Accomplishments highlighted in WFH 2023 Annual Report

Accomplishments highlighted in WFH 2023 Annual Report

The World Federation of Hemophilia (WFH) 2023 Annual Report has been published! 2023 featured many notable accomplishments for the WFH—including the 60th anniversary of the federation. Sixty years of collaboration, training, education, advocacy, and support that have changed thousands of lives around the world. The latest annual report contains many other encouraging developments that show that the WFH continues to make a difference in the lives of people with inherited bleeding disorders around the world.

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The WFH vision of Treatment for All is for a world where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, or where they live. In 2023, we got another step closer to that objective by delivering a wide range of support to the community across multiple channels. This is proven through our 2022-2025 Strategic Priority key performance indicators (KPIs), which show that we surpassed our objectives for several metrics. To read the report, click here.

In 2023, the WFH launched new events and tools to support the community. Last year saw us hold the first WFH 2023 Comprehensive Care Summit and launch the WFH Gene Therapy Registry (GTR). Also, the WFH Global Policy and Access Summit (GPAS), the WFH Global Summit on Women and Girls with Bleeding Disorders (WGBD) and the 13th WFH Global Forum delivered real value to attendees.

The WFH also expanded the World Bleeding Disorders Registry (WBDR) to include people with von Willebrand disease (VWD) and launched the Shared Decision-Making (SDM) Tool for Hemophilia Treatment.

Our many programs continued to have an impact on the community. The WFH Path to Access to Care and Treatment (PACT) academy graduated its second cohort of leaders. The WFH Humanitarian Aid Program continued to deliver donated factor and educational support to where it’s needed most. We also published literature that is always eagerly anticipated for those involved in advocacy and research, such as the Annual Global Survey (AGS) and the WBDR 2022 Data Report.

We did much in 2023, and I’m proud of our accomplishments. But we need to do more. That is where we will be putting our energy. As our work and our profile grows on the world stage, so do the expectations of our community… On behalf of everyone at the WFH, I would like to thank the global inherited bleeding disorders community, our pharmaceutical partners, governments, HCPs, NMOs, WFH USA, WFH staff and everyone else who put their confidence in us in 2023. Your trust energized us in 2023, and it will do so again in 2024.

—Cesar Garrido, President, WFH

To read more about what we accomplished as a family in 2023—including case studies—read the WFH 2023 Annual Report (in English) here. To find out more about the World Federation of Hemophilia (WFH), click here.

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

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