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Just released: new gene editing and genetic technology educational booklet

Just released: new gene editing and genetic technology educational booklet

The World Federation of Hemophilia (WFH) is pleased to announce the release of a new educational booklet which explains gene editing and other genetic technologies in the context of hemophilia care. “Genetic Technologies for Hemophilia” is designed to make complex scientific concepts accessible to both people with bleeding disorders and healthcare professionals, and to support informed conversations about emerging treatment options.

Also available in: Français Español

The booklet provides a clear, visual overview of how gene editing works, and how it differs from other genetic technologies such as adeno-associated virus (AAV) gene therapy and lentiviral therapy. The document begins with a basic explanation of DNA and its role in the body before introducing more advanced concepts. To make gene editing easier to understand, a book analogy is used to illustrate how gene editing can modify, replace, or add a specific “sentence” in the DNA sequence. Questions around safety, durability, heritability, and use in children are also addressed.

To start reading “Genetic Technologies for Hemophilia”, click here.

Want to learn more? Watch our webinar!

On November 25, 2025, the WFH hosted a webinar titled “Progress toward a cure for hemophilia: gene editing explained.” The session explored the science behind gene editing, how it builds on existing genetic technologies, and what it could mean for the future of treatment. Featuring Glenn Pierce, MD, PhD, Vice President, Medical, WFH, the event included a live Q&A and was open to both healthcare professionals and the hemophilia community. To watch the webinar on the WFH eLearning Platform, click here.

The new gene editing and genetic technology educational booklet was exclusively supported by Regeneron.

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