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World Hemophilia Day 2021—Adapting to change: sustaining care in a new world

April 17, 2021 is World Hemophilia Day. The theme of the event this year is “Adapting to change: sustaining care in a new world”. This important event is about bringing the global bleeding disorders community together.

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April 17, 2021 is World Hemophilia Day. The theme of the event this year is “Adapting to change: sustaining care in a new world”. This important event is about bringing the global bleeding disorders community together. With the COVID-19 pandemic having a major impact on people with a bleeding disorder, that objective has never been more important. Our community is made up of a great diversity of people—from patients and their families, to carers, physicians and researchers—each of whom has been affected by the pandemic in a different way. We need to continue providing support to these people now, and in the future once the pandemic has passed. The world has changed greatly over the last year, but one thing hasn’t: we are still in this together, and we will always be stronger together as a community in our shared vision of “Treatment for All”.

The COVID-19 pandemic has made life challenging for people with a bleeding disorder—but we can’t stop striving for Treatment for All. World Hemophilia Day is a platform for showing the world that our community is resilient and we will overcome this new challenge as we have overcome other challenges in the past.

- Cesar Garrido, WFH President

Get involved and show how you have adapted to change and helped sustain care in a new world!
  1. Write on www.worldhemophiliaday.org (live in April 2021) about how you or someone you know has adapted to change in the last year
  2. Participate in the World Hemophilia Day Light it Up Red! campaign. Last year, thousands of people worldwide show their support—while social distancing—by lighting up nearly 100 landmarks in cities across the world.
  3. Share pictures with us through Facebook, Twitter and LinkedIn
  4. Tell the world how you’re getting involved on April 17 on social media using the following hashtags: #WorldHemophiliaDay, #WHD2020, and #LightItUpRed
  5. Download resources to help build your World Hemophilia Day Campaign and to learn more about the day from the WFH World Hemophilia Day webpage
  6. Contact your national member organization (NMO) to find out how you can support them in a safe way on World Hemophilia Day
  7. Engage local media to let them know how your community is marking the big day
  8. Donate to the WFH to help us continue supporting the community through the pandemic and for long-term sustainability
  9. Organize a virtual fundraising event as a show of solidarity for community members adapting to a changed global reality
  10. Send pictures, comments or questions to the WFH at [email protected]

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.