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WFH Online Registry of Clotting Factor Concentrates

The Online Registry of Clotting Factor Concentrates on the World Federation of Hemophilia (WFH) eLearning Platform puts the details of over 100 products at your fingertips!

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The Online Registry of Clotting Factor Concentrates on the World Federation of Hemophilia (WFH) eLearning Platform puts the details of over 100 products at your fingertips!

Originally created in 1997 by Meirione Costa e Silva of Brasilia and Carol Kasper, MD, for the International Society on Thrombosis and Haemostasis (ISTH), the purpose of the Online Registry of Clotting Factor Concentrates is to help medical personnel identify available clotting factor concentrates (CFCs) and stay abreast of pharmaceutical company changes. The second version was published as part of the WFH periodic Facts and Figures series, and in July 2016, the third version was launched on the WFH eLearning Platform.

The Online CFC Registry provides a wealth of easily accessible and actively updated data that can be used by healthcare providers and officials, pharmacists, and people with bleeding disorders. It provides an overview of available products and facilitates comparisons between them. In this way, it helps doctors and pharmacists identify and characterize products that may be new for them—for example products that people with bleeding disorders bring with them during their foreign travels. Manufacturers of CFCs can contact the WFH to have their products added to the Registry, or to revise and update the details of their products in the Registry.

Users who access the Online CFC Registry immediately see available products by indication, product type, brand name, and company. Users can export the entire Registry (as an Excel spreadsheet or PDF) or they can filter the output display by indication and product type. Users can further refine their search by entering text into any of the four search fields.

Users of the Online CFC Registry can learn more about specific products by selecting the “Details” button. This opens a pop-up window containing information on how and where the product is manufactured. For products derived from plasma, details of donor testing protocols and the plasma pool are also listed. Clicking on the “Download” button allows users to download a PDF of a particular product for offline reading.

Another interesting feature of the Online CFC Registry is the “Compare” button, which allows users to compare two products side-by-side.

Dragging column headers onto the grey bar allows users to group results by specific criteria, offering them more flexibility in how the products are displayed.

By combining these features, users can create their own product list that they can export for offline consultation, or use as reference material. Note: all products listed on screen will be exported when the “Export to Excel” and “Export to PDF” buttons are selected.

The Online CFC Registry is found under the “Featured Tools” drop-down menu on the WFH eLearning Platform.

Fiona Robinson, Educational Materials Manager for the WFH, wishes to thank Georghia Michael and Mark Brooker for their contributions to this article.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

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The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.