Adeoye Emmanuel Damilare has benefited from the support of the WFH and the Haemophilia Foundation of Nigeria (HFN), the national member organization (NMO) in Nigeria. The following is an edited version of Adeoye’s testimony.
My name is Adeoye Emmanuel Damilare, I’m a 20-year-old living with haemophilia A.
Living with hemophilia has always presented challenges, from frequent bleeds to the constant need to be cautious. Growing up, I sometimes felt different and limited, unsure how to manage the physical and emotional demands of my condition. Everything changed when I became part of the Haemophilia Foundation of Nigeria (HFN).
The HFN gave me more than just information—it gave me a community. Meeting others who live with hemophilia helped me realize I wasn’t alone. Their stories and strength encouraged me to take better care of myself and stay positive even during difficult times. Through HFN’s programs and activities, I’ve gained confidence, learned to speak openly about my condition, and I’ve become an advocate for [hemophilia] awareness.
Access to treatment has also made a huge difference in my daily life. Before, every bleed meant pain, worry, and days of recovery. Now, with timely access to factor, I can treat myself quickly and prevent serious complications. It has given me freedom and peace of mind; I can attend school, go to the gym, pursue my goals, and live more independently.
In many ways, the HFN and access to factor have transformed my life. I’ve found hope, friendship, and the courage to live beyond my diagnosis. I’m grateful for the support that continues to empower me and others living with hemophilia to live full and meaningful lives.
To find out more about the Haemophilia Foundation of Nigeria (HFN), please read “NMO profile: making a difference with the WFH in Nigeria” here.
To read about the way the WFH and NMOs collaborate to make a difference in local bleeding disorders communities, please read “National member organizations: the heartbeat of the WFH” here.