINORS

11.

DO WE DISCLOSE YOUR PERSONAL INFORMATION TO THIRD PARTIES?

12.

SHARING PERSONAL INFORMATION OUTSIDE QUÉBEC

13.

HOW DO WE PROTECT YOUR PERSONAL INFORMATION?

14.

RETENTION AND DESTRUCTION OF PERSONAL INFORMATION

15.

ACCESSING, CORRECTING, DE-INDEXING AND PORTABILITY OF YOUR PERSONAL INFORMATION

16.

WITHDRAWING YOUR CONSENT

17.

CHANGES TO OUR PRIVACY POLICY

18.

CONTACT DETAILS FOR THE PRIVACY OFFICER

APPENDIX A

APPENDIX A

Condiciones de uso de las plataformas digitales de la FMH

MADRID, ESPAÑA 21‑24 ABRIL 2024

Viaje y alojamiento

ALOJAMIENTO

¡Alerta de estafas! Tenga cuidado con empresas de alojamiento no autorizadas

Hoteles oficiales del Congreso Mundial 2024 de la FMH

Hotel H10 Tribeca ‑ Agotado

$188 USD

Novotel Madrid Center ‑ Agotado

$199 USD

RIU Plaza España ‑ Agotado

$278 USD

Meliá Castilla ‑ Agotado

$302 USD

Novotel Madrid Campo de las Naciones ‑ Agotado

$337 USD

Pullman Madrid Airport & Feria ‑ Agotado

$350 USD

Hotel H10 Tribeca

20 minutos con el servicio de transporte

Novotel Madrid Center

20 minutos con el servicio de transporte

RIU Plaza España

20 minutos con el servicio de transporte

AC Hotel by Marriott Cuzco

20 minutos con el servicio de transporte

Meliá Castilla

20 minutos con el servicio de transporte

Novotel Madrid Campo de las Naciones

10 minutos caminando

Pullman Madrid Airport & Feria

10 minutos caminando

HACER SU RESERVACIÓN

¿Por qué reservar a través de la Oficina de alojamiento de la FMH?

Página internet de la FMH para reservaciones de hotel

SALA DE TRATAMIENTO

Horario de funcionamiento

¿Lo sabía usted?

PREGUNTAS FRECUENTES SOBRE ALOJAMIENTO

SERVICIO DE TRANSPORTE