Gernot Radlingmayr
My name is Gernot Radlingmayr. I live in Vienna, Austria. I’ve studied architecture and I am currently working for the Austrian Railways. In my free time I like to play guitar, do some sport and meditation in a Zen tradition. My partner is a women with severe Factor VII deficiency. Through her I learned more about bleeding disorders in general and especially in women and I got involved in the activities of the Austrian Hemophilia Society. On August 1st 2023 our daughter Ina was born, our first child. I gained experience in supporting a partner with Factor VII deficiency through pregnancy and childbirth.
Masood Fareed Malik
Mr. Masood Fareed Malik is a Person with Hemophilia and a well-known community activist in Pakistan. He has been working very closely with “Hemophilia Foundation® – Pakistan [HFP] and its Chapters since 2000. He is a young professional and an entrepreneur managing his business. Previously, he has worked for 10 years as Social Mobilization Office at the “Joint United Nations Programme on HIV/AIDS [UNAIDS]”. Mr. Malik is currently serving voluntarily as “Advisor”. In his previous voluntary role, he has served as “President” of HFP and represented Hemophilia Community at many national, regional and international platforms. Mr. Malik has been a tireless advocate in achieving treatment for all those living with bleeding disorders in Pakistan. He strongly believes in the greater involvement of community members at all decision-making levels. He has the capacity to handle cross-cultural sensitivity concerning hemophilia and aims to make use of his experience and abilities to provide support to community members especially the under privileged. Malik has a Master’s degree in Business Administration [MBA] among other qualifications.
Miguel Escobar
Miguel Escobar is tenured Professor of Internal Medicine and Pediatrics at the University of Texas Health Science Center, MD Anderson Cancer Center and the McGovern Medical School in Houston, Texas. He is also the Director of the Gulf States Hemophilia and Thrombophilia Center, the Clinical Research Center at the University and the Medication, Therapy and Wellness Center at the Memorial Hermann Hospital in Houston. Dr Escobar received his MD from the Universidad Libre in Cali, Colombia and did his residency in Internal Medicine at the University of Connecticut and fellowship in hematology/oncology at the University of North Carolina at Chapel Hill, USA. Dr Escobar has been involved in many clinical studies, resulting in a range of publications and is a member of several professional organisations. He is a member of the World Federation of Hemophilia Board of Directors and Chair of the Scientific and Standardization Subcommittee on FVIII/FIX & rare coagulation disorders for the ISTH. His main research interest is in haemophilia, congenital and acquired inhibitors and other coagulation deficiencies.
Patrick James Lynch
Patrick James Lynch is a filmmaker, content producer, and the Founder/CEO of Believe Limited. Producing credits include the films Bombardier Blood (EP: Alex Borstein), My Beautiful Stutter (EP: Paul Rudd), sometimes, i think about dying (Sundance Film Festival), Let’s Talk (with Mental Health Matters Too), and Elsewhere (Winner: HRIFF Best Picture); the web series Stop The Bleeding! (12 seasons and counting); podcasts on hemophilia, sickle cell disease, thalassemia, pain, clinical research, and more through BloodStream Media, and he’s produced event programs like Speak Up, Speak Out: Cystinosis and Me; Urea Cycle Disorder: Undefined; Breaking Through: Hemophilia The Musical, the Teen Impact Awards, and TheScienceFair.org. Founding Board President of Entertainment 2 Affect Change (501c3). Awards: Hemophilia Federation of America Health & Wellness (2013), National Hemophilia Foundation Meritorious Service (2014), NORD Rare Impact (2020). World Federation of Hemophilia Congress Speaker (2016, 2018, 2022). Media coverage: BBC, Buzzfeed, Deadline, Fox News, HuffPo, Variety, VICE, and beyond. Patrick lives with severe hemophilia A and dedicates his work in rare disease to the memory of his late brother, Adam. Catch Patrick multiples times a month on BloodStream Podcast.
Nathan Connell
Dr. Nathan Connell is Chief of Medicine at Brigham and Women’s Faulkner Hospital, Vice Chair of Medicine at Brigham and Women’s Hospital, Associate Director of the Boston Hemophilia Center, and Associate Professor of Medicine at Harvard Medical School. His clinical practice focuses on inherited bleeding disorders and he researches cost-effective strategies for the diagnosis and management of hematologic diseases. A graduate of Cornell University, the University of Miami School of Medicine, and the Harvard School of Public Health, he completed an internal medicine residency and a hematology/oncology fellowship at Brown University. In addition to his work defining the field of systems-based hematology, he co-chaired the ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of von Willebrand disease.
Dawn Rotellini
Dawn has been a leader in the bleeding disorders community for many years. As a parent of a son with hemophilia, she founded the Rocky Mountain Hemophilia & Bleeding Disorders Association in Bozeman, Montana, served as its Executive Director, and began their Family Camp. After moving to Pittsburgh, Pennsylvania, she served as a board member for the Hemophilia Center of Western Pennsylvania for six years and then as Executive Director of the Western Pennsylvania Chapter. She has been with the National Hemophilia Foundation for 14 years and serves as Chief Operating Officer. Dawn serves on the Board of Directors for the World Federation of Hemophilia and World Federation of Hemophilia USA. Dawn proudly chairs the Women and Girls with Bleeding Disorders and the Hemophilia Organization Twin Committees for WFH. She holds a Bachelor of Science from Montana State University in Bozeman.
Salome Mekhuzla
Salome Mekhuzla, WFH Director, Global Development leads a team responsible for implementing various healthcare development and capacity-building programs around the globe. Originally from the country of Georgia, her prior experience while working with European and US-based international NGOs on civil society development, advocacy and inter-ethnic relations in the South Caucasus region serves her well in her current role. She holds a MSocSc degree in Transformation in South Caucasus from Tbilisi State University, Center for Social Sciences and a MSc in Nationalism Studies from the University of Edinburgh. Her work takes her many places and she loves the multicultural nature of the WFH, believing it is this diversity that give our community such great strength.
Emna Gouider
Dr Emna Gouider is currently a professor of Hematology in the medical university of Tunis El Manar In Tunisia. She is the head of the hemophilia center in Aziza Othmana Hospital in Tunis, which has more than 700 people with bleeding disorders. She has more than 10 years of experience with low dose prophylaxis for treatment of PWH. She is a medical member of the WFH board, and she is involved in several WFH committees. She also has been involved in the Tunisian Association of Hemophilia as a member responsible for medical and scientific affairs since 2001, and organized and conducted several nurse, lab, patient, and musculoskeletal workshops. Improvement of care and quality of life of PWH in her country is one of her main goals.
Marko Marinic
Miembro lego del consejo directivo Federación Mundial de Hemofilia Zagreb, Croacia
Premroop Alva
Born with severe hemophilia B, Prem has been involved in Haemophilia movement in Karnataka and India for over 25 years. He has held various positions in his chapter and the national NMO. He was one of the architects of evidence-based advocacy initiatives in India and played a huge role in establishing the National Hemophilia Registry of Hemophilia Federation (India). Prem has been actively involved in advocating for improvement of treatment and diagnostic facilities in several states of India and led various development projects in HFI. He contributions have led to establishment of several comprehensive hemophilia care centres in the country. Prem is also a member of State Blood Cell, a government decision-making body on blood & bleeding disorders in the state of Karnataka, India.
