Bringing the theme of World Hemophilia Day to the WFH 2025 Comprehensive Care Summit

Bringing the theme of World Hemophilia Day to the WFH 2025 Comprehensive Care Summit

This April will be a busy month for the global inherited bleeding disorders community. On April 17, the world will celebrate World Hemophilia Day with the theme “Access for All: Women and Girls Bleed Too”, and on April 23 the WFH 2025 Comprehensive Care Summit (CCS) will kick off in Dubai.

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While the medical community has long recognized that women and girls can be carriers of hemophilia, have von Willebrand disease (VWD) or other rare bleeding disorders, only in recent years has there been broader acknowledgment that they can also have hemophilia, experience symptoms, and face significant impacts on their quality of life. By taking part in World Hemophilia Day, people worldwide will help raise awareness and support women and girls with bleeding disorders (WGBDs) and the broader inherited bleeding disorders community.

Just days after World Hemophilia Day on April 17, the community will have another opportunity to come together from April 23 to 25 at the WFH 2025 Comprehensive Care Summit (CCS) in Dubai. This event will bring attendees together to learn, connect, and help shape the future of comprehensive care. The Summit will feature a rich program that will include several sessions on WGBDs—the perfect complement to World Hemophilia Day.

PWBD session: Women and girls with bleeding disorders: what you should know about the impact of comorbidities

April 23, 14:00 to 15:00

Musculoskeletal issues and osteoporosis in WGBDs – aging and menopause affecting bleeding patterns (impact on diagnosis)Claudia KhayatLebanon
Management / prevention of anemia and underappreciated impact of iron deficiencyPaula JamesCanada
Heavy menstrual bleeding (HMB) and impact on quality of life (QoL): How to manageRezan Abdul-KadirU.K.

Medical session: Women and girls with bleeding disorders

April 24, 15:30 to 16:30

A systematic clinic approach to the identification of women and girls with bleeding disordersCedric HermansBelgium
How do we conduct studies in heavy menstrual bleeding (HMB) in WGBDRobert SidonioU.S.A
Cultural issues in diagnosis, treatmentRezan Abdul-KadirU.K.

 

PWBD session: Towards an equal future for WGBD

April 25, 08:00 to 09:00

Inequities in identification and diagnosis: experiences from PakistanTahira ZafarPakistan
Access to education and tools to increase access and create awarenessPatricia CabréSpain
Regulatory challenges and women’s participation in bleeding disorder research and clinical trials over the last decadeRebecca Kruse-Jarres (TBC)U.S.A
Building strong female-led support networksTatiana BathfieldMauritius

Why attend the Summit?

Explore all sessions and plan your experience today!

Book your accommodation and save 10% on event registration!

The WFH 2025 Comprehensive Care Summit housing block is over 75% sold out! For a hassle-free experience, we encourage participants to book in the official WFH 2025 Comprehensive Care Summit housing block and benefit from our exclusive group perks and amenities at a preferred group rate. As an added benefit, attendees booking in the block will also enjoy a 10% discount on their registration fees.

Find out more

The WFH 2025 Comprehensive Care Summit promises to be a landmark event in the bleeding disorders community, offering cutting-edge insights and unparalleled networking opportunities. This event is not to be missed! Learn more about the event here.

We look forward to welcoming you to Dubai this April.

Please note that the WFH 2025 Comprehensive Care Summit will be held only in English. Interpretation will be offered in Arabic for select sessions, and additional interpretation languages may be added at a later date.

We’ve accomplished a lot this year, we need your help to continue strong.

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Functional Scales

The outcomes of interest collected by the WBDR include demographic characteristics, clinical and treatment-related outcomes, burden of disease outcomes, and patient-reported outcomes.

The WBDR includes five functional scales as part of its extended data set:

WBDR hemophilia data sets

WBDR Minimal Data Set

The WBDR Minimal Data Set (MDS) is a set of data on demographics, diagnosis, symptoms and treatment which are collected on patients participating in the WBDR.

WBDR Extended Data Set

The WBDR Extended Data Set (EDS) is a larger set of data, with more details than the MDS, which includes questions on patient demographics, diagnosis, symptoms, treatment and burden of disease. The EDS can be used by hemophilia treatment centers to collect data on patients participating in the WBDR. The WBDR Extended Data Set (EDS), was added to the database in March 2019.