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World Hemophilia Day 2020: the world gets involved

April 17, 2020 was World Hemophilia Day, and the theme of “Get+involved” was felt around the world despite the challenges of the current COVID19 crisis.

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April 17, 2020 was World Hemophilia Day, and the theme of “Get+involved” was felt around the world despite the challenges of the current COVID19 crisis. From all four corners of the globe, people from the bleeding disorders community took the WFH vision of “Treatment for All” to heart—virtually. On social media, and on worldhemophiliaday.org—our World Hemophilia Day microsite—people everywhere shared their stories with compelling honesty.

The WFH Facebook pageLinkedIn page and Twitter timeline saw hundreds of updates on the big day. Our World Hemophilia Day microsite—designed to offer visitors information about inherited bleeding disorders, as well as communications material to support them in creating their own activities—was also very popular. Nearly 4,700 people visited the platform, and the pages of the site were viewed over 11,000 times. Over 300 stories were posted on the platform:  people told their own personal stories of living with a bleeding disorder, or sometimes shared their experiences knowing someone who has a condition.

World Hemophilia Day is a day to celebrate our dedication, and our hard work. It is also a day for us to honor and thank the healthcare professionals so devoted to our cause. They are there to support and connect our community—particularly now during the challenges of the COVID-19 pandemic.

- Alain Baumann, WFH CEO

We also set a “world record” this year. Ninety-eight landmarks around the world took part in the “Light it up Red” campaign this year. The images of those landmarks were shared on social media worldwide.

Our World Hemophilia Day microsite—worldhemophiliaday.org—is still up, so if you want to find out more about World Hemophilia Day, or read some inspiring stories, just click here.

The WFH would like to thank our 2020 World Hemophilia Day sponsors for their continued support: Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., GC Pharma, Grifols, Kedrion, Novo Nordisk, Octapharma, Pfizer, Precision BioLogic, Sanofi Genzyme, Sobi, Spark Therapeutics, Takeda, and uniQure.

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.