Voices of WFH PACT Advocacy Academy graduates: Nibia Gómez shares learnings and experience

Voices of WFH PACT Advocacy Academy graduates: Nibia Gómez shares learnings and experience

For Nibia Gómez, member of the Board of Directors of the Hemophilia Association of Uruguay, advocacy is rooted in both love and responsibility. As the mother of two young men with hemophilia B and a member of the board of directors of the Hemophilia Association of Uruguay—a WFH national member organization (NMO)—she has long been dedicated to supporting the bleeding disorders community. When she joined the World Federation of Hemophilia (WFH) Path to Access to Care and Treatment (PACT) Advocacy Academy, her goal was to strengthen her skills and better serve the people in her community. The Academy provides NMO leaders and advocates with the necessary knowledge and skills to carry out successful evidence-based advocacy campaigns, along with foundational knowledge in treatment options, standards of care and health economics.

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For Nibia, one of the most valuable learnings she acquired from the WFH PACT Advocacy Academy course was to develop well-structured advocacy plans to guide discussions with decision-makers. She also appreciated the elevator pitch training, which strengthened her ability to communicate key messages in a concise and confident manner.

Working with a teammate, she developed an advocacy project aimed at improving the quality of life and care for adults with bleeding disorders, particularly older adults. One of her main challenges during the project was obtaining support from government representatives and hemophilia treatment centres; and also securing the financial resources required to sustain the initiative. The project groundwork is currently in progress and plans for its launch are advancing.

Nibia’s PACT Advocacy Academy experience has strengthened her confidence in preparing and presenting projects and has helped her define objectives more clearly. It also marked an important milestone: her first formal meeting with parliamentary authorities in Uruguay—an engagement she regarded as constructive and encouraging.

Looking ahead, she hopes to see the project implemented in the medium term, and to inspire similar initiatives that will benefit the community. She encourages future participants to take advantage of the opportunity to engage in the Academy, noting that it is a meaningful and valuable learning experience. For her, the guiding principle moving forward is to continue learning and progressing. As she puts it, to “Learn and move forward.”

To find out more about the WFH PACT Program, click here.

The PACT Program is supported by funding from Roche and Sanofi, our visionary partners; CSL Behring and Pfizer, our leadership partners.

This story is part of a series about leaders and advocates who are making an impact in the world through their involvement in the WFH Path to Access to Care and Treatment (PACT) Advocacy Academy, and their advocacy for the community. To read other stories from this series, see the table below:

PACT Advocacy Academy member

Country

Story link

Tahani Ali, MD

Syria

Click here

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