Twinning Program

The WFH Twinning Program creates short-term collaborative partnerships between medical professionals and patient and youth leaders in emerging and established countries for a period of two to four years. Hemophilia treatment centres, patient organizations and youth groups can participate in this program, helping improve treatment and care for people living with an inherited bleeding disorder in developing countries.

Over more than 30 years, the WFH Twinning Program has established 275 partnerships across 119 countries: 102 hemophilia organizations, 166 hemophilia treatment centres and 7 youth group twinning partnerships.

Over the lifespan of the program, twinning partnerships have improved diagnosis and treatment, enriched the knowledge of HCPs caring for patients with bleeding disorders, enhanced outreach initiatives, facilitated resource sharing, increased government support for bleeding disorders through advocacy initiatives, and strengthened patient organizations through capability building.

TYPES OF TWINNING PARTNERSHIPS

The Hemophilia Treatment Centre (HTC) Twinning partners emerging HTCs with established ones for a maximum of four years to help improve diagnosis and provide care and treatment for people with hemophilia and other inherited bleeding disorders.

The Hemophilia Organization Twinning (HOT) partners emerging and established hemophilia patient organizations for a maximum of four years to share knowledge and skills in areas such as patient education, outreach, fundraising, and the other aspects of operating a successful hemophilia patient organization.

The Youth Group Twinning partners NMO youth groups from around the world in formal, two-year partnerships with the goal of helping to improve and strengthen youth leadership in emerging countries to prepare the next generation of leaders.

APPLICATION AND WFH SUPPORT

  1. Contact the WFH at [email protected] to request a background questionnaire to be completed.
  2. If a potential partner is identified, the WFH will contact you to discuss the possibility of a twinning.
  3. Once twins have been matched, an assessment visit will be conducted.
    • The assessment visit is an opportunity for the potential partners to meet with each other, learn more about the current situation in the developing country, and discuss the ways a twinning partnership could help improve care in that country.
    • At the end of the assessment visit, if partners agree to proceed, a formal online application form will be completed and submitted for the consideration of the Twinning Committee.

The WFH provides support to twinning partners (treatment centres, organizations, and youth groups) during the lifespan of their partnership by:

  • Assisting interested applicants in finding a twinning partner
  • Financially supporting the partnerships through annual project funding and funds for assessment visits
  • Providing individual guidance and coaching to twinning partnerships through WFH regional managers
  • Facilitating the sharing of experiences between twinning partnerships, including twinning meetings
  • Supplying WFH educational resources
  • Providing a letter of support to facilitate travel

For more information on the WFH Twinning Program, contact the WFH at [email protected].

LATEST TWINNING NEWS

WFH 2025 Twins of the Year

WFH 2025 Twins of the Year announced

The World Federation of Hemophilia (WFH) is pleased to announce the 2025 Twins of the Year! The 2025 Hemophilia Organization Twinning (HOT) Program Twins of the Year are the Haemophilia Association of Mauritius and the Hemophilia Federation (India). The 2025 Hemophilia Treatment Centre Twinning (HTC) Program Twins of the Year are the Instituto Hematológico Pediátrico Dra Victória do Espírito Santo, Luanda, Angola and the IHTC Campinas, Hemocentro UNICAMP, University of Campinas (Brazil).

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WFH Twinning Program welcomes seven new partnerships in 2026 header - EN

WFH Twinning Program welcomes seven new partnerships in 2026

The World Federation of Hemophilia (WFH) is pleased to announce the addition of seven new partnerships to the WFH Twinning Program. Designed to fund short-term collaborative partnerships between patient organizations, medical professionals, and youth leaders from around the world, the WFH Twinning Program enhances capacity building and sustainability through the exchange of knowledge and expertise. This year, three new Hemophilia Organization Twins (HOT) and four Hemophilia Treatment Centre (HTC) twins are joining the WFH.

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WFH Twinning Program: three decades of impact

WFH Twinning Program: three decades of impact

For over 30 years, the World Federation of Hemophilia (WFH) Twinning Program has been transforming care for people with inherited bleeding disorders around the world. Through collaborative partnerships between organizations and centres in developed and developing countries, the program has strengthened hemophilia treatment centres (HTCs), patient organizations, and youth groups across 119 countries.

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The Twinning Program is supported by funding from:

FOUNDING VISIONARY PARTNER
Pfizer logo
LEADERSHIP PARTNER
Sanofi logo

Did you know?

IEQAS improves and standardizes laboratory diagnosis by auditing the effectiveness of a laboratory’s internal quality assurance systems to determine competence levels.

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.