By raising awareness and bringing hemophilia and other inherited bleeding disorders to the attention of policymakers, we can increase sustainable and equitable access to care and treatment. There are many ways to get involved on April 17, such as posting something on social media, or taking part in an advocacy project. One of the most personal ways for you to leave your mark on this important day is by sharing your story with the world though the World Hemophilia Day website—which is now live!
The World Hemophilia Day website is a platform dedicated to people who want to share their experiences related to living with a bleeding disorder or caring for someone who has one. The goal is to inspire other people with bleeding disorders (PWBDs) and show them how we are all part of a global community. Not sure about how to get started? Head over to the website to see what other people post in the coming days leading up to April 17. You just might find the inspiration you need!
Part of every World Hemophilia Day is the Light it up Red campaign, where monuments and buildings around the world are lit up in a show of solidarity with the global bleeding disorders community. Many organizations have already confirmed they will be part of the campaign. Have a look at the list at the bottom of this webpage… maybe one of the monuments or buildings is near you!
To find out more about World Hemophilia Day, click here.
The WFH would like to thank our 2022 World Hemophilia Day sponsors for their continued support: Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., Freeline Therapeutics, GC Pharma, Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma, Pfizer, Sanofi, Sobi, Spark Therapeutics, and Takeda.