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WFH launches PACT Advocacy Academy

The World Federation of Hemophilia (WFH) is proud to announce the launch of The PACT Advocacy Academy.

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The World Federation of Hemophilia (WFH) is proud to announce the launch of The PACT Advocacy Academy. This course is part of the WFH Path to Access to Care and Treatment (PACT) Program, a 5-year initiative designed to improve outreach and diagnosis and increase access to sustainable care for people with inherited bleeding disorders. The course was developed in partnership with the New York University (NYU) Wagner Graduate School of Public Service.

Taught exclusively online by renowned experts in the field of advocacy and bleeding disorders, the PACT Advocacy Academy is a unique 8-month course designed to equip WFH national member organization (NMO) advocates with the knowledge and tools they need to advocate for increased access to care and treatment in their country. Graduates of this academic course will receive a joint executive training certificate from the WFH and NYU.

The goal of the PACT Advocacy Academy is for course graduates to be conversant with foundational concepts and principles of care in bleeding disorders, and be familiar with the key elements of procurement models for therapeutic products. Students will also acquire a basic understanding of health economics concepts and health technology assessments, and the core elements of designing an advocacy campaign. Graduates will complete their studies knowing how to identify the key stakeholders involved in access to care and treatment policies in their country, how to design an advocacy project, and how to frame, brand, and communicate campaign messaging.

The course will be offered in English in 2022, with plans to offer it in other languages in 2023. The application period opened on September 9, 2021, with the on-line course beginning in February 2022. Successful applicants will be contacted to register for the course in December 2021.

For more information about the academy and how to apply, please click here.

The PACT Program is supported by funding from CSL Behring, Pfizer, Roche and Sanofi Genzyme, our leadership partners, and Biotest, Grifols, and Sobi, our collaborating partners.

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.