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Today is World Hemophilia Day 2023!

Today is April 17, 2023—World Hemophilia Day! The theme of the event this year is “Access for All: Prevention of bleeds as the global standard of care”. Building on last year’s theme, the call to action for the community in 2023 is to come together and advocate with local policy makers and governments for improved access to treatment and care with an emphasis on better control and prevention of bleeds for all people with bleeding disorders (PWBDs). This means the implementation of home-based treatment as well as prophylactic treatment to help those individuals have a better quality of life.

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There is nothing more moving for someone in our community to hear about than a child with a bleeding disorder playing with friends, going to school, and simply enjoying a better quality of life because they have access to proper treatment. Controlling and preventing bleeds really is critical to a better quality of life.

—Cesar Garrido, WFH President

There are many ways you can bring attention to hemophilia and other inherited bleeding disorders in your local and global community to raise awareness of the need for inclusion in national policy. We have a vast resource of material available that you can download for free:

Whether you are a person with a bleeding disorder, a national member organization (NMO), or a healthcare professional, here are just a few things you can do to get started:

  • Get social by posting about inherited bleeding disorders on Facebook, Twitter and LinkedIn using the #WorldHemophiliaDay, #WHD2023, and #LightItUpRed hashtags
  • Organize an event, host a community event, webinar, forum or town hall and invite elected officials to learn more about your work first-hand and to meet with the community
  • Participate in the World Hemophilia Day Light it Up Red campaign. Last year, thousands of people worldwide showed their support—while respecting local COVID-19 requirements—by lighting up 100+ landmarks red in cities across the world
  • Support our global advocacy efforts by donating or organizing a fundraising event
  • Share your story about how you or someone you know has been affected by inherited bleeding disorders, and read the stories of others on our World Hemophilia Day site
  • Take action locally and use WFH World Hemophilia Day materials to send a letter to your local policymakers, set up meetings with elected officials and health ministers and engage with the local media
  • Contact your local national member organization (NMO), to find out how you can support them
  • Download resources like posters and social media banners from wfh.org/whd to help build your World Hemophilia Day Campaign
  • Send pictures, comments, or questions to the WFH at [email protected]

To learn more about World Hemophilia Day, please visit wfh.org/world-hemophilia-day.

The WFH would like to thank our 2023 World Hemophilia Day sponsors for their continued support: Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., Freeline Therapeutics, GC Pharma, Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma, Pfizer, Sanofi, Sobi, Spark Therapeutics, and Takeda.

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.