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Nuestros Comités

La FMH agradece a los muchos voluntarios que dedican su tiempo y experiencia al trabajo en nuestros comités, cada uno de los cuales se enfoca en un aspecto particular del tratamiento y la atención de la hemofilia y otros trastornos de la coagulación hereditarios.

Trabajamos en colaboración con proveedores de atención médica (PAM), gobiernos y nuestra red mundial de organizaciones nacionales miembros (ONM) en 152 países. Proporcionamos a nuestras ONM y PAM las herramientas necesarias para identificar, apoyar y administrar tratamiento a personas con trastornos de la coagulación en sus comunidades, a la vez que promovemos labores de cabildeo y colaboración a escala mundial, con el propósito de lograr nuestras metas comunes.

¿Sabía usted que…?

La FMH monitorea estrechamente la seguridad y el suministro de productos de tratamiento, así como el acceso a los mismos; emite notificaciones relacionadas con la seguridad y el suministro de productos de tratamiento; y monitorea los avances y la situación reglamentaria de tratamientos nuevos y novedosos.

Manténgase informado(a)

Manténgase al tanto de los acontecimientos más recientes en la comunidad de trastornos de la coagulación, desde avances médicos hasta eventos relevantes.

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.