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Recién publicado: Informe del Sondeo Mundial Anual 2024

La Federación Mundial de Hemofilia (FMH) tiene el gusto de anunciar que ya se publicó el Informe del Sondeo Mundial Anual 2024. Con la participación de 135 países, este es un año sin precedentes y un verdadero reflejo del compromiso colectivo de la comunidad mundial trastornos de la coagulación.

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El Sondeo Mundial Anual (SMA) es una encuesta transversal anual entre las organizaciones nacionales miembros (ONM) de la FMH, mediante la que se recopilan datos demográficos y relacionados con el tratamiento a nivel nacional sobre personas con hemofilia (PCH), enfermedad de Von Willebrand (EVW), deficiencias poco comunes de factores de la coagulación, y trastornos plaquetarios hereditarios. Constituye la base de datos global más completa sobre trastornos de la coagulación y ofrece valiosa información sobre tendencias, avances y desafíos en el diagnóstico y la atención de personas con trastornos de la coagulación (PCTC).

En 2024, El Sondeo Mundial Anual muestra varios avances alentadores:

Estos logros subrayan el alcance creciente de la FMH, y la incidencia en el mundo real que se obtiene a través de la colaboración continua con nuestras ONM, lo cual ayuda a nuestra comunidad a avanzar hacia un mejor diagnóstico y un mayor acceso a la atención.

La FMH expresa su agradecimiento a todas sus ONM por su apoyo y participación en nuestras actividades de recopilación de datos.

Si desea leer el Informe del Sondeo Mundial Anual 2024 haga clic aquí. Gráficas y cuadros complementarios están disponibles en línea, aquí.

Para obtener más información sobre el Sondeo Mundial Anual haga clic aquí o escriba a [email protected].

We’ve accomplished a lot this year, we need your help to continue strong.

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