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Join the WFH in celebrating International Education Week

The World Federation of Hemophilia (WFH) invites you to join us in celebrating International Education Week from November 18 to 22! Dive into a wealth of educational resources on the WFH eLearning Platform and discover something new. Don’t miss out—start exploring today!

Also available in: Français Español

The WFH eLearning Platform is your one-stop-shop for educational resources on hemophilia and other inherited bleeding disorders. Whether you’re looking for quick introductions, in-depth guides, or the latest science-backed insights, you can access it all with just a few clicks.

With over 800 educational resources, the WFH eLearning Platform offers evidence-based content on topics relevant to people with hemophilia (PWH) and other inherited bleeding disorders. Discover resources designed for healthcare professionals, people with bleeding disorders (PWBDs) and their families or caregivers, including educational videos, webinar recordings, interactive modules, and more! Official WFH translations of these resources are available in Spanish, French, Arabic, Russian, Simplified Chinese, and Japanese, with additional translations in 18 other languages provided by associated organizations.

Missed the latest uploads? Have a look at what’s available on the WFH eLearning Platform today!

Patient handbook: What are fibrinogen disorders?

This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of fibrinogen disorders, including afibrinogenemia, hypofibrinogenemia, dysfibrinogenemia and hypodysfibrinogenemia. Click here to access the booklet.

WFH 2024 Congress Recording on publishing in the Haemophilia Journal: Opportunities and Challenges

Publishing in Haemophilia—the official journal of the WFH—presents both opportunities and challenges for researchers and practitioners in the field. While it offers a platform to disseminate new findings and contribute to the scientific community, there are hurdles to be overcome such as rigorous peer reviews and the need to meet specific publication standards. Through interactive discussions and practical examples, Cedric Hermans, MD, shares valuable insights and strategies to navigate these challenges and effectively disseminate research findings to the global hemophilia community. Click here to access the recording.

WFH Shared Decision Making Tool: now available in Japanese, German, and Dutch

The WFH Shared Decision Making (SDM) Tool is an interactive decision-support system designed to facilitate discussions about treatment options between PWH A or B and their healthcare team. Check out the WFH SDM Tool in English French, Spanish, Japanese, German and Dutch.

Find out more!

To access the WFH eLearning Platform, click here. Can’t find what you’re looking for? Contact us at [email protected].

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.