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Vincent from Uganda shares heartwarming story

Vincent from Uganda shares heartwarming story

In 2017, Vincent Komakech went to Lacor Hospital in Gulu with a severely swollen and painful knee. There, Agnes Kisakye, Executive Secretary of the Haemophilia Foundation of Uganda, realized that his clinical presentation was highly indicative of a bleeding disorder. She flagged the case to the physicians and advised that he undergo diagnostic testing for hemophilia. His diagnostic results confirmed a diagnosis of hemophilia A, and he was immediately started on factor VIII concentrate therapy, which he still uses to manage his condition today. Almost 20 years old at the time, Komakech finally had an answer as to why he had been suffering for so many years. Finally, he had answers—and hope for a better future.

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The WFH has been active in Uganda for many years through several endeavours that aim to support people like Vincent Komakech and help the country reach a point where it can provide sustainable care to its bleeding disorders community. For example, the country has received WFH Humanitarian Aid Program support since 2015. In 2023, the Haemophilia Foundation of Uganda (HFU)—the country’s WFH national member organization (NMO)—received a WFH von Willebrand disease (VWD) Grant to help it increase the identification rates of VWD and other bleeding disorders in Uganda, and reduce mortality and morbidity caused by late diagnosis. Also, the HFU completed a Hemophilia Organization Twinning (HOT) with Wyoming/Montana (U.S.A) in 2024 for which it received the Twins of the Year award.

In July 2026, Vincent Komakech shared a letter with the WFH expressing his gratitude for the donated factor he has received thanks to the WFH Humanitarian Aid Program. This letter has been edited for clarity.


Letter of appreciation for your support to people living with hemophilia in Uganda

My name is Komakech Vincent, and I am a person living with hemophilia A in Uganda. I am writing this letter to express my heartfelt gratitude to the WFH for the tremendous support you continue to give to people living with hemophilia in Uganda.

I am currently receiving treatment from Mulago National Referral Hospital for a product [donated by the WFH Humanitarian Aid Program] that has greatly improved my health and quality of life. Since I began using this treatment, I have experienced significant relief, and it has truly made a great difference in my life. Whenever I use it, I feel much better and am able to carry out my daily activities with far less difficulty than before.

On behalf of myself and many other Ugandans living with hemophilia, I sincerely thank the WFH for your generous support, dedication, and commitment to improving the lives of people affected by bleeding disorders in Uganda and around the world. Your efforts have brought hope, comfort, and a better quality of life to many of us who would otherwise struggle to access this life-saving treatment.

I kindly appeal to you to continue extending this vital support to us.

May God bless you abundantly for your kindness and generosity towards us.

Yours faithfully,

Komakech Vincent
Uganda

The WFH Humanitarian Aid Program has donated over 26.5 million IUs of factor and over almost 320,000 mg of non-factor replacement therapy to Uganda since 2015. Over 6.2 million IUs of factor, and 64,000 mg of non-factor replacement therapy were donated last year alone. To find out more about the WFH Humanitarian Aid Program please click here.

About the WFH Humanitarian Aid Program

The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi and Sobi, our Founding Visionary Contributors; Bayer, CSL Behring and Roche, our Visionary Contributors; Grifols, our Leadership Contributor; and Takeda, our Contributor. To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org.

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