Mohammed Soliman
Mr. Mohammed Soliman is a teacher for the Ministry of Education since 2007. He has served the hemophilia community in Egypt since 2010 as a member of the board of the Egyptian Society of Hemophilia. Mr. Mohammed has severe Hemophilia A.
Bill Robie
Bill Robie is the Director, State Government Relations with the National Hemophilia Foundation, where he is in his ninth year serving the bleeding disorders community. He works from his home in Bend, Oregon.
Bill is a native of Waterbury, Vermont, and received his Bachelor of Arts degree in Biology from Boston University in 1984. Bill also was a graduate student in Biological Oceanography at the University of Alaska, Fairbanks from 1988 -1991 before leaving to pursue his interest in marine and environmental policy in Washington, DC.
Bill has worked in local, state, and federal government relations since 1992, when he was a National Oceanic and Atmospheric Administration Sea Grant Fellow on the U.S. Senate Environment and Public Works Committee. Bill has spent most of his career working for various industry trade associations in Washington, DC; Harrisburg, Pennsylvania; Atlanta, Georgia; and Bend, Oregon.
Bill manages a team of three covering all fifty United States, Puerto Rico, and Guam. NHF’s state government relations team helps NHF chapters develop advocacy programs that influence and advance public policies to help the bleeding disorders community.
Yannick Collé
Yannick Collé is a carrier of hemophilia A, with mild hemophilia A. She is co-leader of the French NMO Women’s Committee for 15 years. She is a member of the EHC WBD Committee for 5 years and also a member of the WFH WGBD committee since 2022. Her main goals are to organize actions for and with WBD inside the BD community and advocate for awareness campaigns to the general public.
Adriana Velasquez Berumen
Team Lead Medical Devices and In Vitro Diagnostics, MDD, World Health Organization, Geneva, Switzerland
Clive Ondari
Clive Ondari has over 30 years of experience in pharmaceutical policies and programmes, having worked for the Government of Kenya and WHO on various assignments. He holds a Doctorate in Pharmaceutical Sciences and Master of Science in Business Administration.
He started his career in academia and regulatory affairs in Kenya where he was Associate Professor of Pharmaceutics and Head of Department at the University of Nairobi and Chairman of the Pharmacy Board (Committee on Registration of Medicines) for over 10 years.
He has served as coordinator for Medicines Access and Rational Use, as well as coordinator for Safety and Vigilance.
He is currently the Director for Health Products Policy and Standards in the Division of Access to Medicines and Health Products at WHO Headquarters.
Len Valentino
Leonard A. Valentino, MD, is the President and Chief Executive Officer of the National Hemophilia Foundation. He is a board-certified pediatric hematologist oncologist and practiced at Rush University Medical Center where he was a Professor of Pediatrics, Internal Medicine, Immunology-Microbiology and Biochemistry and the Director of the Rush University Hemophilia and Thrombophilia Center in Chicago, IL, USA for more than two decades until he retired from academic medicine in 2013. Dr. Valentino then worked in the biopharmaceutical industry for seven years at Baxter Healthcare, Baxalta, Shire, and most recently at Spark Therapeutics, where he was Vice President and strategy lead for hematology. During his long career as a hematologist, he treated many patients with hemophilia, von Willebrand Disease, platelet disorders and rare bleeding disorders, as well as those with hereditary thrombotic disorders. He has published more than 160 peer-reviewed manuscripts and participated in phase 1, 2 and 3 clinical research trials as well as leading a basic science research laboratory investigating the molecular basis of joint disease in hemophilia patients. He joined the National Hemophilia Foundation in February 2020.
Andreina Tovar
Andreina Tovar has a bachelor’s degree in economics and further studies in Social Corporate Responsibility and over fifteen years of experience in the development and implementation of healthcare, education, and development programs. Andreina started her career in compliance and financial reporting at Smurfit Kappa Cartón de Venezuela for three years before being appointed head of the company’s Social Responsibility Department which focused on delivering education and healthcare services to the company’s neighbouring impoverished communities for four years. In that role Andreina worked directly with local governments and the community to improve access to health services and education. She also represented the Smurfit Kappa Foundation in RedAmerica a network of private foundations that promotes the transformation of investment and social practices of companies and foundations in Latin America for the development of sustainable communities. Andreina moved to Montreal, Canada in 2011 and for over 9 years, has been a member of the WFH staff in different capacities, currently as Head of Global Training Programs she oversees a number of WFH healthcare development programs such as the International Hemophilia Training Centre (IHTC) Fellowship program, the Twinning program, the International External Quality Assessment Scheme (IEQAS) program, the Women’s Initiative, the Youth Leadership program and Susan Skinner Memorial Fund Scholarships as well as the Global National Member Organization Training amongst others. Andreina’s career has been marked by a dedication to help those in need. A creative and curious soul, she has travelled to numerous countries, lived in Australia and the UK, treasures family and friendship, and loves baking.
Brian O’Mahony
Brian O’Mahony is Chief Executive of the Irish Haemophilia Society. He represents the society on the statutory National Haemophilia Council, the statutory Hepatitis C Consultative Council and he is the Vice Chair of the Tender Commission established by the Irish Government for the Procurement of Factor Concentrates and haemophilia medications. He is a member of the Board of the Irish Blood Transfusion Service. He previously served as Chair of the Irish Haemophilia Society for 17 years from 1987 to 2003. He served as President of the European Haemophilia Consortium (EHC) for 8 years from 2011 to 2019 and as President of the World Federation of Hemophilia (WFH) for 10 years from 1994 to 2004. He is currently a member of the Coagulation Product Safety Supply and Access (CPSSA) committee of the WFH and of the Medical and Scientific Advisory Group (MASAG) of the EHC. His publications for WFH include Monographs on Advocacy, Developing Haemophilia Organisations, Economics and Health Technology Assessments and A Guidebook on National Tender Systems. He is the author or co-author of more than 80 peer reviewed journal articles, and he is an ad-hoc reviewer for the journal Haemophilia. He is a Fellow of the Academy of Clinical Science and Laboratory Medicine (Ireland) and a Fellow of the Institute of Biomedical Sciences (UK). He has post graduate qualifications in Management and in Occupational Health and Safety and is currently an assistant adjunct Professor in Health Service Management in Trinity College, Dublin. Brian O’Mahony has severe Haemophilia B.
Mina (Kate) Hill
Mina Hill (Kate) is a 52-year-old professional nurse from South Africa. She has been a Speciality Professional Nurse for more than 20 years. She has worked in Neonatal, Paediatric and Geriatric nursing. She obtained her Bachelor Degree in Neonatology at University of Pretoria, which included Nursing Management and Education. She holds the position of Professional Nurse Coordinator with the South African Haemophilia Foundation (SAHF) Her duties include Facilitation, Outreach and Haemophilia Genetic Counselling with the SAHF Geneticist to identify patients and support them and their families. She has served as the secretary of South African Haemophilia Nurses Committee (SAHN) from 2013- 2015. She has also served as Chairperson of SAHN Committee 2017-2022.
Victor Jimenez
Víctor Jiménez-Yuste is Associate Professor of Medicine at the Universidad Autónoma de Madrid and Head of the Hematology Department at the Hospital Universitario La Paz (Madrid, Spain). After his degree in Medicine at the University of Valladolid, he specialized in hematology at the Hospital Universitario La Paz. He was awarded his PhD by the Autónoma University of Madrid where he completed his thesis studying haemophilia and HIV infection. Professor Jiménez-Yuste is a member of the executive committee of the Spanish Society of Hematology and Hemotherapy. His lines of research include the treatment of hereditary coagulation disorders, ITP, and acquired hemophilia. He has published more than 200 articles in different journals on these topics.
