Home »

News

As the end of 2024 approaches, the World Federation of Hemophilia (WFH) would like to celebrate our volunteers, WFH and WFH USA board members, national member organizations (NMOs), healthcare professionals, staff, and our Corporate Partners, Community Partners and Collaborating Organizations around the world for their dedication to our shared vision…
March 29, 2023

The WFH is very pleased to announce that David Silva has been co-opted to its Board of Directors as a lay member from March 17, 2023, to the next Annual Meeting of the General Assembly in 2024.

January 7, 2025

The World Federation of Hemophilia (WFH) has significantly improved care for people with bleeding disorders (PWBDs) in India through a variety of platforms. These endeavours, in collaboration with the Hemophilia Federation of India (HFI)—the national member organization (NMO)—and healthcare professionals, have enhanced treatment quality and transformed lives. Since 2015, increased …



Haemophilia celebrates 30 years of success
December 23, 2024

This past October, Haemophilia—the official journal of the World Federation of Hemophilia—marked 30 years of advancing care and knowledge about inherited bleeding disorders. First published in October 1994 by Blackwell Science, the journal was created to share information on comprehensive care for hemophilia, bringing together insights from around the world. …



WFH brings training on point of care ultrasound to Kenyan HCPs
December 20, 2024

The World Federation of Hemophilia (WFH) provides hemophilia treatment centres (HTCs) in developing countries with training and resources designed to help improve care for people with bleeding disorders (PWBDs). These efforts cover a wide range of topics and are strategically delivered to maximize short term impact, while setting the stage …



WFH mourns passing of Marion Koerper, MD
December 20, 2024

It is with great sadness that the World Federation of Hemophilia (WFH) learned of the recent passing of Marion Koerper, MD. Marion was part of the WFH Coagulation Product Safety, Supply, and Access (CPSSA) Committee following the WFH 2016 World Congress in Orlando, U.S.A.



Happy New Year from the World Federation of Hemophilia!
December 19, 2024

As the end of 2024 approaches, the World Federation of Hemophilia (WFH) would like to celebrate our volunteers, WFH and WFH USA board members, national member organizations (NMOs), healthcare professionals, staff, and our Corporate Partners, Community Partners and Collaborating Organizations around the world for their dedication to our shared vision …



New England Journal of Medicine features new, groundbreaking gene therapy
December 11, 2024

A new study published in the New England Journal of Medicine—“Lentiviral Gene Therapy with CD34+ Hematopoietic Cells for Hemophilia A”—tested a new, groundbreaking gene therapy using a different virus to carry the Factor VIII gene than has been used previously. The study provides promising evidence for the safety and effectiveness …



The preliminary program for the WFH 2025 Comprehensive Care Summit is now live! With over 40 hours of educational sessions across the Medical, People with Bleeding Disorders (PWBD), and Musculoskeletal (MSK) tracks, this event is packed with opportunities for learning and connection.
December 11, 2024

The preliminary program for the WFH 2025 Comprehensive Care Summit is now live! With over 40 hours of educational sessions across the Medical, People with Bleeding Disorders (PWBD), and Musculoskeletal (MSK) tracks, this event is packed with opportunities for learning and connection.



Global team of experts publish article on contrasting approaches in strict GRADE implementation to inform clinical practice guidelines
December 9, 2024

An article has just been published in Haemophilia, which outlines how the implementation of GRADE (Grading of Recommendations Assessment, Development and Evaluation) methodology can impact the development of medical guidelines. The article critiques and highlights the limitations and missed opportunity of the ISTH guidelines for the treatment of hemophilia, specifically …



Global team of experts critique ISTH clinical guidance on hemophilia treatment
December 8, 2024

An article has just been published in Haemophilia, which offers a critique of the recently published International Society on Thrombosis and Haemostasis (ISTH) clinical practice guidelines (“International Society on Thrombosis and Haemostasis clinical practice guideline for treatment of congenital hemophilia A and B based on the Grading of Recommendations Assessment, …



December 5, 2024

Today is International Volunteer Day, and the World Federation of Hemophilia (WFH) would like to express its heartfelt gratitude for the incredible time, effort, and passion our volunteers have dedicated to our shared vision of Treatment for All. Their commitment and hard work are making a real difference in the …



WFH Humanitarian Aid Program
December 4, 2024

The World Federation of Hemophilia (WFH) Humanitarian Aid Program provides care to people with bleeding disorders all around the world. This year, the WFH released 11 videos showcasing the difference the Program has been making in different countries around the world. In each video, we hear the stories of people …



WFH Humanitarian Aid Program
November 29, 2024

The World Federation of Hemophilia works with bleeding disorders communities in countries all around the world to help them along the road to sustainable care. Through programs, training and educational materials, the WFH makes a real difference. This difference can be seen in many ways—including through the stories of people …