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Mini-Congress-Daily-April-24--morning-header

2024 Congress Daily morning edition: Wednesday, April 24

Good morning and welcome to Day 3 of the WFH 2024 World Congress! Check in on the WFH News page daily in the mornings and evenings to learn about what not to miss today, and to get a recap of the key events that took place during the day.

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Medical and PWBD concurrent plenaries taking place this morning

Today’s concurrent plenaries will look at novel therapies and treatment adherence for people with bleeding disorders. “Hemophilia in the era of novel therapies: Where do inhibitors feature in the new landscape?” will be given by Shannon Meeks, MD and will cover how non-factor therapies for the treatment of hemophilia A and hemophilia B are changing the treatment landscape. “Do PWBD treat as recommended? Why or why not?” will be given by Miguel Escobar, MD, and Juan Andrés Pereira de Souza. This plenary will look at treatment adherence for people with bleeding disorders, from defining adherence to addressing treatment burden exhaustion. To find out more, have a look at the full Congress program here.

Time: 10:15 to 10:45
Location:
MEDICAL PLENARY: Hemophilia in the era of novel therapies: Where do inhibitors feature in the new landscape?
N103-N104, 1st floor, North Convention Center
PWBD PLENARY: Do PWBD treat as recommended? Why or why not?
N101-N102, 1st floor, North Convention Center

Join us for a special World Hemophilia Day celebration!

World Hemophilia Day was on April 17, but we still have some celebration left in us! Join us at 12:30 for a special Congress World Hemophilia Day celebration! Wear red and meet us at the WFH Resource Centre to re-commemorate this important day with your peers.

Time: 12:30 to 13:30
Location: WFH Resource Centre in Exhibit Hall 9

Learn more about shared decision-making at 13:30

In today’s session entitled “Empowering patients & providers: Shared decision-making in practice”, participants will learn about shared decision making between health care teams and patients. Come to this session to see how patients can be involved in treatment discussions with their healthcare practitioner in a collaborative way. The WFH Shared Decision Making Tool will also be covered. To find out more, have a look at the full Congress program here.

Time: 13:30 to 14:45
Location: N101-N102, 1st floor, North Convention Center

Free WBDR demo today

Want to learn how to use the WFH World Bleeding Disorders Registry (WBDR) to the fullest? Head over to the WFH Resource Centre and take part in a free demo taking place today!

Time: 14:45 to 15:15
Location: WFH Resource Center, Exhibit Hall 9

Final Presentation Theatre session taking place today

Day 3 of Congress will feature a Presentation Theatre session on creating innovation-led change in diagnosis and access to care. This 20-minute presentation takes place this morning at 11:00.  We encourage you to take part! Find out more about the Presentation Theatre sessions by clicking here.

Time: 11:00 to 11:20
Location: Presentation Theatre in Exhibit Hall 9

Don’t miss this late breaking session on clinical trials and novel therapies

You probably have a busy day on our hands, but you might want to pencil in “Late breaking session: Clinical trials and novel therapies” taking place today at 15:15. This session will feature Trevor Baglin, Alok Srivastava, MD, and Meera Varadarajan, MD talking about the validation of gene therapy for hemophilia A, low-dose emicizumab, and SerpinPC. To find out more, have a look at the full Congress program here.

Time: 15:15 to 16:15
Location: N101-N102, 1st floor, North Convention Center

Closing plenary taking place this afternoon

Join us today at 16:30 for a 30-minute closing plenary. While it’s sad to see Congress end, this plenary will celebrate what we have accomplished in Madrid together in the name of Treatment for All. Hear from Alain Baumann, WFH President; Cedric Hermans, MD; Glenn Pierce, MD, PhD, WFH Vice President, Medical; and Cesar Garrido, President, WFH. Daniel-Aníbal García Diego Fedhemo, President of Fedhemo, the co-host of the Congress will also speak, as will Edwin Goh, President of Hemophilia Society of Malaysia—host of the next WFH World Congress in Kuala Lumpur, Malaysia, in 2026. To find out more, have a look at the full Congress program here.

Time: 16:30 to 17:00
Location: N101-N102, 1st floor, North Convention Center

How to claim CME credits

To ensure you get your CME credits, remember to scan your badge once when you arrive, and once when you leave the conference centre at the end of each day. You will need an EBAH account in order to claim credits.

Don’t have an account? You can create a free account here. If you are having difficulties creating a new EBAH account, please note you will be able to complete your account after Congress on the EBAH website.

To find out more about CME credits at Congress, click here.

WFH Resource Centre: very last day to drop by

The WFH Resource Centre at Congress is your chance to learn about WFH programs, and the free educational content that is available to all. Drop by to chat with our friendly WFH staff and learn more about WFH resources and programs. We look forward to seeing you there!

Location: WFH Resource Center, Exhibit Hall 9

Stay connected with the official Congress app

Access all on-site resources conveniently through our Congress app, including the program schedule, interpretation offering, speaker information, floor plans, and much more!

  1. Download the Aventri Events app from the Apple App Store or the Google Play store
  2. Enter the Congress access code: 463419
  3. Login (case sensitive):
    • Username: the email address you used to register (all lowercase)
    • Password: your last name (only capitalize the first letter

Shuttle bus schedule

The WFH is providing a shuttle service between the official WFH hotels and the IFEMA Convention Center on Congress days. Several shuttles will travel between the Meliá Castilla, Novotel Madrid Center, Hotel H10 Tribeca, Ilunion Alcalá Norte, Ilunion Atrium, Marriott Auditorium, and the RIU Plaza España. WFH 2024 Congress signs will be posted at all boarding sites identifying the location as a WFH Shuttle pick-up and drop-off site.

Day

From Congress hotels

From IFEMA

Wednesday, April 24

7:00 to 9:00

17:00 to 19:00

 

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.