РЕГИСТРАЦИЯ

МАДРИД, ИСПАНИЯ    21‑24 АПРЕЛЯ 2024 Г.

ОРГАНИЗОВАНО:

ПРИНИМАЮЩАЯ СТОРОНА:

Регистрация открыта!

Также доступно в: English Français Español 日本語

Всемирный конгресс WFH 2024
[email protected]

ОРГАНИЗОВАНО:
Всемирная федерация гемофилии

ПРИНИМАЮЩАЯ СТОРОНА:
Federación Española de Hemofilia

Всемирная федерация гемофилии (WFH) и Испанская федерация гемофилии (Fedhemo) рады приветствовать мировое сообщество специалистов по геморрагическим заболеваниям на Всемирном конгрессе WFH 2024, который пройдет в Мадриде (Испания) с 21 по 24 апреля следующего года. Наша система онлайн-регистрации – это эффективный и безопасный способ зарегистрироваться для участия во Всемирном конгрессе WFH 2024. Пожалуйста, внимательно ознакомьтесь с информацией о регистрации и оплате, прежде чем зарегистрироваться для участия в Конгрессе.

РЕГИСТРАЦИОННЫЕ ВЗНОСЫ

Регистрационные взносы Мадрид 2024

ВСЕ ЦЕНЫ В ДОЛЛАРАХ США ЦЕНА ДЛЯ РАННИХ ПТАШЕК ОБЫЧНАЯ ЦЕНА ПОЗДНИЙ ТАРИФ ТАРИФ НА МЕСТЕ
КАТЕГОРИЯ ЗАКАНЧИВАЕТСЯ 31 ЯНВАРЯ 2024 Г. 1–29 ФЕВРАЛЯ 2024 Г. 1 МАРТА – 20 АПРЕЛЯ 2024 Г. 21 АПРЕЛЯ 2024 Г.
Делегат
(врач / отрасль)
$997 $1,169 $1,341 $1,513
PAM - профессии, смежные с медициной
(медсестра, физиотерапевт и т.д.)
$528 $655 $783 $909
Общественный защитник, сотрудник или волонтер НЧО, студент $333 $442 $551 $659
Человек, страдающий геморрагическим заболеванием, и член его семьи $182 $254 $278

* Стоимость регистрации указана в долларах США и включает НДС. Сроки регистрации истекают в полночь по восточному времени (ET).

Для получения расшифровки НДС, пожалуйста, нажмите здесь.

Указанные регистрационные взносы действительны только в том случае, если регистрационная форма и полная оплата получены в указанные сроки или ранее. В противном случае оплата будет рассматриваться как частичная оплата для следующей применимой регистрационной категории.

Во избежание ненужных задержек и для того, чтобы обеспечить наличие всех необходимых материалов, участникам настоятельно рекомендуется зарегистрироваться до начала Конгресса. Если вы должны зарегистрироваться на месте, то оплата будет производиться только кредитной картой или наличными. Индивидуальная регистрация будет открыта в течение всего Конгресса.

Оплата должна производиться только в долларах США. Принимаются следующие способы оплаты:

  • Кредитная карта. Только MasterCard и Visa. WFH не принимает к оплате карты American Express.
  • Электронный перевод средств. Пожалуйста, обратитесь по адресу [email protected], чтобы получить проформу счета на оплату с указанием запрашиваемых услуг и ваших полных контактных данных. Нажмите здесь, чтобы распечатать реквизиты банковского счета WFH.

ПРИМЕЧАНИЕ: Банковские сборы возлагаются на отправителя и должны быть оплачены у источника в дополнение к регистрационному взносу. На документах о переводе четко укажите фамилию участника и сделайте пометку «Регистрация WFH 2024». Отправьте копию по электронной почте на адрес [email protected], чтобы помочь идентифицировать платеж. Секретариат Всемирного конгресса WFH 2024 не несет ответственности за отслеживание переводов, внесенных без соответствующей идентификации.

Чтобы изменить или отменить свою регистрацию, пожалуйста, нажмите здесь.

Любая отмена регистрации должна быть направлена в письменном виде по адресу [email protected] и будет зависеть от следующих условий:

  • До пятницы, 22 марта 2024 г., будет осуществлен возврат денежных средств в размере 75% от оплаченного регистрационного взноса. После этой даты возврат средств не производится.
  • Просьбы о возврате средств, связанные с неправильной регистрационной оплатой или неправильным выбором категории, не рассматриваются.
  • Неявка рассматривается как отказ от участия в мероприятии в день его проведения и влечет за собой взимание компенсации в размере 100% от заявленной суммы.
  • Изменения имени не принимаются.

Возврат средств, если таковой применим, будет произведен не позднее, чем через месяц после окончания Конгресса.

Предупреждение о мошенничестве! Остерегайтесь неавторизованных компаний по размещению

Пожалуйста, будьте особенно бдительны в тех случаях, когда к вам обращаются не Секретариат Всемирного конгресса WFH или Бюро по размещению WFH ([email protected]), а какие-либо другие службы по размещению, заявляющие или утверждающие, что они являются «официальными провайдерами по размещению гостей» для Всемирного конгресса WFH 2024.

Бронирование через агентство, не являющееся Секретариатом Всемирного конгресса WFH или Бюро по размещению WFH, осуществляется на ваш страх и риск. Пожалуйста, сообщите нам по адресу [email protected], если к вам обратилось агентство, утверждающее, что оно представляет WFH.

ПАСПОРТ В МИР

Если вы являетесь гражданином страны с низким, ниже среднего или выше среднего уровнем дохода (по определению Всемирного банка), вы можете получить право на приобретение «Паспорта в мир» по специальной цене. При этом действуют определенные условия. Список стран, имеющих право на участие в программе, см. здесь.

Стоимость «Паспорта в мир»*

ВСЕ ЦЕНЫ В ДОЛЛАРАХ США ЦЕНА ДЛЯ РАННИХ ПТАШЕК ОБЫЧНАЯ ЦЕНА ПОЗДНИЙ ТАРИФ ТАРИФ НА МЕСТЕ
КАТЕГОРИЯ ЗАКАНЧИВАЕТСЯ 31 ЯНВАРЯ 2024 Г. 1–29 ФЕВРАЛЯ 2024 Г. 1 МАРТА – 20 АПРЕЛЯ 2024 Г. 21 АПРЕЛЯ 2024 Г.
Делегат
(врач / отрасль)
PAM - профессии, смежные с медициной
(медсестра, физиотерапевт и т.д.)
$472 $520 $557 $593
Защитник интересов сообщества, сотрудники НЧО, PWBD и члены семьи $91 $91 $127 $163

* Стоимость регистрации указана в долларах США и включает НДС. Сроки регистрации истекают в полночь по восточному времени (ET).

Для получения расшифровки НДС, пожалуйста, нажмите здесь.

РЕГИСТРАЦИЯ ГРУППЫ

Компании и организации, желающие зарегистрировать группу из десяти и более человек, должны пройти специальную процедуру групповой регистрации. Для получения формы групповой регистрации, пожалуйста, обратитесь по адресу [email protected].

Обратите внимание, что:

  • Для групп действуют те же взносы и сроки, что и для индивидуальных участников
  • Указанные регистрационные взносы действительны только в том случае, если регистрационная форма и полная оплата получены в указанные сроки или ранее. В противном случае оплата будет рассматриваться как частичная оплата для следующего соответствующего срока оплаты регистрационного взноса.
  • Координатор группы должен предоставить полную контактную информацию по каждому зарегистрированному участнику: фамилию, имя, адрес электронной почты, место работы и страну происхождения каждого участника.

Пожалуйста, сообщите нам правильный адрес электронной почты участников, чтобы мы могли выслать им оценки сессий и итоговую оценку Конгресса. Эти документы будут отправлены по электронной почте только в период проведения конгресса.

Обратите внимание: несмотря на то, что будут предприняты все усилия, чтобы проинформировать вас в случае двойной регистрации, организационный секретариат не несет ответственности за случаи двойной регистрации (когда один человек или другая группа регистрируют одного и того же участника).

Подтверждение групповых регистраций

Вся регистрационная информация будет направлена только контактному лицу группы, которое затем будет отвечать за рассылку информации каждому участнику группы. Участникам группы документация напрямую не высылается.

FIRST TIMER ATTENDEES

Join us for the WFH 2024 World Congress!

You know why you should be at the largest international meeting for the global bleeding disorders community. Now it’s time to convince your supervisor to provide you with professional and financial support.

Here are some suggestions on how to get your request approved.
Show your supervisor that:

  • The WFH World Congress is educational: Review the online program for Congress and outline the sessions that would be most beneficial to your professional growth and to your organization. Create a list of your short- and long-term goals and find the sessions that would help you achieve them. Your attendance can also earn you valuable CME credits.
  • The WFH World Congress is the most comprehensive Congress on bleeding disorders. The WFH World Congress is a key event for not only doctors and scientists—but healthcare workers, people with bleeding disorders and members of hemophilia organizations. All these stakeholders will come together to learn about the latest developments in bleeding disorders treatment and care.
  • The WFH World Congress offers unique networking opportunities. Relationships—especially ones based on face-to-face communication—are key to strong collaborations. The WFH World Congress consistently brings top leaders from the global community together. Congress is a chance for you to meet these key players!
  • Всемирный конгресс WFH предлагает отличную отдачу от инвестиций. Объясните своему руководителю, что в этом году мы предлагаем гибкую стоимость регистрации, чтобы охватить как можно больше представителей сообщества!

Все еще нуждаетесь в помощи? Посмотрите наш шаблон электронного письма «Получить одобрение!».

REGISTRATION FAQ

Q
What does my registration fee include?
A

All registration categories, include the following:

  • Access to all medical and people with bleeding disorders (PWBD) sessions
  • Access to professional development sessions
  • Participation in the industry satellite symposia (for healthcare practitioners only)
  • Entrance to the exhibition area
  • Entrance to the poster area
  • Electronic access to final program, book of abstracts, State of the Art book, and new WFH publications
  • Daily coffee breaks
  • Daily lunch
  • Access to the Opening Ceremony on April 21, 2024, from 6:00 pm to 7:00 pm
  • Certificate of attendance (by request)
Q
Is there a registration fee for accompanying person?
A

The registration fee for accompanying persons is no longer available. However, we warmly welcome guests to join us for the social events. If you are a paying Congress attendee, you have the option to purchase guest tickets for the Welcome Reception and/or Cultural Event, allowing your companions to participate.

Q
How do I change the name on my registration?
A

Registrations are non-transferable. This means no name or registration category changes are permitted. If you wish to change the name on a registration, you will need to cancel the registration and process a new one with the updated name.

Q
How do I cancel my registration?
A

Any cancellation of registration must be sent in writing to [email protected] and will be subject to the following conditions:

  • Until Friday, March 22, 2024, a refund equivalent to 75% of the paid registration fee will be granted. After this date, no refunds will be granted.
  • Requests for refunds with regards to incorrect registration payments or incorrect category selection will not be considered
  • Non-attendance will be considered as a cancellation on the day of the event and will incur a 100% cancellation fee
  • Name changes are not accepted
Q
How do I register a group?
A

Companies and organizations intending to register a group of ten people may follow a special group registration procedure. Please contact [email protected] for the group registration form.

Q
Are there awards or grants available?
A

Please refer to the Awards & Grants page for more details. Attendees from certain countries may also qualify for our Passport to the World reduced registration rates.

Q
What is the procedure for obtaining a visa?
A

Please refer to the Visa Requirements page for more information on visas. Please be sure to verify your visa requirements with your travel agent or contact your local embassy for more information. Please note the WFH is not responsible for securing or applying for your visa for travel to Spain and/or any points of transit that may require a visa.

Q
What is the procedure for Italian Pharmaceutical Companies?
A

AIFA Authorization for Italian pharmaceutical companies:
Atlante Viaggi has been appointed to manage all the legal documents required by Italian Legislative Order n.
219/2006 Art.124 comma 2:
Atlante Viaggi Italia Srl
via Bandello 1
20123 Milano
[email protected]

Q
What are the registration hours on-site?
A

On-site registration will open on April 21, 2024. The specific opening time will be provided soon.

Q
How do I get my letter of invitation?
A

Letters will only be issued to attendees who have paid for their registration in full. Please be advised that five business days are required to process visa invitation letters. Once your registration is complete, the instructions on how to receive the invitation letter can be found in your confirmation email. You can register online by clicking here.

Q
Registration for accepted abstract presenters
A

The early registration deadline is before abstract presenters will be notified of their acceptance status. If you are an accepted abstract presenter, you will qualify to register at the early registration fee. Instructions on how to receive this rate will be provided in the abstract notification letter. Note: the early registration rate is only applicable for presenting authors.

Q
How do I apply for a Passport to the World?
A

If you are a citizen of a country with a low-income, lower-middle income or upper-middle income economy (as defined by the World Bank), you may be eligible for a special Passport to the World fee. Conditions apply. See the list of eligible countries. This discount cannot be combined with any other discount and must be applied at the time of registration. The discount cannot be applied retroactively to an existing registration. Please contact [email protected] for more details.

Q
Insurance and healthcare
A

Registration fees do not include insurance of any kind. It is strongly recommended that all delegates take out their own travel and medical insurance prior to traveling to Congress. The policy should include loss of fees/deposits through cancellation of your participation in the meeting, or through cancellation of the meeting itself, loss of airfares for any reason, medical expenses, loss or damage to personal property, or additional expenses and repatriation should travel arrangements have to be altered. Neither the Congress Secretariat nor the organizing committee will take any responsibility for any participant who does not buy insurance. We recommend that you speak to your travel agent or airline to get more information before you register.

Q
Name badge policy
A

All Congress attendees and exhibitors will receive a name badge upon registration. It is mandatory to wear the badge at all times, during all events, including the networking event. The badge is necessary to access all Congress sessions and the exhibit hall. A Congress badge is non-transferable. If an attendee loses, misplaces, or forgets their name badge, a handling fee of US$50 will be charged for a replacement name badge. The lost badge becomes invalid when the new badge is issued.

We do not offer “visitor” badges. If you wish to gain entrance into IFEMA beyond any common areas, you will be required to show a badge.

Q
Families and minimum age
A

Minimum age to attend Congress is 18 years old, as per Spanish regulations. Childcare services are not provided. We recommend inquiring with your hotel if you require a private childcare service.

If your question is not answered on our FAQ section, please direct all enquiries to:

WFH 2024 World Congress Secretariat
World Federation of Hemophilia

1425, boul. René Lévesque Ouest, Bureau 1200
Montréal, Québec H3G 1T7 Canada
Tel: +1 (514) 875-7944, Extension 2819
Fax: +1 (514) 875-8916
Email: [email protected]

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.

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Hemophilia Alliance

Recognizing that training women leaders ensures the diversity our community need to thrive; the Hemophilia Alliance has been a longtime supporter of the Susan Skinner Memorial Fund. They deepened their engagement with the global community through the establishment of the Travel Grant Program, which allows US-based multidisciplinary healthcare professionals the opportunity to attend WFH global training workshops. The wealth of experience and perspective attendees bring back home to their communities helps patients across the country. Their patience and support as we grappled with changing norms in these challenging times gave us the flexibility to meet our community’s needs with revamped programming.

Israel - Tel Hashomer

Year of IHTC designation: 1993

National Hemophilia Center, Tel Hashomer
Sheba Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic surgery
  • Nursing
  • Physiotherapy
  • Dental care
  • Laboratory diagnosis (not genetics)
  • Psychology

South Africa - Johannesburg

Year of IHTC designation: 2016

Haemophilia Comprehensive Care Centre
Charlotte Maxeke Johannesburg Academic Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Physiotherapy

Singapore - Singapore

Year of IHTC designation: 2002

Singapore General Hospital Haemophilia Treatment Clinic

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis
  • Nursing
  • Dental care
  • Orthopedic care (no surgeries)
  • Physiotherapy
  • Psychology

Senegal - Dakar

Year of IHTC designation: 2016

Centre International de Traitement de l’Hémophilie (CITH) de Dakar
Centre National de Transfusion Sanguin (CNTS)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy

Russia - Moscow and St. Petersburg

Year of IHTC designation: 2010

National Medical Research Center of Hematology of the Russian Academy of Medical Sciences

Areas of Specialty

  • Adult hematology
  • Nursing
  • Orthopedic surgery

Netherlands - Utrecht

Year of IHTC designation: 1996

Van Creveldkliniek
University Medical Centre Utrecht

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hematology
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy

Japan - Nara

Year of IHTC designation: 1998

Nara Hemophilia Centre
Nara Medical University

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic care and surgery
  • Laboratory diagnosis and Molecular genetics
  • Physiotherapy

Italy - Milan

Year of IHTC designation: 1972

Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Blood banking
  • Orthopedic care and surgery
  • Physiotherapy
  • Diagnostic assessment of platelet functional defects

India - Mumbai

Year of IHTC designation: 2000

National Institute of Immunohaematology (ICMR) and KEM Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Orthopedic care
  • Physiotherapy

India - Vellore

Year of IHTC designation: 2000

Christian Medical College, Vellore

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics with antenatal diagnosis
  • Nursing
  • Musculoskeletal management – physical and occupational therapy with physiatry
  • Orthopedic care and surgery
  • Blood banking
  • Dental care
  • Psychology/Social services
  • Antenatal diagnosis

Sweden - Malmö

Year of IHTC designation: 1976

Malmö Centre for Thrombosis and Haemostasis
Department for Hematology and Coagulation Disorders, Skåne University Hospital
Skåne University Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Blood banking (on request)

France - Paris

Year of IHTC designation: 1972

Paris Haemophilia Centre (Necker (N) and Kremlin Bicetre (KB) Hospitals)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Dental care
  • Orthopedic care and surgery
  • Psychology and Social services

Egypt - Cairo

Year of IHTC designation: 2015

Shabrawishi Hospital, Egyptian Society of Hemophilia, and Cairo University

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Molecular genetics
  • Blood banking
  • Physiotherapy

Canada - Toronto

Year of IHTC designation: 2018

University of Toronto Hemophilia Centres
St. Michael’s Hospital

Areas of Specialty

  • Adult hematology services
  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Brazil - Campinas, SP

Year of IHTC designation: 2008

Hemocentro – “Unidade de Hemofilia Cláudio Luiz Pizzigatti Corrêa”
Hemocentro Unicamp, University of Campinas

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and molecular genetics
  • Nursing
  • Dentistry
  • Physiotherapy

Belgium - Brussels

Year of IHTC designation: 2013

Haemostasis and Thrombosis Unit
Division of Haematology
Cliniques universitaires Saint-Luc

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Orthopedic care and surgery

Belgium - Leuven

Year of IHTC designation: 1972

Hemofiliecentrum Leuven, University of Leuven

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis (not genetics)
  • Nursing
  • Psychology
  • Social services
  • Orthopedic care and surgery

Austria - Vienna

Year of IHTC designation: 1972

Medical University of Vienna
Department of Medicine I
Clinical Division of Hematology and Hemostaseology

Areas of Specialty

  • Adult hematology

Australia - Melbourne

Year of IHTC designation: 2005

Ronald Sawers Haemophilia Centre

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Dental care
  • Blood banking
  • Psychology
  • Social work

Argentina - Buenos Aires

Year of IHTC designation: 1974

Instituto Asistencial “Dr. Alfredo Pavlovsky”
(Fundación de la Hemofilia)

Instituto De Investigaciones Hematológicas “Dr. Mariano R. Castex” (IIHEMA
(Academia Nacional de Medicina)

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy
  • Dental care
  • Orthopaedic care and surgery
  • Laboratory diagnosis and genetic diagnosis
  • Nursing
  • Psychology
  • Social services

Spain - Madrid

Year of IHTC designation: 2018

Hospital Universitario La Paz

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Spain - Valencia

Year of IHTC designation: 1997

Haemostasis and Thrombosis Unit
Haematology Service, University and Polytechnic Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and Social services

Thailand - Bangkok

Year of IHTC designation: 1984

International Hemophilia Training Center – Bangkok
Ramathibodi Hospital
Mahidol University

Areas of Specialty

  • Adult and pediatric hemostasis
  • Molecular genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and social services

Hemophilia of Georgia

Hemophilia of Georgia has stood with us for over three decades, playing an early role in distributing donated factor via the WFH Humanitarian Aid program. Our relationship has deepened over the years as they continued to support this program and came on board as a founding Chapter Challenge champion in 2016. Their belief in educating future leaders is clear in their investment in the Youth Leadership Workshops, which has led to the training of over 50 young adults. They also support workshops devoted to educating providers and patient leaders on how to collect and use data to advocate for better patient care. Their staff generously volunteer their time as trainers and as well as serving on various committees.

WFH President's Award - Recipients

National Bleeding Disorders Foundation

The National Bleeding Disorders Foundation helps advance our mission on several fronts. They inspire others to follow their lead as a founding champion of the NHF Chapter Challenge. Their commitment to equality of access is demonstrated in their support of the Cornerstone Initiative, which lays the foundation for care in the world's most underserved regions, as well as programs that aim to raise awareness and improve care of women with bleeding disorders and those with von Willebrand disease. We also benefit from their steadfast engagement with various programs including the WFH Twinning Program and their individual leaders’ contribution to our leadership and committees.

Legacy Gift

Do you sometimes wish you could do more? A bequest is a simple way for you to make a significant gift without changing anything about your financial security and lifestyle today. Your legacy will sustain care for the generations to come.

Download these sample clauses to give to your legal advisor.

We understand if you prefer to remain anonymous, but we would be very honoured if you would let us know of your intentions so that we may thank you personally. We would also be happy to answer any questions you may have or give you additional information. Please contact Jennifer Laliberté at 514‑875‑7944 ext.2822 or [email protected].

Disclaimer

The information on the WFH USA website is provided for general information purposes only. The WFH USA does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH USA recommends that you contact your physician or local treatment centre. Before administering any products, the WFH USA urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH USA does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH USA discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH USA social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH USA recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH USA. The WFH USA is not responsible and assumes no liability for the content of any linked websites.

Website privacy policy

The WFH USA does not collect personally identifying information about you when you visit our site, unless you choose to provide such information to us. Providing such information is strictly voluntary. This policy is your guide to how we will handle information we learn about you from your visit to our website.

Use of links

Throughout our website, we provide links to other servers which may contain information of interest to our readers. We take no responsibility for, and exercise no control over, the organizations, views, or accuracy of the information contained on other servers. When linking to the WFH USA, we request that you ensure that there are no associated connections for commercial purposes. Any official use of the name WFH USA or the use of its logo needs to be approved by the WFH USA. If you have a link you’d like us to consider adding to our website, please send an email to [email protected] with the subject “Link request.”

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All information, photographs, graphics, and other material on this website are protected by copyright. While users of this website may use the content for personal, non-commercial use, none of the content of this website can be modified, translated, transferred or sold, copied, reproduced, published, or distributed, in whole or in part, without the prior written consent of the WFH USA. To view a copy of the WFH USA’s permissions guidelines, click here.

The WFH USA encourages the dissemination of its information and welcomes proposals on the reprinting, redistribution, and translation of its materials. If you would like to publish information that you find on our website, please send your request to [email protected].

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If you have suggestions on how to make the site more accessible, please contact us at [email protected].

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Questions about our policies

If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you can contact us at [email protected].

Fraud alert

Unauthorized solicitations – Warning

The WFH USA has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH USA staff or falsely stating that they are associated with the WFH USA. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH USA, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH USA emails come from @wfhusa.org or @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH USA at [email protected] or call 1-877-417-7944.

International Award for Outstanding Service - Recipients

International Lifetime Achievement Award - Recipients

Previous years

2012Christine Lee
United Kingdom
2006Dr. Bruce Evatt
United States

International Healthcare Volunteer Award - Recipients

Previous years

2012 Piet de Kleijn
The Netherlands
2010 Dr. Mammen Chandy
India
2008 Dr. Man-Chiu Poon
Canada
2006 Dr. Norma de Bosch
Venezuela
2004 Dr. Parttraporn Insarangkura
Thailand

Dr. Carol K. Kasper
United States

United Kingdom - London

Year of IHTC designation: 1970

Katharine Dormandy Haemophilia Centre and Thrombosis Unit
Royal Free Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy
  • Molecular genetics
  • Psychology/Social services

United Kingdom - Manchester

Year of IHTC designation: 2008

Manchester Haemophilia Comprehensive Care Centre (Children’s and Adult’s)
Manchester Royal Infirmary and Manchester Children’s Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • National Hemophilia database

United Kingdom - Oxford

Year of IHTC designation: 1972

Oxford Haemophilia Centre and Thrombosis Centre
Churchill Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • Physiotherapy/Occupational therapy

United Kingdom - Sheffield

Year of IHTC designation: 1992

Sheffield Haemophilia and Thrombosis Centre
Royal Hallamshire Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics

Twins of the Year Awards

2020 Aluva (India) – Newcastle (UK)
2019 Yogyakarta / Solo (Indonesia) – Utrecht (Netherlands)
2018 Abidjan (Ivory Coast) – Brussels (Belgium)
2017 Santa Cruz de la Sierra (Bolivia) – Buenos Aires (Argentina)
2016 Kampala (Uganda) – London (UK)
2015 Varna (Bulgaria) – Bonn (Germany)
2014 Arequipa (Peru) – Los Angeles (USA)
2013 Davangere (India) – Liverpool (UK)
Ludhiana (India) – Detroit (USA)
2012 Hanoi (Vietnam) – Melbourne (Australia)
2011 Manado (Indonesia) – Utrecht (Netherlands)
2010 Delhi (India) – Winnipeg (Canada)
Yaoundé (Cameroon) – Geneva (Switzerland)
2009 Chisinau (Moldova) – Warsaw (Poland)
Colombo (Sri Lanka) – Vellore (India)
2008 Gaborone (Botswana) – Philadelphia (USA)
2007 Vientiane (Laos) – Brest (France)
Damascus (Syria) – Montpellier (France)
2006 Lima (Peru) – Fort Worth (USA)
2005 Yerevan (Armenia) – Minneapolis (USA)
Casablanca (Morocco) – Caen (France)
2004 Beirut (Lebanon) – Geneva (Switzerland)
Santo Domingo (Dominican Republic) – Caracas (Venezuela)
2003 Cairo (Egypt) – Knoxville (USA)
2002 Moscow (Russia) – Liverpool (UK)
Panama – Valencia (Spain)
2001 Bangalore (India) – St. Louis (USA)
2000 Pune (India) – Bradford (UK)
1999 Montevideo (Uruguay) – Buenos Aires (Argentina)
Tianjin (China) – Calgary (Canada)
1998 Plovdiv (Bulgaria) – Bonn (Germany)
1997 Bogota (Colombia) – Los Angeles (USA)
Tartu (Estonia) – Stockholm (Sweden)
1996 Timisoara (Romania) – Munich (Germany)
Riga (Latvia) – Munster (Germany)
1995 Klaipeda (Lithuania) – Malmo (Sweden)
1994 Bratislava (Slovakia) – Tel Hashomer (Israel)

Pietrogrande Prize

2021 Axel Seuser
Germany
2019 Dr. Adolfo Llinás
Colombia
2017 Pamela Hilliard
Canada
2015 Kathy Mulder
Canada
2013 James Luck
United States
2012 Piet de Kleijn
The Netherlands
2011 Dr. Lily Heijnen
The Netherlands
2010 Dr. Horacio Caviglia
Argentina
2009 Jerome D. Wiedel
United States
2008 Dr. Federico Fernández-Palazzi
Venezuela
2007 Michael Heim
Israel
2006 Brenda Buzzard
United Kingdom
2005 Dr. Marvin Gilbert
United States

Henri Horoszowski Award

2021 Baolai Hua
Yangzhou College, Xuzhou Medical University
The effects of intra-articular injection of TNF-alpha Antagonists in treatment of haemophilic synovitis
2019 Maarten Eerdekens
Belgium
Association between multi-segment foot kinetics and blood induced joint damage in adult patients with hemophilic ankle arthropathy
2017 Fabio Souza
Brazil
Decrease in joint inflammation, swelling and pain after a swimming protocol in animal model of experimental-induced hemarthrosis
2015 SM Javd Mortazavi
Iran
Bilateral total knee arthroplasty in patients with hemophilia: A safe and cost-effective procedure
2013 Lize F.D. van Vulpen
United States
A fusion protein of IL4 and IL10, is equally effective in protecting cartilage from blood-induced damage compared to the individual components
2012 Horacio Caviglia
Argentina
Pseudotumor Surgery in Haemophilia A patients: Comparitive results between inhibitor and non-inhibitor patients
2011 Nick Goddard
United Kingdom and
Monique van Meegeren
The Netherlands
Early onset administration of IL-4 and IL-10 prevents blood-induced cartilage damage in vitro
2010 Lydia Abad-Franch
Spain
Influence of an Aquatic Training Protocol on the Reduced Risk of Cardiovascular Morbidity and Mortality in a Hemophiliac
2009 Sebastien Lobet
Belgium
Impact of Hemophilia Ankle Arthropathy on Gait Disability: Analysis of Energetic and Mechanical Variables
2008 Jose Alberto Tlacuilo-Parra
Mexico
Bone Turnover Markers and Bone Mineral Density in Children with Hemophilia
2007 Natalie Jansen
The Netherlands
Protective Abilities of Interleukin-10 in Blood-induced Cartilage Damage
2006 Axel Seuser and E. Kusch
Germany
Multi-Center Study of Orthopedic Outcome of the Lower Extremities in 249 Children with Hemophilia
2005 Frank van Genderen, Nico van Meeteren, Lily Heijnen, Piet de Kleijn, Marijke van den Berg, Paul Helders
The Netherlands
The Hemophilia Activities List: Final development and validation of a hemophilic-specific self-assessment questionnaire on functional abilities
2004 Goris Roosendaal, Zalima N Jahangier, Kim MG Jacobs, Johannes WJ Bijlsma, Floris PJG Lafeber
The Netherlands
Radiosynoviorthesis using YTTRIUM-90 results in adverse direct effects on cartilage: a human in vitro study
2003 Axel Seuser, Thomas Wallny, Günter Schumpe, Elmar Trunz, Hans-Hermann Brackman
Germany
How to advise young haemophiliacs to find the right sport? A new and safe algorithm
2002 James Luck, Jr. and Mauricio Silva
United States
Long-Term Review of Total Knee Arthroplasty
2001 Federico Fernández-Palazzi
Venezuela
Oxytetracycline Chlorohydrate: A new material for chemical synovial orthoses
2000 Horacio Caviglia
Argentina
Pseudotumours
1999 William J. Ribbans and J.L. Hicks
United Kingdom
Communication and Co-operation for the New Millennium – The Future of the Musculoskeletal Committee in the 21st Century
1998 Adolfo Llinas, Mauricio Silva, Monica Duarte, Gonzalo Ucros, Graciela Perini, Angela Maria Cerquera, Andres Forero
Colombia
Chromic phosphate synoviorthesis without age restriction should be the first treatment option for chronic active hemophilic synovitis

International Frank Schnabel Volunteer Award - Recipients