To meet this need, the WFH is developing an educational initiative on clinical trials. This effort is strategically aligned with the WFH vision of Treatment for All and our strategic priorities, both of which aim to improve and sustain care for people with inherited bleeding disorders around the world.
The first step for this initiative is the launch of our clinical trials education page, along with the WFH Gene Therapy for Hemophilia Clinical Trials Pipeline Tool. Both of these endeavours are designed to support the knowledge and understanding of clinical trials for the global hemophilia community, and encourage the conversation related to this area of innovation.
The new clinical trials education page includes general information, such as why clinical trials are needed, how they are conducted, and how to participate in one. The page also includes downloadable documents, such as “Questions to ask before participating in a clinical trial”. The WFH Gene Therapy for Hemophilia Clinical Trials Pipeline Tool is a new way to view all ongoing gene therapy clinical trials. It allows users to search based on therapeutic approach, clinical trial phase, and more.