The program for the second edition of the WFH GPAS included plenaries, educational sessions, and lightning round presentations of NMO advocacy initiatives from all over the world. Over the course of the event, successes and lessons learned were shared. The first day of the summit focused on the policy environment and explored strategies for participating in healthcare decision making. The second day of the event mostly centred around inequities in access to treatment and care, and strategies for approaching this challenge in an era of therapeutic advancements. The second day also included a WFH highlight session featuring the WFH PACT Advocacy Academy—including the first-year results from the course—as well as advocacy campaigns shared by course graduates.
To take part in the GPAS is to join a team of like-minded people with passion. Passion to get together and work in a constructive way to find solutions for sustaining and advancing bleeding disorders care. It was inspirational to see everyone working together for a common good.
—Cesar Garrido, President, WFH
Smaller group stakeholder discussions were held on both days, centred around the issues of shared decision-making, influencing health policy, increasing sustainable access to treatment through evidence-based advocacy, and optimizing procurement mechanisms and processes. The main takeaways from the stakeholder group discussions were presented at the closing plenary.
The event brought together 419 participants from nearly 100 countries, including WFH national member organizations (NMOs) staff and volunteers, healthcare providers, representatives of national government institutions, industry partners, international agencies, and other collaborating organizations.
All GPAS plenary and educational sessions can be viewed on demand at the GPAS online platform in English, French, Spanish, Russian and Arabic until December 28, 2022. To view the sessions, click here.
The WFH would like to thank the GPAS program committee for their hard work that made this important event possible: Cesar Garrido, President, WFH; Dawn Rotellini, Lay Member, WFH Board of Directors; Ekawat Suwantaroj, Lay Member, WFH Board of Directors; Megan Adediran, Lay Member, WFH Board of Directors; Clive Smith, Chair of the Board, The Haemophilia Society; Declan Noone, President, European Haemophilia Consortium; Juan Andrés Pereira de Souza, Asociación De Hemofilia Del Uruguay; Miguel Crato, Member, European Haemophilia Consortium; and Bradley Rayner, Chairman, South African Haemophilia Foundation.
The second edition of the WFH Global Policy and Access Summit (GPAS) is supported by funding from the Hemophilia Alliance and its member hemophilia treatment centres (HTCs) across the U.S.A.