人道支援のお願い

人道支援のお願い

WFH人道支援プログラムは、新興国の各国代表患者会(NMO)、血友病治療センター(HTC)、医療関係者(HCP)に必要な支援を行うことで、患者に医療や治療を提供する機会を増やすためのものです。

支援のお願い

In Nepal, a young child smiles shyly

WFH人道支援プログラムでは、世界中のNMOおよびHTCに対して支援を行っています。支援をご希望の場合は、[email protected]にお問い合わせください。寄付の対象となるには、その国の一人当たり凝固因子濃縮製剤の使用量が概ね1国際単位(IU)未満であることが条件です。寄付は、登録されているHTC、またはWFH人道支援プログラムとの契約や基本合意書(MoU)への署名が済んでいるWFH NMOのみを対象に送られます。

承認されたNMOまたはHTCは、WFHや地方当局と協力して、寄贈される製剤が通関手続きを経て適切に配送されるために必要な輸入許可を取得します。関連書類が整ったら、寄贈製剤はRX Crossroads(米国)、Gerinnungs Zentrum Rhein-Ruhr(GZRR:ドイツ)、De Jong Special Services(オランダ)を介して梱包・発送されます。

 

製剤寄贈のプロセスの一環として、WFHは寄贈製剤の利用状況を調査します。これは、寄贈製剤の真の必要性や流通インフラを把握するために欠かせない、重要な措置です。このため、提出されたレポートの報告・処理を容易にするためのオンライン・データベースを作成しました。

WFH人道支援プログラムの詳細については、こちらをクリックしてください

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.