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Cumbre mundial de la FMH sobre políticas y acceso a tratamiento

La segunda edición de la Cumbre mundial de la FMH sobre políticas y acceso a tratamiento (GPAS por su sigla en inglés) tendrá lugar los días 27 y 28 de octubre de 2022. Únase a nosotros y a sus colegas, con los siguientes objetivos:

  1. Compartir estrategias para preservar e impulsar la atención de los trastornos de la coagulación en un mundo pandémico en rápida evolución.
  2. Promover el diálogo y el intercambio de conocimientos entre organizaciones nacionales miembros (ONM), proveedores de atención médica, y gobiernos nacionales.

Las presentaciones y conversaciones durante la Cumbre de dos días se centrarán en torno a la mejora de la atención y el acceso al tratamiento. Esta conferencia contará con ponentes y participantes de organizaciones aliadas locales e internacionales, representantes de gobiernos nacionales, profesionales de la salud, líderes de ONM de la FMH, y defensores de la comunidad de trastornos de la coagulación.

La Cumbre mundial de la FMH sobre políticas y acceso a tratamiento (GPAS por su sigla en inglés) constituye una oportunidad única para documentar, abordar e intercambiar conocimientos sobre estrategias a fin de incrementar el acceso equitativo a la atención y el tratamiento para la comunidad mundial de trastornos de la coagulación. ¡Esperamos conectarnos con usted de manera virtual el próximo mes de octubre!

Also available in: English Français Español

Join us online at #MSKCongress

Global Policy and Access Summit

[email protected]

La inscripción a la Cumbre mundial de la FMH sobre políticas y acceso a tratamiento es gratuita

PROGRAMA

Este evento virtual de dos días abarcará sesiones plenarias y educativas, sesiones relámpago sobre casos de cabildeo, y conversaciones entre partes interesadas clave*, todas centradas en temas relacionados con el avance de la atención y el acceso al tratamiento alrededor del mundo.

Los horarios de todas las sesiones corresponden al Horario de Verano del Este (EDT).

*Las conversaciones entre las partes interesadas son exclusivamente por invitación.

Calendario









8:30 – 9:00
Plenaria de apertura

Presidente | Alain Baumann, director ejecutivo, Federación Mundial de Hemofilia, Montreal, Canadá

Palabras de apertura y bienvenida | César Garrido, presidente, Federación Mundial de Hemofilia, Caracas, Venezuela

La necesidad de inversiones sabias en salud | Lieven Annemans, profesor titular sénior de economía de la salud, Universidad de Gante, Gante, Bélgica

9:00 – 10.00
SESIÓN EDUCATIVA – Toma de decisiones e incidencia en políticas de salud

Presidente | Dawn Rotellini, Directora de Operaciones, National Hemophilia Foundation, Gibsonia, Estados Unidos

Modelos de atención de la salud y toma de decisiones | Jaime O’Hara, Director Ejecutivo, HCD Economics, Daresbury, Reino Unido

Incidencia en el presupuesto de atención de la salud para organizaciones de pacientes Bradley Rayner, Presidente, South African Haemophilia Foundation, Cape Town, Sudáfrica

Papel de las ONM en la promoción de una toma de decisiones compartidas | Clive Smith, Presidente del Consejo, The Haemophilia Society, Londres, Reino Unido

10:00 – 10:15
Pausa
10:15 – 11:15
Sesión relámpago

Alrededor del mundo en 60 minutos: Qué ha funcionado bien en iniciativas de cabildeo y cuáles son las lecciones aprendidas

Presidente | Juan Andrés Pereira de Souza, profesor, Asociación de Hemofilia del Uruguay, Montevideo, Uruguay

Coaliciones estatales de defensa | Bill Robbie, Director, Relaciones con el Gobierno del Estado, National Hemophilia Foundation, New York, United States

Extensión de la atención de la hemofilia en todo el país; Ejemplo de división Barishal | Parimal Chandra Debnath, Vicepresidente & PWH, Hemophilia Society of Bangladesh, Dhaka, Bangladesh

Plan estratégico: Introducción de nuevas terapias para la Hemofilia A | Isabel Sorondo, Presidente, Asociación de Hemofilia del Uruguay, Montevideo, Uruguay

Juan Andrés Pereira de Souza, Profesor, Asociación De Hemofilia Del Uruguay, Montevideo, Uruguay

La ICSPP (Coalición Internacional para Proteínas Plasmáticas Seguras) – aprovechando las asociaciones y alianzas con organizaciones internacionales para mejorar el acceso a proteínas plasmáticas seguras en países de ingresos bajos y medianos

Jean-Claude Faber, Presidente, Luxembourg Hemophilia Association (ALH), Luxembourg

11:15 – 12:15
SESIÓN EDUCATIVA – Mejorar el acceso: Análisis de datos para documentar las decisiones sobre políticas

Presidente | Kate Khair, Directora de Investigación, Haemnet, London, United Kingdom

Análisis de datos para documentar las decisiones sobre políticas | Declan Noone, presidente, European Haemophilia Consortium, Dublín, Irlanda

Una perspectiva gubernamental: Datos de calidad para tomar decisiones de manera eficaz | Jan Blatny, vicepresidente, EAHAD, República Checa

Qué datos se necesitan para tomar decisiones documentadas | Carisi Polansky, Jefa de Cardiología, Hospital Moinhos de Vento, Porto Alegre, Brazil

Estudio de caso: Desarrollo de un programa de trastornos hemorrágicos y un nuevo modelo de unidades de hemofilia de nuevas terapias | Víctor Jiménez, Jefe del Departamento de Hematología, Hospital Universitario La Paz, Madrid, España

12:15 – 12:30
Pausa
12:30 – 13:30
Conversación entre partes interesadas (exclusivamente por invitación)

Mejorar el acceso a la atención de los trastornos de la coagulación

7:00 – 8:00
Conversación entre partes interesadas (exclusivamente por invitación)

Mejorar el acceso a la atención de los trastornos de la coagulación

8:30 – 9.00
PLENARIA – Mejorar las normas de atención

Presidente | Salome Mekhuzla, Directora de Desarrollo Mundial, Federación Mundial de Hemofilia, Montreal, Canadá

Demostrar las disparidades en el acceso a la atención adecuada | Glenn Pierce, vicepresidente médico, Federación Mundial de Hemofilia, La Jolla, Estados Unidos

Principios y recomendaciones clave para mejorar las normas de atención | Johnny Mahlangu, profesor, University of the Witwatersrand y NHLS, Johannesburgo, Sudáfrica

9:00 – 10:00
SESIÓN EDUCATIVA – Abordar las inequidades en el acceso: Rumbo a la atención y el tratamiento asequibles

Presidente | Donna Coffin, Directora, Investigación & Educación, World Federation of Hemophilia, Montreal, Canada

Revisitar modelos de adquisición: Adaptarse a la evolución del tratamiento | Brian O’Mahony, director ejecutivo, Irish Haemophilia Society, Dublín, Irlanda

La Lista modelo de medicamentos esenciales de la ONM: Una herramienta para documentar decisiones de adquisiciones nacionales | Bernadette Cappello, funcionaria técnica, Secretariado de la Lista de medicamentos esenciales, Organización Mundial de la Salud, Ginebra, Suiza

Participación de ONM en el proceso de adquisiciones nacionales: La experiencia de Serbia | Dejan Petrovic, presidente, Sociedad Serbia de Hemofilia, Belgrado, Serbia

Inclusión de la hemofilia en la cobertura universal de salud: La experiencia de Tailandia| Ekawat Suwantaroj, Vicepresidente, Thai Hemophilia Patient Club – National Hemophilia Foundation of Thailand, Bangkok, Thailand

10:00 – 10:15
Pausa
10:15 – 11:15
SESIÓN DESTACADA DE LA FMH

Iniciativas de cabildeo de la Academia de cabildeo del Programa PACT de la FMH

Moderadora | Salome Mekhuzla, directora de desarrollo mundial, Federación Mundial de Hemofilia, Montreal, Canadá

Perspectiva general
Julia Chadwick, Coordinadora de Materiales Educativos, Federación Mundial de Hemofilia, Montreal, Canadá

Tarjeta de persona especial para pacientes con hemofilia
Usama Azam, Miembro Ejecutivo, Hemophilia Foundation Pakistan, Lahore, Pakistan

Una ley para todos
Juan Andrés Pereira de Souza, Profesor, Asociación De Hemofilia Del Uruguay, Montevideo, Uruguay

Adquisición de productos de tratamiento para la hemofilia
Megan Adediran, Directora Ejecutiva/Presidente, Hemophilia Foundation of Nigeria, Kaduna, Nigeria

11:15 – 11:30
Pausa
11:30 – 12:30
SESIÓN EDUCATIVA – Abordar las inequidades en el acceso: Panel sobre perspectivas de la industria

Moderador
Glenn Pierce, Vicepresidente Médico, Federación Mundial de Hemofilia, La Jolla, Estados Unidos
Dawn Rotellini, Directora de Operaciones, National Hemophilia Foundation, Gibsonia, Estados Unidos

Panelistas

BioMarin

CSL Behring

Kedrion Biopharma

Roche

Sanofi

12:30 – 13:00
Plenaria de clausura

Presidente
Alain Baumann, Director Ejecutivo, Federación Mundial de Hemofilia, Montreal, Canadá

Resumen de conversaciones entre partes interesadas, día 1
Dawn Rotellini, Directora de Operaciones, National Hemophilia Foundation, Gibsonia, Estados Unidos

Resumen de conversaciones entre partes interesadas, día 2
Salome Mekhuzla, Directora de Desarrollo Mundial, Federación Mundial de Hemofilia, Montreal, Canadá

Palabras de clausura
Alain Baumann, Director Ejecutivo, Federación Mundial de Hemofilia, Montreal, Canadá

Pre-registration required
Simultaneous interpretation available in Spanish, French, Russian & Arabic
Program is subject to change

Patrocinadores

La segunda edición de la Cumbre mundial de la FMH sobre políticas y acceso a tratamiento (GPAS por su sigla en inglés) recibe apoyo financiero de Hemophilia Alliance y sus centros de tratamiento de hemofilia (CTH) miembros en todo Estados Unidos.

SILVER SPONSORS

COMITÉ Y ORADORES

Director ejecutivo,
Federación Mundial de Hemofilia
Montreal, Canadá

Bernadette Cappello
Technical Officer, Essential Medicines List Secretariat
World Health Organization,
Geneva, Switzerland

Bradley Rayner
Chairman
South African Haemophilia Foundation
Cape Town, South Africa

Director ejecutivo
Sociedad Irlandesa de Hemofilia
Dublín, Irlanda

Cardiologist, Professor of Medicine and Coordinator of the National Institute for Health Technology Assessment/CNPq

Cesar Garrido
President World Federation of Hemophilia
Caracas, Venezuela

WFH Western Africa Regional Manager

Mr. Clive Smith
Chair of the Board
The Haemophilia Society
London, United Kingdom

Directora de operaciones
National Hemophilia Foundation
Gibsonia, Estados Unidos

Declan Noone
President
European Haemophilia Consortium
Brussels, Belgium

Dejan Petrovic,

President, Serbian Hemophilia Society

Ekawat Suwantaroj
Lay Member, Board of Directors
Wolrd Federation of Hemophilia
Bangkok, Thailand

Dr. Faber Jean-Claude,

President, Luxembourg Hemophilia Association (ALH),

Luxembourg

Glenn Pierce
Vice-President, Medical
World Federation of Hemophilia
La Jolla, United States

Sector Head, Regional Development,

WFH Global Development Department.

Jamie O’Hara
Chief executive officer (CEO)
HCD Economics,
Daresbury, United Kingdom

Vice President, EAHAD, Brno, Czech Republic

Johnny Mahlangu
Professor,
University of the Witwatersrand and NHLS
Johannesburg, South Africa

Juan Andrés Pereira de Souza
Professor
Asociación De Hemofilia Del Uruguay
Montevideo, Uruguay

Education Materials Coordinator, WFH

Kate Khair

Director of Research at Haemnet,

 

Lieven Annemans

Senior Full Professor of Health Economics

ICHER, Ghent University, Ghent, Belgium

Directora ejecutiva
Fundación de Hemofilia de Nigeria
Kaduna, Nigeria

Miguel Crato
SC-member EHC
European Haemophilia Consortium
Montijo, Portugal

Program Manager of WFH PACT Program, Bangladesh.

Directora de Desarrollo mundial
Federación Mundial de Hemofilia
Montreal, Canadá

Información para inscribirse

Vea todas las sesiones de la Cumbre mundial sobre políticas y acceso a tratamiento, a pedido, hasta el 31 de diciembre de 2022.

RECURSOS PERTINENTES

¿Tiene interés en ponerse al día con las conversaciones de la GPAS 2021? Mire las grabaciones de sesiones seleccionadas en la plataforma de aprendizaje electrónico de la FMH.

VIAJAR

La segunda edición de la Cumbre mundial de la FMH sobre políticas y acceso a tratamiento se celebrará de manera virtual.

PREGUNTAS FRECUENTES SOBRE

Para obtener más información o apoyo escriba a [email protected].

Q

¿Quién puede participar en el evento?

A
  • Líderes y defensores de ONM de la FMH
  • Profesionales de la salud
  • Representantes de gobiernos nacionales
  • Otras organizaciones representantes de los intereses de personas con trastornos de la coagulación
  • Agencias gubernamentales regionales y mundiales (tales como la OMS, etc.) y organizaciones aliadas
  • Representantes de la industria
  • Investigadores y personas con interés en el campo de los trastornos de la coagulación

Q

¿Habrá grabaciones de las sesiones disponibles después del evento?

A

Todas las sesiones estarán disponibles en la plataforma virtual después del evento.

Q

¿Habrá interpretación?

A

El evento será ofrecido en ingles con interpretación disponible en español, francés, árabe y ruso.

 

NOTICIAS SOBRE EVENTOS

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While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

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Recursos de la Cumbre mundial sobre políticas y acceso a tratamiento 2021

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Archivos gráficos

¡Descargue aquí los archivos gráficos de los materiales de la campaña!

Italy - Milan

Year of IHTC designation: 1972

Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Blood banking
  • Orthopedic care and surgery
  • Physiotherapy
  • Diagnostic assessment of platelet functional defects

Sweden - Malmö

Year of IHTC designation: 1976

Malmö Centre for Thrombosis and Haemostasis
Department for Hematology and Coagulation Disorders, Skåne University Hospital
Skåne University Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Blood banking (on request)

Spain - Madrid

Year of IHTC designation: 2018

Hospital Universitario La Paz

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Spain - Valencia

Year of IHTC designation: 1997

Haemostasis and Thrombosis Unit
Haematology Service, University and Polytechnic Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and Social services

South Africa - Johannesburg

Year of IHTC designation: 2016

Haemophilia Comprehensive Care Centre
Charlotte Maxeke Johannesburg Academic Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Physiotherapy

Singapore - Singapore

Year of IHTC designation: 2002

Singapore General Hospital Haemophilia Treatment Clinic

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis
  • Nursing
  • Dental care
  • Orthopedic care (no surgeries)
  • Physiotherapy
  • Psychology

Senegal - Dakar

Year of IHTC designation: 2016

Centre International de Traitement de l’Hémophilie (CITH) de Dakar
Centre National de Transfusion Sanguin (CNTS)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy

Russia - Moscow and St. Petersburg

Year of IHTC designation: 2010

National Medical Research Center of Hematology of the Russian Academy of Medical Sciences

Areas of Specialty

  • Adult hematology
  • Nursing
  • Orthopedic surgery

Netherlands - Utrecht

Year of IHTC designation: 1996

Van Creveldkliniek
University Medical Centre Utrecht

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hematology
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy

Japan - Nara

Year of IHTC designation: 1998

Nara Hemophilia Centre
Nara Medical University

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic care and surgery
  • Laboratory diagnosis and Molecular genetics
  • Physiotherapy

Israel - Tel Hashomer

Year of IHTC designation: 1993

National Hemophilia Center, Tel Hashomer
Sheba Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic surgery
  • Nursing
  • Physiotherapy
  • Dental care
  • Laboratory diagnosis (not genetics)
  • Psychology

United Kingdom - London

Year of IHTC designation: 1970

Katharine Dormandy Haemophilia Centre and Thrombosis Unit
Royal Free Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy
  • Molecular genetics
  • Psychology/Social services

United Kingdom - Manchester

Year of IHTC designation: 2008

Manchester Haemophilia Comprehensive Care Centre (Children’s and Adult’s)
Manchester Royal Infirmary and Manchester Children’s Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • National Hemophilia database

United Kingdom - Oxford

Year of IHTC designation: 1972

Oxford Haemophilia Centre and Thrombosis Centre
Churchill Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • Physiotherapy/Occupational therapy

United Kingdom - Sheffield

Year of IHTC designation: 1992

Sheffield Haemophilia and Thrombosis Centre
Royal Hallamshire Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics

India - Mumbai

Year of IHTC designation: 2000

National Institute of Immunohaematology (ICMR) and KEM Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Orthopedic care
  • Physiotherapy

India - Vellore

Year of IHTC designation: 2000

Christian Medical College, Vellore

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics with antenatal diagnosis
  • Nursing
  • Musculoskeletal management – physical and occupational therapy with physiatry
  • Orthopedic care and surgery
  • Blood banking
  • Dental care
  • Psychology/Social services
  • Antenatal diagnosis

France - Paris

Year of IHTC designation: 1972

Paris Haemophilia Centre (Necker (N) and Kremlin Bicetre (KB) Hospitals)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Dental care
  • Orthopedic care and surgery
  • Psychology and Social services

Egypt - Cairo

Year of IHTC designation: 2015

Shabrawishi Hospital, Egyptian Society of Hemophilia, and Cairo University

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Molecular genetics
  • Blood banking
  • Physiotherapy

Canada - Toronto

Year of IHTC designation: 2018

University of Toronto Hemophilia Centres
St. Michael’s Hospital

Areas of Specialty

  • Adult hematology services
  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Brazil - Campinas, SP

Year of IHTC designation: 2008

Hemocentro – “Unidade de Hemofilia Cláudio Luiz Pizzigatti Corrêa”
Hemocentro Unicamp, University of Campinas

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and molecular genetics
  • Nursing
  • Dentistry
  • Physiotherapy

Belgium - Brussels

Year of IHTC designation: 2013

Haemostasis and Thrombosis Unit
Division of Haematology
Cliniques universitaires Saint-Luc

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Orthopedic care and surgery

Belgium - Leuven

Year of IHTC designation: 1972

Hemofiliecentrum Leuven, University of Leuven

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis (not genetics)
  • Nursing
  • Psychology
  • Social services
  • Orthopedic care and surgery

Austria - Vienna

Year of IHTC designation: 1972

Medical University of Vienna
Department of Medicine I
Clinical Division of Hematology and Hemostaseology

Areas of Specialty

  • Adult hematology

Australia - Melbourne

Year of IHTC designation: 2005

Ronald Sawers Haemophilia Centre

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Dental care
  • Blood banking
  • Psychology
  • Social work

Argentina - Buenos Aires

Year of IHTC designation: 1974

Instituto Asistencial “Dr. Alfredo Pavlovsky”
(Fundación de la Hemofilia)

Instituto De Investigaciones Hematológicas “Dr. Mariano R. Castex” (IIHEMA
(Academia Nacional de Medicina)

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy
  • Dental care
  • Orthopaedic care and surgery
  • Laboratory diagnosis and genetic diagnosis
  • Nursing
  • Psychology
  • Social services

Thailand - Bangkok

Year of IHTC designation: 1984

International Hemophilia Training Center – Bangkok
Ramathibodi Hospital
Mahidol University

Areas of Specialty

  • Adult and pediatric hemostasis
  • Molecular genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and social services

United States - Chapel Hill, North Carolina

Year of IHTC designation: 1972

University of North Carolina Hemophilia & Thrombosis Center

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Nursing
  • Physiotherapy/ Occupational therapy
  • Psychology/ Social services

United States - Columbus, Ohio

Year of IHTC designation: 2018

Nationwide Children’s Hospital

Areas of Specialty

  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

United States - Houston, Texas

Year of IHTC designation: 2000

Gulf States Hemophilia and Thrombophilia Center
University of Texas Health Science Center at Houston

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy/ Occupational therapy
  • Psychology/Social services

United States - Los Angeles, California

Year of IHTC designation: 1970

Orthopaedic Hemophilia Treatment Center

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physical therapy
  • Psychology/Social services

United States - New York, New York

Year of IHTC designation: 1993

Mount Sinai School of Medicine
Mount Sinai Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Molecular genetics
  • Social services

United States - Rochester, Minnesota

Year of IHTC designation: 1974

Mayo (Rochester) Comprehensive Hemophilia Center, and International Hemophilia Training Center (WFH)
Mayo Clinic/Foundation and Mayo Medical School

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Blood banking
  • Molecular genetics
  • Psychology/ Social services

United States - San Diego, California

Year of IHTC designation: 2018

Hemophilia & Thrombosis Treatment Center
University of California San Diego

Areas of Specialty

  • Adult hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

International Lifetime Achievement Award - Recipients

Previous years

2012Christine Lee
United Kingdom
2006Dr. Bruce Evatt
United States