The Annual Global Survey is a yearly cross-sectional survey of NMOs that includes country-level demographic and treatment-related data on people with hemophilia (PWH), von Willebrand disease (VWD), rare factor deficiencies, and inherited platelet disorders. In 2022, the Annual Global Survey received responses from 125 countries, with the noteworthy addition of three new countries—Fiji, Libya, and The Gambia—contributing data for the first time. This year’s data showed a 6% increase in global identification of people with hemophilia and von Willebrand disease (VWD), and a 5% increase in those with other rare bleeding disorders. These encouraging developments show that progress is being made advancing the identification and diagnosis of PWBDs.
In 2022, data collection efforts were broadened to encompass additional information on women and girls with bleeding disorders (WGWBs). The 2022 report introduces a new section dedicated to the identification and diagnosis of bleeding disorders in females, which sheds light on the usage of VWD products in this demographic. The expansion of the coverage of WGWBs serves as a crucial step for improving care and research for women and girls in the future.
The WFH expresses its gratitude for the support and participation of all NMOs in our data collection efforts.
To read the WFH Annual Global Survey 2022, please click here. Supplementary charts and graphs are available online here. For more information about the Annual Global Survey, click here or contact us at [email protected].