There is nothing more moving for someone in our community to hear about than a child with a bleeding disorder playing with friends, going to school, and simply enjoying a better quality of life because they have access to proper treatment. Controlling and preventing bleeds really is critical to a better quality of life.
—Cesar Garrido, WFH President
There are many ways you can bring attention to hemophilia and other inherited bleeding disorders in your local and global community to raise awareness of the need for inclusion in national policy. We have a vast resource of material available that you can download for free:
Whether you are a person with a bleeding disorder, a national member organization (NMO), or a healthcare professional, here are just a few things you can do to get started:
- Get social by posting about inherited bleeding disorders on Facebook, Twitter and LinkedIn using the #WorldHemophiliaDay, #WHD2023, and #LightItUpRed hashtags
- Organize an event, host a community event, webinar, forum or town hall and invite elected officials to learn more about your work first-hand and to meet with the community
- Participate in the World Hemophilia Day Light it Up Red campaign. Last year, thousands of people worldwide showed their support—while respecting local COVID-19 requirements—by lighting up 100+ landmarks red in cities across the world
- Support our global advocacy efforts by donating or organizing a fundraising event
- Share your story about how you or someone you know has been affected by inherited bleeding disorders, and read the stories of others on our World Hemophilia Day site
- Take action locally and use WFH World Hemophilia Day materials to send a letter to your local policymakers, set up meetings with elected officials and health ministers and engage with the local media
- Contact your local national member organization (NMO), to find out how you can support them
- Download resources like posters and social media banners from wfh.org/whd to help build your World Hemophilia Day Campaign
- Send pictures, comments, or questions to the WFH at [email protected]
To learn more about World Hemophilia Day, please visit wfh.org/world-hemophilia-day.
The WFH would like to thank our 2023 World Hemophilia Day sponsors for their continued support: Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., Freeline Therapeutics, GC Pharma, Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma, Pfizer, Sanofi, Sobi, Spark Therapeutics, and Takeda.