Stewardship-article-header

Resilience shines through pandemic uncertainty

Together, we can impact the lives of people living with bleeding disorders worldwide in ways that would not be possible if we acted alone. Over the last year, our partners, donors, and members have recognized the value of empowering patient organizations and healthcare providers and fostering global collaboration to ensure more people living with inherited bleeding disorders get the support they need.

Also available in: Français Español

 

We are grateful for their shared commitment to creating a world in which all people living with inherited bleeding disorders have access to care, regardless of their type of disorder, their gender, or where they live.

Our long-term commitment to building the capacity of our member organizations and providing tools that improve access to care is only possible because of the consistent support of our partners, donors, and members. Thanks to their unwavering assistance, we have made tremendous inroads over the last several months:

These achievements all contribute to the progress that is being driven by our national member organizations (NMOs) in the world. The transformational change that is taking place in these countries is not always immediate, but it is extremely powerful. There are many success stories we can share that prove that we are making a difference. For example, over the course of 16 years, the Hemophilia Foundation of Nigeria went from sending blood samples to Britain for analysis to having the Nigerian government include inherited bleeding disorders in its national policy and strategic plan. That kind of progress continues in Nigeria and many other countries around the world. In the last three years, the Hemophilia Society of Bangladesh, with support from the WFH and its valued partners, donors and members succeeded in:

  • Diagnosing over 550 people with inherited bleeding disorders
  • Obtaining government funding for the purchase of treatment products at six government hospitals
  • Opening a new hemophilia treatment centre, with plans for two more
  • Securing government’s commitment to improve diagnosis, treatment, and care for people with bleeding disorders through a signed memorandum of understanding (MoU) with the Directorate General of Health Services and the WFH

“As you get involved in giving, there is a joy that leads you to becoming a more generous person in all aspects of your life.”

- Eric Stolte, WFH USA President

Our investments are having an impact today and will continue to transform lives for generations to come.

It is not too late to support transformational change for the bleeding disorders community. To learn about other ways to contribute to our work and stay connected to the global community, click here.

We’ve accomplished a lot this year, we need your help to continue strong.

Would you like to read more about similar articles?

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.