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World Hemophilia Day 2025 another great success

World Hemophilia Day 2025 another great success

The theme of World Hemophilia Day this year was “Access for all: Women and girls bleed too”, and the community celebrated this cause with enthusiasm on April 17, 2025. Celebrations took place across the globe, with buildings and monuments lit up in red. Online, excitement surged as the global bleeding disorders community came together once again to mark this important day.

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A record 175+ monuments took part in the “Light it up Red” campaign, and hundreds of gatherings took place in different cities around the world. Dozens of stories were shared on the World Hemophilia Day story site—where anyone can share a story or a video about their experience with hemophilia.

While it’s hard to single out stories from the many submissions we received on the World Hemophilia Day story site, here are three that we would like to share with you. We’ve taken out excerpts from the stories—if you want to read the full text, please click on the link.

Muhiba Amir Pakistan Person with von Willebrand disease (VWD)

Muhiba Amir
Pakistan
Person with von Willebrand disease (VWD)

My name is Muhiba Amir. I’m 18 years old. I’m a patient of VWD. I am a pre-med student at the Punjab group of colleges. I was diagnosed with VWD when I was 6 months old.

Due to the support of my parents and family, I managed my studies along with VWD. My teachers were also very cooperative. Now… I enjoy a better lifestyle with VWD because I can get information from the hemophilia patients welfare society in Lahore.

Read Muhiba Amir’s story here.

Yannick Collé France Person with hemophilia A

Yannick Collé
France
Person with hemophilia A

Hello, my name is Yannick, I’m 61 and now I know that I’m living with mild hemophilia A. I will speak about my journey for recognition. Years of wondering; I lived for years with symptoms, bruises…

Then 10 years ago, some hematologists started to say that women and girls have symptoms which look like those of hemophiliacs. For me the end of years of wondering—I was nearly 60.

Now I can say I am living with my hemophilia A and can be treated and cared by HCPs. I hope that all women and girls with bleeding disorders could now be diagnosed, cared and treated without years of wondering.

Watch Yannick Collé’s video and read her story here.

Mohamad Abdulkader Lababidi Syrian Arab Republic Person with hemophilia A

Mohamad Abdulkader Lababidi
Syrian Arab Republic
Person with hemophilia A

My Name is Mohamad Abdulkader Lababidi. I was born and raised in Aleppo, Syria—a city once celebrated for its ancient citadels and bustling markets, now scarred by war. My life has been a relentless dance between two forces: “hemophilia”, a genetic disorder I inherited, and the chaos of a conflict that turned streets into battlegrounds. These twin struggles have shaped who I am, but they have not defined my limits.

Read Mohamad Abdulkader Lababidi’s story here.

On behalf of the WFH and everyone in the bleeding disorders community, thank you for your support on World Hemophilia Day.

To learn more about this important event for the bleeding disorders community, please click here.

The WFH would like to thank our 2025 World Hemophilia Day sponsors for their continued support: Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma, Pfizer, Regeneron, Sanofi, Sobi, and Takeda.

We’ve accomplished a lot this year, we need your help to continue strong.

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