We are grateful for their shared commitment to creating a world in which all people living with inherited bleeding disorders have access to care, regardless of their type of disorder, their gender, or where they live.
Our long-term commitment to building the capacity of our member organizations and providing tools that improve access to care is only possible because of the consistent support of our partners, donors, and members. Thanks to their unwavering assistance, we have made tremendous inroads over the last several months:
- We celebrated the milestone of distributing one billion IUs of factor along with non-factor replacement therapy through the WFH Humanitarian Aid Program
- We announced the launch of the WFH Advocacy Academy, an eight-month virtual course—developed in partnership with the New York University Wagner Graduate School of Public Service—to build the advocacy skills of national member organization (NMO) leaders and advocates
- We are supporting more comprehensive and powerful evidence-based advocacy through the World Bleeding Disorders Registry (WBDR), which is on track to reach the milestone of 10,000 people with hemophilia enrolled—one year ahead of schedule!
- We amplified the voices of women and girls at our second global summit by giving them a space to share their journey through video and art, and using practical toolkits to empower participants to seek better care and safe treatment
These achievements all contribute to the progress that is being driven by our national member organizations (NMOs) in the world. The transformational change that is taking place in these countries is not always immediate, but it is extremely powerful. There are many success stories we can share that prove that we are making a difference. For example, over the course of 16 years, the Hemophilia Foundation of Nigeria went from sending blood samples to Britain for analysis to having the Nigerian government include inherited bleeding disorders in its national policy and strategic plan. That kind of progress continues in Nigeria and many other countries around the world. In the last three years, the Hemophilia Society of Bangladesh, with support from the WFH and its valued partners, donors and members succeeded in:
- Diagnosing over 550 people with inherited bleeding disorders
- Obtaining government funding for the purchase of treatment products at six government hospitals
- Opening a new hemophilia treatment centre, with plans for two more
- Securing government’s commitment to improve diagnosis, treatment, and care for people with bleeding disorders through a signed memorandum of understanding (MoU) with the Directorate General of Health Services and the WFH
“As you get involved in giving, there is a joy that leads you to becoming a more generous person in all aspects of your life.”
- Eric Stolte, WFH USA President
Our investments are having an impact today and will continue to transform lives for generations to come.
It is not too late to support transformational change for the bleeding disorders community. To learn about other ways to contribute to our work and stay connected to the global community, click here.