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Your action today. Their future tomorrow.

Imagine for a moment how difficult this past year would have been if you had no stable internet access. Or if a four-hour ride in a crowded bus was the only way to see your doctor.

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Imagine for a moment how difficult this past year would have been if you had no stable internet access. Or if a four-hour ride in a crowded bus was the only way to see your doctor. This is the reality for many living with a bleeding disorder. Isolation, fear, and lack of access to treatment could have quickly become the norm for thousands of people around the world in developing countries. Fortunately, the impact of the situation was lessened thanks to the commitment of the volunteers, partners and supporters of the World Federation of Hemophilia (WFH) who all came together in solidarity to show that while we were apart for now, we are never alone.

In a year faced with unprecedented challenges, we were there for each other. The WFH moved critical training programs online, hosted the first-ever Global Summit on Women and Girls with Bleeding Disorders, and provided our community with the tools and support they needed to continue advocating for better access to treatment and care in a rapidly changing world.

In the coming months we can only hope that vaccination campaigns will allow people to visit family and return to “normal” daily life. For many, though, the long-term effects of the pandemic will last, so we all have to work together to mitigate that impact so we can continue moving towards our shared vision of Treatment for All.

This World Hemophilia Day, you can help! Take action by making a donation to help us continue to help us meet the needs of the global bleeding disorders community.

Your World Hemophilia Day donation will:

  • Ensure we provide patient organization leaders and healthcare providers with the tools they need to stay connected in our new world
  • Deliver training and guidance to help our community advocate for access to treatment and care
  • Help us continue to give voice to the women and girls with bleeding disorders struggling for recognition and access to care
  • Provide us with the flexibility to respond quickly to our community’s emerging and evolving needs

This year, the family of WFH Founder Frank Schnabel will match all donations made between April 15 to April 19 up to a total contribution of $2,500!

Turn your compassion into action and make a donation so that your action today can influence their future tomorrow.

Learn more about World Hemophilia Day and how you can participate by clicking here.

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.