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Just published: Annual Global Survey 2022

Collecting data through the Annual Global Survey (AGS) has been an integral part of ensuring that we realize our strategic objectives. Today, we are pleased to announce the publication of the latest edition of the Report on the WFH AGS for the year 2022, highlighting the significant progress made in care for those living with bleeding disorders. AGS data can be used by by national member organizations (NMOs) and other stakeholders to effectively advocate with governments to improve care for bleeding disorders communities.

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The Annual Global Survey is a yearly cross-sectional survey of NMOs that includes country-level demographic and treatment-related data on people with hemophilia (PWH), von Willebrand disease (VWD), rare factor deficiencies, and inherited platelet disorders. In 2022, the Annual Global Survey received responses from 125 countries, with the noteworthy addition of three new countries—Fiji, Libya, and The Gambia—contributing data for the first time. This year’s data showed a 6% increase in global identification of people with hemophilia and von Willebrand disease (VWD), and a 5% increase in those with other rare bleeding disorders. These encouraging developments show that progress is being made advancing the identification and diagnosis of PWBDs.

In 2022, data collection efforts were broadened to encompass additional information on women and girls with bleeding disorders (WGWBs). The 2022 report introduces a new section dedicated to the identification and diagnosis of bleeding disorders in females, which sheds light on the usage of VWD products in this demographic. The expansion of the coverage of WGWBs serves as a crucial step for improving care and research for women and girls in the future.

The WFH expresses its gratitude for the support and participation of all NMOs in our data collection efforts.

To read the WFH Annual Global Survey 2022, please click here. Supplementary charts and graphs are available online here. For more information about the Annual Global Survey, click here or contact us at [email protected].

We’ve accomplished a lot this year, we need your help to continue strong.

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The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

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