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Video series showcases comprehensive work of the WFH in India

The World Federation of Hemophilia (WFH) has significantly improved care for people with bleeding disorders (PWBDs) in India through a variety of platforms. These endeavours, in collaboration with the Hemophilia Federation of India (HFI)—the national member organization (NMO)—and healthcare professionals, have enhanced treatment quality and transformed lives. Since 2015, increased treatment product donations provided by the WFH Humanitarian Aid Program have supported advanced procedures and surgeries, allowing people with bleeding disorders (PWBDs) in the country to enjoy a better quality of life. This partnership between the WFH, the NMO, sponsors and other stakeholders has allowed the country to move closer to being able to offer sustainable care to PWBDs.

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The WFH is providing support to India through a comprehensive approach, driven by the WFH Humanitarian Aid Program, the WFH Path to Access to Care and Treatment (PACT) Program, the WFH Twinning Program, the WFH International External Quality Assessment Scheme (IEQAS), and other efforts. Through these activities, the WFH, PWBDs, healthcare professionals and other stakeholders have opportunities to collaborate over the long term to support the local bleeding disorders community.

In 2024, the WFH released three videos showcasing the work being done in India. If you missed them—or if you want to watch them again—read on!

A multifaceted impact in India

Shubhranshu S. Mohanty, MD, of King Edward Memorial Hospital in Mumbai, credits the WFH for making 150 annual surgeries possible in his facility, including complex cases like robot-assisted knee replacements. A standout case is Rahul, a PWBD who—after surgery made possible thanks to donated treatment products—regained his mobility.

To read the article based on this video, click here.

WFH collaboration with Sahyadri Hospital in India bears fruit

Since its founding in 2002, Pune’s Sahyadri Hospital has provided care for people with bleeding disorders, advancing treatment through collaboration and WFH support. Success stories include Mohnish Patil, now walking and studying pain-free, and Om Shah, who regained his mobility and leads an active life. The WFH has also helped the Hemophilia Federation India (HFI) expand to 99 chapters while forging close ties with 120 treatment centres nationwide.

To read the article based on this video, click here.

The WFH and our sponsors: making a difference in India

WFH Humanitarian Aid Program sponsors have helped transform care for India’s bleeding disorders community. Multiple initiatives have made it possible to provide prophylactic treatment, improve diagnostics, and enhance access to care. During a recent visit, sponsors saw first-hand the impact their support has had on the Indian inherited bleeding disorders community, including making prophylaxis a reality, and helping to expand medical infrastructure for diagnosis. After the visit, the sponsors reaffirmed their commitment to the WFH Humanitarian Aid Program.

To read the article based on this video, click here.

Almost 68 million IUs of factor were donated to India through the WFH Humanitarian Aid Program in 2024. Since 2015, almost 439 million IUs of factor have been donated to India. To find out more about the WFH Humanitarian Program, please click here.

About the WFH Humanitarian Aid Program

The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi and Sobi, our Founding Visionary Contributors; Bayer, CSL Behring and Roche, our Visionary Contributors; Grifols, our Leadership Contributor; and Takeda, our Contributor. To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org.

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.