年次グローバル調査

年次グローバル調査は、WFHの各国代表患者会(NMO)を対象とした年1回の横断的調査です。これには、血友病(PWH)、フォン・ヴィレブランド病(VWD)、まれな凝固因子欠乏症、遺伝性血小板障害を持つ人々に関する国レベルの人口統計学的データや治療関連データが報告されています。

年次グローバル調査について

Data Collection for the Annual Global Survey 2023 has officially begun! We are now collecting data for 2023 Annual Global Survey. For any questions or comments regarding the 2023 Annual Global Survey, please email [email protected].

Important Dates
Data submission deadline May 31
Data and Demographics Committee preliminary review July
Final validation of country data July 30
Publication of the Report on the Annual Global Survey October
Annual Global Survey Logo

WFH 2024年次グローバル調査レポートをご覧いただけます。

2024年次グローバル調査レポート

2024年次グローバル調査レポートは、 データを2つのセクションに分けて示しています。ひとつは確認患者数の推移を経時的に報告したグローバルデータ、もうひとつは2022年のデータです。In 2024, a record breaking 135 national member organizations (NMOs) contributed to the report.この重要なデータの収集にご尽力くださいました各国代表患者会(NMO)の皆様に心より感謝を申し上げます。

出血性疾患患者に関する詳細な情報や分析の補足となる図やグラフをオンラインで閲覧いただけます。年次グローバル調査のデータを、発表資料や出版物、その他研究資料などにご使用になる場合は、WFHのクレジット表記をお願いいたします。また、年次グローバル調査のデータをご使用の際は、WFH([email protected])へお知らせください。本調査にかかわるご不明点やご意見も[email protected]へご連絡いただけますと幸いです。

インタラクティブグラフ(英語のみ)

WFHは、年次グローバル調査のデータを集約し、インタラクティブな形で情報提供できるデータの視覚化を実現しました。これを利用すれば、分析やレポート作成をさらに容易かつ迅速に行うことができます。 年次グローバル調査データのグラフの閲覧やダウンロードにぜひご活用ください。

詳細については、[email protected] にお問い合わせください。

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.